The Act on Secondary Use of Health and Social Data enables effective and secure use of health and social data.

1. SECONDARY USE OF HEALTH AND
SOCIAL DATA
Contents of the presentation:
• What does the secondary use of health and social data mean?
• What are the objectives of the Act on Secondary Use of Health
and Social Data?
• What are the benefits of being able to use health and social data
for secondary purposes?
The Act on Secondary Use of Health and Social Data enables effective and
secure use of health and social data.

2. PRIMARY AND SECONDARY USE OF PERSONAL
DATA

3. ACT ON SECONDARY USE OF HEALTH AND
SOCIAL DATA (552/2019)
The purpose of the Act is to
• enable the effective and secure processing of personal
data stored in connection with healthcare and social
welfare activities.
The Act will facilitate
• the smoother and faster processing of data permits
• the smoother collation of data from different registers
• the easier and more efficient use of valuable social and health
materials in research and development activities
• knowledge management among service providers.
The Act will improve data security.

4. Who benefits from the secondary use of
health and social services data?
Citizens,
clients of
health and
social
services
ICT
companies
Pharma-
ceutical
companies
Manage-
ment
of health
and social
services
Start-ups
Healthcare
and social
welfare
professionals
Development
organisations
Service
providers
National
economy
Research
institutes
and
universities
ENABLING LEGISLATION

5. BENEFITS FOR PEOPLE
• Stronger knowledge base and more
research data
• better services, effective medicines,
technology promoting health
• individual care, effective treatment
• well-functioning healthcare and social
welfare processes and systems

6. 29.5.2019 Etunimi Sukunimi6 29.5.2019 First name Surname6
 smoother permit procedure for data
needed for research
 faster process for applying data permits
and materials
 researchers have access to ready-
combined data
 one single authority makes decisions on
permits regarding several registers
 the data permit authority provides a secure
user environment
BENEFITS FOR RESEARCHERS

7. BENEFITS FOR COMPANIES
• quicker access to comprehensive ready-combined data
• better innovation opportunities
• new areas for applications
• better opportunities for product development
• better opportunities to develop services and business
environments
• more workplaces, more revenue to the national economy

8. BENEFITS FOR SERVICE PROVIDERS
Service providers will be able to
use their register data for
knowledge management in real
time.
Creating new service
innovations becomes easier.
Combining healthcare and
social welfare data becomes
easier.
Following up, developing and
comparing services and their impacts
becomes easier.
The service system can be developed
towards a more client-oriented
approach.
Services can be improved and made
more effective, health and social
service packages will function better for
clients (for example for clients who
need many services)

9. HOW TO PROCEED TO GET DATA PERMITS
AND MATERIAL?
Request for
licence or
data
via an
electronic
system
Data permit authority
• grants a data permit or accepts the data
request, notifies the decision to the person
requesting information
• collects the data, combines and processes
them and releases the information to be used
in a secure environment
• gives advice and guidance
Data controllers
• Advice service, data resource descriptions and release of data
for handling a licence application or data request. Releases data
licensed by the data permit authority.
• Handles the data permit requests concerning the controller’s
own register data. Releases the data in cases where the data
permit does not apply to data of any other data controller.
Person/
organisation
in need of
information

10. THE ACT WILL APPLY TO THE FOLLOWING
REGISTER DATA
• Data stored in Kanta services
• Register data from healthcare and social welfare services (from public and private sectors)
• Data on social benefits and pensions from the Social Insurance Institution (Kela) and the
Finnish Centre for Pensions
• National registers and survey materials
• National Institute for Health and Welfare (THL)
• Social Insurance Institution of Finland (Kela)
• Finnish Centre for Pensions (ETK)
• Data from Statistics Finland’s register on causes of death
• Information on health and social services from the National Supervisory Authority for
Welfare and Health, the Finnish Medicines Agency (Fimea), the Finnish Institute of
Occupational Health and the regional state administrative agencies
• Basic information on persons and buildings from the Population Register Centre, for
purposes laid down by law

11. TURNING RAW MATERIALS
INTO A NATIONAL ASSET
Use of
materials
Handling
of
materials
Materials
Development
and innovations Education
Information
management
Guidance and
enforcement
Planning
surveys
Statistics
DATA PERMIT AUTHORITY AND SERVICE OPERATOR
Data requests:
data permits, prior evaluation of ethics,
data protection
Data transfers:
OPERATIONAL SYSTEMS WITHIN HEALTHCARE AND SOCIAL WELFARE
Biobanks and
Genome Centre
Kanta portal and
My Kanta
(Omakanta)
National registers
on health and
social services
Statistics on health
and social services
Socioeconomic
data
Research
Compilation, combination,
release and protection of
information

12. IMPACTS OF THE NEW ACT
New, centralised permit
authority and secure use
environment
Combination of data, ready-to-
use material
Improved opportunities for
research and product
development
Faster access to
information, wider range of
purposes for data use
Accelerated pace for
research, improved
treatments
New businesses, products
and services

13. Further information:
Jukka Lähesmaa
Email: firstname.lastname@stm.fi
https://stm.fi/en/secondary-use-of-health-and-social-
data
Ministry of Social Affairs and Health
Website: stm.fi
Twitter: SHM_News
The Act on Secondary Use of Health and
Social Data will make the use of data
smoother and more secure