Derick Mitchell (IPPOSI) made this presentation at the Health Informatics Society of Ireland at the HISI annual conference.

2. Today’s Theme:
In Electronic Health Records We Trust?
Building trust between patients / service users + other
stakeholders in the development of EHRs in Ireland
1. Data sharing & use
2. Patient-clinician relationships
What contributions do patients want to make?
Challenges?
Opportunities?

3. What is an Electronic Health Record?

4. What is the National Electronic Health Record?
Moving
from
paper
records
locked
in
organisations
to
a
digital
patient
record
shared
across
care
settings
Main
Components
Examples:
• Order
Communications
/
Results
Reporting
• Medicines
Management
• Clinical
Notesstems
Examples:
• Single
Master
Patient
Index
• Scheduling
• Clinical
Notes
/
Records
• Screening
&
Surveillance
National
Shared
Record
Community
Operational
Systems
Acute
Operational
Systems
Individual
Health
Identifier
The
“glue”
that
binds
all
this
together
and
maintains
integrity
and
security
across
the
system
The
Individual
Health
Identifier
Programme
is
a
key
enabler
that
allows
information
to
be
shared
about
a
patient
Pharmacy
GP
Systems
Private
Hospitals
Other
healthcare
providers
will
access
and
contribute
to
the
National
Shared
Record
through
the
Integration
Capability

5. What do Irish people think?

6. What are the benefits for patients?
• From having your health data stored in one place?
• From sharing your information and data?
• for research
• for evaluating and improving health, social care services?
• From how it afffects the relationship with your
clinician?

7. Potential Challenges / Opportunities
• Workload
• Sharing Information
• Access to Information
• Record Content
• Confidentiality
• Patient Consent
• Implementation

8. Northern Ireland eCR (estab. 2013)
• Provides clinicians with access to patient information
• Patients can see their data, opt-out policy
• +3 years – very few patients refusing a request to view data
• Consultations flow a lot better
• If used to access info for 30+ patients, saves up to 60 mins daily
• Better quality of interaction
• Frees up time for the ‘while I’m here’ scenario

9. Realising full potential of patient registries
• 109 ‘national data collections’ (HIQA, 2014)
• Under Health Info Bill, Minister will be able to insist that people mandatorily
return to a limited number of gold standard registries
• Current challenges are stark:
• Patient consent
• Data Management
• Governance
• Cost of capturing data
• Sustainability