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Holistic concept in treatment of
children & adult affected with
Cerebral Palsy
Dr Jitendra Kumar Jain
Consultant Pediatric Orthopedic Surgeon
Secretary , Samvedna “trust for children with special need”
Chairman, Trishla Foundation
Allahabad, UP
www.samvednatrust.com, www.trishlaortho.com
Fb: samvednatrust.cerebralpalsy, jitendra.jain.35513800
You tube: jjain999
Email: samvedna9453039213@gmail.com
Cerebral Palsy ?
It is not a disease
It is group of Neuro-motor disorder which
comprises of motor dysfunction, disturbance of
sensation, perception, cognition, communication ,
behavior, epilepsy, hearing, speech & immunity
etc.
It is a life long condition that affect individual &
his immediate surrounding
Etiopatholgy ?
Non-progressive disturbances in the
developing fetal or infant brain upto 3 year of
postnatal period.
Severity of Lesion may range from sectoral
defect to global affection of brain
The brain injury is static; it is not progressive.
However, the dysfunctions or disabilities
associated with cerebral palsy can be static,
progressive or regressive.
• Spectrum of presentation range from clumsiness
in gait to severe disability.
Cont.
Cont.
It can
present in a
Variety
of manner
No cure for cerebral palsy as Brain
damage can not be repaired.
Our aim of management is to rehabilitate the
child to their maximum ability & diminish their
disability & impairment by all means
Goal is to allow the individual live with
least impact of disability
Any cure ?
What you will do in this case ?
What the parents & family want
from us !
Cont.
• Even small degrees of improvement
makes a great difference. Getting a
child to walk, be it in crutches, in
braces or with a walker, is much
better than having him in a
wheelchair.
Prognosis
 With Early intervention more than 8o% children
can be given fully acceptable life in society
 Quality of life & survival in CP child with
Ambulatory capability with or without walking
aid is roughly equal to normal population
 More than 70% children with mild to moderate
affection have nearly normal IQ
 Can be active, productive members of their
communities.
 Can have jobs, live independently, marry, have
children & retire
These children can also excel in all
the activity given to them !
Standard Treatment protocol ?
• Developmental Physiotherapy along with
judicious use of light wt polypropylene brace
& walking aid is the mainstay of treatment.
• NDT, SI, TRP, MRP, CIMT, Context therapy,
Strength training, Mirror therapy, FES,
Hydrotherapy, Horse riding etc are few
example of therapeutic technique
• Task oriented (context therapy )
+ child oriented therapy
• Training in Activity of Daily Living
Halt in progress ?
• Still most of the spastic children stop
showing progress after getting certain
milestone at some age in his early life even
after good physiotherapy & rehabilitation
Why it is so ?
• Contracture and bony deformities are going to
occurs in most of the children with hypertonic
cerebral palsy (Cosgrove & Graham, 1994).
• Without intervention detrimental changes
in gait & function can occur over time
span as short as 1.5 years.
What they need ?
• Interventional modality to prevent / slow
the progression / treat the negative
consequences
• Continuation of good therapeutic
modality & ADL
• Judicious use of day / night
polypropylene bracing & walking aid
• Control of weight
Quality of ideal intervention modality
• Selective spasticity control without any
negative impact on already weakened muscle
& Postural control
• Early rehabilitation
• Short & painless hospitalization
• Avoid repeated intervention
• Can prevent future progression of deformity
Intervention modality ?
Intervention modality for early age (2-6 year age)
• Botulinum toxin
Intervention modality after age 6
• Orthopedic surgery-
Older concept: Orthopedic surgery
• Multistage surgery
• Repeated surgical intervention i.e.. birthday
syndrome
• Child had always left out with deformity despite
repeated surgery
• Risk of deformity spread to adjacent joints
(dislocation) and to the skeleton (bony torsion) during
the ‘waiting-time’ for surgery
• Selective control of spasticity was not possible
• Recurrence / overcorrection
• Some times ambulatory children become non-
ambulatory
Cont.
Why orthopedic surgery is given
discredit?
• Orthopedic surgery in cerebral palsy
is largely discredited because of
inappropriate case selection, wrong
operation, traditional concept and
wrong decision.
Advancement in orthopedic surgery
Orthopedic Selective Spasticity Control Surgery (OSSCS)
Tendon transfer
Lever arm restoration
Early surgical intervention
Single Event Multilevel Corrective Surgery
(SEMLS)
Single Event Multi Level surgery by OSSCS concept
with some modification
(SEMLOSSS)
Basic concept of OSSCS
A: Antigravity monoarticular muscles support the body to be upright.
B: Multi-articular muscles co-exist in the human body.
C: When the multi-articular muscles are lengthened or sectioned selectively,
then hypertonicity of these muscles are reduced. the mono-articular
muscles are preserved and facilitated.
D. With this concept of Selective Spasticity control we can achieve good
balance of muscle tone in whole body
Concept By
Takashi Matsua
Japan
Tendon transfer
• Rarely required but very useful in certain problem like weak
wrist extension, foot varus & delayed knee flexion in swing
phase
• Only in spastic cerebral palsy
• Partial / complete tendon transfer
• Very much helpful in replacing function of weakened
muscle
• Use in hand (FCU to ECRB) / foot (Tibialis Ant half tendon
/ Tibialis posterior) / knee problem (Rectus Femoris)
Lever arm restoration
• Lever arm dysfunction- Disruption in the
muscle joint complex due to an ineffective
lever arm moment despite normal muscle force
results in functional weakness & decrease
power generation eq. hip dislocation, increase
hip anteversion, bony torsion, planovalgus feet
• Lever arm restoration by Corrective/
Derotational Osteotomy
Ideal age ?
• The development of walking skill is completed by the
age of five to six years (J Bone Joint Surg Am.
1980;62:336-353. DH Sutherland et al)
• So surgery can be performed after achieving walking
skill (> 6 year)
• Neither too early nor too late
• 6-9 year is ideal age
• Can be done at any age when
1. Progression has stopped with all therapeutic
modalities
2. Child has already developed permanent sequel like
fixed contracture, bony torsion, joint dislocation or at
risk
SEMLS
• Sectoral or global
damage of brain
• Whole extremity
• > 30 muscle are involved
in single step of gait
• Best result if all
abnormalities are detected
before surgery &
corrected in single setting
surgery (Izumi K, et all.
Dev Med & Child Neuro
2004, 46: 540–547)
SEMLOSSS
• Every spastic muscle, contracture, bony & joint deformity
managed in single anesthesia setting (SEMLS)
• Surgical technique based on concept of orthopedic
selective spasticity control surgery (OSSCS) with
some modification
• Myofascial release of multiarticular spastic muscle
• Sparing of short monoarticular antigravity muscle
• Aponurotic & myofascial release more frequently
lesser tendon lengthening
• Tendon transfer along with lever arm restoration if
needed
Cont.
• Surgical planning is based on repeated evaluation
preoperatively by video gait analysis, detail
musculoskeletal evaluation and reconfirmation
during anesthesia
• Usually perform under regional block like spinal/
epidural/ brachial anesthesia
• Mini incision technique with aesthetic scar
• Plaster for only 10-12 days
• Shorter & pain less hospital stay (2 day )
• Early start of therapy (2 week)
Cont.
Benefit of SEMLOSSS
• All spasticity, contracture, muscle imbalance & bony
deformity corrected in single setting anesthesia
• No loss of antigravity activity
• Improve the appearance, speed & efficiency of gait by
simultaneously realignment of the lower extremity, patho
mechanics of the hip, knee and ankle in single stage
• Drastic decrease in recurrence & subsequent surgery
• Decrease psychological trauma to parents & children
• It enhance the recovery, speedup, decrease time frame,
easy therapy & better cooperation from child & parents
My experience
• 12 year of experience
• 120 camps in more than 12 state
• Total number of CP affected children & adult -
15000
• SEMLOSSS in 320 (age group-6yr to 32 yr)
• Botulinum toxin in 280
• Therapy at center based at Allahabad – 2000
• Others mx at home and other center
• More than 500 children are attending normal
school
Cont.
• Traditional SEMLS from beginning & change to
SEMLOSSS in year 2008
• Early surgical intervention (6.5 to 9 year) – excellent
recovery without any recurrence of deformity or
increase in disability with aging (6 year follow-up ) &
early recovery (3-4 month )
• Late surgical intervention is also effective in elder age
but took longer time to recover (9mth to 1 year ) with
some residual deformity
• We took SEMLOSSS not as a surgical tool but as a part
of total rehabilitation
• This technique has shown us a new path in these
children
Glimpse of few children mx by
SEMLOSSS
Post operative protocol
• Plaster splint for short duration (10-14 day)
• Intensive phase (early & middle phase) & maintenance
therapy (late phase)
• Rehab Start with early phase of relaxation exercises
comprise of Myofascial massage to relieve pain &
spasm, slow & gentle joint mobilization (2-4 week)
• Middle phase comprise of Strength training exercise,
FES, Gait training ( after 4 week of surgery )
• Proper braces & walking aid
Cont.
• Late phase – training in ADL & higher
function after achievement of good muscle
power & balance
• Slow increase in intensity of therapeutic
exercise
• Intensive therapy time-- Early age surgical
intervention (3-6 mth) & late age surgical
intervention (6-12 mth)
• Maintenance phase-- Home based therapy in
higher function & ADL till the maturity .
Message
• SEMLOSSS is not only surgery but it is Good
rehabilitation tool
• Not to be lost resort
• Permanent correction of deformity, good balance of
muscle tone with rare possibility of deformity recurrence
• Successful rehab surgery give all round acceleration of
other function like learning, personality development ,
behavior along with motor function recovery.
• Now advance orthopedic surgical intervention is being
considered an important incident in total management of
patient with spastic cerebral palsy.
Holistic concept in treatment of Cerebral Palsy

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Holistic concept in treatment of Cerebral Palsy

  • 1. Holistic concept in treatment of children & adult affected with Cerebral Palsy Dr Jitendra Kumar Jain Consultant Pediatric Orthopedic Surgeon Secretary , Samvedna “trust for children with special need” Chairman, Trishla Foundation Allahabad, UP www.samvednatrust.com, www.trishlaortho.com Fb: samvednatrust.cerebralpalsy, jitendra.jain.35513800 You tube: jjain999 Email: samvedna9453039213@gmail.com
  • 2. Cerebral Palsy ? It is not a disease It is group of Neuro-motor disorder which comprises of motor dysfunction, disturbance of sensation, perception, cognition, communication , behavior, epilepsy, hearing, speech & immunity etc. It is a life long condition that affect individual & his immediate surrounding
  • 3. Etiopatholgy ? Non-progressive disturbances in the developing fetal or infant brain upto 3 year of postnatal period. Severity of Lesion may range from sectoral defect to global affection of brain The brain injury is static; it is not progressive. However, the dysfunctions or disabilities associated with cerebral palsy can be static, progressive or regressive.
  • 4. • Spectrum of presentation range from clumsiness in gait to severe disability. Cont.
  • 5. Cont. It can present in a Variety of manner
  • 6. No cure for cerebral palsy as Brain damage can not be repaired. Our aim of management is to rehabilitate the child to their maximum ability & diminish their disability & impairment by all means Goal is to allow the individual live with least impact of disability Any cure ?
  • 7. What you will do in this case ?
  • 8. What the parents & family want from us !
  • 9. Cont. • Even small degrees of improvement makes a great difference. Getting a child to walk, be it in crutches, in braces or with a walker, is much better than having him in a wheelchair.
  • 10. Prognosis  With Early intervention more than 8o% children can be given fully acceptable life in society  Quality of life & survival in CP child with Ambulatory capability with or without walking aid is roughly equal to normal population  More than 70% children with mild to moderate affection have nearly normal IQ  Can be active, productive members of their communities.  Can have jobs, live independently, marry, have children & retire
  • 11. These children can also excel in all the activity given to them !
  • 12. Standard Treatment protocol ? • Developmental Physiotherapy along with judicious use of light wt polypropylene brace & walking aid is the mainstay of treatment. • NDT, SI, TRP, MRP, CIMT, Context therapy, Strength training, Mirror therapy, FES, Hydrotherapy, Horse riding etc are few example of therapeutic technique • Task oriented (context therapy ) + child oriented therapy • Training in Activity of Daily Living
  • 13. Halt in progress ? • Still most of the spastic children stop showing progress after getting certain milestone at some age in his early life even after good physiotherapy & rehabilitation
  • 14. Why it is so ? • Contracture and bony deformities are going to occurs in most of the children with hypertonic cerebral palsy (Cosgrove & Graham, 1994). • Without intervention detrimental changes in gait & function can occur over time span as short as 1.5 years.
  • 15. What they need ? • Interventional modality to prevent / slow the progression / treat the negative consequences • Continuation of good therapeutic modality & ADL • Judicious use of day / night polypropylene bracing & walking aid • Control of weight
  • 16. Quality of ideal intervention modality • Selective spasticity control without any negative impact on already weakened muscle & Postural control • Early rehabilitation • Short & painless hospitalization • Avoid repeated intervention • Can prevent future progression of deformity
  • 17. Intervention modality ? Intervention modality for early age (2-6 year age) • Botulinum toxin Intervention modality after age 6 • Orthopedic surgery-
  • 18. Older concept: Orthopedic surgery • Multistage surgery • Repeated surgical intervention i.e.. birthday syndrome • Child had always left out with deformity despite repeated surgery • Risk of deformity spread to adjacent joints (dislocation) and to the skeleton (bony torsion) during the ‘waiting-time’ for surgery • Selective control of spasticity was not possible • Recurrence / overcorrection • Some times ambulatory children become non- ambulatory
  • 19. Cont.
  • 20. Why orthopedic surgery is given discredit? • Orthopedic surgery in cerebral palsy is largely discredited because of inappropriate case selection, wrong operation, traditional concept and wrong decision.
  • 21. Advancement in orthopedic surgery Orthopedic Selective Spasticity Control Surgery (OSSCS) Tendon transfer Lever arm restoration Early surgical intervention Single Event Multilevel Corrective Surgery (SEMLS) Single Event Multi Level surgery by OSSCS concept with some modification (SEMLOSSS)
  • 22. Basic concept of OSSCS A: Antigravity monoarticular muscles support the body to be upright. B: Multi-articular muscles co-exist in the human body. C: When the multi-articular muscles are lengthened or sectioned selectively, then hypertonicity of these muscles are reduced. the mono-articular muscles are preserved and facilitated. D. With this concept of Selective Spasticity control we can achieve good balance of muscle tone in whole body Concept By Takashi Matsua Japan
  • 23. Tendon transfer • Rarely required but very useful in certain problem like weak wrist extension, foot varus & delayed knee flexion in swing phase • Only in spastic cerebral palsy • Partial / complete tendon transfer • Very much helpful in replacing function of weakened muscle • Use in hand (FCU to ECRB) / foot (Tibialis Ant half tendon / Tibialis posterior) / knee problem (Rectus Femoris)
  • 24. Lever arm restoration • Lever arm dysfunction- Disruption in the muscle joint complex due to an ineffective lever arm moment despite normal muscle force results in functional weakness & decrease power generation eq. hip dislocation, increase hip anteversion, bony torsion, planovalgus feet • Lever arm restoration by Corrective/ Derotational Osteotomy
  • 25. Ideal age ? • The development of walking skill is completed by the age of five to six years (J Bone Joint Surg Am. 1980;62:336-353. DH Sutherland et al) • So surgery can be performed after achieving walking skill (> 6 year) • Neither too early nor too late • 6-9 year is ideal age • Can be done at any age when 1. Progression has stopped with all therapeutic modalities 2. Child has already developed permanent sequel like fixed contracture, bony torsion, joint dislocation or at risk
  • 26. SEMLS • Sectoral or global damage of brain • Whole extremity • > 30 muscle are involved in single step of gait • Best result if all abnormalities are detected before surgery & corrected in single setting surgery (Izumi K, et all. Dev Med & Child Neuro 2004, 46: 540–547)
  • 27. SEMLOSSS • Every spastic muscle, contracture, bony & joint deformity managed in single anesthesia setting (SEMLS) • Surgical technique based on concept of orthopedic selective spasticity control surgery (OSSCS) with some modification • Myofascial release of multiarticular spastic muscle • Sparing of short monoarticular antigravity muscle • Aponurotic & myofascial release more frequently lesser tendon lengthening • Tendon transfer along with lever arm restoration if needed
  • 28. Cont. • Surgical planning is based on repeated evaluation preoperatively by video gait analysis, detail musculoskeletal evaluation and reconfirmation during anesthesia • Usually perform under regional block like spinal/ epidural/ brachial anesthesia • Mini incision technique with aesthetic scar • Plaster for only 10-12 days • Shorter & pain less hospital stay (2 day ) • Early start of therapy (2 week)
  • 29. Cont.
  • 30. Benefit of SEMLOSSS • All spasticity, contracture, muscle imbalance & bony deformity corrected in single setting anesthesia • No loss of antigravity activity • Improve the appearance, speed & efficiency of gait by simultaneously realignment of the lower extremity, patho mechanics of the hip, knee and ankle in single stage • Drastic decrease in recurrence & subsequent surgery • Decrease psychological trauma to parents & children • It enhance the recovery, speedup, decrease time frame, easy therapy & better cooperation from child & parents
  • 31. My experience • 12 year of experience • 120 camps in more than 12 state • Total number of CP affected children & adult - 15000 • SEMLOSSS in 320 (age group-6yr to 32 yr) • Botulinum toxin in 280 • Therapy at center based at Allahabad – 2000 • Others mx at home and other center • More than 500 children are attending normal school
  • 32. Cont. • Traditional SEMLS from beginning & change to SEMLOSSS in year 2008 • Early surgical intervention (6.5 to 9 year) – excellent recovery without any recurrence of deformity or increase in disability with aging (6 year follow-up ) & early recovery (3-4 month ) • Late surgical intervention is also effective in elder age but took longer time to recover (9mth to 1 year ) with some residual deformity • We took SEMLOSSS not as a surgical tool but as a part of total rehabilitation • This technique has shown us a new path in these children
  • 33. Glimpse of few children mx by SEMLOSSS
  • 34. Post operative protocol • Plaster splint for short duration (10-14 day) • Intensive phase (early & middle phase) & maintenance therapy (late phase) • Rehab Start with early phase of relaxation exercises comprise of Myofascial massage to relieve pain & spasm, slow & gentle joint mobilization (2-4 week) • Middle phase comprise of Strength training exercise, FES, Gait training ( after 4 week of surgery ) • Proper braces & walking aid
  • 35. Cont. • Late phase – training in ADL & higher function after achievement of good muscle power & balance • Slow increase in intensity of therapeutic exercise • Intensive therapy time-- Early age surgical intervention (3-6 mth) & late age surgical intervention (6-12 mth) • Maintenance phase-- Home based therapy in higher function & ADL till the maturity .
  • 36. Message • SEMLOSSS is not only surgery but it is Good rehabilitation tool • Not to be lost resort • Permanent correction of deformity, good balance of muscle tone with rare possibility of deformity recurrence • Successful rehab surgery give all round acceleration of other function like learning, personality development , behavior along with motor function recovery. • Now advance orthopedic surgical intervention is being considered an important incident in total management of patient with spastic cerebral palsy.

Editor's Notes

  1. . Before going to discuss different aspect of treatment methodology , I would like to discuss few points regarding its presentation and disability because it is going to affect our treatment strategy. With the success of polio eradication Programme, cerebral palsy now became most common cause of childhood physical disability. now we are going to get more number of cases because incidence is increasing because more number of premature baby are being saved due to better neonatal care so we should prepare our self to tackle this problem . Cerebral palsy can present in a variety of manner from little clumsiness in gait to sever disability. This problem can not be leveled as a disease but it is a group of nuromotor disorder like physical disability, sensory, speech, hearing, visual and convulsive disorder. and their physical disability is going to increase with the age and weight gain if timely intervention not been done . because of this complex problem parents start running from pillar to pillar and before coming to you they must have gone to number of other specialist. They became very much frustrated and exhausted with plethora of treatment plan advised by many expert with negative input . And even few parents stop going to any other doctor and kept their children in one corner of their home believing as god curse.
  2. It is dictum from centuries that cerebral palsy can not be treated up to completely but we can give a chance to these to increase their ability and minimize their disability up to great extent so that they can be integrated in main stream of society.