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TWITTER & CONNECTING PEOPLE WITH
COMMUNICATION DISABILITY
Associate Professor Bronwyn Hemsley
The University of Newcastle
Public Lecture
Edith Cowan University
4th June 2015
Part II
#ECUsocmed
ACKNOWLEDGEMENTS
• Susan Balandin
• Stephen Dann
• Stuart Palmer
• Meredith Allan
• Leanne Togher
• Melissa Brunner
• All participants
• FUNDING – Australian Research Council Discovery
Early Career Research Award (DECRA) 2014-2017
PUBLICATIONS ON WHICH THIS
PRESENTATION IS BASED
“Tweet Reach” sets out the rationale and method
http://informahealthcare.com/doi/abs/10.3109/1751
8423.2013.861529 (Open Access)
Social Media and TBI (Literature review)
http://informahealthcare.com/doi/abs/10.3109/0963
8288.2015.1045992
“We definitely need an audience”
http://informahealthcare.com/doi/abs/10.3109/0963
8288.2015.1045990 (Open Access)
5 people who use AAC
Hemsley, Balandin, Palmer, and Dann, 2015. Disability and Rehabilitation.
#ECUsocmed
“We definitely need an audience”: Experiences of
Twitter, Twitter Networks, and tweet content in adults
with severe communication disabilities who use
augmentative and alternative communication
(AAC).
STRUCTURAL LAYERS OF TWITTER
http://snurb.info/files/2014/Twitter%20and%20Society%20-
%20Structural%20Layers%20of%20Communication%20on%2
0Twitter%20(2014).pdf
Meso is
tweets to
followers
Micro is to
individual
Macro to
hashtag
communiti
es
#ECUsocmed
CONTENT OF TWEETS
Stephen Dann, Codebook (in press) 2015 chapter
@Mentions
reporting
links,
ReTweets
‘greetings’
diary of
daily life
#ECUsocmed
5 TWEETERS
#ECUsocmed
#ECUsocmed
A TWEET NETWORK
#ECUsocmed
UNDIRECTED & DIRECTED
TWEETS
(POTENTIAL) ADVANTAGES FOR
PEOPLE WITH DISABILITIES
• Free, tolerates poor spelling and grammar
• Public
• Part of a ‘multi-modal’ aspect of life (TV now
integrates tweets)
• Disability may not be visible
• Short messages
• Links, pictures, videos, hashtags that help to
find information and people
• People link from Facebook to Twitter (or
Instagram)
• Growing self-employment/industry contacts
• Use during emergencies
#PMHsocmed
(POTENTIAL) DISADVANTAGES
FOR PEOPLE WITH DISABILITY
• Pace is very fast and high demand on
literacy
• Twitter can be ‘confusing’ to start with
• ‘Reading between the lines’ as in any
‘social’ media
• Potential for misinterpretation high with
short messages
• Can take a while to build up a ‘network’
that ‘feeds’ the connections and content
#PMHsocmed
Privacy
Confidentiality
Personal control? Help to Use?
What information
is stored?
We need to talk .. (social
media)
(eHealth records online)
issues arising
#ECUsocmed
Social Media & In
Person Connectivity
Online + Offline =
Real
Online eHealth
Records
connections with
health professionals
Connectivity and
Safety
Information
Communication
Technologies
Participation & Inclusion
Communities
Disability and Inclusion Online
#ECUsocmed
IS SOCIAL MEDIA REALLY A ‘LEVEL
PLAYING FIELD’?
http://blogwillis.zippykid.netdna-cdn.com/wp-
content/uploads/2012/07/unlevel-playing-
#ECUsocmed
WHO CHOOSES IF A PERSON WITH
DISABILITY USES SOCIAL MEDIA?
• Substitute decision-making
• Supported decision-making
• Informed consent
• Autonomy
• Veracity
• Fairness
• Equity
• Self Determination
#ECUsocmed
LET’S LEVEL THE PLAYING FIELD
• How do we support
people with I/DD to
use social media?
• Who may be able
to use social media
such as Twitter or
Second Life?
#ECUsocmed
SUPPORTS NEEDED FOR ICT OF SOCIAL
MEDIA
• Social Media is a form of ‘Information Communication
Technology
• Social Media use relies on access to the technologies and a
range of supports – but what are they, and how much support
is needed?
• Finances (funding to participate in social media)
• IT Supports
• Internet access
• Physical supports
• Adapted technologies
• Assistive technologies
• Literacy support
• Telecommunication supports
• Supports needed are both ‘planned’ and ‘just-in-time’
supports (on the spot)
• Supports can be provided both ‘in-person’ and ‘online’
#ECUsocmed
SPECIAL ISSUE: SOCIAL MEDIA AND
COMMUNICATION DISABILITY (2015)
Special Issue edited by
Bronwyn Hemsley and
Janice Murray
8 papers
#ECUsocmed
SPECIAL ISSUE: SOCIAL MEDIA AND COMMUNICATION
DISABILITY (SLATED FOR ISSUE 17)
HEMSLEY
“We definitely need an audience”: Experiences of Twitter,
Twitter Networks, and tweet content in adults with severe
communication disabilities who use augmentative and
alternative communication (AAC).
HYNAN
A grounded theory of Internet and online social media use
by young people who use Augmentative and Alternative
Communication
RAGHAVENDRA
Enhancing social participation in young people with
communication disabilities living in rural Australia:
Outcomes of a home-based intervention for using social
media
PATTERSON
How do adults with acquired communication needs
experience and make decisions about the communication
methods they choose?
DAVIS
Teachers' perceptions of Twitter for professional
development
STENDAL
Virtual worlds for people with autism spectrum disorder: A
case study in Second Life
BRUNNER (early
online now)
Social media and Traumatic Brain Injury: A qualitative
metasynthesis.
BALANDIN
Teachers’ perceptions of virtual worlds as a medium for
social inclusion for adults with intellectual disability
#ECUsocmed
TWEETORIAL
• Go to www.twitter.com
• Make a profile and upload a picture, write a bio,
insert a weblink, and send your first tweet!
• Search for a person
• Search for #WeSpeechies or #Physiotalk or #Otalk
#WeNurses #NDIS #Disability #Physio #Otpeeps
#Ptpeeps #EeChat #PhDChat #AACPDM16
• Follow someone!
• Write a tweet
• Reply to a tweet
• Retweet a tweet
• Favorite a tweet
• Insert a link and send it in a tweet
• Add a hashtag (add #TweetReach and I can
reply to you!)
#ECUsocmed
TOP TIPS
• Manage cyberbullying by
recognising it early. Block
and report nuisance
accounts.
• Trolls: Ambush, Flaming,
Attacking: avoid taking the
bait. Avoid arguments in
Twitter.
• Support your network, take
care of others too. Ask ‘are
you okay?’ or step in to
defuse, or support the
person.
• Log in frequently for short periods.
• Look after your online profile –
otherwise spam and hijacks
happen!
• If you want to know, ask people
for their name (verify)
• Welcome new people to your
network.
• Reply to people who make
contact with you.
• Be social!
• Mix personal and professional as
you wish – it can work in various
ways.
#ECUsocmed
CONNECTIONS
• bronwyn.hemsley@newcastle.edu.au
@bronwynhemsley
#TweetReach #HospitalComms #MyHealthtransit
?
#ECUsocmed

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Hemsley ECU public lecture part II Social Media Twitter

  • 1. TWITTER & CONNECTING PEOPLE WITH COMMUNICATION DISABILITY Associate Professor Bronwyn Hemsley The University of Newcastle Public Lecture Edith Cowan University 4th June 2015 Part II #ECUsocmed
  • 2. ACKNOWLEDGEMENTS • Susan Balandin • Stephen Dann • Stuart Palmer • Meredith Allan • Leanne Togher • Melissa Brunner • All participants • FUNDING – Australian Research Council Discovery Early Career Research Award (DECRA) 2014-2017
  • 3. PUBLICATIONS ON WHICH THIS PRESENTATION IS BASED “Tweet Reach” sets out the rationale and method http://informahealthcare.com/doi/abs/10.3109/1751 8423.2013.861529 (Open Access) Social Media and TBI (Literature review) http://informahealthcare.com/doi/abs/10.3109/0963 8288.2015.1045992 “We definitely need an audience” http://informahealthcare.com/doi/abs/10.3109/0963 8288.2015.1045990 (Open Access)
  • 4. 5 people who use AAC Hemsley, Balandin, Palmer, and Dann, 2015. Disability and Rehabilitation. #ECUsocmed “We definitely need an audience”: Experiences of Twitter, Twitter Networks, and tweet content in adults with severe communication disabilities who use augmentative and alternative communication (AAC).
  • 5. STRUCTURAL LAYERS OF TWITTER http://snurb.info/files/2014/Twitter%20and%20Society%20- %20Structural%20Layers%20of%20Communication%20on%2 0Twitter%20(2014).pdf Meso is tweets to followers Micro is to individual Macro to hashtag communiti es #ECUsocmed
  • 6. CONTENT OF TWEETS Stephen Dann, Codebook (in press) 2015 chapter @Mentions reporting links, ReTweets ‘greetings’ diary of daily life #ECUsocmed
  • 10. (POTENTIAL) ADVANTAGES FOR PEOPLE WITH DISABILITIES • Free, tolerates poor spelling and grammar • Public • Part of a ‘multi-modal’ aspect of life (TV now integrates tweets) • Disability may not be visible • Short messages • Links, pictures, videos, hashtags that help to find information and people • People link from Facebook to Twitter (or Instagram) • Growing self-employment/industry contacts • Use during emergencies #PMHsocmed
  • 11. (POTENTIAL) DISADVANTAGES FOR PEOPLE WITH DISABILITY • Pace is very fast and high demand on literacy • Twitter can be ‘confusing’ to start with • ‘Reading between the lines’ as in any ‘social’ media • Potential for misinterpretation high with short messages • Can take a while to build up a ‘network’ that ‘feeds’ the connections and content #PMHsocmed
  • 12. Privacy Confidentiality Personal control? Help to Use? What information is stored? We need to talk .. (social media) (eHealth records online) issues arising #ECUsocmed
  • 13. Social Media & In Person Connectivity Online + Offline = Real Online eHealth Records connections with health professionals Connectivity and Safety Information Communication Technologies Participation & Inclusion Communities Disability and Inclusion Online #ECUsocmed
  • 14. IS SOCIAL MEDIA REALLY A ‘LEVEL PLAYING FIELD’? http://blogwillis.zippykid.netdna-cdn.com/wp- content/uploads/2012/07/unlevel-playing- #ECUsocmed
  • 15. WHO CHOOSES IF A PERSON WITH DISABILITY USES SOCIAL MEDIA? • Substitute decision-making • Supported decision-making • Informed consent • Autonomy • Veracity • Fairness • Equity • Self Determination #ECUsocmed
  • 16. LET’S LEVEL THE PLAYING FIELD • How do we support people with I/DD to use social media? • Who may be able to use social media such as Twitter or Second Life? #ECUsocmed
  • 17. SUPPORTS NEEDED FOR ICT OF SOCIAL MEDIA • Social Media is a form of ‘Information Communication Technology • Social Media use relies on access to the technologies and a range of supports – but what are they, and how much support is needed? • Finances (funding to participate in social media) • IT Supports • Internet access • Physical supports • Adapted technologies • Assistive technologies • Literacy support • Telecommunication supports • Supports needed are both ‘planned’ and ‘just-in-time’ supports (on the spot) • Supports can be provided both ‘in-person’ and ‘online’ #ECUsocmed
  • 18. SPECIAL ISSUE: SOCIAL MEDIA AND COMMUNICATION DISABILITY (2015) Special Issue edited by Bronwyn Hemsley and Janice Murray 8 papers #ECUsocmed
  • 19. SPECIAL ISSUE: SOCIAL MEDIA AND COMMUNICATION DISABILITY (SLATED FOR ISSUE 17) HEMSLEY “We definitely need an audience”: Experiences of Twitter, Twitter Networks, and tweet content in adults with severe communication disabilities who use augmentative and alternative communication (AAC). HYNAN A grounded theory of Internet and online social media use by young people who use Augmentative and Alternative Communication RAGHAVENDRA Enhancing social participation in young people with communication disabilities living in rural Australia: Outcomes of a home-based intervention for using social media PATTERSON How do adults with acquired communication needs experience and make decisions about the communication methods they choose? DAVIS Teachers' perceptions of Twitter for professional development STENDAL Virtual worlds for people with autism spectrum disorder: A case study in Second Life BRUNNER (early online now) Social media and Traumatic Brain Injury: A qualitative metasynthesis. BALANDIN Teachers’ perceptions of virtual worlds as a medium for social inclusion for adults with intellectual disability #ECUsocmed
  • 20. TWEETORIAL • Go to www.twitter.com • Make a profile and upload a picture, write a bio, insert a weblink, and send your first tweet! • Search for a person • Search for #WeSpeechies or #Physiotalk or #Otalk #WeNurses #NDIS #Disability #Physio #Otpeeps #Ptpeeps #EeChat #PhDChat #AACPDM16 • Follow someone! • Write a tweet • Reply to a tweet • Retweet a tweet • Favorite a tweet • Insert a link and send it in a tweet • Add a hashtag (add #TweetReach and I can reply to you!) #ECUsocmed
  • 21. TOP TIPS • Manage cyberbullying by recognising it early. Block and report nuisance accounts. • Trolls: Ambush, Flaming, Attacking: avoid taking the bait. Avoid arguments in Twitter. • Support your network, take care of others too. Ask ‘are you okay?’ or step in to defuse, or support the person. • Log in frequently for short periods. • Look after your online profile – otherwise spam and hijacks happen! • If you want to know, ask people for their name (verify) • Welcome new people to your network. • Reply to people who make contact with you. • Be social! • Mix personal and professional as you wish – it can work in various ways. #ECUsocmed