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Bronwyn Hemsley1, Ralf Schlosser2,3,4 Mark Mostert,5 Scott Lilienfeld,6 Samuel Odom,7
James Todd,8 David Trembath,9 Howard Shane 2,10,11
Russel Lang,12 & Seraphina Fong1
4
2
A systematic review of the Rapid Prompting
Method: Findings and Implications for
Speech Language Therapists worldwide
3
1 5
6
7
8
9
10
11
12
Paper Presented at #CPLOL18 10th European Congress of Speech and Language
Therapy, Estoril, Portugal on 12th May 2018
Disclosures
The authors have no relevant financial or
nonfinancial relationships to disclose.
2#CPLOL18
Our audience at #CPLOL18
New to
RPM
Uncertain
either
way
Evidence
Aware
RPM
Advocate
3#CPLOL18
BACKGROUND
4#CPLOL18
Video: Example of RPM
5#CPLOL18
Table provides a good frame of reference square to show board is being moved.
Removed for slideshare
According to Soma Mukhopadhyay,
as distilled from her Halo-Soma website and books,
Rapid Prompting Method (RPM) is:
ā€¢ A brain-based teaching and assistive method
designed to establish and promote pointing-
based textual communication in people who
cannot speak, usually autism.
ā€¢ Involves a series of ā€œteach-askā€ trials of
graduated difficulty, starting with the pupil
choosing a correct answer from two written
options, progressing through composing
responses by pointing to printed letters on a
card.
ā€¢ Linguistic competence is presumed even if
not evident, and learning materials are
presented verbally and textually at age level.
6
Image credit: Halo website
#CPLOL18
RPM theory:
An ā€˜unusualā€™ way of looking at autism
ā€¢ The Sensory Integration Theory of A. Jean
Ayers is foundational; teachers are to assess
and use the ā€œopen sensory channel.ā€
ā€¢ Some problems of autism result from a failure
of the child to move from earlier to later
Piagetian stages.
ā€¢ Teaching does not require explicit rewards as
these are built into success.
ā€¢ Autism is fundamentally a ā€œfailure of
initiation.ā€ Thus, prompts are a necessary and
probably permanent feature of RPM
assistance.
ā€¢ Self-stimulatory and other common features
of autism may be used in assessing the
ā€œopen sensory channel,ā€ but usually can be
otherwise ignored.
7
Images credit: Halo website
#CPLOL18
Why the urgency to
systematically review RPM?
1. Anecdotal reports that it is growing in popularity in US and Ireland
2. Appearance in Ireland senate (Senator RĆ³nĆ”n Mullen) (2016) and Irish Media
(Jan 2017)
3. Front page article, Washington Post (March 2017)
4. YouTube - search ā€˜Rapid Promptingā€™ yields about 1210 results (Nov 2017)
5. Appearance in occupational therapy open access literature 2017
6. Parents have a right to the highest level of evidence available in making
decisions
8
#CPLOL18
Previous Review of RPM
(Deacy et al., 2016)
Three studies were included and
ā€œfindings were summarised into
four categories. Findings appear
to indicate an association
between RPM and a decrease in
repetitive behaviours.ā€ (p. 92)
ā€œFurther research in the area of
RPM is warranted in order for it
to be considered as a qualifying
evidence-based practiceā€ (p. 92)
9
Deacy, E., Jennings, F., & O'Hallorhan, A. (2016). Rapid Prompting Method (RPM): A
suitable intervention for students with ASD?. Reach, 29(2), 92-100.
#CPLOL18
Gernsbacher (2004)
Retrospective case study of
1 child.
ā€œThe RPM core element of
ā€˜repetitive promptingā€™ is not
referred to in this study, so it
is unclear if the method used
is closer to ā€˜facilitated
communicationā€™ which has
been discredited in the
literatureā€ (p. 94). 10
Solomon (2006)
Descriptive-ethnographic
study, Compared
practice of RPM at HALO
vs. at home.
Chen et al. (2012)
Descriptive study of
RPM and repetitive
behavior.
Deacy, E., Jennings, F., & O'Hallorhan, A. (2016). Rapid
Prompting Method (RPM): A suitable intervention for students
with ASD?. Reach, 29(2), 92-100.
Previous Review of RPM
(Deacy et al., 2016)
Not all reviews are equal
Commentary on Deacy et al., review
ā€¢ Numerous methodological flaws identified in Deacy et al., 2016
ā€¢ Conflicts of interests identified for its included studies
11#CPLOL18
Aim
To determine whether RPM is effective for
individuals with ASD in terms of:
(1) improving body motor skills, speech
skills, communication skills, and
communication-related cognitive skills,
and/or
(2) reducing challenging behaviors
12#CPLOL18
Aim in PICOS Format
P (Person/Population) => Individuals with ASD
I (Intervention) => RPM
C (Comparison) => None required, any allowed
O (Outcomes) => Body motor skills, speech skills,
communication skills,
communication-related cognitive,
challenging behaviors
S (Study Design) => Single-case experimental
designs or group experimental
designs capable of showing
a functional relation between
RPM and outcomes
13#CPLOL18
METHODS
Systematic Review
14#CPLOL18
A priori Registration of Protocol
15
Inclusion Criteria
ā€¢ Participants with a documented diagnosis of ASD
ā€¢ Design that establishes a functional relationship
between RPM and outcomes
ļ‚§ If qualifying group design:
ļ‚§ (a) if only group level data were provided, all participants met ASD
criteria
ļ‚§ (b) if only some participants met ASD criteria, subgroup analyses
were provided
ļ‚§ If qualifying single-case experimental design:
ļ‚§ At least one participant met ASD criteria and data are provided for
that participant
ā€¢ RPM was the intervention studied
ā€¢ Published in a peer-reviewed journal, as a masterā€™s
thesis, as a dissertation, or full-length unpublished
manuscript
16#CPLOL18
Literature Search
17
ā€¢ Bibliographic databases
ā€¢ Cochrane Library
ā€¢ ComDisDome (ProQuest)
ā€¢ Cumulative Index of Nursing & Allied Health
Literatures (CINAHL, EBSCOhost)
ā€¢ Education Journals (ProQuest)
ā€¢ Education Research Complete (EBSCO
Host)
ā€¢ Education Resources Information
Clearinghouse (ERIC, ProQuest)
ā€¢ Google Scholar
ā€¢ Linguistics and Language Behavior Abstracts
(LLBA, ProQuest),
ā€¢ Medline (via Pubmed)
ā€¢ ProQuest Dissertations and Theses Global
ā€¢ PsycINFO (ProQuest)
ā€¢ Psychology and Behavioral Science
Collection (ProQuest)
ā€¢ Web of Science
#CPLOL18
Literature Search
18
ā€¢ Publisher-specific databases
ā€¢ Sage Journals Premier
ā€¢ ScienceDirect Elsewier
ā€¢ SpringerLink Journals
ā€¢ Taylor & Francis Online
ā€¢ Trial Registers
ā€¢ EU Clinical Trial Register
ā€¢ Australian New Zealand Clinical Trial Registry
ā€¢ Clinical Trials
ā€¢ ClinicalTrials.gov
ā€¢ ClincalTrialSearch.org
ā€¢ Ancestry Searches
ā€¢ of included and relevant other studies, reviews, book chapters, and books
ā€¢ Forward citation searches
ā€¢ Of included and other studies/papers that referenced RPM
ā€¢ Contact authors of select published peer-reviewed articles
Literature Search
19
Lessons from Preliminary Search
ā€¢ ā€œRPMā€ not a viable acronym to search
ā€¢ Author search only viable if the database
permitted a search of the full name, i.e., last
name (ā€œMukhopadhyayā€) with first initial (ā€œSā€)
ā€¢ Not necessary to combine ā€œRapid Prompting
Methodā€ with an autism-related keyword
Search Strategy
ā€¢ ā€œRapid Prompting Methodā€ as a free text
word in title, abstract, and/or full text
ā€¢ ā€œInformative pointingā€ as a free text word in
title, abstract and/or full text
#CPLOL18
Inclusion Reliability
ā€¢ First author (Schlosser) screened search results by title and
abstract
ā€¢ All documents (100%) submitted to the inclusion checklist were
evaluated by the first and second author (Hemsley)
independently from each other
ā€¢ Percent agreement on Inclusion Decision (ā€œin or outā€) = 100%
ā€¢ Percent agreement on item-specific ratings before consensus
building: 91.18%
ā€¢ Percent agreement on item-specific ratings after consensus
building: 100%
20#CPLOL18
RESULTS
#CPLOL18
PRISMA Flow Diagram
22
From:MoherD,LiberatiA,TetzlaffJ,AltmanDG,ThePRISMAGroup(2009).PreferredReportingItemsforSystematicReviewsandMeta-
Analyses:ThePRISMAStatement.PLoSMed6(7):e1000097.doi:10.1371/journal.pmed1000097
Formoreinformation,visitwww.prisma-statement.org.
PRISMA2009FlowDiagram
Recordsidentifiedthrough
databasesearching
(n=75)
Screening IncludedEligibilityIdentification
Additionalrecordsidentified
throughothersources
(n=75)
Recordsafterduplicatesremoved
(n=91)
Recordsscreened
(n=91)
Recordsexcluded
(n=84)
Full-textarticlesassessed
foreligibility
(n=7)
Full-textarticlesexcluded,
withreasons
(n=7)
Studiesincludedin
qualitativesynthesis
(n=0)
Studiesincludedin
quantitativesynthesis
(meta-analysis)
(n=0)
Removed for slideshare
Reasons for Exclusion
of the 6 full texts
Study ā€“ Full-text Review Checklist item/s
not met
Exclusion notes
Chen et al. (2014) # 2 Descriptive study
Cleveland (2008) # 5 Although Mukhopadhyayā€™s work is reviewed in the literature
section, the procedure described (p. 11) has components of
RPM but is not specifically RPM as described by
Mukhopadyay.
Gernsbacher (2004) # 2, # 5 Descriptive case study (# 2);
The mother had met with Mukhopadhyay and as a result
adapted some of her modalities. For example, she tried
handwriting as a form of AAC. It is stated she wouldnā€™t go
through the procedures at great length as described by the
developer (# 5).
Solomon (2006) # 2, # 5 Ethnographic study (# 2);
Even though RPM was studied it was examined as a
practice rather than an intervention ā€“ comparing the
practices of RPM at HALO versus by parents elsewhere (#5)
Van Acker (2016) # 1, # 2, # 5 Discussion paper without participants or design (#1, # 2);
RPM was mentioned in the text but was not studied as an
intervention (#5)
Van der Meer (2012) # 5 RPM was mentioned in the text but not studied as an
intervention (#5)
23
Result
There are NO studies establishing a
relationship between RPM and:
1. Improvements in body motor skills,
speech skills, communication skills,
and communication-related cognitive
skills, and/or
2. Reduction in challenging behaviors
24#CPLOL18
DISCUSSION
25#CPLOL18
Empty Review
ā€¢ There is no evidence that RPM results in
the claims purported by its developer and
proponents
ā€¢ RPM is an unsupported technique
26#CPLOL18
Evaluating the Proclaimed
Underlying ā€œTheory of Actionā€
A neurological examination of RPM suggests:
ā€¢ Mukhopadhyayā€™s statements about mirror neurons, brain
anatomy, and other aspects of neurology bear little relation
to actual neurology.
ā€¢ In addition to its reliance on Ayersā€™s doubtful theories of
sensory integration, RPM provides no specific or reliable
method to assess or employ the ā€œopen sensory channel.ā€
ā€¢ The strong recommendation to teach from the right in order
to engage the left side of the brain reveals a profound
reliance on pop psychology rather than actual neurology.
27
Todd, J.T. (2015). Old horses in new stables: Rapid
prompting, facilitated communication, science, ethics,
and the history of magic. In R. M. Foxx & J. A. Mulick
(Eds.). Controversial Therapies for Developmental
Disabilities: Fad, Fashion, and Science in Professional
Practice (2nd ed.). Mahwah, NJ: Routledge
Hickok, G. (2014). The myth of mirror
neurons: The real neuroscience of
communication and cognition. New York:
WW Norton & Company
Evaluating the Proclaimed
Underlying
ā€œTheory of Actionā€
A learning theory examination of RPM suggests:
ā€¢ The pointing-based communication is actually simulated,
authored by the aide rather than the pupil.
ā€¢ The ā€œteach-askā€ teaching trials contain no real linguistic
instruction, and should not be expected to establish genuine
expression.
ā€¢ Rather, the trials are an errorless program by which the pupil is
taught to respond to increasingly subtle cues given by the aide
via letterboard movements, gestures, and verbal prompts.
ā€¢ The aide gradually loses awareness of giving the cues to the
point doing so is likely to become unconscious.
28
Todd, J.T. (2015). Old horses in new stables: Rapid prompting, facilitated communication,
science, ethics, and the history of magic. In R. M. Foxx & J. A. Mulick (Eds.). Controversial
Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional
Practice (2nd ed.). Mahwah, NJ: Routledge
Proposed consumers of RPM most likely can initiate
movement. Watch them:
ā€¢ Cross mid-line
ā€¢ Independently point ā€“ occasionally require modeling
ā€¢ Often point independently to common items represented by a
symbol, but not to corresponding words or letters
ā€¢ Manipulate iPad / smart phone (point, swipe, etc.)
ā€¢ Grasp and release small objects
ā€¢ Accurately place small objects on targets
ā€¢ Eat independently
ā€¢ Handle small manipulatives (e.g., string beads, operate tv
remote, open containers, complete puzzles) 29
Evaluating the Proclaimed
Underlying
ā€œTheory of Actionā€Inability to initiate movement is a (convenient) red
herring
Evaluating the Proclaimed
Underlying
ā€œTheory of Actionā€
Given state-of-the-art
contemporary technology, almost
no person is too physically
disabled to communicate using
language -- If they have psycho-
linguistic competence.
30
Just to be clear ā€¦
Facilitated Communication (FC)
& RPM
FCā€™s mechanism of action
ā€¢ Ideomotor Effect
ā€¢ Expectancy Bias
ā€¢ Confirmation Bias
FC by any other nameā€¦
ā€¢ Supported Typing
ā€¢ Assisted Typing
ā€¢ Inventive Spelling
Despite minor procedural variations, the
above interventions share the same
mechanism of action and are thus rightfully
grouped together.
RPM is in the (expanding) group of
facilitated communication methods.
31
Same
action
RPM
FC
Supported
typing
Assisted
Typing
#CPLOL18
RPM & FC:
Procedural Differences and Similarities
RPM has a ā€œTeachingā€ phase
before letter board introduction.
ā€¢ intentional, acknowledged,
prompting
ā€¢ letter board is held by the facilitator
while the facilitated person is not
touched.
In RPM, there is no meaningful
change to FCā€™s mechanism of
action.
32
Same
action
RPM
FC
#CPLOL18
Abuse and RPM:
Not just sexual exploitation
ā€¢ Educational mistreatment
ā€“ wasted time not learning useful / functional skills
ā€¢ Parental exploitation
ā€“ unrealistic expectations planted by FC & RPM
evangelists
ā€¢ Child ā€˜mishandlingā€™ of identity
ā€“ loss of own voice and actual person
ā€¢ Professional manipulation
ā€“ of those teachers/SLPs who unwittingly become
believers
33#CPLOL18
RPM is Pseudoscientific
ļƒ¼ FC and RPM are ā€œuntestableā€
ā€¢ proponents say that research breaks the trust between facilitator
and facilitated; or research is said to be unnecessary
ļƒ¼ Evidence that does not support pre-drawn conclusions is
dismissed (despite sufficiently rigorous research procedures),
and supportive ā€œevidenceā€ is accepted
ļƒ¼ FC and RPM are largely supported by anecdotal accounts
ļƒ¼ Inconsistent with well established replicated findings regarding
the communication and language development in people with
ASD/ID
ļƒ¼ Extraordinary claims
ā€¢ unexpected literacy
ļƒ¼ Reliance on ā€œvaguely described holistic frameworkā€
ā€¢ the mechanism of action suggested by proponents is unclear and
lacks parsimony
34
Finn, Bothe, & Bramlettā€™s (2005) Criteria for distinguishing Science from Pseudoscience*.
* Adapted from Lilienfeld, Lynn, and Lohr (2003, revised edition 2014) ā€œScience and pseudoscience in
clinical psychology.ā€ New York, Guilford.
CLINICAL IMPLICATIONS
35#CPLOL18
Our audience is now ā€¦
New to
RPM
Uncertain
either way
Evidence
Aware
RPM
Advocate
36#CPLOL18
Code of Ethics
Each associationā€™s code of ethics is applicable in
terms of avoiding harms and making ethical
decisions in relation to treatments.
37
Ethics
Aware
#CPLOL18
1. Refrain from using RPM
or supporting RPM
Use evidence-based AAC interventions and
ABA
ā€¢ Wong, C., Odom, S. L., et al. (2015). Evidenceā€ Based
Practices for Children, Youth, and Young Adults with Autism
Spectrum Disorder: A Comprehensive Review. Journal of
Autism and Developmental Disorders, 1ā€16.
ā€¢ National Autism Center (NAC) (2015). Findings and
conclusions: National Standards Project, Phase 2.
http://www.nationalautismcenter.org/national-standards-
project/results-reports/
Using RPM or UNCERTAIN?
Ask us about testing authorship. 38
Uncertain
either
way?
#CPLOL18
ā€¢ Promoting Rapid Prompting Method (e.g., in social
media) could contravene the professionalā€™s code of
ethics, and is irresponsible.
ā€¢ Speech language pathologists should not promote or
support the use of RPM.
ā€¢ Refer to your professional association if uncertain how to
respond to authority figures pressing you to use RPM.
ā€¢ Families, teachers, therapists and other decision-makers
(e.g., funding bodies, administration of schools) should
be advised of the findings of this review, as per ā€˜duty of
careā€™ ā€˜duty to warnā€™ (professional responsibility).
ā€¢ Ask the authors of this paper for updates (see last slide)
39
2. Be Aware & Advise
#CPLOL18
3. Read studies CLOSELY
ā“Participants with a documented diagnosis of ASD
ā“Design that establishes a functional relationship
between RPM and outcomes
ā“If qualifying group design:
ā“(a) if only group level data were provided, all participants met ASD
criterion
ā“(b) if only some participants met ASD criterion, subgroup analyses
were provided
ā“If qualifying single-case experimental design:
ā“At least one participant met ASD criterion and data are provided for
that participant
ā“RPM was the intervention studied
ā“Published in a peer-reviewed journal, as a masterā€™s
thesis, as a dissertation, or full-length unpublished
manuscript
40#CPLOL18
4. Be an evidence champion
#ResNetSLT #SLPeeps @WeSpeechies #WeSpeechies
#AugComm
41
Evidence
Champion
Is further research needed?
Testing of authorship
ā€œThe paramount question to be addressed by researchers
investigating RPM should pertain to authorship of the
messages ā€¦ evidence is needed regarding the authenticity of
messages generated by people with ASD who use a
letterboard held by facilitatorsā€ (Lang et al., 2014, p. 46).
42
Lang, R. Harbison Tostanoski, A, Travers, J., Todd, J., Todd,
J., & Shane, H. (2014). The only study investigating the rapid
prompting method has serious methodological flaws but data
suggest the most likely outcome is prompt dependency.
Evidence- Based Communication Assessment and
Intervention, 8, 40ā€“48.
Although Hemsley (2016) contended that further primary research was not
warranted, would research on ā€˜authorshipā€™ in RPM protect the interests of person
with autism?
#CPLOL18
Conclusion
43
Rapid Prompting Method has no evidence, is not
supported, is pseudoscientific, and - because of the
influence of facilitators, loss of the human right of
communication, and loss of opportunity to treatments that
work - is harmful to people with autism who are exposed
to it.
Rapid Prompting Method should not be used in the
treatment of communication or behavior for people with
autism.
#CPLOL18
Ask the Authors for Autism
Research & Evidence Updates
ā€¢ Prof Bronwyn Hemsley Bronwyn.Hemsley@uts.edu.au
ā€¢ Prof Ralf Schlosser R.Schlosser@northeastern.edu
44

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Rapid Prompting Method Systematic Review #CPLOL18 2018

  • 1. Bronwyn Hemsley1, Ralf Schlosser2,3,4 Mark Mostert,5 Scott Lilienfeld,6 Samuel Odom,7 James Todd,8 David Trembath,9 Howard Shane 2,10,11 Russel Lang,12 & Seraphina Fong1 4 2 A systematic review of the Rapid Prompting Method: Findings and Implications for Speech Language Therapists worldwide 3 1 5 6 7 8 9 10 11 12 Paper Presented at #CPLOL18 10th European Congress of Speech and Language Therapy, Estoril, Portugal on 12th May 2018
  • 2. Disclosures The authors have no relevant financial or nonfinancial relationships to disclose. 2#CPLOL18
  • 3. Our audience at #CPLOL18 New to RPM Uncertain either way Evidence Aware RPM Advocate 3#CPLOL18
  • 5. Video: Example of RPM 5#CPLOL18 Table provides a good frame of reference square to show board is being moved. Removed for slideshare
  • 6. According to Soma Mukhopadhyay, as distilled from her Halo-Soma website and books, Rapid Prompting Method (RPM) is: ā€¢ A brain-based teaching and assistive method designed to establish and promote pointing- based textual communication in people who cannot speak, usually autism. ā€¢ Involves a series of ā€œteach-askā€ trials of graduated difficulty, starting with the pupil choosing a correct answer from two written options, progressing through composing responses by pointing to printed letters on a card. ā€¢ Linguistic competence is presumed even if not evident, and learning materials are presented verbally and textually at age level. 6 Image credit: Halo website #CPLOL18
  • 7. RPM theory: An ā€˜unusualā€™ way of looking at autism ā€¢ The Sensory Integration Theory of A. Jean Ayers is foundational; teachers are to assess and use the ā€œopen sensory channel.ā€ ā€¢ Some problems of autism result from a failure of the child to move from earlier to later Piagetian stages. ā€¢ Teaching does not require explicit rewards as these are built into success. ā€¢ Autism is fundamentally a ā€œfailure of initiation.ā€ Thus, prompts are a necessary and probably permanent feature of RPM assistance. ā€¢ Self-stimulatory and other common features of autism may be used in assessing the ā€œopen sensory channel,ā€ but usually can be otherwise ignored. 7 Images credit: Halo website #CPLOL18
  • 8. Why the urgency to systematically review RPM? 1. Anecdotal reports that it is growing in popularity in US and Ireland 2. Appearance in Ireland senate (Senator RĆ³nĆ”n Mullen) (2016) and Irish Media (Jan 2017) 3. Front page article, Washington Post (March 2017) 4. YouTube - search ā€˜Rapid Promptingā€™ yields about 1210 results (Nov 2017) 5. Appearance in occupational therapy open access literature 2017 6. Parents have a right to the highest level of evidence available in making decisions 8 #CPLOL18
  • 9. Previous Review of RPM (Deacy et al., 2016) Three studies were included and ā€œfindings were summarised into four categories. Findings appear to indicate an association between RPM and a decrease in repetitive behaviours.ā€ (p. 92) ā€œFurther research in the area of RPM is warranted in order for it to be considered as a qualifying evidence-based practiceā€ (p. 92) 9 Deacy, E., Jennings, F., & O'Hallorhan, A. (2016). Rapid Prompting Method (RPM): A suitable intervention for students with ASD?. Reach, 29(2), 92-100. #CPLOL18
  • 10. Gernsbacher (2004) Retrospective case study of 1 child. ā€œThe RPM core element of ā€˜repetitive promptingā€™ is not referred to in this study, so it is unclear if the method used is closer to ā€˜facilitated communicationā€™ which has been discredited in the literatureā€ (p. 94). 10 Solomon (2006) Descriptive-ethnographic study, Compared practice of RPM at HALO vs. at home. Chen et al. (2012) Descriptive study of RPM and repetitive behavior. Deacy, E., Jennings, F., & O'Hallorhan, A. (2016). Rapid Prompting Method (RPM): A suitable intervention for students with ASD?. Reach, 29(2), 92-100. Previous Review of RPM (Deacy et al., 2016)
  • 11. Not all reviews are equal Commentary on Deacy et al., review ā€¢ Numerous methodological flaws identified in Deacy et al., 2016 ā€¢ Conflicts of interests identified for its included studies 11#CPLOL18
  • 12. Aim To determine whether RPM is effective for individuals with ASD in terms of: (1) improving body motor skills, speech skills, communication skills, and communication-related cognitive skills, and/or (2) reducing challenging behaviors 12#CPLOL18
  • 13. Aim in PICOS Format P (Person/Population) => Individuals with ASD I (Intervention) => RPM C (Comparison) => None required, any allowed O (Outcomes) => Body motor skills, speech skills, communication skills, communication-related cognitive, challenging behaviors S (Study Design) => Single-case experimental designs or group experimental designs capable of showing a functional relation between RPM and outcomes 13#CPLOL18
  • 15. A priori Registration of Protocol 15
  • 16. Inclusion Criteria ā€¢ Participants with a documented diagnosis of ASD ā€¢ Design that establishes a functional relationship between RPM and outcomes ļ‚§ If qualifying group design: ļ‚§ (a) if only group level data were provided, all participants met ASD criteria ļ‚§ (b) if only some participants met ASD criteria, subgroup analyses were provided ļ‚§ If qualifying single-case experimental design: ļ‚§ At least one participant met ASD criteria and data are provided for that participant ā€¢ RPM was the intervention studied ā€¢ Published in a peer-reviewed journal, as a masterā€™s thesis, as a dissertation, or full-length unpublished manuscript 16#CPLOL18
  • 17. Literature Search 17 ā€¢ Bibliographic databases ā€¢ Cochrane Library ā€¢ ComDisDome (ProQuest) ā€¢ Cumulative Index of Nursing & Allied Health Literatures (CINAHL, EBSCOhost) ā€¢ Education Journals (ProQuest) ā€¢ Education Research Complete (EBSCO Host) ā€¢ Education Resources Information Clearinghouse (ERIC, ProQuest) ā€¢ Google Scholar ā€¢ Linguistics and Language Behavior Abstracts (LLBA, ProQuest), ā€¢ Medline (via Pubmed) ā€¢ ProQuest Dissertations and Theses Global ā€¢ PsycINFO (ProQuest) ā€¢ Psychology and Behavioral Science Collection (ProQuest) ā€¢ Web of Science #CPLOL18
  • 18. Literature Search 18 ā€¢ Publisher-specific databases ā€¢ Sage Journals Premier ā€¢ ScienceDirect Elsewier ā€¢ SpringerLink Journals ā€¢ Taylor & Francis Online ā€¢ Trial Registers ā€¢ EU Clinical Trial Register ā€¢ Australian New Zealand Clinical Trial Registry ā€¢ Clinical Trials ā€¢ ClinicalTrials.gov ā€¢ ClincalTrialSearch.org ā€¢ Ancestry Searches ā€¢ of included and relevant other studies, reviews, book chapters, and books ā€¢ Forward citation searches ā€¢ Of included and other studies/papers that referenced RPM ā€¢ Contact authors of select published peer-reviewed articles
  • 19. Literature Search 19 Lessons from Preliminary Search ā€¢ ā€œRPMā€ not a viable acronym to search ā€¢ Author search only viable if the database permitted a search of the full name, i.e., last name (ā€œMukhopadhyayā€) with first initial (ā€œSā€) ā€¢ Not necessary to combine ā€œRapid Prompting Methodā€ with an autism-related keyword Search Strategy ā€¢ ā€œRapid Prompting Methodā€ as a free text word in title, abstract, and/or full text ā€¢ ā€œInformative pointingā€ as a free text word in title, abstract and/or full text #CPLOL18
  • 20. Inclusion Reliability ā€¢ First author (Schlosser) screened search results by title and abstract ā€¢ All documents (100%) submitted to the inclusion checklist were evaluated by the first and second author (Hemsley) independently from each other ā€¢ Percent agreement on Inclusion Decision (ā€œin or outā€) = 100% ā€¢ Percent agreement on item-specific ratings before consensus building: 91.18% ā€¢ Percent agreement on item-specific ratings after consensus building: 100% 20#CPLOL18
  • 22. PRISMA Flow Diagram 22 From:MoherD,LiberatiA,TetzlaffJ,AltmanDG,ThePRISMAGroup(2009).PreferredReportingItemsforSystematicReviewsandMeta- Analyses:ThePRISMAStatement.PLoSMed6(7):e1000097.doi:10.1371/journal.pmed1000097 Formoreinformation,visitwww.prisma-statement.org. PRISMA2009FlowDiagram Recordsidentifiedthrough databasesearching (n=75) Screening IncludedEligibilityIdentification Additionalrecordsidentified throughothersources (n=75) Recordsafterduplicatesremoved (n=91) Recordsscreened (n=91) Recordsexcluded (n=84) Full-textarticlesassessed foreligibility (n=7) Full-textarticlesexcluded, withreasons (n=7) Studiesincludedin qualitativesynthesis (n=0) Studiesincludedin quantitativesynthesis (meta-analysis) (n=0) Removed for slideshare
  • 23. Reasons for Exclusion of the 6 full texts Study ā€“ Full-text Review Checklist item/s not met Exclusion notes Chen et al. (2014) # 2 Descriptive study Cleveland (2008) # 5 Although Mukhopadhyayā€™s work is reviewed in the literature section, the procedure described (p. 11) has components of RPM but is not specifically RPM as described by Mukhopadyay. Gernsbacher (2004) # 2, # 5 Descriptive case study (# 2); The mother had met with Mukhopadhyay and as a result adapted some of her modalities. For example, she tried handwriting as a form of AAC. It is stated she wouldnā€™t go through the procedures at great length as described by the developer (# 5). Solomon (2006) # 2, # 5 Ethnographic study (# 2); Even though RPM was studied it was examined as a practice rather than an intervention ā€“ comparing the practices of RPM at HALO versus by parents elsewhere (#5) Van Acker (2016) # 1, # 2, # 5 Discussion paper without participants or design (#1, # 2); RPM was mentioned in the text but was not studied as an intervention (#5) Van der Meer (2012) # 5 RPM was mentioned in the text but not studied as an intervention (#5) 23
  • 24. Result There are NO studies establishing a relationship between RPM and: 1. Improvements in body motor skills, speech skills, communication skills, and communication-related cognitive skills, and/or 2. Reduction in challenging behaviors 24#CPLOL18
  • 26. Empty Review ā€¢ There is no evidence that RPM results in the claims purported by its developer and proponents ā€¢ RPM is an unsupported technique 26#CPLOL18
  • 27. Evaluating the Proclaimed Underlying ā€œTheory of Actionā€ A neurological examination of RPM suggests: ā€¢ Mukhopadhyayā€™s statements about mirror neurons, brain anatomy, and other aspects of neurology bear little relation to actual neurology. ā€¢ In addition to its reliance on Ayersā€™s doubtful theories of sensory integration, RPM provides no specific or reliable method to assess or employ the ā€œopen sensory channel.ā€ ā€¢ The strong recommendation to teach from the right in order to engage the left side of the brain reveals a profound reliance on pop psychology rather than actual neurology. 27 Todd, J.T. (2015). Old horses in new stables: Rapid prompting, facilitated communication, science, ethics, and the history of magic. In R. M. Foxx & J. A. Mulick (Eds.). Controversial Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional Practice (2nd ed.). Mahwah, NJ: Routledge Hickok, G. (2014). The myth of mirror neurons: The real neuroscience of communication and cognition. New York: WW Norton & Company
  • 28. Evaluating the Proclaimed Underlying ā€œTheory of Actionā€ A learning theory examination of RPM suggests: ā€¢ The pointing-based communication is actually simulated, authored by the aide rather than the pupil. ā€¢ The ā€œteach-askā€ teaching trials contain no real linguistic instruction, and should not be expected to establish genuine expression. ā€¢ Rather, the trials are an errorless program by which the pupil is taught to respond to increasingly subtle cues given by the aide via letterboard movements, gestures, and verbal prompts. ā€¢ The aide gradually loses awareness of giving the cues to the point doing so is likely to become unconscious. 28 Todd, J.T. (2015). Old horses in new stables: Rapid prompting, facilitated communication, science, ethics, and the history of magic. In R. M. Foxx & J. A. Mulick (Eds.). Controversial Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional Practice (2nd ed.). Mahwah, NJ: Routledge
  • 29. Proposed consumers of RPM most likely can initiate movement. Watch them: ā€¢ Cross mid-line ā€¢ Independently point ā€“ occasionally require modeling ā€¢ Often point independently to common items represented by a symbol, but not to corresponding words or letters ā€¢ Manipulate iPad / smart phone (point, swipe, etc.) ā€¢ Grasp and release small objects ā€¢ Accurately place small objects on targets ā€¢ Eat independently ā€¢ Handle small manipulatives (e.g., string beads, operate tv remote, open containers, complete puzzles) 29 Evaluating the Proclaimed Underlying ā€œTheory of Actionā€Inability to initiate movement is a (convenient) red herring Evaluating the Proclaimed Underlying ā€œTheory of Actionā€
  • 30. Given state-of-the-art contemporary technology, almost no person is too physically disabled to communicate using language -- If they have psycho- linguistic competence. 30 Just to be clear ā€¦
  • 31. Facilitated Communication (FC) & RPM FCā€™s mechanism of action ā€¢ Ideomotor Effect ā€¢ Expectancy Bias ā€¢ Confirmation Bias FC by any other nameā€¦ ā€¢ Supported Typing ā€¢ Assisted Typing ā€¢ Inventive Spelling Despite minor procedural variations, the above interventions share the same mechanism of action and are thus rightfully grouped together. RPM is in the (expanding) group of facilitated communication methods. 31 Same action RPM FC Supported typing Assisted Typing #CPLOL18
  • 32. RPM & FC: Procedural Differences and Similarities RPM has a ā€œTeachingā€ phase before letter board introduction. ā€¢ intentional, acknowledged, prompting ā€¢ letter board is held by the facilitator while the facilitated person is not touched. In RPM, there is no meaningful change to FCā€™s mechanism of action. 32 Same action RPM FC #CPLOL18
  • 33. Abuse and RPM: Not just sexual exploitation ā€¢ Educational mistreatment ā€“ wasted time not learning useful / functional skills ā€¢ Parental exploitation ā€“ unrealistic expectations planted by FC & RPM evangelists ā€¢ Child ā€˜mishandlingā€™ of identity ā€“ loss of own voice and actual person ā€¢ Professional manipulation ā€“ of those teachers/SLPs who unwittingly become believers 33#CPLOL18
  • 34. RPM is Pseudoscientific ļƒ¼ FC and RPM are ā€œuntestableā€ ā€¢ proponents say that research breaks the trust between facilitator and facilitated; or research is said to be unnecessary ļƒ¼ Evidence that does not support pre-drawn conclusions is dismissed (despite sufficiently rigorous research procedures), and supportive ā€œevidenceā€ is accepted ļƒ¼ FC and RPM are largely supported by anecdotal accounts ļƒ¼ Inconsistent with well established replicated findings regarding the communication and language development in people with ASD/ID ļƒ¼ Extraordinary claims ā€¢ unexpected literacy ļƒ¼ Reliance on ā€œvaguely described holistic frameworkā€ ā€¢ the mechanism of action suggested by proponents is unclear and lacks parsimony 34 Finn, Bothe, & Bramlettā€™s (2005) Criteria for distinguishing Science from Pseudoscience*. * Adapted from Lilienfeld, Lynn, and Lohr (2003, revised edition 2014) ā€œScience and pseudoscience in clinical psychology.ā€ New York, Guilford.
  • 36. Our audience is now ā€¦ New to RPM Uncertain either way Evidence Aware RPM Advocate 36#CPLOL18
  • 37. Code of Ethics Each associationā€™s code of ethics is applicable in terms of avoiding harms and making ethical decisions in relation to treatments. 37 Ethics Aware #CPLOL18
  • 38. 1. Refrain from using RPM or supporting RPM Use evidence-based AAC interventions and ABA ā€¢ Wong, C., Odom, S. L., et al. (2015). Evidenceā€ Based Practices for Children, Youth, and Young Adults with Autism Spectrum Disorder: A Comprehensive Review. Journal of Autism and Developmental Disorders, 1ā€16. ā€¢ National Autism Center (NAC) (2015). Findings and conclusions: National Standards Project, Phase 2. http://www.nationalautismcenter.org/national-standards- project/results-reports/ Using RPM or UNCERTAIN? Ask us about testing authorship. 38 Uncertain either way? #CPLOL18
  • 39. ā€¢ Promoting Rapid Prompting Method (e.g., in social media) could contravene the professionalā€™s code of ethics, and is irresponsible. ā€¢ Speech language pathologists should not promote or support the use of RPM. ā€¢ Refer to your professional association if uncertain how to respond to authority figures pressing you to use RPM. ā€¢ Families, teachers, therapists and other decision-makers (e.g., funding bodies, administration of schools) should be advised of the findings of this review, as per ā€˜duty of careā€™ ā€˜duty to warnā€™ (professional responsibility). ā€¢ Ask the authors of this paper for updates (see last slide) 39 2. Be Aware & Advise #CPLOL18
  • 40. 3. Read studies CLOSELY ā“Participants with a documented diagnosis of ASD ā“Design that establishes a functional relationship between RPM and outcomes ā“If qualifying group design: ā“(a) if only group level data were provided, all participants met ASD criterion ā“(b) if only some participants met ASD criterion, subgroup analyses were provided ā“If qualifying single-case experimental design: ā“At least one participant met ASD criterion and data are provided for that participant ā“RPM was the intervention studied ā“Published in a peer-reviewed journal, as a masterā€™s thesis, as a dissertation, or full-length unpublished manuscript 40#CPLOL18
  • 41. 4. Be an evidence champion #ResNetSLT #SLPeeps @WeSpeechies #WeSpeechies #AugComm 41 Evidence Champion
  • 42. Is further research needed? Testing of authorship ā€œThe paramount question to be addressed by researchers investigating RPM should pertain to authorship of the messages ā€¦ evidence is needed regarding the authenticity of messages generated by people with ASD who use a letterboard held by facilitatorsā€ (Lang et al., 2014, p. 46). 42 Lang, R. Harbison Tostanoski, A, Travers, J., Todd, J., Todd, J., & Shane, H. (2014). The only study investigating the rapid prompting method has serious methodological flaws but data suggest the most likely outcome is prompt dependency. Evidence- Based Communication Assessment and Intervention, 8, 40ā€“48. Although Hemsley (2016) contended that further primary research was not warranted, would research on ā€˜authorshipā€™ in RPM protect the interests of person with autism? #CPLOL18
  • 43. Conclusion 43 Rapid Prompting Method has no evidence, is not supported, is pseudoscientific, and - because of the influence of facilitators, loss of the human right of communication, and loss of opportunity to treatments that work - is harmful to people with autism who are exposed to it. Rapid Prompting Method should not be used in the treatment of communication or behavior for people with autism. #CPLOL18
  • 44. Ask the Authors for Autism Research & Evidence Updates ā€¢ Prof Bronwyn Hemsley Bronwyn.Hemsley@uts.edu.au ā€¢ Prof Ralf Schlosser R.Schlosser@northeastern.edu 44

Editor's Notes

  1. This paper considers any audience might have people in one of these camps, or moving between them from time to time as new information about RPM comes in, or as they are exposed to ā€˜miraculousā€™ stories, or policies at work encouraging them to use RPM. This presentation is for all of you, in the hope that together we can improve access to evidence-based interventions for people with autism and their families.
  2. Pause 1 second
  3. First, an introduction to RPM.
  4. The HALO website headline is ā€˜A New Way of Looking at Autismā€™. It is rather an unusual way of looking at RPM.
  5. In this review, the inclusion criteria were not defined.
  6. Gernsbacher (2004) Point out that there were no data presented Even though they noted that the core element of RPM was not mentioned, they still included it ā€“ not logical and inconsistent Solomon (2006) Included even though it was more about the practice or implementation of RPM in two settings by two types of communication partners rather than RPM as intervention
  7. Hemsley (2016) identified numerous methodological issues in her structured appraisal commentary on this review. She also identified previously undisclosed conflicts of interests present for some of the included studies. Clearly, a more rigorous effort is needed.
  8. Pause 1 second
  9. Participants with a documented diagnosis of ASD: -NOTE: of any chronological age includes Autism Prototype Disorder, Childhood Disintegrative Disorder, Asperger Syndrome, Pervasive Developmental Disabilities- Not Otherwise Specified [PDD-NOS]). -Individuals with additional diagnoses (e.g., blindness/visual impairments/intellectual disability) qualify as long as they do carry any of the above ASD diagnoses as well. -EXCLUSION: Individuals described as ā€œautistic-likeā€ or individuals whose diagnosis is not confirmed by accepted means of evaluation were excluded. Design that establishes a functional relationship between RPM and outcomes single-case experimental designs (e.g., ABA, ABAB, ATD, AATD, MBD, MPD, PTD) group experimental designs (e.g., RCT). EXCLUSION: Pre-experimental designs such as AB designs or Single Group Pre-Post designs were excluded. RPM was the intervention studied: specific reference/s made to writings of its developer (e.g., Mukhopadhyay S. [2008]. Understanding autism through rapid prompting method. Denver, CO: Outskirts Press) or any subsequent guides available for purchase on the website of Helping Autism Through Learning and Outreach (HALO): http://www.halo-soma.org/store.php?sess_id=7ad457a169dd656ce33c6d8a7c0d7f68 Peer-reviewed journal: In English only
  10. We consulted the following types of sources: (a) bibliographic databases, (b) publisher-specific databases, and (c) trial registers
  11. In terms of search methods, we conduced (a) ancestry searches, (b) forward citation searches (on Web of Science), and (c) author contacts
  12. I'd like to start the discussion by sharing our descriptive findings.
  13. Based on the findings of this review it is safe to say that RPM is an unsupported technique. But we are going to take this a step further in the remaining discussion to challenge RPMs underlying assumptions The findings of the review also confirm the conclusions of the earlier review by Deacey (2016).
  14. As with any intervention whether medical, psychological or educational; it is important to understand the ā€œmechanism of actionā€. That is, to understand exactly how the interventionā€™s components cause any observed change in behavior, health or wellbeing of the recipient. There are several benefits to a thorough understanding of an interventionā€™s mechanism of action. For example, with interventions that provide actual benefit, the knowledge may be useful in correcting treatment failures, training others to implement the procedures, and in designing more effective interventions. Further, interventions may be classified by their mechanisms of action. For example, interventions that involve programmed reinforcement contingencies and/or antecedent environment manipulations are typically classified as ā€œbehavioralā€. For interventions that cause harm, an understanding of the mechanism of action is useful in recognizing and avoiding rebranded but equally harmful variants of the intervention approach. Comparable to changing the flavor of cough syrup, changes that do not influence the mechanism of action have no meaningful effect- other than possibly altering the probability of consumption for some consumers. FC has been rebranded a number of times, For example, being referred to as supported typing and inventive spelling. In some cases, these variants include more than a name change and involve the addition or deletion of inconsequential procedural aspects (nothing more than a change in flavor). Research has identified several mechanisms of action involved in FC. The ideomotor effect, expectancy bias, and confirmation bias are among the primary mechanisms responsible FCā€™s powerful illusion and any intervention that relies on these mechanisms can be accurately categorized within the same class of pseudoscientific interventions as FC.
  15. Rapid Prompting involves a number of procedural differences, including but not necessarily limited to: (a) a teaching phase that occurs before the full letter board is introduced; (b) acknowledged prompts that are purportedly based on the sensory products of stereotyped behaviors. For example, a person who makes repetitive vocalizations might be said to require auditory prompts to compete with audible input of the scream; and (c) the person being facilitated is not touched by the facilitator. Instead, the facilitator is holding the letter board which is touched by (or touched to) the facilitated. [RALF: might be a good spot for video clip of RPM in action] Nothing about these differences can discount the influence of expectancy bias or confirmation bias and it is irrelevant whether or not the facilitator moves the personā€™s hand or moves the board that contactā€™s the personā€™s hand. These differences are unimportant and suggest that RPM belongs in the same class of interventions with FC and the others.
  16. FC and RPM both meet many of Finn et alā€™s criteria for identifying pseudoscientific communication interventions. For exampleā€¦ [RALF: I didnā€™t add too many notes, here- slide points seemed sufficient. Let me know if you need more on any of this stuff.
  17. I'd like to start the discussion by sharing our descriptive findings.
  18. Our audience might have moved over the course of this session, from being ā€˜newā€™ to RPM, to now being ā€˜evidence awareā€™.
  19. All in the audience, regardless of their own personal opinion of RPM, must be ethics aware.
  20. For those who are uncertain about RPM, err on the side of safety, and choose to use evidence-based AAC interventions and ABA. If at all tempted with or already using RPM, test authorship. How do you do that? Howard, Can you speak to the testing of authorship for those who wish to explore the use of RPM, despite the lack of evidence in its support.
  21. Participants with a documented diagnosis of ASD: -NOTE: of any chronological age includes Autism Prototype Disorder, Childhood Disintegrative Disorder, Asperger Syndrome, Pervasive Developmental Disabilities- Not Otherwise Specified [PDD-NOS]). -Individuals with additional diagnoses (e.g., blindness/visual impairments/intellectual disability) qualify as long as they do carry any of the above ASD diagnoses as well. -EXCLUSION: Individuals described as ā€œautistic-likeā€ or individuals whose diagnosis is not confirmed by accepted means of evaluation were excluded. Design that establishes a functional relationship between RPM and outcomes single-case experimental designs (e.g., ABA, ABAB, ATD, AATD, MBD, MPD, PTD) group experimental designs (e.g., RCT). EXCLUSION: Pre-experimental designs such as AB designs or Single Group Pre-Post designs were excluded. RPM was the intervention studied: specific reference/s made to writings of its developer (e.g., Mukhopadhyay S. [2008]. Understanding autism through rapid prompting method. Denver, CO: Outskirts Press) or any subsequent guides available for purchase on the website of Helping Autism Through Learning and Outreach (HALO): http://www.halo-soma.org/store.php?sess_id=7ad457a169dd656ce33c6d8a7c0d7f68 Peer-reviewed journal: In English only
  22. The onus is on the developer
  23. At the beginning of the presentation we asked whether the emperor has any clothes. Based on our systematic review, documented similarity to FC, characteristics consistent with pseudoscientific intervention, and questionable underlying theory of action, we conclude that the emperor is naked.