This document discusses the importance of family support for hearing impaired children and outlines the main parts of family/parent support provided by an institute in Hungary. The key aspects of support include: 1) Increasing parental competence through education and skills training; 2) Providing mental health support through parent groups and counseling; 3) Helping strengthen the connection between children and parents such as through sign language courses; 4) Improving families' financial situations through various programs; and 5) Offering audiological advice. Challenges to support include scheduling issues and lack of motivation from some parents. The conclusion emphasizes that family support is crucial for child development and enhances the effectiveness of the institute's work.
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Effecting schoolwide change
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Conducting professional development and consultations
Working effectively with families
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2. Aim of the support
Family support – mainly in connection with
education of the hearing impaired children in
their special situation
It is very important, because:
• The proper support is missing (especially in
families in the country)
• In our institute it is the easiest for them to get
3. The most important parts of the
family/parent support
1. Increasing parental competence
2. Mentalhygienic support
3. Helping the connection between child and parents
4. Contribution to improve financial status of families
5. Others: any help according to the actual life situation;
Audiological advice and care
These special parts cannot be divided, one or more of the
activities could be realised
4. 1. Increasing parental competence
Aim: to give them information in connection with:
• Hearing impairment
• Improvement, education of the hearing impaired
child
It could be realised by:
• Giving information
• Improving skills
• Giving advice
• Referring to specialist or special institute
5. 1. Increasing parental competence
• Forms of activities:
Teaching parents for home training (early
improvement between the ages of 0-3
6. 1. Increasing parental competence
– Regular small-group/individual special training
together with parents, grandparent in our
institute
9. Útmutató
40 hetes „tanulási
program” a hallássérült
gyermekek otthoni
fejlesztéséhez.
A Cochlear cég
kiadványának fordítása és
adaptálása magyarra.
Szülőknek készült, de
használhatják
gyógypedagógusok is a
fejlesztések során.
Nemcsak CI-s gyerekeknél
használható.
Eredeti kiadvány:
Sound Foundation for Babies
http://hope.cochlearamericas.com/node/2256
11. Eszközkölcsönző
Hiring tools loan ( it makes easy for parents to
obtain developing tools)
A szülők ingyen
kölcsönözhetnek
borrow szakkönyveket,
fejlesztő játékokat,
egyszerűbb nyelvezetű
könyveket az otthoni
olvasáshoz.
12. 1. Increasing parental competence
• Giving advice for all age-groups in connection with:
– home improvement, learning
– with any other important question, (CI-hearing
aids,choosing institution, integration and further
education)
14. 1. Increasing parental competence
• Organaising open-school-days to present
special methodes to parents
• Playing together
15. 1. Increasing parental competencies
Playing together
Educator in the afternoon in her own class
Once a month on Friday afternoon
Playing together with the parents and their children
Aim: teaching such enjoyable developing games that can be played at home as well (logopedia, fine motorics)
During the classes:
Play – competition games (between parent and child or between families)
e.g.: Who can suck the juice out of the plate with a strow?; Who can shoot a goal with a cotton? (blow);
Picking up zizi (small candy) with a tweezers; making Christmas decorations (wreath, etc.)
Making games e.g: Mikado – from sticks; rings from paper plates – trying out the games (playing darts)
Talking meanwhile – who has problem and what kind of, what has worked for whom.
Booklet – writing down the games
Difficulties:
making the appointments
one of the parents never came bad feeling for the child
Positivities: besides the teaching of the parents: good atmosphere, good community builder
16. 1. Increasing parental competence
Courses for parents
From schoolyear 2005-2006
Aim: giving information in connection with:
- hearing impairment,
- knowledge,
- expert of special needs education,
- mentalhigenic assistance
Topics: lectures, visiting lessons, watching videoed therapies, talkings, discussions
The sessions were held by special teachers, experts, doctors, psychologist
The programs gave possibility to parents:
- to get new knowledge,
- to know better the experts,
- to became braver to turn to experts for advice and help,
- to be able to get into contact with other parents
In the 2007-2008 schoolyear a publication was issued including the drafts of the
lectures and presentations
17. 2. Mentalhigienic support
Aim:
• Reducing enhanced psychic burden in connection
with bird and education of a handicapped child
• To help overcome the actualy problems
Forms:
- group of parents,
- help given by psychologist
18. 2. Mentalhigienic support
Parent-groups
Main aim: Mentalhigienic support of parents
instead of providing knowledge
It was realised first time in 2010-2011 schoolyear
In the course-of grouptrainings we talked about
topics, which were extremly important for
parents of hearing impaired children
Groupleaders: 2 psychologist
The important feature, that the hearing impaired
parents did not come
19. 2. Mentalhigienic support
Parent-groups
Topics:
• Characteristics of parent-child connection, if
the child is hearing impaired
• Reasing Raising hearing impaired child
• Integration or segregation
• Tolerance , acceptance, adjustment
• Educational situations
20. 2. Mentalhigienic support
„Parent-school”
2012-2013 schoolyear
• Lectures, talks, playful elements
• Parents of hearing impaired children integrated and non-integrated
environment
• Hearing and hearing impaired parents together
Topics:
- Prejudic,
- Taskes and importance of the family
- Faulty educational styles (spoiling-or-agressive)
- Speech-development (CI, hearing aids)
Groupleaders: 3 persons (special teacher-psychologist –specialist
working with h.i. children)
Communication: verbal (no need to signlanguage)
21.
22. 2. Mentálhigiénés támogatás
Szülőcsoportok
• Mentorképzés szülőknek
• Cél: mentorok képzése
– 3 alkalom:
CI, gyógypedagógiai, pszichológiai ismeretek,
felkészítés
– Családi nap
– Hallássérült szülők szerepe
– Előadás a siket kultúráról
23. „Családi nap”
• a MACIE, Fülimplantáltak Egyesülete, Hallod?! Egyesület, a
társintézmények szülői szervezeteit bemutatkozása, ismerkedésre. Olyan
szülők, családok bevonását tervezzük, akik még nem csatlakoztak egyetlen
szervezethez sem, nem ismerik még az ebben rejlő lehetőségeket, az
összefogás erejét, tájékozatlanok például a jogaikról, érdekeikről.
• Szülősegítő szervezetek közös találkozója a társintézmények
bevonódásával a területi kiterjesztés, együttműködést és kapcsolatépítést
szolgálja.
• A családi napon olyan vidéki családokat is invitálunk, akik elszigeteltebben
élnek és így kevesebb információhoz jutnak.
• A társintézmények szülői szervezeteinek részletes bemutatkozására is sor
kerül, melynek célja a tapasztalatcsere, egymás munkájának
megismerése, a mentorszülő hálózat alapjainak szélesebb körű
kiterjesztése.
• Az oldott és kötetlen együttléthez hozzájárul egy kerti parti megrendezése
is.
24. 1. Szülői kompetencia növelése
2. Mentálhigiénés támogatás
2014- Kiadvány – elsősorban szülőknek
Szakemberek + szülők (szülőinterjúk)
Tartalom:
• Veszteség, gyász, elfogadás.
• Szülő gyermek kapcsolat , a család működésének sajátosságai.
• Hallókészülékek és cochlea implantáció.
• Korai fejlesztés.
• Integráció és szegregáció.
• Óvodai nevelés a speciális óvodában.
• Beszédtanítás.
• Beszédtanulási zavar .
• Hallássérültek a nagyvilágban.
Szervezetek tevékenysége. Elérhetősége
Egyéb kiadványok (könyvek, más szervezet szülőknek szóló kiadványai)
http://issuu.com/carpinelli_/docs/egyutt-ertuk_bemutato_nezokep?e=8188637/7941681
25. 3. Helping the connection between
child and parents
It is important, because the communicational
difficulties influence the parent-child
connection, its organisation and living.
Forms of activities:
- organising sign language courses for parents
26. 3. Helping parent–child connection
Sign courses for parents
• It was organised after its need had emerged from the parents
• It is free with the help of SINOSZ (tender support)
• Our institute provides classes for these course
• Participating parents:
– Those who indicated their needs
– Parents of children with serious disphasia
• Important result: strenghtening the connection between the
parents; good atmosphere
• Experience: the application of sign language is difficult for the
hearing parents, according to the feedbacks of the parents the sign
language will not become the main communicational channel
within the parent-child connection
27. 4. Contribution to improve financial
situations of families
By Foundation for hearing impared children
• Medicines, medical care
• Obtaining hearing aids and accesories
• Forest-scools, camps, travels
• Programes
Refering to the proper institutions
National Assosiation for the Deaf and Hard of
hearing
Giving information on allowances, family benefits,
nursing fees, free medical care
29. Difficulties in supporting families
Finding the proper time for the programs
• Lack of time
• Different work –shifts
• Accessibility of parents
No-motivated parents-disinterest
Mistrust (disbelief)
h.i. parents do not trust in hearing specialist
Financial sources of the institute is scare
No goverment-help, only applications sources
30. Conclusions
Parents of younger children can be motivated
more easily
Parents generaly ask for help in important
decesion only
• (CI –operation, further education and choice
of career)
31. Importance of family support
Indispensable from point of view of the child’s
development
It contributes to cooperating with parents, that
enhances of effectiveness of our work