This document summarizes a presentation about supporting families of children with Auditory Neuropathy Spectrum Disorder (ANSD). It discusses the challenges these families face due to contradictory information from professionals and a lack of understanding about ANSD. Through interviews, common themes from families were identified. These included a desire to understand what their child can hear, relying on self-education rather than professional support, and having to constantly explain ANSD. The document outlines families' experiences from birth to school-age and key issues at each stage, such as developmental delays, communication options, and social skill difficulties. It also identifies factors that did not help families, such as a "wait and see" approach and lack of professional knowledge about ANSD.