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Meeting the
                             needs of
Inclusion of children with   children and
special needs-Ecep 233
Professor: Lisa Mc Caie
                             Families
Student: Muila Mongo
After a serious car accident, Cameron had to be amputated below the knee on
his left leg. He currently uses crutches for mobility. He will start in the
preschool room next Monday. As a teacher I have to describe the needs of the
child, his family, and how these needs will respond to his case setting. Also his
mother wants him to be more physically active, but she is afraid to push him
too hard. She feels guilty because she allowed her son to go with his father in
fact that she was suspected him drove car under the influence of alcohol when
he came for his visitation date. (Handout, case studies 2013, week 6)
It is a birth deficiency in which the backbone and spinal canal do not adjacent
before birth. Also it is a neural tube defect in which bones of spine do not
completely form; resulting in an incomplete spinal canal. The condition is a
type of Spina Bifida.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002525/
http://www.cdc.gov/ncbddd/birthdefects/images/spina_bifida-web.jpg
   Help the child feels that he is needed
    and belongs to the classroom
    environment.
   Encourage and support the child's
    independence such as self-sufficiency,
    self- reliant, and self-control.
   Know how the equipment works
    (crutches) and ask him to show me
    how I can help even his peers too.
   Stress the things that the child can do,
    not the things he cannot do.
   Let the child know that many people
    with physical disabilities lead useful
    and happy lives.                           http://www.waisman.wisc.edu/~rowley/lollor.html
   Some adaptation of the activities may
    be necessary. Of course anything
    involving use of the legs may have to
    be done sitting down
   Mobility may be affected. How much
     movement your child has in his/her legs
    depends on where the lesion is on the back. The
     higher the lesion, the lower the chance is of
     walking independently.
    Difficulties with bowel and bladder control may
     occur. This symptom is dependent on the
     location of the lesion on the back.
    Other conditions such as latex allergies and
     possible skin breakdown from lack of feeling
     are also associated with Spina Bifida.
    Developmental delays may occur and learning
     disabilities are possible. These delays
    May cause learning problems such as difficulty
     paying attention, and expressing or
    Understanding language.
     Organizing, sequencing, and processing of
     information in
    Reading and mathematics may also be affected.
http://www.grandviewcc.ca/sites/default/uploads/files/Dia
gnosis%20Information%20-%20Spina%20Bifida.pdf
   Provide information and emotional
     support to the mother to learn more about
     children who have Spina Bifida
    Get information and find clinics or health
     care providers who are expert in Spina
     Bifida
    Provide resources for the mother to get
     help about feeling guilty for the accident.
    Be consistent and clear when disciplining
     the child
    Help him to use the correct words and
     phrases to express his need.
    Help the child through the steps to solve
     problems when it is upset.
    Give the child a limited number of simple
     choices.
http://www.grandviewcc.ca/sites/default/uploads/files/Diag
nosis%20Information%20-%20Spina%20Bifida.pdf
   Consistent and active treatment is                 Keep in touch with family and
    important to your child’s development, so           friends – seek out their support
    please make every effort to attend all              when needed.
    sessions in a treatment block. Become              Take advantage of community
    active in your child’s therapy following            resources and services available to
    through with home programming and                   you and your child.
    asking questions whenever you have                 The better informed you are as a
    concerns.                                           parent, the better prepared you will
   Maintain contact and speak regularly with           be to get the best services from
                                                        medical, educational, and
    your child’s health care team Keep your             community programs
    child’s team informed of any changes.
                                                       Keep in touch with family and
   Communicate your concerns and goals for             friends – seek out their support
    your child with his/her therapists.                 when needed
   Encourage your child to try new things.
                                                   http://www.grandviewcc.ca/sites/default/uploads/fil
   It is important to provide a strong social     es/Diagnosis%20Information%20-
    support system for your child.                 %20Spina%20Bifida.pdf
   Being the parent of a child with Spina
    Bifida requires a lot of attention and
    energy, so be sure to take time for yourself
    and look after your own needs as well.
.
How they will respond to those
                needs in the preschool room setting
   Adapt learning activities to be inclusive          Add tabs to books for turning pages.
    for the child with Spina Bifida                    Place tape on crayons and markers to
   Provide tools for the child with motor              make them easier to grip.
    disabilities can use for grasping, holding,        Secure paint brushes into a glove, or
    transferring, and releasing.                        provide paint brushes with large knobs
   Make sure the materials are age                     on the ends.
    appropriate for all children in room to use.        Consider buying scissors that open
   Provide materials of different textures             automatically when squeezed, or
    such as play dough, fabric swatches,                scissors that do not require children to
    ribbon, corrugated cardboard and                    use finger holes.
    sandpaper to stimulate the sense of touch          Plan activities to encourage all children
   I will make sure activity areas are well-           to move all body parts.
    lighted, and I will add lamps if needed.
   Work with parents and specialists to           http://www.grandviewcc.ca/sites/default/uploads/files/D
    choose special exercises for the child, and    iagnosis%20Information%20-%20Spina%20Bifida.pdf
    encourage the whole class to do some of
    them as part of a large group activity
Make it easy to move around in play
areas by arranging furniture and
equipment with a wide aisle so the
child can move around more freely,
providing a safe place for walkers,
crutches, or canes so other children do
not trip over them; using heavy, stable
furniture and equipment that cannot be
easily knocked over. Moreover, work
together with the parents to come out
with a comfortable ways for child to sit,
a corner with two walls for supports, a
chair with a seat belt, or a wheelchair
with a large across. These are some
ways I could help
                                                           https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psyab&cp=
http://www.extension.org/pages/26344/specific-ideas-for-   64&gs_id=7&xhr=t&q=Teach+classmates+how+to+help+a+child
                                                           +with+a+physical+disability&bav=on.2,
child-care-providers-to-help-children-with-physical-
disabilities
Teach classmates how to help a child
       with a physical disability
   Applaud and encourage             Encourage children to find creative
    helping behaviors, and also        ways to include a child with physical
    teach them to encourage            disability in their play activities
                                  http://www.extension.org/pages/26344/specific-ideas-for-
    their classmates to do as     child-care-providers-to-help-children-with-physical-
                                  disabilitie
    much as possible on his
    own.                          https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psy-
                                  ab&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to
   Teach children to assist      +help+a+child+with+a+physical+disability&bav=
    children with disabilities
    when need
   Teach children how to offer
    help respectfully
   Encourage them to ask if
    the child wants help first,
    and to take “no” as an
    answers.
Spina bifida occulta: Visible indications of SB occulta can sometimes be seen on the
newborn's skin above the spinal defect, including:
  An abnormal tuft of hair
  A collection of fat
  A small dimple or a birthmark
  Skin discoloration
Meningocele: in this rare form, the protective membranes around the spinal cord
(meninges) push out through the opening in the vertebrae.
Myelomeningocele: tissues and nerves are exposed, making the baby prone to life-
threatening infections.
  Neurological impairment is common, including:
  Muscle weakness, sometimes involving paralysis
  Bowel and bladder problems
  Seizures, especially if the child requires a shunt
  Orthopedic problems

http://www.youtube.com/watch?v=6Ii_v3t9hpU
http://animoto.com/play/9noir2KenjdO2jQA9u5ncA
Spina bifida occulta: it’s estimated at 15%
of healthy people have spina bifida occulta
and don’t even know it. An X-ray of their
back at some point later in life may reveal
the condition
Meningocele: In this form of spina bifida,
the protective covering around the spinal
cord, But the spinal cord is not in this sack,
so there’s little or no damage to the nerve
pathways.
Myelomeningocele: This is the most severe
form of spina bifida, where a portion of the
spinal cord itself protrudes through the
back. This needs to be corrected surgically
within 24 to 48 hours after birth, but some
degree of nerve damage has already
occurred and more severe disabilities can
result.
http://nichcy.org/disability/specific/spinabifida
http://www.cdc.gov/ncbddd/spinabifida/facts.html

http://www.youtube.com/watch?v=CldPx9EwYAc
   Spina bifida can happen anywhere along the spine if the neural tube does
     not close all the way. The backbone that protects the spinal cord does not
     form and close as it should. This often results in damage to the spinal cord
     and nerves.
    Spina bifida might cause physical and intellectual disabilities that range
     from mild to severe. The severity depends on:
    The size and location of the opening in the spine.
    Whether part of the spinal cord and nerves are affected.
http://www.cdc.gov/ncbddd/spinabifida/facts.html
   Spina Bifida affects the entire family. Meeting the complex
    needs of a person affected involves the whole family and can
    be challenging at time. However, finding resources, knowing
    what to expect, and planning for the future can help.
    http://www.cdc.gov/ncbddd/spinabifida/living.html
Spina bifida occulta: Visible indications of SB
occulta can sometimes be seen on the newborn's skin
above the spinal defect, including:
  An abnormal tuft of hair
  A collection of fat
  A small dimple or a birthmark
  Skin discoloration
Meningocele: in this rare form, the protective
membranes around the spinal cord (meninges) push
out through the opening in the vertebrae.
Myelomeningocele: tissues and nerves are
exposed, making the baby prone to life-threatening
infections.
  Neurological impairment is common, including:
  Muscle weakness, sometimes involving paralysis
  Bowel and bladder problems
  Seizures, especially if the child requires a shunt
  Orthopedic problems
http://www.mayoclinic.com/health/spina-
bifida/DS00417/DSECTION=symptoms
   No one knows completely what cause SB. Scientists stated that it is most likely due
    to a combination of inherited (genetic), environmental and nutritional factors.
   Lack of folic acid during the pregnancy has a higher chance of giving birth to a
    baby with SB. However, experts recommend for women of reproductive age to
    make sure their folic acid intake adequate.
    If a woman gives birth to a baby with SB, she has a higher-than-normal risk of
    having another baby with SB too (about 5% risk).
   Treating Epilepsy or Bipolar disorder have been associated with higher risk of
    congenital defect birth such as SB, and some medication as well.
   Women with diabetes are more likely to have a baby with SB, compared to other
    females.
http://www.medicalnewstoday.com/articles/220424.php
   In the majority of cases, SB is detected when the pregnant mother has a routine ultrasound scan.
   Pregnant women may be offered SB and other birth defect screening tests. The tests are not 100% accurate.

   MSAFP (maternal serum alpha-fetoprotein) test
  A triple screen or quadruple (quad) screen, tests are performed during a woman's
    pregnancy.
  The ultrasound amniocentesis. A sample of fluid is removed from the amniotic sac and
    tested for AFP levels.
http://www.medicalnewstoday.com/articles/220424.php
https://www.google.ca/search?hl=en&q=spina+bifida+occulta&bav
Treatment depends on several factors, mainly how severe the individual's signs and
symptoms are. In most cases of spina bifida occulta, no treatment is needed.
  Surgery: this is usually done to repair the spine within two days of birth.
  Hydrocephalus: required surgery to treat a build up of CFS (cerebrospinal fluid) in
    brain. The surgeon implants a shunt (thin tube) in the baby's brain
  Physical therapy (UK: physiotherapy) : this treatment help a child to became
    independent as possible.
  Prenatal surgery: it repairs the unborn baby's spinal cord done during week 19 to 25 of
    pregnancy. Because the risk of worsening spina bifida just after the baby is born, some
    experts say it is better to fix things beforehand
  C-section birth: doctor recommends it if the fetus has cesarean section
  Occupational therapy: helps with self-esteem and independence, perform everyday
    activities more effectively in getting dressed
  Assistive technologies - a patient with total paralysis of the legs will need
    a wheelchair.
  Urinary incontinence - the patient will probably be referred to a urologist
    for assessment.
http://www.medicalnewstoday.com/articles/220424.php
   Occupational Therapy and Physiotherapy are
     the main therapies needed for children
  with Spina Bifida. Occupational Therapists
     and Physiotherapists will often work as a team
     in caring for your child.
  The goal of therapy is to help your child to
     maximize mobility and to become as
     independent as possible at home, in school,
     and in the community.
  Therapy involves: increasing strength, balance,
     and flexibility through exercise
  preventing orthopaedic problems with exercise
     and ositioning devices recommending
     equipment to help with independence, I
     walkers, wheelchairs,
  bathroom equipment modifying household
  equipment increasing independence with
     Activities of Daily Living (ADL’s) such as
     dressing,
  eating and toileting increasing independent use
     of tools such as scissors, pencils, cutlery,
     toothbrush,
http://www.grandviewcc.ca/sites/default/u
ploads/files/Diagnosis%20Information%20-
%20Spina%20Bifida.pdf
   Each year, about 1,500 babies are born
    with spina bifida.
  Hispanic women have the highest rate of
    having a child affected by SB compared
    with Non-Hispanic White and Non-
    Hispanic Black women:
  Hispanic: 4.17 per 10,000,Non-Hispanic
    Black or African-American: 2.64
    per10,000, Non-Hispanic White: 3.22 per
    10,000
  The prevalence rate of spina bifida
    declined 31% from the prefortification
    (1995–1996) rate of 5.04 per 10,000 to the
    post-fortification (1998–2006) rate of 3.49
    per 10,000.
http://www.cdc.gov/ncbddd/spinabifi
da/data.htm
The environment: The environment is a third teacher in childcare setting. It
plays an important role, children learn through the environment. As a teacher I
must gather as much as information I can about the child with special need,
and learn about typical modifications that can be made. Working closely with
parents, professionals will be an excellent resource to get suggestions and to
ask questions. Modification of the environment would be beneficial for the
child in special needs and even for his peers
Plan together: Set a goal in collaboration with parents, consultant, and
caregivers to be a part of the team who develops the child`s Individualized
Education Plan (IEP). Meeting together to plan goals and needs of the child,
and discuss about activities, exercises, and support needed to reach goals in
closely collaboration. These goals should always match the child’s disability
by discussing ideas and plans with the family.
As an ECE in order to help Cameron to
move around throughout the day I will use
the prompt and fading technique to help him
learn new skills, to built independence, and
self-esteem. Also I will make sure that the
physical space are removal of barriers for
him to have traffic flow . Materials, toys,
and equipment will be accessible for indoor
and outdoor for wheelchair or crutches,
appropriate size toys, shelves at child level.
Safety and safe risk taking by being
responsive all the time, by understanding
child feelings, treating him as an equal
being rather than isolate, cognitive and
communication.

http://www.cdc.gov/ncbddd/spinabifida/li
ving.html
Name of prompt : Environment

       Prompting and fading :Goal –Cameron will
       stand up and move around when asked
       independently

Types prompt       Examples              ECE BODY
                                         POSITION
Environment        Providing verbal      Full and partial
prompting          pictures,
                   labelling
                   materials in the
                   room and cue
                   cards

   Least to most prompt is used when the child has the
   skills but doesn’t do it on request. (Class notes)
Type of            Example         ECE body
 prompt             Pointing to     position
 Pointing           the crutches
 prompting




Type of prompting Example                    ECE body position
Full prompting         Put crutches in her   In front of the child
                       hand
Partial prompting      Put the crutches in Behind /beside the
                       front of her hand in child
                       her own personal
                       space
Types of            Example                 ECE body position
prompting
Full prompting      Giving full step by     In front of the child
                    step instruction
                    without gesture
Partial prompting   Giving partial          Behind or beside
                    instruction and         the child.
                    waiting to see if the
                    child will do the
                    task
Gestures prompting Asking questions
Prompt: Modeling


Types of             Example             Body positioning
prompting                                of the ECE
Full Prompting       Using verbal        In front of the child
                     instruction when
                     doing the task
                     together
Partial Prompting    Using verbal        Beside/behind the
                     instruction to      child
                     pretend to do the
                     task
Prompting and fading :Goal –Cameron will stand
up and move around when asked independently


       Types of      Example                  Body
       prompting                              positioning of
                                              the ECE
       Full          Hand over hand- The      In front/or behind
       prompting     child requires full      the child
                     physical assistance to
                     carry out the task

       Partial       The child requires     In front or behind
       prompting     partial physical       the child
                     assistance by touching
                     the arm, elbows and
                     wrist



                         Week 8 class note
By providing specific classroom
devices and altering the classroom
environment, I will help Cameron
to achieve success in the classroom.
By providing a desk for him where
he can easily maneuver around the
classroom and have enough space to
sit comfortably. I may need to
provide a special desk for him or
rearrange some of the classroom
supplies to provide easy access to
the materials. Scheduling to
accommodate anything imperative
in the last minute
 http://www.ehow.com/way_5623432_classroo
m-strategies-students-physical-
disabilities.html
To help Cameron to be inclusive
in learning environment, I will
divide the class into learning
station so he will feel comfortable
and succeed in this new
environment. I will set up the
desks or tables in a way of all the
student can negotiate. Also I will
implement activities which will
promote inclusion and integration
among his peers to encourage
group work and structured
partner activities.

http://www.ehow.com/info_8346921_ada
ptations-inclusive-classroom.html
Active learning: Effectively use to develop
cognitive skills among children such as problem
solving and critical thinking, and improve student’s
understanding.
Collaborative/cooperative learning:
 student work together in small groups to
accomplish a common learning goal.
Critical thinking: It brings the activity together
and enables the student to question what knowledge
exists.
Discussion strategies: Engaging students in
discussion deepens their Learning and motivation
by propelling them to develop their own views and
hear their own voices. A good environment for
interaction is the first step in encouraging students
to talk.
http://pedagogy.merlot.org/TeachingStrategies.h
tml
During birthday party: this is a great
opportunity to see for yourself which
children interact best with your child. The
children that want to sit next to the
birthday boy or girl are good candidates
for future play
Ask your child’s teacher: if there is a
friend who likes to talk with your child
then try to connect with him to build a
friendship out of school.
Find another child with special needs:
Wouldn’t it be nice to find a fellow friend
who is going through the same issues and
might have similar interests?
http://www.oneplaceforspecialneeds.com/main/lib
rary_finding_friends.html
Experience learning: an approach of educational
of focus on learning by doing. ECE role is to design
direct experience that include preparatory and
reflective exercises.
Games/experience/simulations: Games and
simulations enable students to solve real-world
problems in a safe environment and enjoy
themselves while doing so.
Humor in the classroom: Enhance student
learning by improving understanding and
retention.
Inquiry guided learning: Encourages students to
build research skills that can be used throughout
their educational experiences.
Learning community: Communities bring people
together for shared learning, discovery, and the
generation of knowledge

http://pedagogy.merlot.org/TeachingStrategies.h
tml
Camaro's mother wants him to be
     physically active .

   It might be difficult for Cameron to
    verbally communicate her current
    symptoms of pain or changes in how his
    joints are functioning. I will ask her to
    color a body outline or draw pictures. This
    will be an effective communication tool to
    help me better understand his symptoms
    and make appropriate accommodations.
   Encourage him to look at strengths rather
    than limitations.
   Include him in planning classroom
    modifications.
   Encourage decision making and
    acceptance of responsibility.
   Help Cameron to participate in social
    interactions with peers and extracurricular
    activities whenever possible.
   Encourage acceptance of diversity and
    individual differences in the classroom.
Paediatric orthopaedic surgeon

 Children with Spina Bifida may                 Social worker
  need to see different specialist              and counsellor


Paediatrician



                                                                                      Podiatrist




                                                Physical therapist

     http://www.teachmorelovemore.com/SpecialNeedsDetails.asp?id=23#286
   Where there located?
 P.O. Box 103, Suite 1006
555 Richmond Street West
Toronto, Ontario M5V 3B1
Toronto & GTA: 416-214-1056
Toll Free: 800-387-1575 (Ontario Only)
Fax: 416-214-1446
Email: provincial@sbhao.on.
  What they are doing?
“To build awareness and drive education,
research, support, care and advocacy to help
find a cure while always continuing to
improve the quality of life of all individuals
with spina bifida and/or hydrocephalus.”
http://www.sbhao.on.ca/programs-services/care-
and-support/parent-support
   What to do with family?
   Spirit of our organization that has been
                                                      They understand how difficult it can be,
    committed for over 30 years to making a           even when things are going smoothly, to face
    positive difference in the lives of people with   the added challenges and concerns of living
    SB&H, an association of volunteers                with spina bifida and/or hydrocephalus.
    providing a comprehensive range of help to        SB&H provides direct service to adults,
    parents, families, youth and adults with          youth, parents and guardians dealing with
    SB&H.                                             the challenges of spina bifida and/or
   Breakthrough because of our spirited and          hydrocephalus, offering information,
    sustained mission of                              resources, emotional support, counselling
    research, awareness, care and advocacy our        and networking opportunities.
    organization will steadily break through          For more information please contact SB&H
    barriers and continually improve the quality      at 1-800-387-1575 or email
    of life and ensure fair treatment and social      http://www.sbhao.on.ca/programs-
    justice for all individuals with SB&H.            services/care-and-support/parent-support
   Hope within our organization dedicated to
    ongoing therapy, medical care and surgical
    treatments to minimize further neurological
    damage and through our determined
    commitment to Spirit, Breakthrough & Hope
    a cure will be found.
Spina Bifida and Spinal Cord
    The spina bifida and spinal cord team sees
     clients annually at their clinic appointment, but
     also provides intervention and consultation
     services as required. This inter-disciplinary team
     is made up of a pediatrician, ambulatory care
     nurses, physiotherapists, an occupational
     therapist, a speech-language pathologist, a social
     worker and a psychologist. The team also has
     access to medical consultants in the areas of
     orthopedics and urology
  The team also has access to medical consultants
     in the areas of orthopedics and urology. To
     enable co-ordination of care of each child, the
     Spina Bifida/Spinal Cord team communicates
     with other involved community partners such as
     schools, the Community Care Access Centre,
     other medical facilities and government
     agencies.
  Referrals
To access this service, a pediatrician’s referral is
required and the client must reside within the Toronto
area or within an area that cannot access a local
treatment centre within Ontario.
http://holland-
bloorview.heroku.com/floors/2/facilities/57
    Contact
Dulcie Styles
Clinic Secretary, Child Development Program
Tel: 416-425-6220, ext. 3835
E-mail: dstyles@hollandbloorview.ca
  Child Development Program
     Tel: 416-425-6220 ext. 7050
  What to do with family?
The Spina Bifida/Spinal Cord team uses a
multidisciplinary, family centred
approach. Clients are seen annually or more
frequently if necessary, in a clinic setting by
various professionals as determined by the needs
of each client.
The team also provides intervention and
consultation as required between clinic
visits. Services are provided by a pediatrician,
ambulatory care nurses, physiotherapists, an
occupational therapist, a speech-language
pathologist, a social worker and a psychologist.
http://hollandbloorview.heroku.com/floors/2/f
acilities/57
    Where there located?
The Hospital for Sick Children
555 University Avenue
Toronto, Ontario
Canada
M5G 1X8
General inquiries: 416-813-1500
Patient information/locating: 416-813-6621

What to do with family?
     Spinal Column Trauma/Developmental
      Anomalies
Children and adolescents with defined spinal
column/cord injuries or developmental anomalies
are treated jointly by the orthopaedic and
neurosurgeons. Both external and operative
internal fixation procedures are carried out and
the rehabilitation program customized
individually for each patient.
   Thames Valley Children's Centre
     779 Baseline Rd.E.
     London, Ontario N6C 5Y6
     Phone: 519-685-8700
     outside the London area
      call toll free 1-866-590-8822
  Children with spina bifida from the 10
     counties of Southwestern Ontario are followed
     through the Spina Bifida Clinic at Thames
     Valley Children's Centre (TVCC). Four
     medical specialists and some members of the
     TVCC Spina Bifida Resource Group are
     present at the clinic.
  Members of the Spina Bifida Resource Group
     are responsible for keeping current on research
     and issues relating to spina bifida. They share
     this information with parents and teens through
     handouts, individual discussion, and by
     directing them to appropriate services and
     resources in their communities and or
     educational programs at TVCC. They function
     in a consulting capacity to other health care
     workers (therapists, doctors, etc.), schools, and
     other agencies both at the Centre and in the
     community.
http://www.tvcc.on.ca/spina-bifida-clinic-5.htm
  Where there located?
Durham Youth Services
555 Richmond St W, Suite 1006, PO Box 103
Toronto, ON M5V 3B1
416-214-1056 * Durham Community Contact
905-576-6332 ,Fax 416-214-1446 ,Toll Free 1-
800-387-1575
  Supports individuals with spina bifida
    and/or hydrocephalus * supports research
    for a cure * awareness, education, care and
    advocacy * personal support, guidance and
    educational materials to help understand
    and cope * toll-free help line, Connections
    Linking Program, information and
    education, online community forum and
    youth section * scholarship
http://youth.durham.cioc.ca/record/OSH0434
•  One Concorde Gate, Suite 700
     Toronto, ON M3C 3N6
     Tel: 416.421.8377
     1.800.668.6252
     Fax: 416.696.1035
     E-mail: info@easterseals.org
•  This organization serves children and
     youth under 1
9 years of age who have neuromuscular,
musculoskeletal, or neurological conditions which
limit mobility and/or physical function. The Easter
Seal Society provides a variety of services to help
better the lives of children and youth with physical
disabilities, and their families. These services include:
financial assistance; diapers and incontinence
supplies; resource information; camping and respite
care; peer support; independence and life skills; and
strategies to enable families to advocate for and
access services within their communities. The Easter
Seal Society - Incontinence Supplies Grant
                                        Gra
Agencies Providing Services
                                                      Infant Development Services Health
    Program for Children and Youth with               Department, Region of Durham
     Disabilities                                      Whitby Mall, Suite 12B
1185 Eglinton Ave, East, Suite 706                1615 Dundas Street East, Whitby, ON L1N
                                                  2L1 (905) 723-8521 This organization is a
North York, ON, M3C 3C6
                                                  home-based, family-centered, early
416-421-8377 ext. 314 or 1-888-377-5437           intervention service available to children
(1-888-ESS-KIDS)                                  (age 0-6 years old) and their families. This
www.easterseals.org/services/default.asp?loa      service is open to children who have
                                                  experienced prenatal, perinatal, or postnatal
d=incontinenceThis grant is available to
                                                  problems, who are developmentally delayed,
Ontario residents, ages 3 to 18 years, who        or who have a physical or developmental
have a chronic disability that requires the use   disability. Programs and services help
of incontinence supplies. To obtain an            parents to understand their child’s growth
application, contact the Easter Seal Society      and development, teach their child new
at the website or number listed above. Your       skills, access community programs and
child’s doctor must complete a portion of the     resources, and reach goals that are important
                                                  to the well-being of their family and child.
application
                                                  Families must contact this organization
                                                  directly to obtain services. Resources For
                                                  Exceptional Children
Agencies Providing Services
    Government Funding Assistance
     For Children with Severe                      Special Services at Home
     Disabilities (ACSD)Ministry of                 Program(SSAH)
     Community, Family and Children’s          Ministry of Community, Family and
     Services                                  Children’s Services
1400 Hopkins Street, Whitby, ON L1N            1400 Hopkins Street, Whitby, ON L1N 2C3
2C3
(905) 665-1030                                 (905) 665-1030 This organization assists
This organization provides funding that is     children (ages 0-99) with developmental
paid monthly to eligible families with a       disabilities and physical disabilities (ages 0-
child                                          18) who are living at home with their
under 18 years of age, who has a               families. The program provides funding that
disability, and has extraordinary costs,       can be used toward individual development
such as respite/relief care; transportation;   activities and respite/relief care. The family
special clothing, diet and medical             may contact this organization directly for an
expenses; and educational and social fees.     application.
The size of the family and total family
income (gross) determine the amount            http://www.grandviewcc.ca/sites/default/u
granted. The family should contact this        ploads/files/Diagnosis%20Information%2
organization directly for an application       0-%20Spina%20Bifida.pdf
   Canada Revenue Agency                                   President’s Choice Children’s Charity
www.crarc.gc.ca/menu-e.htm 1-800-959-8281                6220A Yonge St. North York, ON M2M 3X4
Provides information related to deductions,
programs and services for persons with disabilities,     Tel: 1-866-996-9918
including the Disability Tax Credit.                     www.presidentschoice.ca
Charities Providing Financial Assistance For             This organization is dedicated to helping
the Love of a Child                                      children
P.O. Box 263, Whitby, ON, L1N 5S1 (905) 668-             who are physically or developmentally
0072                                                     challenged. They provide direct financial
This organization is concerned with improving the        assistance in the purchase of expensive
quality of life for children with special needs living   equipment, therapy, and more. For more
in the Durham Region. Their mandate is to help
families with expenses directly related to having a      information, contact them or visit their
child with special needs. This may include               website. Partnership In Service c/o Rotary
specialized medical equipment, therapeutic or            Club of Whitby Sunrise A group of local
recreational activities, educational seminars or         service clubs which raise funds to provide
workshops. This service is operated by volunteers
and provides assistance after other sources have         assistance to children
been
   Spina Bifida occurs in all
     races, ethnic groups,
     scioeconomic classes, and
     nationalities and in both boys
     and girls.
    Each child with Spina Bifida is
     a unique individual with
     his/her own personality,
     strengths, talents and thoughts.
    Children with Spina Bifida can
     participate in many community
     programs such as sports, arts
     and crafts, music, scouts,
     school, etc.

http://www.grandviewcc.ca/sites/default/uploads/f
iles/Diagnosis%20Information%20-
%20Spina%20Bifida.pdf
http://www.grandviewcc.ca/sites/default/uploads/files/
https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psy-      Diagnosis%20Information%20-
ab&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to           %20Spina%20Bifida.pdf
+help+a+child+with+a+physical+disability&bav               http://www.cdc.gov/ncbddd/spinabifida/data.htm
http://www.extension.org/pages/26344/specific-ideas-for-   http://www.cdc.gov/ncbddd/spinabifida/living.html
child-care-providers-to-help-children-with-physical-       Handout week 8
disabilities                                                http://www.ehow.com/way_5623432_classroom-
https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psya      strategies-students-physical-disabilities.html
b&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to+           http://www.ehow.com/info_8346921_adaptations-
help+a+child+with+a+physical+disability&bav=on.2           inclusive-classroom.html
http://www.youtube.com/watch?v=6Ii_v3t9hpU                 http://www.oneplaceforspecialneeds.com/main/library
http://animoto.com/play/yfJzjHtgnLC0MHpXhaYAAQ             _finding_friends.html
http://nichcy.org/disability/specific/spinabifida          http://pedagogy.merlot.org/TeachingStrategies.htm
                                                           http://www.sbhao.on.ca/programs-services/care-and-
http://www.cdc.gov/ncbddd/spinabifida/facts.html
                                                           support/parent-support
http://www.youtube.com/watch?v=CldPx9EwYAc
                                                           http://hollandbloorview.heroku.com/floors/2/facilities/
http://www.cdc.gov/ncbddd/spinabifida/facts.html           57
http://www.cdc.gov/ncbddd/spinabifida/living.html          http://youth.durham.cioc.ca/record/OSH0434
http://www.mayoclinic.com/health/spina-                    http://www.tvcc.on.ca/spina-bifida-clinic-5.htm
bifida/DS00417/DSECTION=symptoms                           http://www.grandviewcc.ca/sites/default/uploads/files/
http://www.medicalnewstoday.com/articles/220424.php        Diagnosis%20Information%20-
http://www.medicalnewstoday.com/articles/220424.ph
                                                           %20Spina%20Bifida.pdf
https://www.google.ca/search?hl=en&q=spina+bifida+occul    http://www.grandviewcc.ca/sites/default/uploads/files/
ta&bav                                                     Diagnosis%20Information%20-
                                                           %20Spina%20Bifida.pdf
http://www.medicalnewstoday.com/articles/220424.php
                                                           http://www.cdc.gov/ncbddd/spinabifida/data.htmhttp:
http://www.cdc.gov/ncbddd/spinabifida/living.html
                                                           //www.cdc

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Meeting the needs of children and families lisa 2

  • 1. Meeting the needs of Inclusion of children with children and special needs-Ecep 233 Professor: Lisa Mc Caie Families Student: Muila Mongo
  • 2. After a serious car accident, Cameron had to be amputated below the knee on his left leg. He currently uses crutches for mobility. He will start in the preschool room next Monday. As a teacher I have to describe the needs of the child, his family, and how these needs will respond to his case setting. Also his mother wants him to be more physically active, but she is afraid to push him too hard. She feels guilty because she allowed her son to go with his father in fact that she was suspected him drove car under the influence of alcohol when he came for his visitation date. (Handout, case studies 2013, week 6)
  • 3. It is a birth deficiency in which the backbone and spinal canal do not adjacent before birth. Also it is a neural tube defect in which bones of spine do not completely form; resulting in an incomplete spinal canal. The condition is a type of Spina Bifida. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002525/ http://www.cdc.gov/ncbddd/birthdefects/images/spina_bifida-web.jpg
  • 4. Help the child feels that he is needed and belongs to the classroom environment.  Encourage and support the child's independence such as self-sufficiency, self- reliant, and self-control.  Know how the equipment works (crutches) and ask him to show me how I can help even his peers too.  Stress the things that the child can do, not the things he cannot do.  Let the child know that many people with physical disabilities lead useful and happy lives. http://www.waisman.wisc.edu/~rowley/lollor.html  Some adaptation of the activities may be necessary. Of course anything involving use of the legs may have to be done sitting down
  • 5. Mobility may be affected. How much movement your child has in his/her legs  depends on where the lesion is on the back. The higher the lesion, the lower the chance is of walking independently.  Difficulties with bowel and bladder control may occur. This symptom is dependent on the location of the lesion on the back.  Other conditions such as latex allergies and possible skin breakdown from lack of feeling are also associated with Spina Bifida.  Developmental delays may occur and learning disabilities are possible. These delays  May cause learning problems such as difficulty paying attention, and expressing or  Understanding language. Organizing, sequencing, and processing of information in  Reading and mathematics may also be affected. http://www.grandviewcc.ca/sites/default/uploads/files/Dia gnosis%20Information%20-%20Spina%20Bifida.pdf
  • 6. Provide information and emotional support to the mother to learn more about children who have Spina Bifida  Get information and find clinics or health care providers who are expert in Spina Bifida  Provide resources for the mother to get help about feeling guilty for the accident.  Be consistent and clear when disciplining the child  Help him to use the correct words and phrases to express his need.  Help the child through the steps to solve problems when it is upset.  Give the child a limited number of simple choices. http://www.grandviewcc.ca/sites/default/uploads/files/Diag nosis%20Information%20-%20Spina%20Bifida.pdf
  • 7. Consistent and active treatment is  Keep in touch with family and important to your child’s development, so friends – seek out their support please make every effort to attend all when needed. sessions in a treatment block. Become  Take advantage of community active in your child’s therapy following resources and services available to through with home programming and you and your child. asking questions whenever you have  The better informed you are as a concerns. parent, the better prepared you will  Maintain contact and speak regularly with be to get the best services from medical, educational, and your child’s health care team Keep your community programs child’s team informed of any changes.  Keep in touch with family and  Communicate your concerns and goals for friends – seek out their support your child with his/her therapists. when needed  Encourage your child to try new things. http://www.grandviewcc.ca/sites/default/uploads/fil  It is important to provide a strong social es/Diagnosis%20Information%20- support system for your child. %20Spina%20Bifida.pdf  Being the parent of a child with Spina Bifida requires a lot of attention and energy, so be sure to take time for yourself and look after your own needs as well. .
  • 8. How they will respond to those needs in the preschool room setting  Adapt learning activities to be inclusive  Add tabs to books for turning pages. for the child with Spina Bifida  Place tape on crayons and markers to  Provide tools for the child with motor make them easier to grip. disabilities can use for grasping, holding,  Secure paint brushes into a glove, or transferring, and releasing. provide paint brushes with large knobs  Make sure the materials are age on the ends. appropriate for all children in room to use.  Consider buying scissors that open  Provide materials of different textures automatically when squeezed, or such as play dough, fabric swatches, scissors that do not require children to ribbon, corrugated cardboard and use finger holes. sandpaper to stimulate the sense of touch  Plan activities to encourage all children  I will make sure activity areas are well- to move all body parts. lighted, and I will add lamps if needed.  Work with parents and specialists to http://www.grandviewcc.ca/sites/default/uploads/files/D choose special exercises for the child, and iagnosis%20Information%20-%20Spina%20Bifida.pdf encourage the whole class to do some of them as part of a large group activity
  • 9. Make it easy to move around in play areas by arranging furniture and equipment with a wide aisle so the child can move around more freely, providing a safe place for walkers, crutches, or canes so other children do not trip over them; using heavy, stable furniture and equipment that cannot be easily knocked over. Moreover, work together with the parents to come out with a comfortable ways for child to sit, a corner with two walls for supports, a chair with a seat belt, or a wheelchair with a large across. These are some ways I could help https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psyab&cp= http://www.extension.org/pages/26344/specific-ideas-for- 64&gs_id=7&xhr=t&q=Teach+classmates+how+to+help+a+child +with+a+physical+disability&bav=on.2, child-care-providers-to-help-children-with-physical- disabilities
  • 10. Teach classmates how to help a child with a physical disability  Applaud and encourage  Encourage children to find creative helping behaviors, and also ways to include a child with physical teach them to encourage disability in their play activities http://www.extension.org/pages/26344/specific-ideas-for- their classmates to do as child-care-providers-to-help-children-with-physical- disabilitie much as possible on his own. https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psy- ab&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to  Teach children to assist +help+a+child+with+a+physical+disability&bav= children with disabilities when need  Teach children how to offer help respectfully  Encourage them to ask if the child wants help first, and to take “no” as an answers.
  • 11. Spina bifida occulta: Visible indications of SB occulta can sometimes be seen on the newborn's skin above the spinal defect, including:  An abnormal tuft of hair  A collection of fat  A small dimple or a birthmark  Skin discoloration Meningocele: in this rare form, the protective membranes around the spinal cord (meninges) push out through the opening in the vertebrae. Myelomeningocele: tissues and nerves are exposed, making the baby prone to life- threatening infections.  Neurological impairment is common, including:  Muscle weakness, sometimes involving paralysis  Bowel and bladder problems  Seizures, especially if the child requires a shunt  Orthopedic problems http://www.youtube.com/watch?v=6Ii_v3t9hpU http://animoto.com/play/9noir2KenjdO2jQA9u5ncA
  • 12. Spina bifida occulta: it’s estimated at 15% of healthy people have spina bifida occulta and don’t even know it. An X-ray of their back at some point later in life may reveal the condition Meningocele: In this form of spina bifida, the protective covering around the spinal cord, But the spinal cord is not in this sack, so there’s little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, where a portion of the spinal cord itself protrudes through the back. This needs to be corrected surgically within 24 to 48 hours after birth, but some degree of nerve damage has already occurred and more severe disabilities can result. http://nichcy.org/disability/specific/spinabifida
  • 14. Spina bifida can happen anywhere along the spine if the neural tube does not close all the way. The backbone that protects the spinal cord does not form and close as it should. This often results in damage to the spinal cord and nerves.  Spina bifida might cause physical and intellectual disabilities that range from mild to severe. The severity depends on:  The size and location of the opening in the spine.  Whether part of the spinal cord and nerves are affected. http://www.cdc.gov/ncbddd/spinabifida/facts.html
  • 15. Spina Bifida affects the entire family. Meeting the complex needs of a person affected involves the whole family and can be challenging at time. However, finding resources, knowing what to expect, and planning for the future can help. http://www.cdc.gov/ncbddd/spinabifida/living.html
  • 16. Spina bifida occulta: Visible indications of SB occulta can sometimes be seen on the newborn's skin above the spinal defect, including:  An abnormal tuft of hair  A collection of fat  A small dimple or a birthmark  Skin discoloration Meningocele: in this rare form, the protective membranes around the spinal cord (meninges) push out through the opening in the vertebrae. Myelomeningocele: tissues and nerves are exposed, making the baby prone to life-threatening infections.  Neurological impairment is common, including:  Muscle weakness, sometimes involving paralysis  Bowel and bladder problems  Seizures, especially if the child requires a shunt  Orthopedic problems http://www.mayoclinic.com/health/spina- bifida/DS00417/DSECTION=symptoms
  • 17. No one knows completely what cause SB. Scientists stated that it is most likely due to a combination of inherited (genetic), environmental and nutritional factors.  Lack of folic acid during the pregnancy has a higher chance of giving birth to a baby with SB. However, experts recommend for women of reproductive age to make sure their folic acid intake adequate.  If a woman gives birth to a baby with SB, she has a higher-than-normal risk of having another baby with SB too (about 5% risk).  Treating Epilepsy or Bipolar disorder have been associated with higher risk of congenital defect birth such as SB, and some medication as well.  Women with diabetes are more likely to have a baby with SB, compared to other females. http://www.medicalnewstoday.com/articles/220424.php
  • 18. In the majority of cases, SB is detected when the pregnant mother has a routine ultrasound scan.  Pregnant women may be offered SB and other birth defect screening tests. The tests are not 100% accurate.  MSAFP (maternal serum alpha-fetoprotein) test  A triple screen or quadruple (quad) screen, tests are performed during a woman's pregnancy.  The ultrasound amniocentesis. A sample of fluid is removed from the amniotic sac and tested for AFP levels. http://www.medicalnewstoday.com/articles/220424.php https://www.google.ca/search?hl=en&q=spina+bifida+occulta&bav
  • 19. Treatment depends on several factors, mainly how severe the individual's signs and symptoms are. In most cases of spina bifida occulta, no treatment is needed.  Surgery: this is usually done to repair the spine within two days of birth.  Hydrocephalus: required surgery to treat a build up of CFS (cerebrospinal fluid) in brain. The surgeon implants a shunt (thin tube) in the baby's brain  Physical therapy (UK: physiotherapy) : this treatment help a child to became independent as possible.  Prenatal surgery: it repairs the unborn baby's spinal cord done during week 19 to 25 of pregnancy. Because the risk of worsening spina bifida just after the baby is born, some experts say it is better to fix things beforehand  C-section birth: doctor recommends it if the fetus has cesarean section  Occupational therapy: helps with self-esteem and independence, perform everyday activities more effectively in getting dressed  Assistive technologies - a patient with total paralysis of the legs will need a wheelchair.  Urinary incontinence - the patient will probably be referred to a urologist for assessment. http://www.medicalnewstoday.com/articles/220424.php
  • 20. Occupational Therapy and Physiotherapy are the main therapies needed for children  with Spina Bifida. Occupational Therapists and Physiotherapists will often work as a team in caring for your child.  The goal of therapy is to help your child to maximize mobility and to become as independent as possible at home, in school, and in the community.  Therapy involves: increasing strength, balance, and flexibility through exercise  preventing orthopaedic problems with exercise and ositioning devices recommending equipment to help with independence, I walkers, wheelchairs,  bathroom equipment modifying household  equipment increasing independence with Activities of Daily Living (ADL’s) such as dressing,  eating and toileting increasing independent use of tools such as scissors, pencils, cutlery, toothbrush, http://www.grandviewcc.ca/sites/default/u ploads/files/Diagnosis%20Information%20- %20Spina%20Bifida.pdf
  • 21. Each year, about 1,500 babies are born with spina bifida.  Hispanic women have the highest rate of having a child affected by SB compared with Non-Hispanic White and Non- Hispanic Black women:  Hispanic: 4.17 per 10,000,Non-Hispanic Black or African-American: 2.64 per10,000, Non-Hispanic White: 3.22 per 10,000  The prevalence rate of spina bifida declined 31% from the prefortification (1995–1996) rate of 5.04 per 10,000 to the post-fortification (1998–2006) rate of 3.49 per 10,000. http://www.cdc.gov/ncbddd/spinabifi da/data.htm
  • 22. The environment: The environment is a third teacher in childcare setting. It plays an important role, children learn through the environment. As a teacher I must gather as much as information I can about the child with special need, and learn about typical modifications that can be made. Working closely with parents, professionals will be an excellent resource to get suggestions and to ask questions. Modification of the environment would be beneficial for the child in special needs and even for his peers Plan together: Set a goal in collaboration with parents, consultant, and caregivers to be a part of the team who develops the child`s Individualized Education Plan (IEP). Meeting together to plan goals and needs of the child, and discuss about activities, exercises, and support needed to reach goals in closely collaboration. These goals should always match the child’s disability by discussing ideas and plans with the family.
  • 23. As an ECE in order to help Cameron to move around throughout the day I will use the prompt and fading technique to help him learn new skills, to built independence, and self-esteem. Also I will make sure that the physical space are removal of barriers for him to have traffic flow . Materials, toys, and equipment will be accessible for indoor and outdoor for wheelchair or crutches, appropriate size toys, shelves at child level. Safety and safe risk taking by being responsive all the time, by understanding child feelings, treating him as an equal being rather than isolate, cognitive and communication. http://www.cdc.gov/ncbddd/spinabifida/li ving.html
  • 24. Name of prompt : Environment Prompting and fading :Goal –Cameron will stand up and move around when asked independently Types prompt Examples ECE BODY POSITION Environment Providing verbal Full and partial prompting pictures, labelling materials in the room and cue cards Least to most prompt is used when the child has the skills but doesn’t do it on request. (Class notes)
  • 25. Type of Example ECE body prompt Pointing to position Pointing the crutches prompting Type of prompting Example ECE body position Full prompting Put crutches in her In front of the child hand Partial prompting Put the crutches in Behind /beside the front of her hand in child her own personal space
  • 26. Types of Example ECE body position prompting Full prompting Giving full step by In front of the child step instruction without gesture Partial prompting Giving partial Behind or beside instruction and the child. waiting to see if the child will do the task Gestures prompting Asking questions
  • 27. Prompt: Modeling Types of Example Body positioning prompting of the ECE Full Prompting Using verbal In front of the child instruction when doing the task together Partial Prompting Using verbal Beside/behind the instruction to child pretend to do the task
  • 28. Prompting and fading :Goal –Cameron will stand up and move around when asked independently Types of Example Body prompting positioning of the ECE Full Hand over hand- The In front/or behind prompting child requires full the child physical assistance to carry out the task Partial The child requires In front or behind prompting partial physical the child assistance by touching the arm, elbows and wrist Week 8 class note
  • 29. By providing specific classroom devices and altering the classroom environment, I will help Cameron to achieve success in the classroom. By providing a desk for him where he can easily maneuver around the classroom and have enough space to sit comfortably. I may need to provide a special desk for him or rearrange some of the classroom supplies to provide easy access to the materials. Scheduling to accommodate anything imperative in the last minute http://www.ehow.com/way_5623432_classroo m-strategies-students-physical- disabilities.html
  • 30. To help Cameron to be inclusive in learning environment, I will divide the class into learning station so he will feel comfortable and succeed in this new environment. I will set up the desks or tables in a way of all the student can negotiate. Also I will implement activities which will promote inclusion and integration among his peers to encourage group work and structured partner activities. http://www.ehow.com/info_8346921_ada ptations-inclusive-classroom.html
  • 31. Active learning: Effectively use to develop cognitive skills among children such as problem solving and critical thinking, and improve student’s understanding. Collaborative/cooperative learning: student work together in small groups to accomplish a common learning goal. Critical thinking: It brings the activity together and enables the student to question what knowledge exists. Discussion strategies: Engaging students in discussion deepens their Learning and motivation by propelling them to develop their own views and hear their own voices. A good environment for interaction is the first step in encouraging students to talk. http://pedagogy.merlot.org/TeachingStrategies.h tml
  • 32. During birthday party: this is a great opportunity to see for yourself which children interact best with your child. The children that want to sit next to the birthday boy or girl are good candidates for future play Ask your child’s teacher: if there is a friend who likes to talk with your child then try to connect with him to build a friendship out of school. Find another child with special needs: Wouldn’t it be nice to find a fellow friend who is going through the same issues and might have similar interests? http://www.oneplaceforspecialneeds.com/main/lib rary_finding_friends.html
  • 33. Experience learning: an approach of educational of focus on learning by doing. ECE role is to design direct experience that include preparatory and reflective exercises. Games/experience/simulations: Games and simulations enable students to solve real-world problems in a safe environment and enjoy themselves while doing so. Humor in the classroom: Enhance student learning by improving understanding and retention. Inquiry guided learning: Encourages students to build research skills that can be used throughout their educational experiences. Learning community: Communities bring people together for shared learning, discovery, and the generation of knowledge http://pedagogy.merlot.org/TeachingStrategies.h tml
  • 34. Camaro's mother wants him to be physically active .  It might be difficult for Cameron to verbally communicate her current symptoms of pain or changes in how his joints are functioning. I will ask her to color a body outline or draw pictures. This will be an effective communication tool to help me better understand his symptoms and make appropriate accommodations.  Encourage him to look at strengths rather than limitations.  Include him in planning classroom modifications.  Encourage decision making and acceptance of responsibility.  Help Cameron to participate in social interactions with peers and extracurricular activities whenever possible.  Encourage acceptance of diversity and individual differences in the classroom.
  • 35. Paediatric orthopaedic surgeon Children with Spina Bifida may Social worker need to see different specialist and counsellor Paediatrician Podiatrist Physical therapist http://www.teachmorelovemore.com/SpecialNeedsDetails.asp?id=23#286
  • 36. Where there located? P.O. Box 103, Suite 1006 555 Richmond Street West Toronto, Ontario M5V 3B1 Toronto & GTA: 416-214-1056 Toll Free: 800-387-1575 (Ontario Only) Fax: 416-214-1446 Email: provincial@sbhao.on.  What they are doing? “To build awareness and drive education, research, support, care and advocacy to help find a cure while always continuing to improve the quality of life of all individuals with spina bifida and/or hydrocephalus.” http://www.sbhao.on.ca/programs-services/care- and-support/parent-support
  • 37. What to do with family?  Spirit of our organization that has been They understand how difficult it can be, committed for over 30 years to making a even when things are going smoothly, to face positive difference in the lives of people with the added challenges and concerns of living SB&H, an association of volunteers with spina bifida and/or hydrocephalus. providing a comprehensive range of help to SB&H provides direct service to adults, parents, families, youth and adults with youth, parents and guardians dealing with SB&H. the challenges of spina bifida and/or  Breakthrough because of our spirited and hydrocephalus, offering information, sustained mission of resources, emotional support, counselling research, awareness, care and advocacy our and networking opportunities. organization will steadily break through For more information please contact SB&H barriers and continually improve the quality at 1-800-387-1575 or email of life and ensure fair treatment and social http://www.sbhao.on.ca/programs- justice for all individuals with SB&H. services/care-and-support/parent-support  Hope within our organization dedicated to ongoing therapy, medical care and surgical treatments to minimize further neurological damage and through our determined commitment to Spirit, Breakthrough & Hope a cure will be found.
  • 38. Spina Bifida and Spinal Cord  The spina bifida and spinal cord team sees clients annually at their clinic appointment, but also provides intervention and consultation services as required. This inter-disciplinary team is made up of a pediatrician, ambulatory care nurses, physiotherapists, an occupational therapist, a speech-language pathologist, a social worker and a psychologist. The team also has access to medical consultants in the areas of orthopedics and urology  The team also has access to medical consultants in the areas of orthopedics and urology. To enable co-ordination of care of each child, the Spina Bifida/Spinal Cord team communicates with other involved community partners such as schools, the Community Care Access Centre, other medical facilities and government agencies.  Referrals To access this service, a pediatrician’s referral is required and the client must reside within the Toronto area or within an area that cannot access a local treatment centre within Ontario. http://holland- bloorview.heroku.com/floors/2/facilities/57
  • 39. Contact Dulcie Styles Clinic Secretary, Child Development Program Tel: 416-425-6220, ext. 3835 E-mail: dstyles@hollandbloorview.ca  Child Development Program Tel: 416-425-6220 ext. 7050  What to do with family? The Spina Bifida/Spinal Cord team uses a multidisciplinary, family centred approach. Clients are seen annually or more frequently if necessary, in a clinic setting by various professionals as determined by the needs of each client. The team also provides intervention and consultation as required between clinic visits. Services are provided by a pediatrician, ambulatory care nurses, physiotherapists, an occupational therapist, a speech-language pathologist, a social worker and a psychologist. http://hollandbloorview.heroku.com/floors/2/f acilities/57
  • 40. Where there located? The Hospital for Sick Children 555 University Avenue Toronto, Ontario Canada M5G 1X8 General inquiries: 416-813-1500 Patient information/locating: 416-813-6621 What to do with family?  Spinal Column Trauma/Developmental Anomalies Children and adolescents with defined spinal column/cord injuries or developmental anomalies are treated jointly by the orthopaedic and neurosurgeons. Both external and operative internal fixation procedures are carried out and the rehabilitation program customized individually for each patient.
  • 41. Thames Valley Children's Centre 779 Baseline Rd.E. London, Ontario N6C 5Y6 Phone: 519-685-8700 outside the London area call toll free 1-866-590-8822  Children with spina bifida from the 10 counties of Southwestern Ontario are followed through the Spina Bifida Clinic at Thames Valley Children's Centre (TVCC). Four medical specialists and some members of the TVCC Spina Bifida Resource Group are present at the clinic.  Members of the Spina Bifida Resource Group are responsible for keeping current on research and issues relating to spina bifida. They share this information with parents and teens through handouts, individual discussion, and by directing them to appropriate services and resources in their communities and or educational programs at TVCC. They function in a consulting capacity to other health care workers (therapists, doctors, etc.), schools, and other agencies both at the Centre and in the community. http://www.tvcc.on.ca/spina-bifida-clinic-5.htm
  • 42.  Where there located? Durham Youth Services 555 Richmond St W, Suite 1006, PO Box 103 Toronto, ON M5V 3B1 416-214-1056 * Durham Community Contact 905-576-6332 ,Fax 416-214-1446 ,Toll Free 1- 800-387-1575  Supports individuals with spina bifida and/or hydrocephalus * supports research for a cure * awareness, education, care and advocacy * personal support, guidance and educational materials to help understand and cope * toll-free help line, Connections Linking Program, information and education, online community forum and youth section * scholarship http://youth.durham.cioc.ca/record/OSH0434
  • 43. •  One Concorde Gate, Suite 700 Toronto, ON M3C 3N6 Tel: 416.421.8377 1.800.668.6252 Fax: 416.696.1035 E-mail: info@easterseals.org •  This organization serves children and youth under 1 9 years of age who have neuromuscular, musculoskeletal, or neurological conditions which limit mobility and/or physical function. The Easter Seal Society provides a variety of services to help better the lives of children and youth with physical disabilities, and their families. These services include: financial assistance; diapers and incontinence supplies; resource information; camping and respite care; peer support; independence and life skills; and strategies to enable families to advocate for and access services within their communities. The Easter Seal Society - Incontinence Supplies Grant Gra
  • 44. Agencies Providing Services  Infant Development Services Health  Program for Children and Youth with Department, Region of Durham Disabilities Whitby Mall, Suite 12B 1185 Eglinton Ave, East, Suite 706 1615 Dundas Street East, Whitby, ON L1N 2L1 (905) 723-8521 This organization is a North York, ON, M3C 3C6 home-based, family-centered, early 416-421-8377 ext. 314 or 1-888-377-5437 intervention service available to children (1-888-ESS-KIDS) (age 0-6 years old) and their families. This www.easterseals.org/services/default.asp?loa service is open to children who have experienced prenatal, perinatal, or postnatal d=incontinenceThis grant is available to problems, who are developmentally delayed, Ontario residents, ages 3 to 18 years, who or who have a physical or developmental have a chronic disability that requires the use disability. Programs and services help of incontinence supplies. To obtain an parents to understand their child’s growth application, contact the Easter Seal Society and development, teach their child new at the website or number listed above. Your skills, access community programs and child’s doctor must complete a portion of the resources, and reach goals that are important to the well-being of their family and child. application Families must contact this organization directly to obtain services. Resources For Exceptional Children
  • 45. Agencies Providing Services  Government Funding Assistance For Children with Severe  Special Services at Home Disabilities (ACSD)Ministry of Program(SSAH) Community, Family and Children’s Ministry of Community, Family and Services Children’s Services 1400 Hopkins Street, Whitby, ON L1N 1400 Hopkins Street, Whitby, ON L1N 2C3 2C3 (905) 665-1030 (905) 665-1030 This organization assists This organization provides funding that is children (ages 0-99) with developmental paid monthly to eligible families with a disabilities and physical disabilities (ages 0- child 18) who are living at home with their under 18 years of age, who has a families. The program provides funding that disability, and has extraordinary costs, can be used toward individual development such as respite/relief care; transportation; activities and respite/relief care. The family special clothing, diet and medical may contact this organization directly for an expenses; and educational and social fees. application. The size of the family and total family income (gross) determine the amount http://www.grandviewcc.ca/sites/default/u granted. The family should contact this ploads/files/Diagnosis%20Information%2 organization directly for an application 0-%20Spina%20Bifida.pdf
  • 46. Canada Revenue Agency  President’s Choice Children’s Charity www.crarc.gc.ca/menu-e.htm 1-800-959-8281 6220A Yonge St. North York, ON M2M 3X4 Provides information related to deductions, programs and services for persons with disabilities, Tel: 1-866-996-9918 including the Disability Tax Credit. www.presidentschoice.ca Charities Providing Financial Assistance For This organization is dedicated to helping the Love of a Child children P.O. Box 263, Whitby, ON, L1N 5S1 (905) 668- who are physically or developmentally 0072 challenged. They provide direct financial This organization is concerned with improving the assistance in the purchase of expensive quality of life for children with special needs living equipment, therapy, and more. For more in the Durham Region. Their mandate is to help families with expenses directly related to having a information, contact them or visit their child with special needs. This may include website. Partnership In Service c/o Rotary specialized medical equipment, therapeutic or Club of Whitby Sunrise A group of local recreational activities, educational seminars or service clubs which raise funds to provide workshops. This service is operated by volunteers and provides assistance after other sources have assistance to children been
  • 47. Spina Bifida occurs in all races, ethnic groups, scioeconomic classes, and nationalities and in both boys and girls.  Each child with Spina Bifida is a unique individual with his/her own personality, strengths, talents and thoughts.  Children with Spina Bifida can participate in many community programs such as sports, arts and crafts, music, scouts, school, etc. http://www.grandviewcc.ca/sites/default/uploads/f iles/Diagnosis%20Information%20- %20Spina%20Bifida.pdf
  • 48. http://www.grandviewcc.ca/sites/default/uploads/files/ https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psy- Diagnosis%20Information%20- ab&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to %20Spina%20Bifida.pdf +help+a+child+with+a+physical+disability&bav http://www.cdc.gov/ncbddd/spinabifida/data.htm http://www.extension.org/pages/26344/specific-ideas-for- http://www.cdc.gov/ncbddd/spinabifida/living.html child-care-providers-to-help-children-with-physical- Handout week 8 disabilities http://www.ehow.com/way_5623432_classroom- https://www.google.ca/search?hl=en&gs_rn=7&gs_ri=psya strategies-students-physical-disabilities.html b&cp=64&gs_id=7&xhr=t&q=Teach+classmates+how+to+ http://www.ehow.com/info_8346921_adaptations- help+a+child+with+a+physical+disability&bav=on.2 inclusive-classroom.html http://www.youtube.com/watch?v=6Ii_v3t9hpU http://www.oneplaceforspecialneeds.com/main/library http://animoto.com/play/yfJzjHtgnLC0MHpXhaYAAQ _finding_friends.html http://nichcy.org/disability/specific/spinabifida http://pedagogy.merlot.org/TeachingStrategies.htm http://www.sbhao.on.ca/programs-services/care-and- http://www.cdc.gov/ncbddd/spinabifida/facts.html support/parent-support http://www.youtube.com/watch?v=CldPx9EwYAc http://hollandbloorview.heroku.com/floors/2/facilities/ http://www.cdc.gov/ncbddd/spinabifida/facts.html 57 http://www.cdc.gov/ncbddd/spinabifida/living.html http://youth.durham.cioc.ca/record/OSH0434 http://www.mayoclinic.com/health/spina- http://www.tvcc.on.ca/spina-bifida-clinic-5.htm bifida/DS00417/DSECTION=symptoms http://www.grandviewcc.ca/sites/default/uploads/files/ http://www.medicalnewstoday.com/articles/220424.php Diagnosis%20Information%20- http://www.medicalnewstoday.com/articles/220424.ph %20Spina%20Bifida.pdf https://www.google.ca/search?hl=en&q=spina+bifida+occul http://www.grandviewcc.ca/sites/default/uploads/files/ ta&bav Diagnosis%20Information%20- %20Spina%20Bifida.pdf http://www.medicalnewstoday.com/articles/220424.php http://www.cdc.gov/ncbddd/spinabifida/data.htmhttp: http://www.cdc.gov/ncbddd/spinabifida/living.html //www.cdc