Consuming Genomes: Constructing the Genetic Consumer in the United States
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by Margaret Curnutte European School of Molecular Medicine (SEMM) at the Campus IFOM-IEO (Milano), University of Milano & Harvard Program on Science, Technology & Society FondazioneGianninoBassetti 16 May 2011
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There are only around 500 geneticists and 2,400 genetic counselors in the U.S. to help integrate genomic medicine into patient care. DNA Direct aims to address this shortage and other barriers through technology solutions that provide education, decision support, and expert guidance to patients, providers, payors, and medical centers. Their programs have shown success in improving patient compliance with genetic screening and understanding of test results.GIGO Problems With AI.pdf
Johns Hopkins Hospital doctors report that 40%-80% of chronic pain patient are misdiagnosed, and that MRIs and CTs miss pathology 56%-78% of the time, Therefore, during extensive chart reviews of current medical data will produce a classic case of GIGO-garbage in giving garbage out. The need for accurate diagnoses and testing is critical for AI to work.
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The document discusses personalized medicine and the company 23andMe. It provides definitions of personalized medicine from various sources emphasizing using genetic information to prevent and treat disease. It outlines the history of genomics projects like the Human Genome Project and HapMap. 23andMe allows customers to learn about their genetics through direct-to-consumer genetic testing. Customers submit a saliva sample and access results online regarding ancestry, traits, and disease risks. 23andMe aims to empower individuals and facilitate research through participant-driven studies. The document discusses examples of genetic insights into conditions like cancer and how pharmacogenetics can guide treatment choices.
Consumer Centric Healthcare - v1.1
Blue Cross Blue Shield of Michigan and Blue Care Network of Michigan are nonprofit health insurers licensed by the Blue Cross Blue Shield Association. The document discusses how consumers want more choice and control over their healthcare, moving away from a reactive treatment model towards proactive health management. It argues that personalized medicine using genomic data and predictive analytics can improve outcomes by matching patients to effective treatments while reducing costs through more efficient care delivery.
Consumer centric healthcare workshop
Blue Cross Blue Shield of Michigan and Blue Care Network of Michigan are nonprofit health insurers licensed by the Blue Cross Blue Shield Association. The document discusses how consumers want more choice and control over their healthcare, moving away from a reactive treatment model towards proactive health management. It argues that personalized medicine using genomic data and predictive analytics can improve outcomes by matching patients to effective treatments while reducing costs through more efficient care delivery.
2016 Healthcare Trends
This document discusses trends in healthcare in 2016 related to clinical trials and research participation. It notes that new technologies are dramatically increasing the size and scope of clinical trials by making it easier for more people to participate remotely through mobile apps and sensors. Traditional trials typically took a year to recruit 10,000 people across 50 medical centers, while new methods can recruit that number from 30,000 people in just one month.
Managing incidental findings in genomic investigations: ethical issues - Carl...
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Genomic investigations often produce more information than is initially expected. Several documents have addressed this issue. While the approaches to the management of incidental findings (IFs) vary, it is usually recommended that the information be disclosed if there is clinical utility and the possibility of prevention or treatment. This leaves unsolved fundamental issues such as the different ways of interpreting clinical utility and countless sources of uncertainty. Guidelines can offer indications but should not be allowed to relieve healthcare professionals of their responsibilities.2013-04-17: The Promise, Current State, And Future of Personalized Medicine
Jeffrey M. Otto discusses the promise, current state, and future of personalized medicine in a presentation. He begins with definitions of key terms like personalized medicine and biomarkers. He then reviews the early promises of personalized medicine in improving diagnoses, drug development, and treatment effectiveness. However, he notes the field has faced challenges in fully achieving these promises. Currently, the Center for Translational Research is taking an integrated approach using electronic health records, biospecimen samples, and statistical analysis to develop predictive signatures to advance personalized medicine. Their goal is to translate scientific discoveries into clinical applications to improve patient outcomes.
B1 lesson part two
The document discusses a lesson plan that covers genetic screening and testing. Over the next 12 lessons, students will learn about genetics topics like inherited disorders, genetic testing, screening, and the ethical issues around how genetic information is used. One lesson focuses on genetic screening and testing, including how genetic information could be misused by insurance companies and discussed the arguments for and against using DNA profiles to determine insurance costs.
Genomics-health, Pharmacogenomics.pdf
Public Health Genomics uses genomics information to benefit public health through more effective personalized preventive care and disease treatments tailored to an individual's genetic makeup. It assesses how genes interact with behavior, diet, and the environment to impact population health. Key applications of genomics include drug discovery and development through target identification, biomarker analysis to understand disease pathways, and stem cell research. However, challenges include evaluating new genetic tests and monitoring their use and outcomes in populations.
Make DNA data actionable - Festival of Genomics London 2018
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Week 12 discussion research
Outcomes research examines the end results of health services on individuals and populations in order to provide scientific evidence to support healthcare decisions. It can be categorized into care-related research, patient-related research, and performance-related research. The Agency for Healthcare Research and Quality and the Patient-Centered Outcomes Research Institute both fund outcomes research. Examples of potentially helpful areas for outcomes research include reducing opioid abuse, improving care coordination, and enhancing healthcare quality and safety.
Cmt newsletter-winter-2015
The document discusses several developments for treating inherited neuropathies:
1) The first gene therapy clinical trial to treat an inherited neuropathy, Giant Axonal Neuropathy, is approved. It will deliver a healthy copy of the GAN gene to spinal cord nerves using an AAV9 viral vector.
2) The Hereditary Neuropathy Foundation is creating a directory of expert healthcare providers for Charcot-Marie-Tooth and providing them resources to improve diagnosis and care.
3) An advisory board meeting was held to discuss the Foundation's research funding to date and future goals, including several projects aimed at developing treatments for CMT and related diseases.
Use of Genetic Databases to Advance Diagnostic Test Development
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DNA & Personalized Medicine
Genetics is becoming more personalized with direct-to-consumer genetic testing services like 23andMe. 23andMe analyzes customers' DNA samples and provides information about their ancestry, traits, and disease risks through an online platform. This empowers individuals and facilitates research by creating a large participant network. While challenges remain in fully engaging all stakeholders, personalized genetics has the potential to transform healthcare by better targeting treatment to individual genetics.
Best Practices in STD Follow Up and Case Management
This workshop is designed to talk about the impact of STDs on youth under the age of 25. This workshop will discuss the importance of sexual health screenings, partner management, and current data around STD morbidity rates. We will also talk about current STD clinical recommendations for the treatment of gonorrhea, chlamydia, and syphilis. Participants will engage in an interactive activity where they will sharpen their skills on effective partner management strategies.
Cancer principles & practice of oncology
This chapter provides an overview of cancer genetic counseling. Cancer genetic counseling is a communication process that assesses an individual's cancer risk based on their family history of cancer. The goals are to provide clients with an understanding of their risk, emotional support, and determine if cancers in the family could be due to a hereditary cancer syndrome. There are over 30 hereditary cancer syndromes that can be caused by mutations in different genes, so genetic testing for these syndromes can be complex. The chapter emphasizes that accurate cancer risk assessment and counseling requires specialized training.
4 Ways for Doctors to Avoid Inappropriate Testing
The document discusses 4 ways for doctors to avoid inappropriate medical tests by educating students and colleagues, advocating for administrative changes, engaging patients in treatment decisions, and building collaboration among peers to question unnecessary tests in order to address the large costs and risks associated with overtesting. Inappropriate testing wastes healthcare dollars, can delay accurate diagnoses, and potentially causes patient harm.
Similar to Consuming Genomes: Constructing the Genetic Consumer in the United States (20)
Direct To Consumer Genomics and the Future of Healthcare
Direct To Consumer Genomics and the Future of Healthcare
Integrating Genomic Medicine into Patient Care with Trish Brown, MS, CGC
Integrating Genomic Medicine into Patient Care with Trish Brown, MS, CGC
Managing incidental findings in genomic investigations: ethical issues - Carl...
Managing incidental findings in genomic investigations: ethical issues - Carl...
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2013-04-17: The Promise, Current State, And Future of Personalized Medicine
Make DNA data actionable - Festival of Genomics London 2018
Make DNA data actionable - Festival of Genomics London 2018
Use of Genetic Databases to Advance Diagnostic Test Development
Use of Genetic Databases to Advance Diagnostic Test Development
Best Practices in STD Follow Up and Case Management
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di Chiara Demartini, University of Pavia and Fondazione IRCCS Policlinico San Matteo
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Our classification technique uses a deep CNN to classify skin lesions. An image is warped through the CNN architecture into a probability distribution over clinical skin disease classes. The CNN was pretrained on a large generic image dataset and fine-tuned on a dataset of over 129,000 skin lesions spanning 2,032 diseases. Data integration from multiple sources is key to future digital medicine, but challenges include data quality, availability, and privacy. Techniques like distributed learning models and homomorphic encryption can help address privacy concerns while enabling large-scale data sharing and analysis.La scienza dei dati come guida alla medicina di precisione.
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Chapter wise All Notes of First year Basic Civil Engineering
Syllabus
Chapter-1
Introduction to objective, scope and outcome the subject
Chapter 2
Introduction: Scope and Specialization of Civil Engineering, Role of civil Engineer in Society, Impact of infrastructural development on economy of country.
Chapter 3
Surveying: Object Principles & Types of Surveying; Site Plans, Plans & Maps; Scales & Unit of different Measurements.
Linear Measurements: Instruments used. Linear Measurement by Tape, Ranging out Survey Lines and overcoming Obstructions; Measurements on sloping ground; Tape corrections, conventional symbols. Angular Measurements: Instruments used; Introduction to Compass Surveying, Bearings and Longitude & Latitude of a Line, Introduction to total station.
Levelling: Instrument used Object of levelling, Methods of levelling in brief, and Contour maps.
Chapter 4
Buildings: Selection of site for Buildings, Layout of Building Plan, Types of buildings, Plinth area, carpet area, floor space index, Introduction to building byelaws, concept of sun light & ventilation. Components of Buildings & their functions, Basic concept of R.C.C., Introduction to types of foundation
Chapter 5
Transportation: Introduction to Transportation Engineering; Traffic and Road Safety: Types and Characteristics of Various Modes of Transportation; Various Road Traffic Signs, Causes of Accidents and Road Safety Measures.
Chapter 6
Environmental Engineering: Environmental Pollution, Environmental Acts and Regulations, Functional Concepts of Ecology, Basics of Species, Biodiversity, Ecosystem, Hydrological Cycle; Chemical Cycles: Carbon, Nitrogen & Phosphorus; Energy Flow in Ecosystems.
Water Pollution: Water Quality standards, Introduction to Treatment & Disposal of Waste Water. Reuse and Saving of Water, Rain Water Harvesting. Solid Waste Management: Classification of Solid Waste, Collection, Transportation and Disposal of Solid. Recycling of Solid Waste: Energy Recovery, Sanitary Landfill, On-Site Sanitation. Air & Noise Pollution: Primary and Secondary air pollutants, Harmful effects of Air Pollution, Control of Air Pollution. . Noise Pollution Harmful Effects of noise pollution, control of noise pollution, Global warming & Climate Change, Ozone depletion, Greenhouse effect
Text Books:
1. Palancharmy, Basic Civil Engineering, McGraw Hill publishers.
2. Satheesh Gopi, Basic Civil Engineering, Pearson Publishers.
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Consuming Genomes: Constructing the Genetic Consumer in the United States
- 1. Consuming Genomes: Constructing the Genetic Consumer in the United States FondazioneGianninoBassetti 16 May 2011 Margaret Curnutte European School of Molecular Medicine (SEMM) at the Campus IFOM-IEO (Milano), University of Milano & Harvard Program on Science, Technology & Society
- 3. How Does it Work?
- 4. Began offering its services 2007: < 100 Reports for $999 Currently (May 2011): 193 Reports for $99 (with annual subscription fee)
- 6. Began offering services 2007: 28 Conditions for $2,499 Currently: 40 Conditions and Medications for $1,000
- 10. FDA: DTC Genetic Testing Services Are a Medical Device
- 12. Discrepancies in Disease Risk Reporting
- 13. Congress: DTC Genetic Testing is a Matter of Public Health
Editor's Notes
- First to tell you why DTC genetic testing is particularly a matter for social investigation Projections for personalized medicine and the decreasing cost of sequencing technology. What could this mean for companies that are currently offering comprehensive SNP analysis? I refer to an article in the NYTimes:
- Based in Silicon Valley. Founded April 2006: Linda Avey and Anne Wojcicki Interesting note: wife of Sergey Brin, co-founder of Google Not a coincidence that Google is a primary investor
- Backed by venture capital group, Kleiner Perkins Caufield & Byers: Amazon, Sun, Genentech, Intuit Navigenics was launched: Nov. 2007 by David Agus and Dietrich Stephan Tagline: There is DNA, the raw molecular material, and there is the additional intellectual property that is part of genetic tests which is necessary to produce genetic knowledge. The you in the statement to some extent undermines the additional players involved in the development of genetic tests and subequent genetic knowledge.