The document outlines a workshop focused on the experiences of individuals with limb loss, particularly through the story of Sofia, a girl who underwent amputation due to meningococcal septicaemia. It discusses challenges in prosthetic use and commissioning in the UK, featuring expert panels and sharing best practices for improving prosthetic provision. Key lessons emphasize the importance of proper communication and personalizing care to meet the unique needs of patients.

1. Pushing the boundaries
Life beyond limb loss
Pushing the boundaries
Life beyond limb loss
Prosthetics Workshop
Nick Crockatt
MRF Regional Ambassador -
Lancashire
&
Father of Sofia Maya Crockatt

2. Pushing the boundaries
Life beyond limb loss THE PANEL
Nick Crockatt Facilitator
Dr. Fergus Jepson Consultant in Rehabilitation Medicine
Mr. Fergal Monsell Consultant Orthopaedic Surgeon
Robert Shepherd Physiotherapist
Karen Crockatt Sofia’s Mum
(Nursing/Procurement/Commissioning)

3. Pushing the boundaries
Life beyond limb loss AGENDA
• Introduction 5
mins
• Sofia’s Story 10
mins
• Prosthetic commissioning in the UK (Fergus Jepson)
10 mins
• Workshop 4 x 10
mins
1. Day to day use of prosthetics and the types of prosthetics available.
2. Challenges associated with skin and bone damage (and how this can affect
prosthetic provision).
3. Challenges with the system (both NHS and private provision).
4. What has worked well (sharing best practice).
• Summary 10
mins

4. “I’d slow down
if I was you!!!”

5. Pushing the boundaries
Life beyond limb loss
“How do we get the
most from the
session?”

6. Pushing the boundaries
Life beyond limb loss “How do we get the
most from the
session?”
“The ‘A-Ha’
theory”

7. Pushing the boundaries
Life beyond limb loss
“The ‘A-Ha’
theory”

8. Pushing the boundaries
Life beyond limb loss
“The ‘A-Ha’
theory”

9. Pushing the boundaries
Life beyond limb loss “How do we get the
most from the
session?”

10. Pushing the boundaries
Life beyond limb loss
Sofia’s Story
Lessons Learned

11. Pushing the boundaries
Life beyond limb loss Sofia’s Story

12. Pushing the boundaries
Life beyond limb loss
SOFIA & MENINGOCOCCAL
SEPTICAEMIA
• February 17th 2007
• Ambulance to Royal Preston
Hospital
• Recovered to RMCH Paeds
ITU
• ITU - 14 days
• Burns Unit - 3 months
• Left BKA
• Skin Grafts
• Significant damage to right
leg, below knee

13. Pushing the boundaries
Life beyond limb loss SOFIA TODAY

14. 2007 2008 2009 2010 2011 2012 2013 2014
Amputation
Today

16. Pushing the boundaries
Life beyond limb loss TIMELINE
2007 2008 2009 2010 2011 2012 2013 2014
Amputation
Orthosis/Sp
lint Preston
x
1st Blade
Leg (NHS)
Blade Leg
(Private)
HD Leg
Orthosis/Sp
lint -
Preston
Socket
Liner 2
Orthosis/Sp
lint
RMCH
Socket
Liner 3
1st
Prosthesis
Socket
Liner 1
Water/Sho
wer Leg
Coverless
Leg

17. Pushing the boundaries
Life beyond limb loss
FRUSTRATIO
NS
• Time for appointment
• Time for delivery
• Badly fitting socket
• Limited prostheses
• No-one listening!
IMPLICATION
S
• Wheelchair dependant
• Reluctance to wear
prosthesis
• Damage to knees
• Stress!!!!

20. Pushing the boundaries
Life beyond limb loss
M.D.T

21. Sofia
Occupational Therapist
Plastics
Prosthetist
Orthopaedic Surgeon
Physiotherapist
Health Visitor
Skin Specialists
Education
GP
Psychologist
Orthotics Dietitian
Social Services
Consultant in Rehab
MP
Medical Consultant

22. Sofia
Prosthetist
Health Visitor
Physiotherapist
Psychologist
Medical Consultant

23. Pushing the boundaries
Life beyond limb loss
What do we WANT for Sofia?
What does Sofia WANT?

26. Sofia
Consultant in Rehab
Prosthetist
Orthopaedic Surgeon

27. Pushing the boundaries
Life beyond limb loss
Learn to Run Clinic
13th Jan 2013

28. 1st Running Leg
21st January 2013

30. Pushing the boundaries
Life beyond limb loss BLADE LEG
=

32. Pushing the boundaries
Life beyond limb loss
Lessons Learned!
• Get the socket and liner right!!!!!
• What does my child NEED?
• What is actually available?
• Make sure you are talking to the right person!
• MDT
• Communciation
• Communciation
• Communciation