Presentation by Dr Merran Smith, PHRN, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.

1. NCRIS and the health domain
Merran Smith, Chief Executive, PHRN
ARDC Forum, Canberra, 6 March 2019

2. NCRIS overview
 Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS)
 Managed by the Department of Education and Training,
with input from governments, universities and institutes
 Supports a wide range of national research
infrastructure, including e-research/ARDC

3. NCRIS and health
Recent NCRIS documents (2016 Roadmap; Research Infrastructure Investment Plan)
highlight health in context of therapeutic development, through four capabilities:
 Australian Phenomics Network (APN)
 BioPlatforms Australia (BPA)
 Therapeutic Innovation Australia (TIA)
 Population Health Research Network (PHRN)

4. Focus of health capabilities
 APN: Gene discovery; genomic medicine
 BPA: Genomics; metabolomics; proteomics;
bioinformatics (health and non-health)
 TIA: Translational services, biologics, cell therapies,
small molecules, pre-clinical testing and clinical trials;
support the ANZ Clinical Trials Registry

5. Focus of PHRN
PHRN’s focus is linked data:
 Support national, state and territory data linkage units
 Also secure file transfer, remote access and storage
 We link administrative, clinical and other data,
including data from clinical trials, registries
and cohorts

6. Some health domain trends
 Ongoing NCRIS investment via the four health
domain capabilities
 Expanding and emerging platforms for clinical
research data
 Opportunities eg for FAIR-er data