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Urowitz, S. From Social Networks to Social Medicine: Exploring the role of online interventions ,[object Object],[object Object],[object Object]
  Medicine 2.0 September 4, 2008 David Wiljer, PhD and Sara Urowitz, PhD Princess Margaret Hospital/University Health Network; University of Toronto.   From Social Networks to Social Medicine:   Exploring the role of online interventions
The Canadian Health Care System –  ,[object Object],[object Object]
The Canadian Health Care System –  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Empowerment Model Roberts, Health Expectations, 1999 Individual/ Micro Level Community / Macro-Level Organizational / Mediating Level ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Adapted from Kreuter et al., 2000 Clinical Encounter  Experiential Health Information General Health Information Personal Health Information Health Information: Chronic Disease Generic content Individualized  content Level of Personalization Level of Self-Management Low High
Experiential Information Matthew Hurst, 2008
Experiential Information ,[object Object],[object Object],[object Object],Leonard, Wiljer et al. JHIT, 2008
Caring Voices:  A National Initiative to  Support and Connect Cancer Survivors
Why Caring Voices ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Educational Resources
Monthly Events Calendar
Chats:  Real time Communication (Survivor:Expert) (Survivor:Survivor ) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Forums:  Asynchronous Communication
People Matching
Caring Voices Phase 2
Usability Results (n=8) Agree Neutral Disagree Easy to use 85% 0% 14% Liked appearance 86% 14% 0% Easy to learn the site 86% 0% 14% Easy to participate in forums 71% 14% 14% Easy to participate in chats 71% 14% 14% Receive support from other survivors 86% 14% 0%
User  Growth An average of 49.5 new users register/month
Web Stats
Number of Visitors 61.3% increase in the number of visitors
Lymph Line Study ,[object Object],[object Object],[object Object]
Study Consent ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Follow-up Appointment Focus Groups 4 Online Educational Sessions ,[object Object],[object Object],[object Object],[object Object],[object Object],>10% fluid volume Lymph Line enrolment Informed of Lymph Line study If interested… LymphLine Protocol Funded by CBCRA
GYN Gals ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Conclusions ,[object Object],[object Object],[object Object],[object Object]
Contact Information ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

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From Social Networks to Social Medicine: Exploring the role of online interventions [4 Aud 1330 Urowitz]

  • 1.
  • 2. Medicine 2.0 September 4, 2008 David Wiljer, PhD and Sara Urowitz, PhD Princess Margaret Hospital/University Health Network; University of Toronto. From Social Networks to Social Medicine: Exploring the role of online interventions
  • 3.
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  • 6. Adapted from Kreuter et al., 2000 Clinical Encounter Experiential Health Information General Health Information Personal Health Information Health Information: Chronic Disease Generic content Individualized content Level of Personalization Level of Self-Management Low High
  • 8.
  • 9.
  • 10. Caring Voices: A National Initiative to Support and Connect Cancer Survivors
  • 11.
  • 12.
  • 13.
  • 16.
  • 17. Forums: Asynchronous Communication
  • 20.
  • 21. Usability Results (n=8) Agree Neutral Disagree Easy to use 85% 0% 14% Liked appearance 86% 14% 0% Easy to learn the site 86% 0% 14% Easy to participate in forums 71% 14% 14% Easy to participate in chats 71% 14% 14% Receive support from other survivors 86% 14% 0%
  • 22. User Growth An average of 49.5 new users register/month
  • 24. Number of Visitors 61.3% increase in the number of visitors
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  • 29.