African american women and colorectal cancer research: Why Your Participation Matters
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An overview of how research questions are generated, how research is conducted, and disseminated to benefit the creation of interventions to reduce colorectal cancer among African American women.
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African american women and colorectal cancer research: Why Your Participation Matters
- 1. African American Women and Colorectal Cancer Research: Why Your Participation Matters KELLY BRITTAIN, PHD, RN MICHIGAN STATE UNIVERSITY COLLEGE OF NURSING
- 2. I will explain: How a research topic/question is developed How this works in a research study How research participants are recruited What we do with the results What is done after the study is over
- 3. How a Research Question is Developed
- 4. Overview: Colorectal Cancer American Cancer Society, 2011
- 5. Reducing Colorectal Cancer Risks Colorectal Cancer Screening Annual: Fecal Occult Blood Test (gFOBT) Fecal Immunochemical Test (FIT) Every 3 years: FIT-DNA (Colorguard®) Every 10 years: Colonoscopy Colorectal Cancer Risk Factors
- 6. My Goal • To make sure that our voice and perspectives are represented in research. • Develop solutions (interventions) will work for us.
- 7. My Studies The Influence of Family and Cultural Identity on Informed Decision- Making o Developing and Testing a Mobile App to Increase Informed Decisions about Colorectal Cancer Screening Colorectal Cancer Awareness for Women via Facebook African American patients’ intent to screen for colorectal cancer: Do cultural factors, health literacy, knowledge, age and gender matter? Sociocultural and Health Correlates Related to Colorectal Cancer Screening Adherence Among Urban African Americans Barriers and Facilitators for Adoption of the Mediterranean Diet to Reduce Colorectal Cancer Risk in African Americans
- 8. How Research Participants Are Recruited African American men and women Age 50 and older Able to read and write in English No personal history of colorectal cancer Have insurance coverage for CRC screening Recruited from Detroit businesses and peer-to-peer (social network) Newer methods: ResearchMatch.org (You should sign up!)
- 9. Results Dependent on the number of people that participate Findings: Difference between African American Men and Women related to cultural identity Family matters most African Americans with Diabetes at most risk for not being screened Health literacy is important to colorectal cancer screening intention Women thought the mobile app would be good to facilitate talking to their provider about colorectal cancer screening Facebook can be used to keep women engage about colorectal cancer risk reduction and screening
- 10. What We Do With the Results Conferences (Posters & Podiums) Publications Community presentations More research
- 11. What is done after the study is over Come up with another question that needs to be answered until Colorectal Cancer disparities on longer exist
- 12. Summary How a research topic/question is developed: Impact on an important health issue & personal connection/experience How this works in a research study: My research How research participants are recruited: Depends on the target population and the question(s) to be answered. More emphasis on healthy populations or those with chronic diseases. Join ResearchMatch What we do with the results: Share (conferences, publications, community, students) What is done after the study is over: Start over
- 13. THANK YOU! Information Resources: Facebook: Colorectal Cancer Awareness for Women American Cancer Society
Editor's Notes
- As a preface to my research, I’m going to tell you a bit about myself. I am a native Detroiter and have had a passion for the community for as long as I can remember. I’ve been a nurse for 17 years, but much of my career, a little over 14 years has been spent in the community with children, adults, families, the insured and uninsured. It was the plight of hospitalized asthmatic children that led me to the community and in a since I’ve never looked back. I’ve been a school nurse, program director working with a community and its leaders to reduce teenage pregnancy and infant mortality through the use of lay workers, developed hospital outreach and education programs on the east side of Detroit using parish nurses, school based clinics, senior programs, community health workers and community based agencies. I’ve worked as a care management coordinator for a program that served Detroit’s un and under insured and I’ve directed education, outreach and support programs for the community and cancer patients at Karmanos Cancer Institute. It is my passion for families, the community and the cancer journey, that inspires my research
- The issue at hand is the colorectal cancer disparity among African Americans. According to the American Cancer Society, incidence rates of colorectal cancer among African Americans are 20% higher than in whites (American Cancer Society, 2008). Mortality rates of colorectal cancer among African Americans are 45% higher than in whites (American Cancer Society, 2008).
- In order to participate in the study, potential participants had to be An African American man or woman Age 50 and older Able to read and write in English No personal history of colorectal cancer Have insurance coverage for colorectal cancer screening Most of the sample was recruited from Detroit businesses and peer-to-peer referrals