Engaging and empowering patients using Patient-facing technologies such as PHRs, Patient Portals and Mobile Health Apps.

1. Patient Engagement
& Empowerment
Healthcare Information System
44-F Efrain Uh ( 吳艾凡 )
Instructor: 王復中
420029019
December 16, 2016
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“Engaged Patients Are Healthier Patients”

2. Source: Xerox, 2014.
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3. Figure 1. Rating of the usefulness of the online health
information among those who accessed their health information
online, 2013 (n=384).
Source: Patel et al., 2014.
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4. Today’s Content
Patient-facing Technologies:
1. Personal Health Records (PHRs) Overview
2. OpenNotes
3. PatientsLikeMe
4. Blue Button
5. Home Telehealth
-Proteus Digital Health
-AliveCor ECG Monitor
-“Behavioral Imaging”
-Ginger.io
6. Challenges in Using Technology for Patient Engagement and
Empowerment
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5. 1. Personal Health Records (PHRs)
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6. Personal Health Records (PHRs)
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7. Are there different types of personal health
records (PHRs)?
• Standalone Systems: not tied to any healthcare system.
•
- Microsoft’s Health Vault - WebMD Health Manager
• Tethered/Connected Systems: tied into a healthcare system.
- My HealtheVet PHR from the VA
• Networked Systems : access data from multiple locations.
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8. Attributes of an Ideal PHR
Source: Detmer et al., 2008.
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9. PHR Adoption
• Access: connect to Internet by users;
• Awareness: knowledge about the PHR tools and their values;
• Usability: easy-of-use;
• eHealth literacy: computer literacy (how), effective usage of the system
(what for);
• Meaningful use: favorable user perception;
• Clinical integration: PHR should be considered as a source of information
for healthcare professionals.
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10. A PHR Sample
Microsoft HealthVault
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11. Need Help?
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12. 2. OpenNotes
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13. www.myopennotes.org
Would OpenNotes help patients become more
engaged in their care?

14. Source: Delbanco et al., 2012.
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15. Source: Walker et al., 2014.
Source: Guest & Quincy, 2013.
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16. OpenNotes is like a New Medicine
• Its goal is to help people manage health and illness more
effectively.
• It can have side effects and may hurt some patients.
• Clinicians and patients will need to learn how to use it well.
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18. 3. PatientsLikeMe
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19. PatientsLikeMe
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20. 4. BlueButton
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22. Home Telehealth
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23. 5. Proteus Digital Health
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24. How does Proteus Work?
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25. 6. AliveCor ECG Monitor
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26. 7. Computational Behavior Science or
“Behavioral Imaging”
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27. 8. Ginger.io
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29. Mobile Medical Applications & FDA
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30. Medical Device Data Systems (MDDS) &
FDA
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31. Challenges in Using Technology
for Patient Engagement &
Empowerment
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32. Challenge #1
• Usabililty: Elderly patients
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33. Challenge #2
• Reliable Analytic & Visualization Tools are of critical
importance.
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34. Challenge #3
• Data privacy and security.
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35. Challenge #4
• “Data Silos”
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36. Continua Health Alliance & Open mHealth
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37. Challenge #5
• Health literacy
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Source: Levin, 2011; Demiris, 2016; Palumbo et al., 2016.

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39. Conclusion
• Patient-facing technologies, such as personal health records, patient portals,
and mobile health apps, are being introduced at rapid rates.
• Despite a proliferation of patient-facing health apps, few have been shown to
produce health improvements and many are barely used.
• Promoting patient engagement with health technology such as portals is
challenging, and rapid expansion of portals could exacerbate existing
healthcare disparities if only well-resourced individuals use these websites.
• Nevertheless and frankly, engagement matters more than ever. It's just as
important as cybersecurity, interoperability and innovation.
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40. References
• Braunstein, M. L. (2015). Practitioner's Guide to Health Informatics. Springer International Publishing.
• Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., ... & Ross, S. E. (2012).
Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead. Annals of
internal medicine, 157(7), 461-470.
• Demiris, G. (2016). Consumer Health Informatics: Past, Present, and Future of a Rapidly Evolving
Domain. Yearbook of medical informatics, 25(Suppl. 1).
• Detmer, D., Bloomrosen, M., Raymond, B., & Tang, P. (2008). Integrated personal health records:
transformative tools for consumer-centric care. BMC medical informatics and decision making, 8(1), 1.
• Guest, J. A., & Quincy, L. (2013). Consumers gaining ground in health care. JAMA, 310(18), 1939-
1940.
• Patel, V., Barker, W., & Siminerio, E. (2014). Individuals’ access and use of their online medical record
nationwide. ONC Data Brief, (20).
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41. References
• Palumbo, R., Palumbo, R., Annarumma, C., Annarumma, C., Adinolfi, P., Adinolfi, P., ... & Musella,
M. (2016). The missing link to patient engagement in Italy: The role of health literacy in enabling
patients. Journal of Health Organization and Management, 30(8), 1183-1203.
• Xerox. (2014). Annual Xerox EHR survey: Americans open to viewing test results, handling
healthcare online. Available from http://news.xerox.com/news/Xerox-EHR-survey-finds-Americans-​ ​ ​ ​ ​
open-to-online-records Accessed on: November 2, 2016.
• Walker, J., Darer, J. D., Elmore, J. G., & Delbanco, T. (2014). The road toward fully transparent
medical records. New England Journal of Medicine, 370(1), 6-8.
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