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Five steps for success: The Autism Diagnosis Education Pilot Project Dan Farkas Project Manager Autism Diagnosis Education Pilot Project. Ohio Chapter, American Academy of Pediatrics
Disclosure ,[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
Target Communities
Focus Group Findings ,[object Object],[object Object],[object Object]
Focus Group Findings  ,[object Object],[object Object],[object Object]
Focus Group Findings ,[object Object],[object Object]
    Step One:  Increase the supply of people who screen for delayed development through the use of evidence-based tools. How? The Concerned About Development Learning Collaborative
Why Screen?   ,[object Object],[object Object],[object Object],[object Object],20% of mental health problems identified without tools: (Lavigne et al. Pediatr. 1993; 91:649-655) 30% of developmental disabilities identified without tools: (Palfrey et al. JPEDS. 1994; 111:651-655) 80-90% with mental health problems identified  with  tools: (Sturner, JDBP 1991; 12:51-64) 70-80% with developmental disabilities correctly identified  with  tools:(Squires et al., JDBP 1996; 17:420-427)
What are the benefits of screening?  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
It’s Best Practice Ohio Chapter AAP Recommendations AGE Recommended Tool 9 months PEDS or ASQ:3 12 months ASQ : SE 18 months PEDS or ASQ:3 24 months M-Chat 30 months PEDS or ASQ:3 36 months ASQ: SE 48 months PEDS or ASQ:3 Annually ages  6-18 Pediatric Symptom Checklist
CADLC Content ,[object Object],[object Object],[object Object],[object Object]
CADLC Process ,[object Object],[object Object],[object Object],[object Object]
Learning Collaborative Aim ,[object Object],[object Object],[object Object],[object Object]
Help Get Yourself Recertified. ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
CADLC Delivers Measured Results
I don’t have enough time:  Overcoming the barriers to developmental screening .  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Screening Collaborative Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
What we’ve learned about Step One ,[object Object],[object Object],[object Object]
Step Two: Diagnostic Partnerships ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
How do the diagnostic teams work? ,[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],-- Johnson, Myers, and the Council on Children with Disabilities, 2008 What if a child is suspected of having autism?
HMG/LEA: The “Enhanced Evaluation” ,[object Object],[object Object],[object Object],[object Object]
What will the Partnership MD do? Evaluation team sends  “ referral” and report to Partnership MD Are results such that  further consultation  is recommended? Partnership MD sends report  to HMG/LEA and referring MD Partnership MD refers to regional diagnostic center YES Partnership MD completes medical evaluation & counsels family
Four counties have had at least one child go through the Diagnostic Partnership process  : Number of children evaluated 23 Gender 15 M 8 F Chronological age Range 17-91 months Under 36 months 10  37-48 months 6 49-60 months 5 > 60 months 2
Four counties have had at least one child go through the Diagnostic Partnership process : Diagnoses Number % Autism 6 26% PDD-NOS 3 13% Aspergers 1 4% TOTAL ASD 10 43% Language Delay/Disorder 6 26% Language + Behavior 3 13% Global Delay 3 13% No Clinical Dx 1 4%
Four counties have had at least one child go through the Diagnostic Partnership process : Diagnosis x Age Age ASD Other Under 36 months 5 5 37-48 months 1 5 49-60 months 3 2 > 60 months 1 1
What have we learned about Step Two? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Step 3 ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
What are we learning about Step 3? ,[object Object],[object Object],[object Object]
Step 4 ,[object Object],[object Object]
What have we learned about Step 4? ,[object Object],[object Object],[object Object],[object Object]
Step 5: Public Awareness Campaign ,[object Object],[object Object],[object Object]
Step 5: Public Awareness Campaign ,[object Object],[object Object],[object Object]
What have we learned about Step 5? ,[object Object],[object Object],[object Object],[object Object]
What’s Next? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 

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Autism Pilot Project Presentation

  • 1. Five steps for success: The Autism Diagnosis Education Pilot Project Dan Farkas Project Manager Autism Diagnosis Education Pilot Project. Ohio Chapter, American Academy of Pediatrics
  • 2.
  • 3.
  • 5.
  • 6.
  • 7.
  • 8. Step One: Increase the supply of people who screen for delayed development through the use of evidence-based tools. How? The Concerned About Development Learning Collaborative
  • 9.
  • 10.
  • 11. It’s Best Practice Ohio Chapter AAP Recommendations AGE Recommended Tool 9 months PEDS or ASQ:3 12 months ASQ : SE 18 months PEDS or ASQ:3 24 months M-Chat 30 months PEDS or ASQ:3 36 months ASQ: SE 48 months PEDS or ASQ:3 Annually ages 6-18 Pediatric Symptom Checklist
  • 12.
  • 13.
  • 14.
  • 15.
  • 17.
  • 18.
  • 19.
  • 20.
  • 21.
  • 22.
  • 23.
  • 24. What will the Partnership MD do? Evaluation team sends “ referral” and report to Partnership MD Are results such that further consultation is recommended? Partnership MD sends report to HMG/LEA and referring MD Partnership MD refers to regional diagnostic center YES Partnership MD completes medical evaluation & counsels family
  • 25. Four counties have had at least one child go through the Diagnostic Partnership process : Number of children evaluated 23 Gender 15 M 8 F Chronological age Range 17-91 months Under 36 months 10 37-48 months 6 49-60 months 5 > 60 months 2
  • 26. Four counties have had at least one child go through the Diagnostic Partnership process : Diagnoses Number % Autism 6 26% PDD-NOS 3 13% Aspergers 1 4% TOTAL ASD 10 43% Language Delay/Disorder 6 26% Language + Behavior 3 13% Global Delay 3 13% No Clinical Dx 1 4%
  • 27. Four counties have had at least one child go through the Diagnostic Partnership process : Diagnosis x Age Age ASD Other Under 36 months 5 5 37-48 months 1 5 49-60 months 3 2 > 60 months 1 1
  • 28.
  • 29.
  • 30.
  • 31.
  • 32.
  • 33.
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  • 37.