Dear Endocrinologist, We No Longer Live in the 1990's
We no longer live in the 1990’s
Joyce Lee, MD, MPH
JAMA Pediatrics (Social Media Editor)
Obesity & Type 2 diabetes:
Biomarkers/Child Health Policy
Type 1 diabetes:
Learning Health Systems
Mobile Technology/Data Visualization/
Participatory Design/Online Communities
Q: Are there any other uses of
social media in clinical medicine or
research that you want to learn
A: “No. This is a complete waste
of time. This is not real research.
The fad will die out soon.”
You are a
whether you like
it or not
Conversations cannot be controlled,
they can only be joined
When a physician asks, “Should I post this
on social media?” the answer does not
depend on whether the content is
professional or personal but instead
depends on whether it is appropriate for a
physician in a public space
data visualizations for
To Connect directly with
16 cases worldwide
Only pt with NGLY-1
“It’s kind of a shift in the scientiﬁc
world that we have to recognize-that,
in this day of social media, dedicated,
educated, and well-informed families
have the ability to make a huge impact.
Gone are the days when we could just
say, we’re a cloistered community of
researchers, and we alone know how to
“Social media has saved lives in the diabetes
community. It has helped people who are
struggling with their diabetes to take control
and improve their health. It shows people that
there isn’t such a thing as a “perfect diabetic,”
but there can be an educated and determined
-Kerri Sparling @sixuntilme
Social media is changing what it
means to be a doctor today
Special thanks to patients/
caregivers/docs online, &
the human network!
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