Leveraging social media to advance diabetes research and care
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This document summarizes the ways in which social media can be used in clinical medicine and research from the perspective of an endocrinologist. It discusses using social media to stay up to date on diabetes technology and innovations, connect with patients and caregivers for research purposes, find new tools and resources, and connect patients and families with online support communities. The document advocates that social media is changing what it means to be a doctor today and encourages leveraging social media rather than fearing it.
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Leveraging social media to advance diabetes research and care
- 1. Dear Endocrinologist: We no longer live in the 1990’s Joyce Lee, MD, MPH http://www.doctorasdesigner.com/ Twitter: @joyclee Hashtag: #2016ADA
- 2. JAMA Pediatrics (Social Media Editor) Unitio Samuelson Associates Verily
- 3. 82 publications NIH funding Obesity & Type 2 diabetes: Biomarkers/Child Health Policy Type 1 diabetes: Learning Health Systems Mobile Technology/Data Visualization/ Participatory Design/Online Communities
- 6. Q: Are there any other uses of social media in clinical medicine or research that you want to learn about? A: “No. This is a complete waste of time. This is not real research. The fad will die out soon.”
- 7. You are a Public Physician whether you like it or not
- 11. Conversations cannot be controlled, they can only be joined -Facebook Effect
- 13. When a physician asks, “Should I post this on social media?” the answer does not depend on whether the content is professional or personal but instead depends on whether it is appropriate for a physician in a public space
- 15. A Few Rules of Thumb
- 16. Remember HIPAA!Don’t talk about patients, even in general terms If you wouldn’t say it in an elevator, don’t say it online
- 18. Don’t Fear Social Media, Leverage It!
- 23. @egghead
- 24. @SeattleMamaDoc @Doctor_V @EndoGoddess @Dermdoc @kidney_boy Your name? Your specialty? It’s up to you
- 30. Pin a tweet
- 32. Tweet something of interest
- 33. #diabetes #quantifiedself #mhealth #dataviz #dsma #doc #dblog A #hashtag can mean many things like a topic or group
- 34. Use #hashtags
- 35. #showmeyourpump
- 36. #openaps
- 38. Mention
- 39. Reply
- 40. RT = Retweet/Quote Tweet h/t = Hat tip
- 44. To keep abreast of and troubleshoot diabetes technology in real-time
- 47. To learn what’s actually useful for our patients
- 49. To witness the incredible creativity and hacking capabilities of individuals/ families with diabetes
- 50. iSeismometer iPhone app + CGM on nightstand = effective alarm!
- 51. Glucose Sensor + Flovent = Rash-free?
- 59. 18,000+ members
- 62. Find New Tools for Your Research
- 63. #dataviz
- 65. AHRQ grant- Personalized patient-centered data visualizations for diabetes
- 66. To Connect directly with Patients/Caregivers for Research
- 69. 16 cases worldwide Parent advocacy/fundraising Treatments Clinical Trials Only pt with NGLY-1
- 70. “It’s kind of a shift in the scientific world that we have to recognize-that, in this day of social media, dedicated, educated, and well-informed families have the ability to make a huge impact. Gone are the days when we could just say, we’re a cloistered community of researchers, and we alone know how to do this” -Vandana Shashi
- 73. To connect our patients and families with online communities
- 75. “Social media has saved lives in the diabetes community. It has helped people who are struggling with their diabetes to take control and improve their health. It shows people that there isn’t such a thing as a “perfect diabetic,” but there can be an educated and determined one.” -Kerri Sparling @sixuntilme
- 81. Social media is changing what it means to be a doctor today
- 83. Twitter: @joyclee www.doctorasdesigner.com www.nightscoutstudy.info http://twittersuperuser.com/ Special thanks to patients/ caregivers/docs online, & the human network! www.diabetesemoticons.com
- 84. Tweet frequently. Have something interesting to say. Live-tweet events and breaking news. Find & follow people who share your interests. Join the conversation. Give more than you ask for. Join tweetups and Twitter chats. Be yourself.