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Medical Doctor as Maker Designer: Participatory Design for Healthcare

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Slides from my Vanderbilt University Tech Talk on June 1, 2015. Video available here: http://mediasite.vanderbilt.edu/Mediasite/Play/36ef6c8ea30049d498201313ea925c711d

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Medical Doctor as Maker Designer: Participatory Design for Healthcare

  1. 1. Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee @healthbyus #vutechtalk Medical Doctor as Maker Designer Participatory Design for Healthcare
  2. 2. I have no ties to any pharmaceutical companies Social Media/Web Editor of JAMA Pediatrics
  3. 3. Obesity & Type 2 Diabetes: Biomarkers/Child Health Policy Type 1 Diabetes: Learning Health Systems Mobile Technology/Data Visualization/ Participatory Design/Online Communities
  4. 4. “Folk in black turtlenecks and designer glasses working on small things like the Apple Watch” -TB This is a medical designer
  5. 5. “A pediatric endocrinologist who spends her days seeing patients in clinic and writing grants & papers that no one will ever read?” This is a medical designer? No black turtleneck? No designer glasses?
  6. 6. Part 1: A Personal Design Experiment
  7. 7. “B”
  8. 8. #design #fail
  9. 9. #lazytigermother
  10. 10. 700+ students & 40 teachers
  11. 11. #designsuccess #proudtigermother 1769 views!
  12. 12. http://ihavefoodallergies.tumblr.com
  13. 13. B’s Trilogy Part 2: Ingredients and Food Handling
  14. 14. B’s Trilogy Part 3: Asthma
  15. 15. #design #fail
  16. 16. Design Insights about the Production of Health and the Future of Medicine
  17. 17. We were experts
  18. 18. We were makers
  19. 19. We were collaborators
  20. 20. Patient as expert maker collaborator #futureofhealthcare
  21. 21. Part #2 of the journey: “Learning to design is learning to see” -Oliver Reichenstein
  22. 22. #design #suckiness
  23. 23. The needle is opposite to the cap, which is counter- intuitive Design Flaw #1
  24. 24. >15,000 Unintentional injections from Epi-Pens in the US between 1994-2007 There were
  25. 25. 0 500 1000 1500 2000 2500 3000 < 6 yrs 6-12 yrs18-64 yrs Total 13-17 yrs >64 yrs Unintentional Injections with Epinephrine auto-injectors Simons, 2010
  26. 26. Greenberg, 2010 “A large number of health care professionals including nurses, p a r a m e d i c s , a n d p h y s i c i a n s inadvertently self-inject while attempting to administer the EpiPen to patients… “365 injections over 6 years in 1 poison ctr”
  27. 27. Life or death is stressful! Don’t make me think! Design Flaw #2
  28. 28. It’s an awkward size, & doesn’t fit in your pockets Design Flaw #3
  29. 29. Blackberry iPhone
  30. 30. Redesign #1
  31. 31. Redesign #2
  32. 32. Redesign #3
  33. 33. It was designed by patients!
  34. 34. “patients frequently do not understand how and when to use [the epi-pen].” Sicherer, 2011 In medicine, we often blame the patient
  35. 35. “patients frequently do not understand how and when to use [the epi-pen].” Sicherer, 2011 But is it a patient problem or is it a design problem? The needle is opposite to the cap, which is counter- intuitive
  36. 36. Sicherer, 2011 In medicine, we often blame the patient “Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common”
  37. 37. “Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common” Sicherer, 2011 But is it a patient problem or is it a design problem? Life or death is stressful! Don’t make me think!
  38. 38. “patients often forget [the device], allow it to expire” Sicherer, 2011 In medicine, we often blame the patient
  39. 39. But is it a patient problem or is it a design problem? “patients often forget [the device], allow it to expire” Sicherer, 2011 It’s an awkward size, & doesn’t fit in your pockets
  40. 40. Patient problems are really design problems
  41. 41. Fix the design, and it’s no longer the patient’s problem
  42. 42. Let patients and caregivers design, and they will fix the problem! The Nightscout Project
  43. 43. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes
  44. 44. 75% of healthcare providers/ systems fail to help children achieve recommended blood sugar goals in Type 1 Diabetes
  45. 45. Part #3 of the Journey #polarvortex
  46. 46. Healthdesignby.us
  47. 47. Human-Centered Design Thinking ”An approach that puts human needs, capabilities, and behavior first, then designs to accommodate those needs, capabilities, and ways of behaving”
  48. 48. Participatory Design ”an approach to design attempting to actively involve all stakeholders in the design process to help ensure the result meets their needs and is usable”
  49. 49. Committee Work: “Communications to Improve Clinical Care”
  50. 50. Interdisciplinary Workshops: “Design My Diabetes Solution”
  51. 51. Community Events: “My Dream Diabetes Device”
  52. 52. Empathy PrototypeDefine Ideate Test
  53. 53. Empathy Understand a problem before solving it
  54. 54. Define Patient-defined problem
  55. 55. Ideate Collaborative, creative brainstorming
  56. 56. Prototype Sketch, draw, glue, code
  57. 57. Test Iterative Feedback from User
  58. 58. Design= Distraction from Health A critical tool for the creation of health
  59. 59. Maker Movement Do It Yourself (DIY) Learning by Doing Peer-to-Peer
  60. 60. Maker Movement Participatory Design =
  61. 61. DIY = Expert Learning by doing = Maker Peer-to-Peer = Collaborator
  62. 62. The Secret Life of Medical Devices
  63. 63. We #makehealth Fest
  64. 64. Expert “Doctors are experts, not patients     #cultureofhealthcare
  65. 65. “Only certified health professionals should be creating health”     Maker #cultureofhealthcare
  66. 66. “Health is created doctor TO patient”   Collaborator #cultureofhealthcare
  67. 67. “IT said you can’t do that!”   #cultureofhealthcare
  68. 68. MD to Patient Passive Solitary
  69. 69. Patient to Patient Active Collaborative
  70. 70. You are a designer
  71. 71. I don't feel like getting yelled at today he makes me feel stupid
  72. 72. “Don't cry (says a boy to his mom)”
  73. 73. #waitingwaitingwaiting
  74. 74. Design WITH and not FOR Patients
  75. 75. Integrate design into your daily workflow
  76. 76. Design with members of a different tribe, not your own
  77. 77. “it can also come off as arrogant when a d e s i g n e r f a i l s t o respect the solutions that already exist, particularly those that have evolved from within a community.” Check your ego at the door
  78. 78. HealthDesignBy.Us Twitter: @healthbyus @joyclee Our patient experts, John Marshall, Matt Kenyon, Patricia Anderson, Nancy Benovich Gilby, Emily Puckett Rogers, Scott Olson, Amy Cohn, Patricia Abbott, Kelly Parent, John Costik, Jose Gomez- Marquez, Emily Hirschfeld, Charles Woodson Research Fund, UM Provost, & the healthdesignby.us virtual community
  79. 79. #designthinkinghellokitty

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