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Applications of Social Media for
Research and Health Promotion
Joyce Lee, MD, MPH
Doctor as Designer
Twitter: @joyclee
JAMA Pediatrics
Social Media Editor
Agenda
•  Social Media Statistics
•  Users/Features
•  Opportunities/Challenges
Agenda
•  Social Media Statistics
•  Users/Features
•  Opportunities/Challenges
Q: Are there any other uses of
social media in clinical medicine
or research that you want to
learn about?
A: “No. This is...
% of US Adults who use Social Media
(2012-2014)
Pew Research
Agenda
•  Social Media Statistics
•  Users/Features
•  Opportunities/Challenges
“Teens are leaving Facebook in
droves for new friends like
Instagram, Snapchat and Twitter -
at an estimated rate of up to...
Intimacy
Less Social Pressure
“Privacy”
Fast and visual
Exclusively Mobile
Snapchat
Yikyak
Campaigns
http://foodborne.smartchicagoapps.org/
Measurement
Articleurl&utm_campaign=social_42414&utm_me
dium=email&utm_source=healthdesignbyus
Articleurl&utm_campaign=social_42414&ut...
Recruitment
Facebook Targeting by:
•  Age (18-25)
•  Location (United States or California)
•  Language (English)
•  Tobacco- and/or m...
Intervention
Rare Disease Research
Only pt with NGLY-1
#umichmed
#umichmed
16 cases worldwide
Parent advocacy/fundraising
Treatments
Clinical Trials
#umichmed
#umichmed
Patient survey about protein losing enteropathy
(PLE) and plastic bronchitis (PB)
•  Hosted on website & Facebook page
•  ...
Challenges
Limitations
•  No available detailed clinical data (i.e.
hemodynamic data in CHD)
•  Disease verification
•  Bias of onlin...
Social Media Research
in Diabetes
Studies
•  Descriptive Survey
•  Ethnography
– Health communities/Makers
•  Facebook Mining
– Reliability of Health Inform...
Take the survey!
www.nightscoutstudy.info
http://nightscoutstudy.info/
http://twittersuperuser.com/
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
Applications of Social Media for Research
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Applications of Social Media for Research

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My talk at the 2015 American Diabetes Association meeting!

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Applications of Social Media for Research

  1. 1. Applications of Social Media for Research and Health Promotion Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee
  2. 2. JAMA Pediatrics Social Media Editor
  3. 3. Agenda •  Social Media Statistics •  Users/Features •  Opportunities/Challenges
  4. 4. Agenda •  Social Media Statistics •  Users/Features •  Opportunities/Challenges
  5. 5. Q: Are there any other uses of social media in clinical medicine or research that you want to learn about? A: “No. This is a complete waste of time. This is not real research. The fad will die out soon.”
  6. 6. % of US Adults who use Social Media (2012-2014) Pew Research
  7. 7. Agenda •  Social Media Statistics •  Users/Features •  Opportunities/Challenges
  8. 8. “Teens are leaving Facebook in droves for new friends like Instagram, Snapchat and Twitter - at an estimated rate of up to a million a year…It’s hard to look cool when you’re hanging out with Mom and Dad.”
  9. 9. Intimacy Less Social Pressure “Privacy” Fast and visual Exclusively Mobile Snapchat
  10. 10. Yikyak
  11. 11. Campaigns
  12. 12. http://foodborne.smartchicagoapps.org/
  13. 13. Measurement
  14. 14. Articleurl&utm_campaign=social_42414&utm_me dium=email&utm_source=healthdesignbyus Articleurl&utm_campaign=social_42414&utm_me dium=twitter&utm_source=@healthbyus Articleurl&utm_campaign=social_42414&utm_me dium=facebook&utm_source=healthdesignbyus Google Analytics
  15. 15. Recruitment
  16. 16. Facebook Targeting by: •  Age (18-25) •  Location (United States or California) •  Language (English) •  Tobacco- and/or marijuana-related keywords that appeared in their Facebook profiles
  17. 17. Intervention
  18. 18. Rare Disease Research
  19. 19. Only pt with NGLY-1 #umichmed
  20. 20. #umichmed
  21. 21. 16 cases worldwide Parent advocacy/fundraising Treatments Clinical Trials #umichmed
  22. 22. #umichmed
  23. 23. Patient survey about protein losing enteropathy (PLE) and plastic bronchitis (PB) •  Hosted on website & Facebook page •  Posted on 2 existing, patient-run Facebook pages •  Request for survey results ->asked to refer other individuals •  Google ads
  24. 24. Challenges
  25. 25. Limitations •  No available detailed clinical data (i.e. hemodynamic data in CHD) •  Disease verification •  Bias of online communities •  Privacy (social media is not secure)
  26. 26. Social Media Research in Diabetes
  27. 27. Studies •  Descriptive Survey •  Ethnography – Health communities/Makers •  Facebook Mining – Reliability of Health Information •  Patient powered research network?
  28. 28. Take the survey! www.nightscoutstudy.info
  29. 29. http://nightscoutstudy.info/ http://twittersuperuser.com/

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