Social media opportunities for improving diabetes Management. Keynote presentation from the 2012 Diabetes educator forum.

1. Social media
and the role of technology in
improving health conversations;
21st April 2012
Rachel de Sain
Flaxworks

3. Why Health?

4. Why diabetes?
My mum
(the hot one in the
middle)
Type 1 diabetes at 30.
Almost dead at 40
after given the wrong
medication.

5. How can social media tools support health
conversations?

6. Industrial
Technology
Mobile
Connected
Revolutions and
Change
“the only thing
constant is
change”

7. The challenge
• Australia’s life expectancy is one of the
highest in the world, second only to Japan
• In 1996, chronic disease accounted for 80
per cent of the burden of disease,
measured in terms of loss of years and
quality of life
• Over three million Australians, or nearly
one in seven, suffer from chronic disease
• Health expenditure as a proportion of
Australian GDP has more than doubled
over the last four and a half decades from
3.8% to 9%

8. Using Microeconomic reform to deliver patient-centric Health Care

9. Technology holds the key

10. Nielsen: The Australian Online Consumer Report 2011

14. Slide care of Brandinfiltration.com

16. http://youtu.be/5mid8p4A6Eg
Technology has changed behaviors, attitudes
and activities – it will continue to do so…

18. Video Summary
• More people heading online to find answers
• Trusting word of mouth
• Wanting to feel connected and part of a
community
• Increasing amount of content coming from
people versus brands
• Growing use of social media to create
effective change in health outcomes

20. Social media is digital content created
by the people for the people.
Social media is a shift in how people discover,
read and share content;
Transforming broadcast media monologues (one
to many) into social media dialogues (many to
many).

21. Social Media
is
Conversation

23. SEARCHABLE
INTERACTIVE
ACCESSIBLE
TIMELESS

24. Social Media
Learning
• A great way
to find
information
Communicating
• A great way
to share
information
Connecting
• A great way
to be part of
the
community
Patient Practioner

25. Learning
• Learning from others
• Finding thought leaders
• Accessing the latest information

30. • http://www.youtube.com/watch?v=aUaInS6HI
Go
• 23 ½ hours video about how simply 30mins of
simple walking a day can make a huge
difference.

32. Diabetes portals
• http://www.youtube.com/watch?v=CQGF1Eo
XFPs
• http://www.diabetesmine.com/
• http://www.tudiabetes.org/

34. The PatientsLikeMe process is to help people share their health information in order to learn from
others like them and then use that information to discuss treatment options with their health care team
Step 1:
Create/update and
share your health
profile
Step 2:
Find support from
others like you and
compare experiences
Step 3:
Learn from aggregated
community Treatment
and Symptom Reports
Step 4:
Take profile to your doctor to have an
improved treatment conversation
Step 5:
Play an integral
part in your own
health care

35. With over 3,400 patients reporting Type II diabetes and 750 with Type I as a health condition in the US,
PatientsLikeMe is well-positioned to aggregate the real-world experience of people living with these challenges
35Proprietary & Confidential

36. Giving patients access to their own record is a crucial first step; the next evolution is to permit controlled
sharing between patients to help patients learn from one another’s experiences and conduct research
36Proprietary & Confidential

37. Can providing patients with the tools to connect with one another improve health outcomes for diabetes
patients struggling to manage their condition(s) despite good medical support?
37Proprietary & Confidential

38. 23% - I have had fewer
visits to the ER
28% - PatientsLikeMe
gave me more and
better control over my
condition
59% -the site has given
me a better
understanding of my
seizures
49% - recording my
seizures helps me
manage my condition
50% - PatientsLikeMe
helped me understand
side effects
2010 Epilepsy User Survey: Those who connect with others on
PatientsLikeMe report a wider range of perceived benefits to their
epilepsy management and quality of life
30% - PatientsLikeMe
helped me be more
adherent
One-third of respondents had no one in “the real world” with whom to discuss their
epilepsy. After joining PatientsLikeMe, two-thirds reported a connection to at least one
other person with epilepsy.
Case Study: Patients Report Benefits of Connecting through a Data-Centric Sharing Platform

39. Health Information Seeking and Social Media
Use on the Internet among People with Diabetes
– Ryan J Shaw1, Constance M Johnson1 1Duke University School of Nursing, Durham, NC
Abstract
• Patients who are active and involved in their self-management and
care are more likely to manage chronic conditions effectively (6,
26).
• With a 5-fold increase in the incidence of chronic illness over the
past 20 years, access to information can provide patients the tools
and support to self-manage their chronic illness.
• New media technologies can serve as tools to engage and involve
patients in their health care.
• Thus, the Internet can serve as a mechanism of empowerment (4,
5). This is especially important for people with diabetes mellitus
where intensive self- management is critical.

40. Social media risks
• Growing ESL and CALD
community needs
• Americanisation of results
• Health literacy / tech literacy
– Understanding who and
what to trust
– How much to share
– Managing data when
cognitive functions decline
• Paranoia versus managing
privacy

41. Who can you trust?

43. BJ Fogg – behavior change guru

44. Gamification

50. A major factor for reduced
independence in older adults
1/3 community dwelling older adults fall
each year
10-20% multiple fallers
$18,454 per hospital admission
Total health cost to NSW alone in
2006/2007 $553M
Dr Stuart Smith, Neuroscience Research Centre

51. Our approach to balance
training and fall prevention
Videogames

55. Gaming
• Usability, consumer engagement and technology adoption.
– Make it fun and they will use it
– Great tool for education and change adoption
• eHealth needs a solitaire…
– Biggest educator of how to use a mouse and windows interface
• Movement based gaming platforms
– Rehabilitation, falls prevention
• Intergenerational gaming
– Bringing families together

56. Benefits and Challenges of Social
Media for Healthcare
Rare isn’t so rare
Anonymous
Empower yourself
Have more choice
Share your story
Benefit

57. Benefits and Challenges of Social
Media for Healthcare
Rare isn’t so rare
Anonymous
Empower yourself
Have more choice
Share your story
Benefit Americanisation
Scaremongering
Accuracy of Info
Science / Art Balance
Everyone is Different
Challeng
e

59. Rachel de Sain
rdesain@flaxworks.com.au
skype: rdesain
twitter: rdesain
Thank you!
Final thought…