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Social Media & Health: Safety Concerns

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Social Media & Health: Safety Concerns

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Presentation at the 2017 joint annual convention of the Philippine Society of Hypertension & Philippine Lipid & Atherosclerosis Society 25 Feb 2017, Crowne Plaza Galleria Manila.

Presentation at the 2017 joint annual convention of the Philippine Society of Hypertension & Philippine Lipid & Atherosclerosis Society 25 Feb 2017, Crowne Plaza Galleria Manila.

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Social Media & Health: Safety Concerns

  1. 1. SOCIAL MEDIA & HEALTH: SAFETY CONCERNS IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch
  2. 2. I have nothing to disclose
  3. 3. www.fb.com/endocrinewitch
  4. 4. www.dokbru.endocrine-witch.net
  5. 5. SAFETY CONCERNS TRUST YOUTUBE TWITTERFUTURE
  6. 6. Patients are increasingly using online social networks to connect with other patients and healthcare professionals PEER-TO-PEER HEALTHCARE Pagoda S. et a. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  7. 7. SOCIAL MEDIA FOR HEALTH COMMUNICATION Provide health information Provide answers to medical Qs Facilitate dialogue Collect patient data Health promotion Moorhead SA et al. J Med Internet Res 2013;15(4):e85 Health education Reduce stigma Online consultation
  8. 8. https://www.patientslikeme.com/
  9. 9. BENEFITS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Increase interaction Increase accessibility More available, shared, tailored information Moorhead SA et al. J Med Internet Res 2013;15(4):e85 Peer/social/emotional support Public health surveillance Potential to influence health policy
  10. 10. LIMITATIONS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Lack of reliability Quality concerns Moorhead SA et al. J Med Internet Res 2013;15(4):e85
  11. 11. Moorhead SA et al. J Med Internet Res 2013;15(4):e85 LIMITATIONS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Lack of confidentiality & privacy Often unaware of risks of disclosing personal information online
  12. 12. LIMITATIONS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Unaware of risks of communicating harmful/ incorrect advice using social media Unsure how to correctly apply information found online to their personal health situation Information overload Moorhead SA et al. J Med Internet Res 2013;15(4):e85
  13. 13. LIMITATIONS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Adverse health consequences Negative health behaviors Moorhead SA et al. J Med Internet Res 2013;15(4):e85
  14. 14. LIMITATIONS OF SOCIAL MEDIA FOR HEALTH COMMUNICATION Moorhead SA et al. J Med Internet Res 2013;15(4):e85 Health professionals may not often use social media for communication Social media may act as a deterrent from visiting health professionals
  15. 15. SAFETY CONCERNS TRUST YOUTUBE TWITTERFUTURE
  16. 16. Do cultural variations exist in patterns of online health information seeking? Song et al. Trusting Social Media as a Source of Health Information: Online Surveys Comparing the United States, Korea, and Hong Kong. J Med Internet Res 2016;18(3):e25)
  17. 17. HEALTH INFORMATIONSong et al. J Med Internet Res 2016;18(3):e25) Expertise-based information produced by medical professionals Experience-based information laypersons’ subjective first-hand experiences of health & illness
  18. 18. Song et al. J Med Internet Res 2016;18(3):e25) SURVEY QUESTIONNAIRE English (Milwaukee) n=301 Korean (Seoul) n=179 Chinese (Hongkong) n=337 826 College students Voluntary participation Health information seeking & trust Goals of online health information seeking Seeking health information on behalf of family members
  19. 19. Frequency of using health information sources Song et al. J Med Internet Res 2016;18(3):e25) Blogs Support groups Social networks Professional health information websites
  20. 20. SEEKING HEALTH INFORMATION ONLINE Song et al. J Med Internet Res 2016;18(3):e25) GOALS health maintenance preparation complementing consultation validating/challenging consultation “Searching information for sick family members is an important family responsibility.” 7-point Likert scale
  21. 21. HEALTH INFORMATIONSong et al. J Med Internet Res 2016;18(3):e25) Expertise-based information Americans showed a stronger preference for WebMD & CDC Experience-based information Asians showed more trust in blogs, online support groups & social networking sites
  22. 22. SEEKING HEALTH INFORMATION ONLINE Song et al. J Med Internet Res 2016;18(3):e25) “Searching information for sick family members is an important family responsibility.” Asians > Americans HOLISTIC vs ANALYTIC culture
  23. 23. SEEKING HEALTH INFORMATION ONLINE Song et al. J Med Internet Res 2016;18(3):e25) GOALS Health maintenance Americans > Asians Preparation Americans > Asians Complementing consultation Asians > Americans 7-point Likert scale
  24. 24. Song et al. J Med Internet Res 2016;18(3):e25) Social media can help disseminate expertise-based health information by enhancing access, relevance and credibility. Experience-based information can be strategically and differentially incorporated into expertise-based health information to target audiences from diverse cultures.
  25. 25. Song et al. J Med Internet Res 2016;18(3):e25) Incorporating health professionals’ comments in health-related blogs, SNS, and support group sites may be imperative for Asians.
  26. 26. SAFETY CONCERNS TRUST YOUTUBE TWITTERFUTURE
  27. 27. Concern over veracity & quality of information Increased use to post anecdotal information Minimal guidelines regulating content uploaded
  28. 28. Madathil KC et al. Health Informatics J 2015;21(3):173-194 HEALTH-RELATED INFORMATION ON YOUTUBE Health consumers are viewing health-related information on YouTube Misleading information is found on YouTube & likely to be found by health consumers Reliable postings from government/professional orgs are available Little difference between frequency of viewings between misleading & accurate posts
  29. 29. Madathil KC et al. Health Informatics J 2015;21(3):173-194 SAFETY CONCERNS WITH YOUTUBEYouTube is used as a medium for promoting unscientific therapies YouTube contains information contradicting reference standards/ guidelines YouTube can change the beliefs of patients about controversial topics i.e. vaccination
  30. 30. Significant lack of research on developing interventions for the effective dissemination of YouTube videos for healthcare communication. Madathil KC et al. Health Informatics J 2015;21(3):173-194
  31. 31. SAFETY CONCERNS TRUST YOUTUBE TWITTERFUTURE
  32. 32. Characterize tweets of health professionals Lee JL et al. J Med Internet Res 2014;16(10):e237 100 random tweets each n=700 Health advocates, businesses, health care organizations, government organizations, students, professionals, other
  33. 33. Lee JL et al. J Med Internet Res 2014;16(10):e237
  34. 34. Testable Evidence-based claim whose veracity could be assessed CATEGORIES OF HEALTH-RELATED TWEETS Lee JL et al. J Med Internet Res 2014;16(10):e237 News Information or events that happened recently Commercial Advertises a service or product for sale Wellness Refers to food, diet or exercise Personal Refers to personal experiences relayed by users
  35. 35. Lee JL et al. J Med Internet Res 2014;16(10):e237 Over half of tweets were testable claims 40% medical advice 23% scientific research Non-provider individuals contributed 20% of health tweets Trust? Unbound by professional guidelines?
  36. 36. Lee JL et al. J Med Internet Res 2014;16(10):e237 17% of health tweets from providers and 74% from medical students included personal content LACK OF ADHERENCE TO PROFESSIONAL GUIDELINES 14% of providers’ tweets included commercial products or services
  37. 37. SAFETY CONCERNS TRUST YOUTUBE TWITTERFUTURE
  38. 38. RESEARCH PRIORITIES Moorhead SA et al. J Med Internet Res 2013;15(4):e85 Determine the impact of social media for health communication in specific population groups with large sample sizes Determine the relative effectiveness of different social media applications for health communication using RCTs Determine the longer-term impact on the effectiveness of social media for health communication using longitudinal studies
  39. 39. RESEARCH PRIORITIES Moorhead SA et al. J Med Internet Res 2013;15(4):e85 Explore potential mechanisms for monitoring and enhancing the quality and reliability of health communication using social media Investigate the risks arising from sharing information online and the consequences for confidentiality and privacy Determine how social media can be effectively used to support the patient-health professional relationship 
 Develop the most suitable mechanisms to effectively educate users in the maintenance of their confidentiality and privacy 

  40. 40. IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch

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