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Joyce Lee, MD, MPH, Doctor as Designer
University of Michigan
Twitter: @joyclee
Social Media: A Useful
Tool for Patient-ce...
Co-director-Mott Mobile
Technology for Enhancing Health
Social Media Editor, JAMA
Pediatrics
Healthdesignby.us
@joyclee
75%
of children fail to achieve
recommended blood sugar
goals in Type 1 Diabetes
Who is at fault?
The patient or the design?
Which cord? PC desktop?
No cloud connectivity?
Really?
#waiting
Some people wonder why almost
no one uploads their pump data…
I think I know why: because
getting it to work can be like
C...
Healthcare: “Fax us your numbers!”
Kid: “Mom, what’s a fax? Is it
compatible with Snapchat?”
What is his BS???
#mhealth
to the rescue!
Hard to find
Too many
Uncertain Quality
Uncertain Benefit
Lack of link to provider
Lack information on security/data
Too m...
Hacking
Commands
Getting the data I wanted
Byte Array decoding
What does
161718191A1B1C1D1E1F mean?
“This led up to an email from the
wonderful Lane Desborough. We got
talking, I shared my simple Windows
uploader with him,...
“We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people ...
“The “CGM in the Cloud” Facebook
group started from these early twitter
interactions and helping just a few
other d-parent...
10,724 members
Patient as
expert
maker
collaborator
#thefutureofdiabetestechnology
Patient as
expert
http://bit.ly/10IUyph
Patient as
maker
Patient as
collaborator
http://bit.ly/1qyPESH
John
Costik
Adrien de
Croy
Weston
Nordgren II
Studies
•  Descriptive Survey
•  Undergraduate Programmers (Apps)
•  Ethnography
– Health communities/Makers
•  Facebook M...
MD to Patient
Passive
Solitary
Closed
Patient to Patient
Active
Collaborative
Open
THANK YOU
John Costik, Adrien de Croy
Weston Nordgren II
Nancy Benovich Gilby, Peter Honeyman, Liz
Kaziunas, Sylvia Lindtn...
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
Social Media: A Useful Tool for Patient-centered Outcomes Research?
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Social Media: A Useful Tool for Patient-centered Outcomes Research?

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Social Media: A Useful Tool for Patient-centered Outcomes Research?

  1. 1. Joyce Lee, MD, MPH, Doctor as Designer University of Michigan Twitter: @joyclee Social Media: A Useful Tool for Patient-centered Outcomes Research?
  2. 2. Co-director-Mott Mobile Technology for Enhancing Health Social Media Editor, JAMA Pediatrics Healthdesignby.us
  3. 3. @joyclee
  4. 4. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes
  5. 5. Who is at fault? The patient or the design?
  6. 6. Which cord? PC desktop? No cloud connectivity? Really?
  7. 7. #waiting
  8. 8. Some people wonder why almost no one uploads their pump data… I think I know why: because getting it to work can be like CRAWLING. THROUGH. BROKEN. GLASS. @HowardLook
  9. 9. Healthcare: “Fax us your numbers!” Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
  10. 10. What is his BS???
  11. 11. #mhealth to the rescue!
  12. 12. Hard to find Too many Uncertain Quality Uncertain Benefit Lack of link to provider Lack information on security/data Too much burden The promise of mobile health has yet to be realized
  13. 13. Hacking Commands Getting the data I wanted Byte Array decoding What does 161718191A1B1C1D1E1F mean?
  14. 14. “This led up to an email from the wonderful Lane Desborough. We got talking, I shared my simple Windows uploader with him, and he began working on “Nightscout” – a glance- able BG chart that could be viewed throughout a home”
  15. 15. “We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.” “Freedom!”
  16. 16. “The “CGM in the Cloud” Facebook group started from these early twitter interactions and helping just a few other d-parents looking for a better way. We have wonderful tools, but they can do more! JC, JA, & TC deserve the credit for scaling this system. JA started the group, because he knew that we were not the only ones tired of waiting.”
  17. 17. 10,724 members
  18. 18. Patient as expert maker collaborator #thefutureofdiabetestechnology
  19. 19. Patient as expert http://bit.ly/10IUyph
  20. 20. Patient as maker
  21. 21. Patient as collaborator http://bit.ly/1qyPESH
  22. 22. John Costik Adrien de Croy Weston Nordgren II
  23. 23. Studies •  Descriptive Survey •  Undergraduate Programmers (Apps) •  Ethnography – Health communities/Makers •  Facebook Mining – Reliability of Health Information •  Open Science Mobile Health Projects
  24. 24. MD to Patient Passive Solitary Closed
  25. 25. Patient to Patient Active Collaborative Open
  26. 26. THANK YOU John Costik, Adrien de Croy Weston Nordgren II Nancy Benovich Gilby, Peter Honeyman, Liz Kaziunas, Sylvia Lindtner, Mark Ackerman, The Nightscout/#doc community Twitter: @NightscoutProj FB: CGM in the Cloud #wearenotwaiting

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