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Design Thinking for Academic Researchers
Joyce Lee, MD, MPH
Twitter: @joyclee
http://www.doctorasdesigner.com/
@joyclee
Clinical/Translational Research
Controlled
Clinical Trials/
Studies
Healthcare
Delivery
Basic
Research
T1 T2
@joyclee
• Bu...
Epidemiology/Biostatistics
Clinical Research
NHANES/CCS/Medicaid data
Physician Surveys
Cost-effectiveness
Child Health Po...
@joyclee
Grant Support for Design Thinking
• Learning Health Systems for Type 1 Diabetes (T1D
Exchange)
• Patient-centered Data Vis...
Epidemiology/Biostatistics
Clinical Research
NHANES/CCS/Medicaid data
Physician Surveys
Cost-effectiveness
Child Health Po...
Design will help you ask and answer the right research
questions
Design will improve the user experience of research
Desig...
@joyclee
@joyclee
@joyclee
@joyclee
@joyclee
Italy
UK
Sweden
Bulgaria
Spain
Canada
Australia
Finland
Czech+Slovakia
New Zealand
Croatia
Israel
South Africa
Hungary
Fra...
“What one person knows, everybody knows…So it’s
travelling at the speed of light.”
Open Source Code
@joyclee
“A cyberteam of self-motivated people with a collective vision, enabled
by the Web to collaborate in achieving a ...
@joyclee
To promote the participation of patients and caregivers
throughout the research life cycle (ideation to dissemination)
To ...
Design Ethnography
Secondary Analysis of Facebook Group Conversations
Participatory Design with Patient Partners
Active in...
Community Workshops
@joyclee
@joyclee
@joyclee
@joyclee
Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Com...
OpenHumans.org
“Projects” or “IRB-covered Research Projects”
Participants decide with whom to share their data
Deidentifie...
Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Com...
Nightscout Foundation Data Commons
Data is “owned” by the community
Academic Researchers are a beneficiary of data donatio...
Nightscout Study Design and Governance
Use of Open Humans Platform
Nightscout Foundation Data Commons
Community-Driven Com...
Nightscout Study Communication
@joyclee
Design will help you ask and answer the right research
questions
Design will improve the user experience of research
Desig...
Emily Hirschfeld, Ashley Garrity, Sarah Clark, Mark
Newman, Nancy Benovich Gilby, Jacob Dwyer, CGM in
the Cloud Community
...
Takeaways
Design is learned by doing and learning from a
diverse set of colleagues
Participatory design that engages
patie...
Design Thinking for Academic Researchers
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Design Thinking for Academic Researchers

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My talk for the Design Thinking in Healthcare Plenary at the 2017 Pediatric Academic Societies Meeting

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Design Thinking for Academic Researchers

  1. 1. Design Thinking for Academic Researchers Joyce Lee, MD, MPH Twitter: @joyclee http://www.doctorasdesigner.com/ @joyclee
  2. 2. Clinical/Translational Research Controlled Clinical Trials/ Studies Healthcare Delivery Basic Research T1 T2 @joyclee • Burden & Association of Obesity and Chronic Disease Risk • Examining the ADA Screening Policy for T2D in overweight/obese children • T1D Outcomes
  3. 3. Epidemiology/Biostatistics Clinical Research NHANES/CCS/Medicaid data Physician Surveys Cost-effectiveness Child Health Policy Modeling @joyclee Research Toolbox
  4. 4. @joyclee
  5. 5. Grant Support for Design Thinking • Learning Health Systems for Type 1 Diabetes (T1D Exchange) • Patient-centered Data Visualizations for Diabetes (AHRQ R21) • Nightscout Project (PCORI)
  6. 6. Epidemiology/Biostatistics Clinical Research NHANES/CCS/Medicaid data Physician Surveys Cost-effectiveness Child Health Policy Modeling @joyclee Research Toolbox Design Ethnography/Research User Experience/Interaction Design Participatory Design
  7. 7. Design will help you ask and answer the right research questions Design will improve the user experience of research Design will lead to greater levels of engagement and participation by patients in research @joyclee Hypotheses
  8. 8. @joyclee
  9. 9. @joyclee
  10. 10. @joyclee
  11. 11. @joyclee
  12. 12. @joyclee
  13. 13. Italy UK Sweden Bulgaria Spain Canada Australia Finland Czech+Slovakia New Zealand Croatia Israel South Africa Hungary France Switzerland Belarus Japan Korea 8000+ Int’l Poland Romania Denmark Portugal Turkey Russia Norway Brasil Germany 20,000+ US @joyclee
  14. 14. “What one person knows, everybody knows…So it’s travelling at the speed of light.” Open Source Code
  15. 15. @joyclee “A cyberteam of self-motivated people with a collective vision, enabled by the Web to collaborate in achieving a common goal by sharing ideas, information, and work” -Peter Gloor in Swarm Creativity Collaborative Innovation Network Leadership Development Team Support “Makers”
  16. 16. @joyclee
  17. 17. To promote the participation of patients and caregivers throughout the research life cycle (ideation to dissemination) To utilize the tools of mobile technology and social media for conducting research To accelerate the research lifecycle in Type 1 Diabetes @joyclee PCORI Eugene Washington PCORI Engagement Award (1442-UMich).
  18. 18. Design Ethnography Secondary Analysis of Facebook Group Conversations Participatory Design with Patient Partners Active in the strategic design and execution of a research collaborative Community Engagement through Design Workshops Use of Design in Research @joyclee
  19. 19. Community Workshops @joyclee
  20. 20. @joyclee
  21. 21. @joyclee
  22. 22. @joyclee
  23. 23. Nightscout Study Design and Governance Use of Open Humans Platform Nightscout Foundation Data Commons Community-Driven Communications @joyclee
  24. 24. OpenHumans.org “Projects” or “IRB-covered Research Projects” Participants decide with whom to share their data Deidentified data, but capacity for messaging participants @joyclee
  25. 25. Nightscout Study Design and Governance Use of Open Humans Platform Nightscout Foundation Data Commons Community-Driven Communications @joyclee
  26. 26. Nightscout Foundation Data Commons Data is “owned” by the community Academic Researchers are a beneficiary of data donation @joyclee
  27. 27. Nightscout Study Design and Governance Use of Open Humans Platform Nightscout Foundation Data Commons Community-Driven Communications @joyclee
  28. 28. Nightscout Study Communication @joyclee
  29. 29. Design will help you ask and answer the right research questions Design will improve the user experience of research Design will lead to greater levels of engagement and participation by patients in research @joyclee Hypotheses
  30. 30. Emily Hirschfeld, Ashley Garrity, Sarah Clark, Mark Newman, Nancy Benovich Gilby, Jacob Dwyer, CGM in the Cloud Community Eugene Washington PCORI Engagement Award (1442-UMich) Email: joyclee@med.umich.edu Twitter: @joyclee http://www.doctorasdesigner.com It Takes a Virtual Village John Costik, Dana Lewis, Weston Nordgren, James Wedding, Ben West @joyclee
  31. 31. Takeaways Design is learned by doing and learning from a diverse set of colleagues Participatory design that engages patients/caregivers as partners is critical for designing research that matters Use strategic grantsmanship to support your design work @joyclee

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