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Joyce Lee, MD, MPH
Nightscout Community
@NightscoutProj @joyclee
#wearenotwaiting
Nightscout:
A Community Designing
the Fu...
Social Media Editor,
JAMA Pediatrics
Healthdesignby.us
@joyclee
75%
of children fail to achieve
recommended blood sugar
goals in Type 1 Diabetes
Healthcare: “Fax us your numbers!”
Kid: “Mom, what’s a fax? Is it
compatible with Snapchat?”
Some people wonder why almost
no one uploads their pump data…
I think I know why: because
getting it to work can be like
C...
75%
of providers/healthcare
systems fail to help
children achieve
recommended blood sugar
goals in Type 1 Diabetes
Patient problems
are really
design problems
Joyce Lee, MD
Medical Designer
Fix the design,
and it’s no longer the
patient’s problem
Joyce Lee, MD
Medical Designer
Let patients and caregivers
design, and they will
fix the problem!
The Nightscout
Project
Patient as
expert
maker
collaborator
#thefutureofdiabetestechnology
Patient as
expert
http://bit.ly/10IUyph
Patient as
maker
Patient as
collaborator
“We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people ...
“We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people ...
12,500+ members
#diyps
OpenAPS.org
Upcoming Nightscout Studies
•  Descriptive Survey
•  Ethnography (Health communities/
Makers)
•  Facebook Mining
•  Patien...
Take the survey!
www.nightscoutsurvey.info
# of completed surveys
1 day after release!
MD to Patient
Passive
Solitary
Closed
Patient to Patient
Active
Collaborative
Open
THANK YOU
The CGM in the Cloud community
Emily Hirschfeld, Preciosa Choi,
Weston Nordgren, Ben West,
Dana Lewis, Scott Lei...
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
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A Community Designing the Future

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My presentation about Nightscout at the American Diabetes Association meeting 2015! Thanks @Danam @ScottLeibrand

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A Community Designing the Future

  1. 1. Joyce Lee, MD, MPH Nightscout Community @NightscoutProj @joyclee #wearenotwaiting Nightscout: A Community Designing the Future of Healthcare
  2. 2. Social Media Editor, JAMA Pediatrics Healthdesignby.us
  3. 3. @joyclee
  4. 4. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes
  5. 5. Healthcare: “Fax us your numbers!” Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
  6. 6. Some people wonder why almost no one uploads their pump data… I think I know why: because getting it to work can be like CRAWLING. THROUGH. BROKEN. GLASS. @HowardLook
  7. 7. 75% of providers/healthcare systems fail to help children achieve recommended blood sugar goals in Type 1 Diabetes
  8. 8. Patient problems are really design problems Joyce Lee, MD Medical Designer
  9. 9. Fix the design, and it’s no longer the patient’s problem Joyce Lee, MD Medical Designer
  10. 10. Let patients and caregivers design, and they will fix the problem! The Nightscout Project
  11. 11. Patient as expert maker collaborator #thefutureofdiabetestechnology
  12. 12. Patient as expert
  13. 13. http://bit.ly/10IUyph
  14. 14. Patient as maker
  15. 15. Patient as collaborator
  16. 16. “We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.” “Freedom!”
  17. 17. “We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.” “Freedom!” -John Costik
  18. 18. 12,500+ members
  19. 19. #diyps OpenAPS.org
  20. 20. Upcoming Nightscout Studies •  Descriptive Survey •  Ethnography (Health communities/ Makers) •  Facebook Mining •  Patient-driven Research Network?
  21. 21. Take the survey! www.nightscoutsurvey.info
  22. 22. # of completed surveys 1 day after release!
  23. 23. MD to Patient Passive Solitary Closed
  24. 24. Patient to Patient Active Collaborative Open
  25. 25. THANK YOU The CGM in the Cloud community Emily Hirschfeld, Preciosa Choi, Weston Nordgren, Ben West, Dana Lewis, Scott Leibrand, Jason Adams, John Costik, James Wedding, Nightscout Foundation Twitter: @NightscoutProj FB: CGM in the Cloud #wearenotwaiting

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