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Detroit Healthcare Leaders Forum 2015


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My slides for the panel discussion about Patient Engagement in Healthcare at the Detroit Healthcare Leaders Forum.

Published in: Health & Medicine
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Detroit Healthcare Leaders Forum 2015

  1. 1. Patients as Partners: Engaging People in Their Care Joyce Lee MD, MPH Panel Discussion with Dee Edington
  2. 2. I have no ties to any pharmaceutical companies Social Media/Web Editor of JAMA Pediatrics
  3. 3. Clinical/Health Services Research Obesity/Diabetes Mobile Technology/Online Communities Design of QI/Learning Health Systems
  4. 4. Folk in black turtlenecks and designer glasses working on small things like the Apple Watch Medical Designer?
  5. 5. “B”
  6. 6. Healthcare Problem #1 “Patients frequently do not understand how and when to use [the epi-pen].” Sicherer, 2011
  7. 7. >15,000 Unintentional injections From Epi-Pens in the US between 1994-2007 “Including nurses, paramedics, and physicians”
  8. 8. Healthcare Problem #2 “Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common” Sicherer, 2011
  9. 9. Healthcare Problem #3 “patients often forget [the device], allow it to expire” Sicherer, 2011
  10. 10. Blackberry iPhone
  11. 11. Is it a Patient Problem? -or- Is it a Healthcare System Design Problem?
  12. 12. Redesign #1
  13. 13. Redesign #2 “To inject place black end into outer thigh. 5-4-3-2-1 Injection complete. Seek emergency medical attention”
  14. 14. Redesign #3
  15. 15. Patient problems are really design problems Joyce Lee, MD Medical Designer
  16. 16. Fix the design, and it’s no longer the patient’s problem Joyce Lee, MD Medical Designer
  17. 17. Let patients and caregivers design, and they will fix the problem! The Nightscout Project
  18. 18. What are some of the current shortfalls in the design of the healthcare system?
  19. 19. How can consumers/patients be more in the conversation, what kind of insights can they provide that the consultants and employers and providers can’t?
  20. 20. User-centered Design
  21. 21. What are the key challenges to employers/patients to making better health care decisions? How do we properly align incentives and values so we are making progress?
  22. 22. Learning Health Systems Quality Improvement (Outcomes) Knowledge Networks (Virtual/In person) Tools (Real-time metrics/pt-facing tools)
  23. 23. What are some innovations or disruptors that you see changing the health care landscape?
  24. 24. CGM in the Cloud (Facebook Group) 12,000 members
  25. 25. Only pt with NGLY-1 16 cases worldwide Parent group as organized Preliminary Treatments Clinical Trials
  26. 26. How do you compel employees to make long-term behavioral changes to improve their long- term health?
  27. 27. The End of Sitting Rietveld Architecture-Art Affordances