Disability As A Difference
WHO-Definition of Disability
• Disability is defined as:
the unsuccessful interaction between a person
with an impairment and an unsupportive
environment
Environment has four dimensions:
– Physical
– Social
– Financial
– Political
Disability as a social construct
Differently Abled
Theoretical Perspectives
1. Biomedical: emphasis on impairment &
abnormality
Patient is sick and society has an obligation to provide
basic level of health care
2. Economic Model: emphasis on the economics
of disability
How does impairment affect capacity consequently
limiting ability to be productive
Theoretical Perspectives (Continued)
3. Sociopolitical Model: represents current
trends
• Disability is a form of social injustice due to stigma,
discrimination and marginalization
4. Normalization Theory: right to live life
normally
• Explains de-institutionalization/integration for people
living with developmental & psychiatric diagnosis e.g.
group homes, independent living, etc
The Future
• Number of people living with disability will
increase because:
1. population is aging
2. medical technology is improving
3. increasing # of infants survive with chronic
impairments
Barriers to Services
1. Funding Barriers:
 Inequality amoung people with disabilities – varies
greatly depending upon their source of income
2. Rigid Rule Barriers:
– Programs tend to require the consumer to adapt or
adjust to its requirements instead of being flexible based
upon individual needs
Barriers to Services (continued)
3. Linking Services to Income:
– Some people living with disability seem to have
access to major funding however, we forget how
much it costs to be disabled and how much are
spent on care needs
4. Administrative Barriers:
– Access to services can be a complicated process or
has long waiting lists
Barriers to Services (continued)
5. Attitudinal Barriers:
– Occurs within the community re: integration
– E.g. not in my backyard mentality
Understanding the Disability
Experience
Onset, Course & Outcome
Onset of the disability
• Way in which person becomes disabled has a
major effect on self-perception
– Disability at birth or early on – person never
knows themselves without the disability
– Acquiring a disability suddenly/traumatically
– Gradual onset
Course of the Disability
• Progressive
– Disability progresses to greater levels of
impairment e.g., ALS
• Chronic
– Once the adjustment to the disability is made
there is reasonable levels of stability
• Relapsing
– Exacerbation-remission cycle e.g., MS & Lupus
Outcome
• Outcome looks at the changes in lifespan
changes
– Some disabilities may shorten life. Others shorten
it slightly, while other reduce life expectancy
dramatically.
– We live in a society that avoids thinking of death
Understanding the Experience of
Disability
Living with the limitations &
stereotypes
Types of Disabilities
• Limitations on mobility & energy
• Sensory limitations
• Limitations in communications
• Limitations in reasoning ability and mental
functioning
Note: many disabilities are impairments only because
of the social context and the built environment
Mobility Limitations – things to consider
• Independent Wheelchair Mobility
– Necessary to look up to make eye contact
– Counters often too high
– Harder to use many public facilities
– Public transit – not all bus routes equipped
– Wheelchair accessible bathroom stales often the furthest
away
– Shopping hard to manage
– Accessible entrances not always where you think they are
– Our bodies are not designed for sitting all the time
– Textures of floor coverings
Mobility Limitations – things to consider
• Dependent Wheelchair Mobility
– Greater dependency on others to care for them
e.g., eating, bathing, toileting
Limitations due to Energy Levels
• Often having a condition or disability or being
treated for it can use up enormous energy
– Medications can weaken,
– Receiving chemotherapy.
• Certain types of disabilities are particularly
associated with losses in energy – Chronic
fatigue, Fibromyalgia, diseases related to lung
capacity
Sensory Limitations – Vision & Hearing
• Limitation can be complete or a partial
absence
• Blindness
– Vision our favourite sensory
– A social construct
• Visual impairment
– Easier to navigate
– Takes enormous energy
Sensory Limitations – Vision & Hearing
• Deafness & Hearing Limitations
– Strong social component – Deaf culture
– Has all the distinguishing marks for culture – a
language, terminology & expressions, criteria for
admittance and an established way of interacting
– Deafness as a social construct – ability to learn
other languages
Sensory Limitations – Vision & Hearing
• Hearing Impairments
– Rarely identify with deaf culture
– Assistive devices have gotten significantly better
Limitations in Communications
• Expressive Aphasia & Other Limitations in
Speech
– Expressive Aphasia
• Individual unable to use the proper words or to form
words to communicate
• Often seen with cerebral damage and head trauma
• Limiting – often only the most basic needs that are
communicated due to effort involved in
communicating
Limitations in Communications
• Receptive Aphasia
– Seen with some types of learning disorders
• The person has difficulty in processing verbal and /
written communication
• What reaches the brain is not comprehensible
• Difficulty individual facing is often not noticeable
Limits in Reasoning Ability & Mental
Functioning
• A very broad group including:
– Developmental disabilities
– Mental illness
– Alzheimer’s disease
– Senile dementias
– Brain injuries
Cognitive Limitations:
Developmental Disabilities
• Constant state of dependency results in high
levels of abuse – 80%
• Compliance is a learned social behaviour
• Very vulnerable out in the community
• Sexuality and sexual identity often
discouraged
Limitation in Cognitive Functioning: Alzheimer’s &
Senile Dementia
• Different from Developmental disabilities in that
they occur later in life
• Person experiences changes in – personality and
behavioral, and reasoning ability and perception
• Wide variation in the experiences – some become
anxious, agitated, aggressive, confrontational, other
become peaceful, happy and pleasant
• Very difficult on the families as relationships change
Limitation in Cognitive Functioning:
Mental Illness
• Mental illness as social construct – something
that society has created to explain behavior
that is outside the norm
• One of the most negatively judged limitations
in society
Visibility: Special Challenge
• When people with disabilities interact with
others in society, the disability itself becomes
one of the factors of the interaction, often
determining the quality and quantity of
relationships.
• Some disabilities are visible and recognizable
and others are not
Invisible Disabilities
• Sharing is voluntary much of the time.
• Sharing makes the invisible visible – it
identifies you as having a difference from
others
• When do you share?
Disability As A Difference
Disability is not the issue. The issue is the fit of
disability with the social, attitudinal, medical,
architectural, economic & political
environment!

Lecture 9 disability

  • 1.
    Disability As ADifference
  • 2.
    WHO-Definition of Disability •Disability is defined as: the unsuccessful interaction between a person with an impairment and an unsupportive environment Environment has four dimensions: – Physical – Social – Financial – Political
  • 3.
    Disability as asocial construct Differently Abled
  • 4.
    Theoretical Perspectives 1. Biomedical:emphasis on impairment & abnormality Patient is sick and society has an obligation to provide basic level of health care 2. Economic Model: emphasis on the economics of disability How does impairment affect capacity consequently limiting ability to be productive
  • 5.
    Theoretical Perspectives (Continued) 3.Sociopolitical Model: represents current trends • Disability is a form of social injustice due to stigma, discrimination and marginalization 4. Normalization Theory: right to live life normally • Explains de-institutionalization/integration for people living with developmental & psychiatric diagnosis e.g. group homes, independent living, etc
  • 6.
    The Future • Numberof people living with disability will increase because: 1. population is aging 2. medical technology is improving 3. increasing # of infants survive with chronic impairments
  • 7.
    Barriers to Services 1.Funding Barriers:  Inequality amoung people with disabilities – varies greatly depending upon their source of income 2. Rigid Rule Barriers: – Programs tend to require the consumer to adapt or adjust to its requirements instead of being flexible based upon individual needs
  • 8.
    Barriers to Services(continued) 3. Linking Services to Income: – Some people living with disability seem to have access to major funding however, we forget how much it costs to be disabled and how much are spent on care needs 4. Administrative Barriers: – Access to services can be a complicated process or has long waiting lists
  • 9.
    Barriers to Services(continued) 5. Attitudinal Barriers: – Occurs within the community re: integration – E.g. not in my backyard mentality
  • 10.
  • 11.
    Onset of thedisability • Way in which person becomes disabled has a major effect on self-perception – Disability at birth or early on – person never knows themselves without the disability – Acquiring a disability suddenly/traumatically – Gradual onset
  • 12.
    Course of theDisability • Progressive – Disability progresses to greater levels of impairment e.g., ALS • Chronic – Once the adjustment to the disability is made there is reasonable levels of stability • Relapsing – Exacerbation-remission cycle e.g., MS & Lupus
  • 13.
    Outcome • Outcome looksat the changes in lifespan changes – Some disabilities may shorten life. Others shorten it slightly, while other reduce life expectancy dramatically. – We live in a society that avoids thinking of death
  • 14.
    Understanding the Experienceof Disability Living with the limitations & stereotypes
  • 15.
    Types of Disabilities •Limitations on mobility & energy • Sensory limitations • Limitations in communications • Limitations in reasoning ability and mental functioning Note: many disabilities are impairments only because of the social context and the built environment
  • 16.
    Mobility Limitations –things to consider • Independent Wheelchair Mobility – Necessary to look up to make eye contact – Counters often too high – Harder to use many public facilities – Public transit – not all bus routes equipped – Wheelchair accessible bathroom stales often the furthest away – Shopping hard to manage – Accessible entrances not always where you think they are – Our bodies are not designed for sitting all the time – Textures of floor coverings
  • 17.
    Mobility Limitations –things to consider • Dependent Wheelchair Mobility – Greater dependency on others to care for them e.g., eating, bathing, toileting
  • 18.
    Limitations due toEnergy Levels • Often having a condition or disability or being treated for it can use up enormous energy – Medications can weaken, – Receiving chemotherapy. • Certain types of disabilities are particularly associated with losses in energy – Chronic fatigue, Fibromyalgia, diseases related to lung capacity
  • 19.
    Sensory Limitations –Vision & Hearing • Limitation can be complete or a partial absence • Blindness – Vision our favourite sensory – A social construct • Visual impairment – Easier to navigate – Takes enormous energy
  • 20.
    Sensory Limitations –Vision & Hearing • Deafness & Hearing Limitations – Strong social component – Deaf culture – Has all the distinguishing marks for culture – a language, terminology & expressions, criteria for admittance and an established way of interacting – Deafness as a social construct – ability to learn other languages
  • 21.
    Sensory Limitations –Vision & Hearing • Hearing Impairments – Rarely identify with deaf culture – Assistive devices have gotten significantly better
  • 22.
    Limitations in Communications •Expressive Aphasia & Other Limitations in Speech – Expressive Aphasia • Individual unable to use the proper words or to form words to communicate • Often seen with cerebral damage and head trauma • Limiting – often only the most basic needs that are communicated due to effort involved in communicating
  • 23.
    Limitations in Communications •Receptive Aphasia – Seen with some types of learning disorders • The person has difficulty in processing verbal and / written communication • What reaches the brain is not comprehensible • Difficulty individual facing is often not noticeable
  • 24.
    Limits in ReasoningAbility & Mental Functioning • A very broad group including: – Developmental disabilities – Mental illness – Alzheimer’s disease – Senile dementias – Brain injuries
  • 25.
    Cognitive Limitations: Developmental Disabilities •Constant state of dependency results in high levels of abuse – 80% • Compliance is a learned social behaviour • Very vulnerable out in the community • Sexuality and sexual identity often discouraged
  • 26.
    Limitation in CognitiveFunctioning: Alzheimer’s & Senile Dementia • Different from Developmental disabilities in that they occur later in life • Person experiences changes in – personality and behavioral, and reasoning ability and perception • Wide variation in the experiences – some become anxious, agitated, aggressive, confrontational, other become peaceful, happy and pleasant • Very difficult on the families as relationships change
  • 27.
    Limitation in CognitiveFunctioning: Mental Illness • Mental illness as social construct – something that society has created to explain behavior that is outside the norm • One of the most negatively judged limitations in society
  • 28.
    Visibility: Special Challenge •When people with disabilities interact with others in society, the disability itself becomes one of the factors of the interaction, often determining the quality and quantity of relationships. • Some disabilities are visible and recognizable and others are not
  • 29.
    Invisible Disabilities • Sharingis voluntary much of the time. • Sharing makes the invisible visible – it identifies you as having a difference from others • When do you share?
  • 30.
    Disability As ADifference Disability is not the issue. The issue is the fit of disability with the social, attitudinal, medical, architectural, economic & political environment!