Introduction to the Research Integrity Advisor Data Management Workshop, Bris...ARDC
Dr Jacobs' introduction to the RIA Data Management Workshop in Brisbane on 31 March 2017. The RIA Data Management Workshop series is a joint collaboration of the Australian Research Council, the National Health and Medical Research Council, the Australasian Research Management Society and the Australian National Data Service.
Introduction to the Research Integrity Advisor Data Management Workshop, Bris...ARDC
Dr Jacobs' introduction to the RIA Data Management Workshop in Brisbane on 31 March 2017. The RIA Data Management Workshop series is a joint collaboration of the Australian Research Council, the National Health and Medical Research Council, the Australasian Research Management Society and the Australian National Data Service.
Lessons from the UK: Data access, patient trust & real-world impact with heal...Varsha Khodiyar
Slides supporting presentation given at the virtual Beilstein Open Science Symposium in October 2021.
Abstract:
Health Data Research UK’s mission is to unite the UK’s health data to enable discoveries that improve people’s lives. Our 20-year vision is for large scale data and advanced analytics to benefit every patient interaction, clinical trial, biomedical discovery and enhance public health. A key part of HDR UK’s vision is our data portal, the Innovation Gateway. The Gateway facilitates discovery of healthcare data and simplifies data request procedures across multiple data custodians. The Gateway contains metadata on a variety of datasets, including those related to COVID-19, cardiovascular, maternal health, emergency care, primary care, secondary care, acute care, palliative care, biobanks, research cohorts and deeply phenotyped patient cohorts.
From the outset HDR UK has sought the voices, views and experiences of patient and lay-public groups to ensure there is transparency and clear public benefit in the use of the UK’s health data. Patient and public involvement is key to making the Gateway accessible, transparent and to ensure public confidence in research access to health data. The importance of public outreach combined with providing research access to data is illustrated with HDR UK’s contribution to the UK’s coronavirus pandemic response. HDR UK was tasked by the UK’s Chief Scientific Office to build and facilitate the infrastructure to support the National Core Studies, providing key insights on the evolving situation to UK policy makers during the course of the pandemic.
In this talk, I will show how HDR UK is enabling open science by facilitating the discovery of health data, and simplifying the process of requesting access to multiple datasets. I’ll discuss HDR UK’s approach to embedding transparency on research data usage for patients and public, and summarise some of the key ways in which HDR UK has contributed to the coronavirus pandemic.
ESIP Federation: Community-Driven, Collaborative Governance - Carol Beaton Me...ASIS&T
ESIP Federation: Community-Driven, Collaborative Governance
Carol Beaton Meyer
Presentation at Research Data Access & Preservation Summit
22 March 2012
RDAP 16: Sustainability of data infrastructure: The history of science scienc...ASIS&T
Research Data Access and Preservation Summit, 2016
Atlanta, GA
May 4-7, 2016
Part of Panel 2, Sustainability
Presenter:
Kristin Eschenfelder, University of Wisconsin-Madison
Panel Leads:
Kristin Briney, University of Wisconsin-Milwaukee & Erica Johns, Cornell University
Outline of some of the opportunities and risks driving universities in the UK to develop services aiming to help researchers manage their data. Gives an overview of funder policies and service components, and suggests where these are heading in the short term.
Lessons from the UK: Data access, patient trust & real-world impact with heal...Varsha Khodiyar
Slides supporting presentation given at the virtual Beilstein Open Science Symposium in October 2021.
Abstract:
Health Data Research UK’s mission is to unite the UK’s health data to enable discoveries that improve people’s lives. Our 20-year vision is for large scale data and advanced analytics to benefit every patient interaction, clinical trial, biomedical discovery and enhance public health. A key part of HDR UK’s vision is our data portal, the Innovation Gateway. The Gateway facilitates discovery of healthcare data and simplifies data request procedures across multiple data custodians. The Gateway contains metadata on a variety of datasets, including those related to COVID-19, cardiovascular, maternal health, emergency care, primary care, secondary care, acute care, palliative care, biobanks, research cohorts and deeply phenotyped patient cohorts.
From the outset HDR UK has sought the voices, views and experiences of patient and lay-public groups to ensure there is transparency and clear public benefit in the use of the UK’s health data. Patient and public involvement is key to making the Gateway accessible, transparent and to ensure public confidence in research access to health data. The importance of public outreach combined with providing research access to data is illustrated with HDR UK’s contribution to the UK’s coronavirus pandemic response. HDR UK was tasked by the UK’s Chief Scientific Office to build and facilitate the infrastructure to support the National Core Studies, providing key insights on the evolving situation to UK policy makers during the course of the pandemic.
In this talk, I will show how HDR UK is enabling open science by facilitating the discovery of health data, and simplifying the process of requesting access to multiple datasets. I’ll discuss HDR UK’s approach to embedding transparency on research data usage for patients and public, and summarise some of the key ways in which HDR UK has contributed to the coronavirus pandemic.
ESIP Federation: Community-Driven, Collaborative Governance - Carol Beaton Me...ASIS&T
ESIP Federation: Community-Driven, Collaborative Governance
Carol Beaton Meyer
Presentation at Research Data Access & Preservation Summit
22 March 2012
RDAP 16: Sustainability of data infrastructure: The history of science scienc...ASIS&T
Research Data Access and Preservation Summit, 2016
Atlanta, GA
May 4-7, 2016
Part of Panel 2, Sustainability
Presenter:
Kristin Eschenfelder, University of Wisconsin-Madison
Panel Leads:
Kristin Briney, University of Wisconsin-Milwaukee & Erica Johns, Cornell University
Outline of some of the opportunities and risks driving universities in the UK to develop services aiming to help researchers manage their data. Gives an overview of funder policies and service components, and suggests where these are heading in the short term.
Presentation given by Sarah Jones and Joy Davidson to a group of South African librarians at a webinar organised by LIASA HELIG. http://www.liasa.org.za/node/977
This presentation was provided by Maria Praetzellis of California Digital Library, during the NISO hot topic virtual conference "Effective Data Management," which was held on September 29, 2021.
PSB2014 A Vision for Biomedical ResearchPhilip Bourne
Some preliminary thoughts about my role as Associate Director for Data Science at the NIH so as to have a discussion with attendees at the Pacific Symposium on Biocomputing on Jan 4, 2014, The Big Island of Hawaii.
A Big Picture in Research Data ManagementCarole Goble
A personal view of the big picture in Research Data Management, given at GFBio - de.NBI Summer School 2018 Riding the Data Life Cycle! Braunschweig Integrated Centre of Systems Biology (BRICS), 03 - 07 September 2018
Curlew Research Brussels 2014 Electronic Data & Knowledge ManagementNick Lynch
Life Science externalisation and collaboration overview and the challenges that Life Science companies face in delivering successful data sharing with their partners in either Open Innovation or pre-competitive workflows
This presentation was provided by Kristen Ratan, Founder of Stratos and CoFounder of ICOR, and served as the opening keynote for the two-day "NISO Tech Summit: Reflections Upon The Year of Open Science." Day one was held on October 25, 2023.
Presentación de Joy Davidson, Digital Curation Centre (UK) en FOSTER event: Data Management Plan and Social Impact of Research. Universitat Jaume I, 27 mayo 2016
Meeting Federal Research Requirements for Data Management Plans, Public Acces...ICPSR
These slides cover evolving federal research requirements for sharing scientific data. Provided are updates on federal agency responses to the 2013 OSTP memo, guidance on data management plans, resources for data management and curation training for staff/researchers, and tips for evaluating public data-sharing services. ICPSR's public data-sharing service, openICPSR, is also presented. Recording of this presentation is here: https://www.youtube.com/watch?v=2_erMkASSv4&feature=youtu.be
Lesson 2 in a set of 10 created by DataONE on Best Practices fo Data Management. The full module can be downloaded from the DataONE.org website at: http://www.dataone.org/educaiton-modules. Released under a CC0 license, attribution and citation requested.
Presented online as part of the NASM series in Advancing Drug Discovery see https://www.nationalacademies.org/event/40883_09-2023_advancing-drug-discovery-data-science-meets-drug-discovery
For a panel discussion at the Associate Research Libraries Spring meeting April 27, 2022, Montreal https://www.arl.org/schedule-for-spring-2022-association-meeting/
Frontiers of Computing at the Cellular and Molecular ScalesPhilip Bourne
3 basic points when establishing a new biomedical initiative. Presented at Frontiers of Computing in Health and Society, George Mason University, September 21, 2021.
The Indian economy is classified into different sectors to simplify the analysis and understanding of economic activities. For Class 10, it's essential to grasp the sectors of the Indian economy, understand their characteristics, and recognize their importance. This guide will provide detailed notes on the Sectors of the Indian Economy Class 10, using specific long-tail keywords to enhance comprehension.
For more information, visit-www.vavaclasses.com
Operation “Blue Star” is the only event in the history of Independent India where the state went into war with its own people. Even after about 40 years it is not clear if it was culmination of states anger over people of the region, a political game of power or start of dictatorial chapter in the democratic setup.
The people of Punjab felt alienated from main stream due to denial of their just demands during a long democratic struggle since independence. As it happen all over the word, it led to militant struggle with great loss of lives of military, police and civilian personnel. Killing of Indira Gandhi and massacre of innocent Sikhs in Delhi and other India cities was also associated with this movement.
Students, digital devices and success - Andreas Schleicher - 27 May 2024..pptxEduSkills OECD
Andreas Schleicher presents at the OECD webinar ‘Digital devices in schools: detrimental distraction or secret to success?’ on 27 May 2024. The presentation was based on findings from PISA 2022 results and the webinar helped launch the PISA in Focus ‘Managing screen time: How to protect and equip students against distraction’ https://www.oecd-ilibrary.org/education/managing-screen-time_7c225af4-en and the OECD Education Policy Perspective ‘Students, digital devices and success’ can be found here - https://oe.cd/il/5yV
Model Attribute Check Company Auto PropertyCeline George
In Odoo, the multi-company feature allows you to manage multiple companies within a single Odoo database instance. Each company can have its own configurations while still sharing common resources such as products, customers, and suppliers.
The French Revolution, which began in 1789, was a period of radical social and political upheaval in France. It marked the decline of absolute monarchies, the rise of secular and democratic republics, and the eventual rise of Napoleon Bonaparte. This revolutionary period is crucial in understanding the transition from feudalism to modernity in Europe.
For more information, visit-www.vavaclasses.com
The Roman Empire A Historical Colossus.pdfkaushalkr1407
The Roman Empire, a vast and enduring power, stands as one of history's most remarkable civilizations, leaving an indelible imprint on the world. It emerged from the Roman Republic, transitioning into an imperial powerhouse under the leadership of Augustus Caesar in 27 BCE. This transformation marked the beginning of an era defined by unprecedented territorial expansion, architectural marvels, and profound cultural influence.
The empire's roots lie in the city of Rome, founded, according to legend, by Romulus in 753 BCE. Over centuries, Rome evolved from a small settlement to a formidable republic, characterized by a complex political system with elected officials and checks on power. However, internal strife, class conflicts, and military ambitions paved the way for the end of the Republic. Julius Caesar’s dictatorship and subsequent assassination in 44 BCE created a power vacuum, leading to a civil war. Octavian, later Augustus, emerged victorious, heralding the Roman Empire’s birth.
Under Augustus, the empire experienced the Pax Romana, a 200-year period of relative peace and stability. Augustus reformed the military, established efficient administrative systems, and initiated grand construction projects. The empire's borders expanded, encompassing territories from Britain to Egypt and from Spain to the Euphrates. Roman legions, renowned for their discipline and engineering prowess, secured and maintained these vast territories, building roads, fortifications, and cities that facilitated control and integration.
The Roman Empire’s society was hierarchical, with a rigid class system. At the top were the patricians, wealthy elites who held significant political power. Below them were the plebeians, free citizens with limited political influence, and the vast numbers of slaves who formed the backbone of the economy. The family unit was central, governed by the paterfamilias, the male head who held absolute authority.
Culturally, the Romans were eclectic, absorbing and adapting elements from the civilizations they encountered, particularly the Greeks. Roman art, literature, and philosophy reflected this synthesis, creating a rich cultural tapestry. Latin, the Roman language, became the lingua franca of the Western world, influencing numerous modern languages.
Roman architecture and engineering achievements were monumental. They perfected the arch, vault, and dome, constructing enduring structures like the Colosseum, Pantheon, and aqueducts. These engineering marvels not only showcased Roman ingenuity but also served practical purposes, from public entertainment to water supply.
Ethnobotany and Ethnopharmacology:
Ethnobotany in herbal drug evaluation,
Impact of Ethnobotany in traditional medicine,
New development in herbals,
Bio-prospecting tools for drug discovery,
Role of Ethnopharmacology in drug evaluation,
Reverse Pharmacology.
Unit 8 - Information and Communication Technology (Paper I).pdfThiyagu K
This slides describes the basic concepts of ICT, basics of Email, Emerging Technology and Digital Initiatives in Education. This presentations aligns with the UGC Paper I syllabus.
Unit 8 - Information and Communication Technology (Paper I).pdf
Workshop intro090314
1. Welcome!
A Workshop to Help Chart the
Future of Data Science at NIH
Philip E. Bourne Ph.D.
Associate Director for Data Science
philip.bourne@nih.gov
September 3, 2014 NIH Bethesda USA
2. Goals for Today
Everybody’s viewpoint gets heard and appreciated
Actions are identified around:
– Strategic directions
– Policies
– Funding initiatives – foundational & use cases
Have you leave as advocates and supporters
Identify who and how we can continue to engage with
to carry out these actions
Transparently report to the broader community what
transpired here
3. A Few Logistics
It is an open space style meeting which also means it
is an open microphone - grab it at any time but do
state name and affiliation
Use the microphone for the benefit of those remote
There are Google docs open for comment:
– https://docs.google.com/document/d/1qObNNoLa9Mrk3ULjo
I70xxUelgWgcq0DSxwZLuownKA/edit
– https://docs.google.com/document/d/1VduurNhd2-
4wA0owxbTIfDT7wOybP0R9fv2EEjJYX34/edit
Hashtag is #ADDSUP
A summary of the meeting will also be posted as an
open document for comment
4. Agenda
Provide the needed background and context (ADDS
team)
Open discussion about what is being done and what
needs to be done (All)
Identify topics for more in-depth discussion (All)
Join subgroups to discuss these topics (All)
– Moderators and scribes will be identified
Subgroups report back (Moderators)
Discussion of outcomes and next steps (All)
5. Who We Represent as Stakeholders
Basic scientists
Clinicians
Data scientists/providers
Funders
Library and information scientists
Pharma representatives
Publishers (open and closed access)
Cloud providers
Healthcare industry
6. Some Background
6/12 2/14 3/14
• Recommendations:
• Sharing data & software through catalogs
• Support methods and applications development
• Need more training
• Need campus-wide IT strategy
• Hire CSIO
• Continued support throughout the lifecycle
7. Draft ADDS Team
Mission Statement
To foster an ecosystem that enables
biomedical research to be conducted
as a digital enterprise that enhances
health, lengthens life and reduces
illness and disability
8. Current Examples of Collaborators in
the Ecosystem
– NIH
• 27 ICs
– Agencies
• NSF
• DOE
• DARPA
• NIST
– Government
• OSTP
• HHS HDI
• ONC
• CDC
• FDA
– Private sector
• Phrma
• Google, Amazon,
Microsoft
– Organizations
• GA4GH
• PCORI
• RDA
• FORCE11
• CCC
• CATS
• FASEB
• Biophysical Society
• Sloan Foundation
• Moore Foundation
9. Some Goals & Examples of the Digital
Enterprise
Sustainability – The Commons & new business mods
Efficiency – sharing best practices in longitudinal
clinical studies
Collaboration - identification of collaborators at the
point of data collection not publication
Reproducibility – data accessible with publication
Integration – phenotype homogenization
Accessibility – clinical trials registration
Quality – sharing CDEs across institutes
Training – keeping trainees in the ecosystem
10. Raw Materials to Build the Digital
Enterprise
NIH mandate & support
ADDS team of 8 people
Intramural participation of over 100 team members
across ICs
Funding through BD2K:
– $27M in FY14
– $100M in FY15
– ....
12. Associate Director for Data Science
Scientific Data Council External Advisory Board
Programmatic Theme
Sustainability Education Innovation Process
Deliverable
Commons Training
BD2K Efficiency
Example Features • IC’s
• Cloud – Data &
Compute
• Search
• Security
• Reproducibility
Standards
• App Store
• Coordinate
• Hands-on
• Syllabus
• MOOCs
• Community
• Centers
• Training Grants
• Catalogs
• Standards
• Analysis
• Data
Resource
Support
• Metrics
• Best
Practices
• Evaluation
• Portfolio
Analysis
Collaboration
Partnerships
• Researchers
• Federal
Agencies
• International
Partners
• Computer
Scientists
The Biomedical Research Digital Enterprise
13. Associate Director for Data Science
Scientific Data Council External Advisory Board
Programmatic Theme
Sustainability Education Innovation Process
Deliverable
Commons Training
BD2K Efficiency
Example Features • IC’s
• Cloud – Data &
Compute
• Search
• Security
• Reproducibility
Standards
• App Store
• Coordinate
• Hands-on
• Syllabus
• MOOCs
• Community
• Centers
• Training Grants
• Catalogs
• Standards
• Analysis
• Data
Resource
Support
• Metrics
• Best
Practices
• Evaluation
• Portfolio
Analysis
Collaboration
Partnerships
• Researchers
• Federal
Agencies
• International
Partners
• Computer
Scientists
The Biomedical Research Digital Enterprise
14. Process Current Efforts
– Clinical data harmonization
– Data citation
– Machine readable data sharing plans
– New review models, audiences etc.
• Open review
• Micro funding
• Standing data committees to explore best practices
• Crowd sourcing
15. Collaboration Current Efforts
Joint public – private partnership workshop with
NOAA?
2 joint workshops with NSF + Dear Colleague letter
OSTP – Open Data 2.0
HIRO’s big data meeting
16. Possible Topics
Training & Education
Sustainability
Community engagement
Culture change
Public private partnerships
New data science
Research lifecycle infrastructure
Metrics and reward systems
Editor's Notes
Dan, Lucila, Russ, Jill provide continuity.
Computing Community Consortium
Committee on Applied and Theoretical Statistics
Office of the National Coordinator