This poster from 2013 was created by Anja while on an internship at Oliver Zangwill Centre. It provides a helpful summary of interviews about the issue of being asked to collect PROMS data. Clinicians value being given feedback on the patients they have seen and analysis at a service or organisation level has great value at a personal level too, potentially very rewarding for therapists and assistants.

1. “[…] there needs
to be
organisational
recognition […]”
RESULTS
The analysis has shown that a successful introduction of EQ-5D should have happened
in a more involving „bottom-up“ way with teaching sessions, routine pathways developed by the clinicians
themselves, evaluations and feedback on the data as well as on the method of measurement.
This approach may not only be useful for possible planned nationwide introduction of EQ-5D but also for
other possible interventions needing process changes in the clinicians’ practice. This may lead to best
quality of practice and data quality as well.
EQ-5D measurement of health related quality of life is recommended by NICE and is included
in the NHS PROMs programme. This part of the research was conducted to develop a review of our current
data collection methods and to generate ideas for improving data quality as well as clinical utility.
OBJECTIVE
• Semi-structured interview alongside a
prepared questioning route
• Target group:
Specialist Nurses, OT, & PTs working in
Cambridgeshire Community Services
• 3 team meetings provided as focus group
settings
• Qualitative analyses concurrently with data
collection using long table approach
METHODS
by A Schmidt and A Bateman
Oliver Zangwill Centre for Neuropsychological Rehabilitation, Ely, Cambridgeshire UK
Clinical Utility of EQ-5D (EuroQuol) – a qualitative analysis of
the implementation of patient reported outcome measures in
community health services
CONCLUSIONS
“I didn't
do it on
the first
line.”
“We were
just told to
do it.“
"And I think very
much that this is
just another
blooming tick
box thing that we
had to do."
No
recognisable
relevance for
the service
"[...] he explained what
he could use the data for,
and I understood how
important it is and had a
positiver attitude.”
Of those who
had a more
specific
briefing…
"We haven't got
anything else
actually and this is
helping us in this
new world of things."
“We need more
feedback, I think we
need someone who
will talk to us.”
Analyses provides information:
oTo evaluate the introduction process and the current
process of data collection
oTo assess the effect on the workload as well as
benefits and risks for health professionals using EQ-5D
oTo analyse whether using EQ5D data in clinical
practice is possible or useful
oTo develop methods to support understanding of EQ-
5D and improve the quality of data collection
Neither an existing
strategy when the right
point of measure and
follow up is nor an
existing strategy how
to do the measure
“You ask the
questions
directly, or you
handout them,
or on phone.”
“Most of them
do it at the end
of the
assessment.”
“It is five questions,
so it doesn't take
that long, it just
doesn't feel a
particular benefit.”
“So if you
understand, why
you are supposed
to do it, then you
will do it properly
[…]”
“But it would be
quite nice if we
knew we were
making a
difference [..]”
Time consuming to
read it out loud, to
explain it to the
patient, problems
with SystmOne
“We actually get that
information in our
consultation,
because we look at
the patients
holistically […], so I
find it difficult to
step into that
questionnaire.”
“But actually
it is a barrier
between us
and the
patients.”
“[…]interesting
about how
people feel and
it gives you very
good insight.”