Introduction to Moving Forward - Debbie Barnhurst NHS IQ Presentation from an event held in London on Wednesday 9 October with the Teenage and Young Adult (TYA) Centre Champions and our Clinical Leads to share learning, good practice examples, the successes, challenges and barriers to implementing: Treatment summaries End of treatment care plans Increased self-management for TYAs after cancer treatment The output from the meeting will be to define what support NHS IQ can provide locally to assist TYA teams in order to make progress with their implementation plans.

1. TYA Spread & Implementation
“Moving Forward”
9th October 2013
Debbie Barnhurst
Service Improvement Lead
NHS Improving Quality

2. NHS Improving Quality National Workstream
• The continuity and completion of spreading and
implementing the CYP pathway and models of care for the
aftercare of children & young people ‘living beyond’ cancer.
This comprises 19 Paediatric Centres and 13 Teenage and
Young Adults (TYA) Centres across the country.
• The alignment of spread/implementation work to policy is the
National Cancer Survivorship Initiative (work in partnership
with the DH, Macmillan Support and NHS Improving Quality)
• The timescale for this work is from 1 April 2013 and
completion by 31 March 2014.

3. 21st May 2013 - Challenges highlighted
• Meeting expectations of patients and “doing it justice”
• Need to plan services of support at an early stage, need to
prioritise groups to focus on
• Need to focus on TYA – an opportunity for all patients to have
treatment summary & care plan
• Complexity of working across all adult services
• Complexity of managing co-morbidities
• Recognising unique TYA needs
• Psychological and emotional needs being met (whilst being
realistic in meeting needs)

4. 21st May 2013
Proposed focus and tangible outcome
• To provide an end of treatment summary and care plan
• To share the learning in relation to education for patients to
self-manage

5. Aims & Objectives of Today
• To share learning, good practice examples, the
successes, challenges & barriers to implementing:
Treatment summaries
End of treatment care plans
Increased self-management for TYA’s after cancer treatment
• To define what support NHS IQ can provide locally to assist TYA
teams in order to make progress with their implementation plans