This document provides an overview and updates from a meeting of the HFH Acute Hospital Network. It discusses the HFH programme which supports end of life care in hospitals. It outlines the staff and structure of the HFH programme. It provides an update on activities including outreach, oversight with the HSE, and a feasibility study on enhancing bereavement care in Ireland. It discusses identifying priorities around developing standards, services mapping, and advocacy. The next steps include presenting findings at a bereavement care forum.
New Care Models - the story so far, pop up uni, 2pm, 3 september 2015NHS England
Expo is the most significant annual health and social care event in the calendar, uniting more NHS and care leaders, commissioners, clinicians, voluntary sector partners, innovators and media than any other health and care event.
Expo 15 returned to Manchester and was hosted once again by NHS England. Around 5000 people a day from health and care, the voluntary sector, local government, and industry joined together at Manchester Central Convention Centre for two packed days of speakers, workshops, exhibitions and professional development.
This year, Expo was more relevant and engaging than ever before, happening within the first 100 days of the new Government, and almost 12 months after the publication of the NHS Five Year Forward View. It was also a great opportunity to check on and learn from the progress of Greater Manchester as the area prepares to take over a £6 billion devolved health and social care budget, pledging to integrate hospital, community, primary and social care and vastly improve health and well-being.
More information is available online: www.expo.nhs.uk
Transforming End of Life Care in Acute Hospitals PM Workshop 6: Working toget...NHS Improving Quality
Transforming End of Life Care in Acute Hospitals PM Workshop 6: Working together - Building on the best by Professor Bee Wee, NHS England, Adrienne Betteley, Macmillan Cancer Support, Anita Hayes, The National Council for Palliative Care
Transforming End of Life Care in Acute Hospitals AM Workshop 6: Helping you t...NHS Improving Quality
Transforming End of Life Care in Acute Hospitals AM Workshop 6: Helping you to ‘Transform’ your local services, open to wannabee, new or established organisations participating in the Transform programme. Find out about the Transformathon… you will hear it here first! by Maggie Morgan-Cooke, Jennifer Clemo, NHS England and Anita Hayes, The National Council for Palliative Care
New Care Models - the story so far, pop up uni, 2pm, 3 september 2015NHS England
Expo is the most significant annual health and social care event in the calendar, uniting more NHS and care leaders, commissioners, clinicians, voluntary sector partners, innovators and media than any other health and care event.
Expo 15 returned to Manchester and was hosted once again by NHS England. Around 5000 people a day from health and care, the voluntary sector, local government, and industry joined together at Manchester Central Convention Centre for two packed days of speakers, workshops, exhibitions and professional development.
This year, Expo was more relevant and engaging than ever before, happening within the first 100 days of the new Government, and almost 12 months after the publication of the NHS Five Year Forward View. It was also a great opportunity to check on and learn from the progress of Greater Manchester as the area prepares to take over a £6 billion devolved health and social care budget, pledging to integrate hospital, community, primary and social care and vastly improve health and well-being.
More information is available online: www.expo.nhs.uk
Transforming End of Life Care in Acute Hospitals PM Workshop 6: Working toget...NHS Improving Quality
Transforming End of Life Care in Acute Hospitals PM Workshop 6: Working together - Building on the best by Professor Bee Wee, NHS England, Adrienne Betteley, Macmillan Cancer Support, Anita Hayes, The National Council for Palliative Care
Transforming End of Life Care in Acute Hospitals AM Workshop 6: Helping you t...NHS Improving Quality
Transforming End of Life Care in Acute Hospitals AM Workshop 6: Helping you to ‘Transform’ your local services, open to wannabee, new or established organisations participating in the Transform programme. Find out about the Transformathon… you will hear it here first! by Maggie Morgan-Cooke, Jennifer Clemo, NHS England and Anita Hayes, The National Council for Palliative Care
Presentation given at 25th November Collaborating for Better Care Partnership Master Class with NICE - Information about the NICE Fellows and Scholars Scheme (to support implementation projects/ programmes)
LTC Year of Care Commissioning Model
Lesley A Callow, Delivery Support Manager - Long Term Conditions Year of Care Commissioning Model
NHSIQ
Fionuala Bonnar, Year of Care Programme Manager
LTC Year of Care benefits:
Improved outcomes and wellbeing:
Patients receive care that is better managed, more seamless across different care services and more needs focused.
Reduction in acute admissions to hospital; and shorter lengths of stay when these are required.
Clinical professionals contribute to a more holistic service for patients by working within an integrated patient-centred care plan
Local health and Social Care economies:
Provide care that delivers value for money and is better managed by integrated teams.
Incentive to improve services for patients
Improved joint working and shared responsibility for outcomes
Introduction to Moving Forward - Debbie Barnhurst NHS IQ
Presentation from an event held in London on Wednesday 9 October with the Teenage and Young Adult (TYA) Centre Champions and our Clinical Leads to share learning, good practice examples, the successes, challenges and barriers to implementing:
Treatment summaries
End of treatment care plans
Increased self-management for TYAs after cancer treatment
The output from the meeting will be to define what support NHS IQ can provide locally to assist TYA teams in order to make progress with their implementation plans.
How will Sustainability and Transformation Plans (STPs) help deliver the Five Year Forward View?
Matthew Swindells and Simon Enright, NHS England, and Julia Ross, North West Surrey CCG
Day One, Pop-up University 7, 10.00
Fire service as an asset: providing telecare support in the community Webinar...NHS Improving Quality
Guest speaker: Steve Vincent - West Midlands Fire Service & Simon Brake from Coventry Council
Hosted by: Bev Matthews, Long Term Conditions Programme Lead, NHS England
Learning Outcomes:-
To better understand the role that the Fire and Rescue service can provide as a community asset to support health needs Enhancing the quality of life for people by supporting them to stay in their own home, even in a crisis
The dementia friendly primary care ‘iSPACE’ project was introduced into GP practices across Wessex as an innovative, cost-effective solution to enhance services in primary care
for people with dementia.
During the past three years (2014-17), the project team publicised this project throughout the Wessex region, and at the time of writing this report, 50% have completed the steps to become dementia friendly:
- Over 150 surgeries are dementia friendly
- Nearly 3,000 (2,969) surgery staff have received dementia training at the tier one (awareness level)
stage, and a further 244 people have received talks about dementia and the project
- This means the project is impacting over 15,000 people living with dementia across surgeries, which are collectively caring for over 1.4 million people
- Dorset, NE Hants and West Hants CCG are aiming at 100% dementia friendly surgery status – currently they stand at 56%, 70% and 46% respectively
Broadly speaking, the iSPACE work has led to:
• Fewer A&E admissions for patients with dementia
• More patients with personalised care plans
• Fewer appointments needed with GPs, which has freed-up appointments for other patients
This report summarises the project, what it found, how iSPACE improves lives for patients and their carer.s
Presentation given at 25th November Collaborating for Better Care Partnership Master Class with NICE - Information about the NICE Fellows and Scholars Scheme (to support implementation projects/ programmes)
LTC Year of Care Commissioning Model
Lesley A Callow, Delivery Support Manager - Long Term Conditions Year of Care Commissioning Model
NHSIQ
Fionuala Bonnar, Year of Care Programme Manager
LTC Year of Care benefits:
Improved outcomes and wellbeing:
Patients receive care that is better managed, more seamless across different care services and more needs focused.
Reduction in acute admissions to hospital; and shorter lengths of stay when these are required.
Clinical professionals contribute to a more holistic service for patients by working within an integrated patient-centred care plan
Local health and Social Care economies:
Provide care that delivers value for money and is better managed by integrated teams.
Incentive to improve services for patients
Improved joint working and shared responsibility for outcomes
Introduction to Moving Forward - Debbie Barnhurst NHS IQ
Presentation from an event held in London on Wednesday 9 October with the Teenage and Young Adult (TYA) Centre Champions and our Clinical Leads to share learning, good practice examples, the successes, challenges and barriers to implementing:
Treatment summaries
End of treatment care plans
Increased self-management for TYAs after cancer treatment
The output from the meeting will be to define what support NHS IQ can provide locally to assist TYA teams in order to make progress with their implementation plans.
How will Sustainability and Transformation Plans (STPs) help deliver the Five Year Forward View?
Matthew Swindells and Simon Enright, NHS England, and Julia Ross, North West Surrey CCG
Day One, Pop-up University 7, 10.00
Fire service as an asset: providing telecare support in the community Webinar...NHS Improving Quality
Guest speaker: Steve Vincent - West Midlands Fire Service & Simon Brake from Coventry Council
Hosted by: Bev Matthews, Long Term Conditions Programme Lead, NHS England
Learning Outcomes:-
To better understand the role that the Fire and Rescue service can provide as a community asset to support health needs Enhancing the quality of life for people by supporting them to stay in their own home, even in a crisis
The dementia friendly primary care ‘iSPACE’ project was introduced into GP practices across Wessex as an innovative, cost-effective solution to enhance services in primary care
for people with dementia.
During the past three years (2014-17), the project team publicised this project throughout the Wessex region, and at the time of writing this report, 50% have completed the steps to become dementia friendly:
- Over 150 surgeries are dementia friendly
- Nearly 3,000 (2,969) surgery staff have received dementia training at the tier one (awareness level)
stage, and a further 244 people have received talks about dementia and the project
- This means the project is impacting over 15,000 people living with dementia across surgeries, which are collectively caring for over 1.4 million people
- Dorset, NE Hants and West Hants CCG are aiming at 100% dementia friendly surgery status – currently they stand at 56%, 70% and 46% respectively
Broadly speaking, the iSPACE work has led to:
• Fewer A&E admissions for patients with dementia
• More patients with personalised care plans
• Fewer appointments needed with GPs, which has freed-up appointments for other patients
This report summarises the project, what it found, how iSPACE improves lives for patients and their carer.s
Improving quality, safety and lives - the Patient Safety Collaborative Programme 2014-2019
Presentation from Chief Nursing Officer for England's Summit 2014
26 November 2014
21 May 2012 - National End of Life Care Programme
Following on from the 2010 release of the programme's Supporting people to live and die well: a framework for social care at the end of life, Phase 1 of its implementation has been completed and evaluated. Key learning from Phase 1, particularly from the eight social care test sites, has been collated in this publication, which focuses on:
Training
Engagement
Services
Transferability and sustainability
Top tips from each of the test sites are identified, and Phase 2 of the social care framework implementation is outlined. This includes initiatives being developed across the country, the publishing of a Route to Success publication for social work and the creation of a social care champions' network.
Publication by the National End of Life Programme which became part of NHS Improving Quality in May 2013
Sharing and Learning Together to Deliver High Quality End of Life Care for AllNHS Improving Quality
Sharing and Learning Together to Deliver High Quality End of Life Care for All
Presentations from the Sharing and Learning Together to Deliver High Quality End of Life Care for All event held on
Tuesday 24 June 2014, Congress Centre, London, WC1B 3LS
#nhsiqeolcare
Nhs Sustainability Day 2016 Liverpool Road Show4 All of Us
March 26th this year saw over 300 healthcare organisations take action to promote sustainability and increase public health awareness and we are fortunate enough to have the support of; Public Health England, Department of Health, Department for Energy and Climate Change and The Prime Minister, David Cameron. Working with these stakeholders we aim to further develop the links between health and sustainability thus improving economical and health outcomes within the UK.
For the 2016 campaign, beginning in September, and to celebrate our 5th year of the campaign we will be promoting 50kg of carbon. This is effectively promoting what the public and health professionals can do to save 50kg of carbon. This could be achieved through; walking to work, cycling, planting a tree etc.
Making Seven Day Services a reality, pop up uni, 2 pm, 3 september 2015NHS England
Expo is the most significant annual health and social care event in the calendar, uniting more NHS and care leaders, commissioners, clinicians, voluntary sector partners, innovators and media than any other health and care event.
Expo 15 returned to Manchester and was hosted once again by NHS England. Around 5000 people a day from health and care, the voluntary sector, local government, and industry joined together at Manchester Central Convention Centre for two packed days of speakers, workshops, exhibitions and professional development.
This year, Expo was more relevant and engaging than ever before, happening within the first 100 days of the new Government, and almost 12 months after the publication of the NHS Five Year Forward View. It was also a great opportunity to check on and learn from the progress of Greater Manchester as the area prepares to take over a £6 billion devolved health and social care budget, pledging to integrate hospital, community, primary and social care and vastly improve health and well-being.
More information is available online: www.expo.nhs.uk
Improving acute care for children and young people, pop up uni, 10am, 3 septe...NHS England
Expo is the most significant annual health and social care event in the calendar, uniting more NHS and care leaders, commissioners, clinicians, voluntary sector partners, innovators and media than any other health and care event.
Expo 15 returned to Manchester and was hosted once again by NHS England. Around 5000 people a day from health and care, the voluntary sector, local government, and industry joined together at Manchester Central Convention Centre for two packed days of speakers, workshops, exhibitions and professional development.
This year, Expo was more relevant and engaging than ever before, happening within the first 100 days of the new Government, and almost 12 months after the publication of the NHS Five Year Forward View. It was also a great opportunity to check on and learn from the progress of Greater Manchester as the area prepares to take over a £6 billion devolved health and social care budget, pledging to integrate hospital, community, primary and social care and vastly improve health and well-being.
More information is available online: www.expo.nhs.uk
'National Standards for Bereavement Care Following Pregnancy Loss and Perinat...Irish Hospice Foundation
'National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death' (Presentation at Maternity and Neonatal Network, April 2015) [MNN 13]
LTC year of care commissioning early implementer sites workshop held on 1 December 2014. Featuring Dr Martin McShane, Rob Meaker and Renata Drinkwater.
To achieve the goal of Health Equity we need changes principles and values in healthcare and healthcare education, changes in systems for health and the use of patient driven data (Big Data) in order to develop a learning healthcare system.
Explores palliative and end of life care. Outlines advance care planning and provides information about planning ahead to include using advance healthcare directives
Reflections on the National Summary of Patient Activity Data for Adult Specia...Irish Hospice Foundation
IHF reflections on MDS data in relation to specialist palliative care services. Reflections offered on SPC beds, access to SPC services. This presentation highlights inequities that exist.
Final Journey’s is a staff development workshop for Acute Hospital Staff which raises awareness regarding quality of care at end of life.
Final Journeys was developed by the Irish Hospice Foundation as part of its Hospice Friendly Hospitals programme in 2010.
The workshop is now eight years old and is due for updating and review to ensure the content of the workshop is relevant and fresh.
Presentation of findings of an audit carried out on the nurses for night care service over a 6 month period that identifies the components of care that support people with dementia to die at home in Ireland
Stephen Toft - Programme Officer Palliative Care, HSE Primary Care Division, specialist palliative care minimum data set acute hospital figures 2016 and 2017 per hospital.
Deirdre Shanagher, IHF: Patient Involvement demonstrates the value and unique voice of people and values patients as the real experts in understanding their unique journey. It also helps empower patients.
Karen Charnley: Patient engagement - encourage and provide service user, carer and community engagement within the context of AIIHPC's work and the work of the wider palliative care community on the island of Ireland. Will inform and influence palliative care education, research, policy and practice, in a collaborative and supportive manner.
Emer Carroll, National Health & Safety Manager, National Health and Safety Function, Workplace Health and Wellbeing Unit, presents on HSE Workplace Stress Management.
The Mater Misericordiae University Hospital and St. James’s Hospital and their academic partners UCD and TCD surveyed bereaved relatives about their experience of end-of-life care in hospital. Results reveal the high standard of care provided in both hospitals and further indicate where improvements could be made to enhance the care experience.
Dr. Hanna Linane - Disturbing and Distressing - The Tasks and Dilemmas Associ...Irish Hospice Foundation
Determines the frequency with which SHOs deal with tasks and dilemmas associated with end-of-life care and evaluates the impact of patient death on their psychological well-being.
Telehealth Psychology Building Trust with Clients.pptxThe Harvest Clinic
Telehealth psychology is a digital approach that offers psychological services and mental health care to clients remotely, using technologies like video conferencing, phone calls, text messaging, and mobile apps for communication.
India Clinical Trials Market: Industry Size and Growth Trends [2030] Analyzed...Kumar Satyam
According to TechSci Research report, "India Clinical Trials Market- By Region, Competition, Forecast & Opportunities, 2030F," the India Clinical Trials Market was valued at USD 2.05 billion in 2024 and is projected to grow at a compound annual growth rate (CAGR) of 8.64% through 2030. The market is driven by a variety of factors, making India an attractive destination for pharmaceutical companies and researchers. India's vast and diverse patient population, cost-effective operational environment, and a large pool of skilled medical professionals contribute significantly to the market's growth. Additionally, increasing government support in streamlining regulations and the growing prevalence of lifestyle diseases further propel the clinical trials market.
Growing Prevalence of Lifestyle Diseases
The rising incidence of lifestyle diseases such as diabetes, cardiovascular diseases, and cancer is a major trend driving the clinical trials market in India. These conditions necessitate the development and testing of new treatment methods, creating a robust demand for clinical trials. The increasing burden of these diseases highlights the need for innovative therapies and underscores the importance of India as a key player in global clinical research.
CRISPR-Cas9, a revolutionary gene-editing tool, holds immense potential to reshape medicine, agriculture, and our understanding of life. But like any powerful tool, it comes with ethical considerations.
Unveiling CRISPR: This naturally occurring bacterial defense system (crRNA & Cas9 protein) fights viruses. Scientists repurposed it for precise gene editing (correction, deletion, insertion) by targeting specific DNA sequences.
The Promise: CRISPR offers exciting possibilities:
Gene Therapy: Correcting genetic diseases like cystic fibrosis.
Agriculture: Engineering crops resistant to pests and harsh environments.
Research: Studying gene function to unlock new knowledge.
The Peril: Ethical concerns demand attention:
Off-target Effects: Unintended DNA edits can have unforeseen consequences.
Eugenics: Misusing CRISPR for designer babies raises social and ethical questions.
Equity: High costs could limit access to this potentially life-saving technology.
The Path Forward: Responsible development is crucial:
International Collaboration: Clear guidelines are needed for research and human trials.
Public Education: Open discussions ensure informed decisions about CRISPR.
Prioritize Safety and Ethics: Safety and ethical principles must be paramount.
CRISPR offers a powerful tool for a better future, but responsible development and addressing ethical concerns are essential. By prioritizing safety, fostering open dialogue, and ensuring equitable access, we can harness CRISPR's power for the benefit of all. (2998 characters)
R3 Stem Cells and Kidney Repair A New Horizon in Nephrology.pptxR3 Stem Cell
R3 Stem Cells and Kidney Repair: A New Horizon in Nephrology" explores groundbreaking advancements in the use of R3 stem cells for kidney disease treatment. This insightful piece delves into the potential of these cells to regenerate damaged kidney tissue, offering new hope for patients and reshaping the future of nephrology.
CHAPTER 1 SEMESTER V - ROLE OF PEADIATRIC NURSE.pdfSachin Sharma
Pediatric nurses play a vital role in the health and well-being of children. Their responsibilities are wide-ranging, and their objectives can be categorized into several key areas:
1. Direct Patient Care:
Objective: Provide comprehensive and compassionate care to infants, children, and adolescents in various healthcare settings (hospitals, clinics, etc.).
This includes tasks like:
Monitoring vital signs and physical condition.
Administering medications and treatments.
Performing procedures as directed by doctors.
Assisting with daily living activities (bathing, feeding).
Providing emotional support and pain management.
2. Health Promotion and Education:
Objective: Promote healthy behaviors and educate children, families, and communities about preventive healthcare.
This includes tasks like:
Administering vaccinations.
Providing education on nutrition, hygiene, and development.
Offering breastfeeding and childbirth support.
Counseling families on safety and injury prevention.
3. Collaboration and Advocacy:
Objective: Collaborate effectively with doctors, social workers, therapists, and other healthcare professionals to ensure coordinated care for children.
Objective: Advocate for the rights and best interests of their patients, especially when children cannot speak for themselves.
This includes tasks like:
Communicating effectively with healthcare teams.
Identifying and addressing potential risks to child welfare.
Educating families about their child's condition and treatment options.
4. Professional Development and Research:
Objective: Stay up-to-date on the latest advancements in pediatric healthcare through continuing education and research.
Objective: Contribute to improving the quality of care for children by participating in research initiatives.
This includes tasks like:
Attending workshops and conferences on pediatric nursing.
Participating in clinical trials related to child health.
Implementing evidence-based practices into their daily routines.
By fulfilling these objectives, pediatric nurses play a crucial role in ensuring the optimal health and well-being of children throughout all stages of their development.
The dimensions of healthcare quality refer to various attributes or aspects that define the standard of healthcare services. These dimensions are used to evaluate, measure, and improve the quality of care provided to patients. A comprehensive understanding of these dimensions ensures that healthcare systems can address various aspects of patient care effectively and holistically. Dimensions of Healthcare Quality and Performance of care include the following; Appropriateness, Availability, Competence, Continuity, Effectiveness, Efficiency, Efficacy, Prevention, Respect and Care, Safety as well as Timeliness.
CHAPTER 1 SEMESTER V PREVENTIVE-PEDIATRICS.pdfSachin Sharma
This content provides an overview of preventive pediatrics. It defines preventive pediatrics as preventing disease and promoting children's physical, mental, and social well-being to achieve positive health. It discusses antenatal, postnatal, and social preventive pediatrics. It also covers various child health programs like immunization, breastfeeding, ICDS, and the roles of organizations like WHO, UNICEF, and nurses in preventive pediatrics.
Navigating Challenges: Mental Health, Legislation, and the Prison System in B...Guillermo Rivera
This conference will delve into the intricate intersections between mental health, legal frameworks, and the prison system in Bolivia. It aims to provide a comprehensive overview of the current challenges faced by mental health professionals working within the legislative and correctional landscapes. Topics of discussion will include the prevalence and impact of mental health issues among the incarcerated population, the effectiveness of existing mental health policies and legislation, and potential reforms to enhance the mental health support system within prisons.
3. HFH ACUTE HOSPITAL NETWORK
29 MAY 2018
IHF UPDATES
Marie Lynch
Head of Healthcare Programmes
4. The Hospice Friendly Hospitals Programme seeks to ensure that end of
life, palliative and bereavement care are central to the everyday
business of hospitals.
The HFH Programme supports individual hospitals, hospital groups
and the HSE.
Supporting hospitals through the HFH Programme
7. HFH Timeline:
HFH Key Milestones
2005-2006 2007 2007-2013 2009-2013 2014 2016 2017
Joint IHF &
HSE pilot in
Our Lady of
Lourdes
Hospital,
Drogheda
HFH
Programm
e
Launched
12.5 End-of-
Life Care
Development
Coordinators
recruited to
support
national
rollout
Acute,
Community
and
Maternity
Networks
established
40 Hospitals
were linked to
HFH
programme
and 4 acute
hospitals
directly
employed
EOLC
Coordinators
47 Hospitals
are now linked
to HFH
programme
and 7 acute
hospitals/
hospital
groups directly
employ EOLC
Coordinators
• Joint HFH and
HSE Oversight
Group is being
established to
support the
embedding of the
HFH programme
within HSE
Structures.
• EOLC appointed
in Tallaght
• 10 Year
Anniversary
8. CEO
Sharon Foley
&
Head of healthcare
Marie Lynch
Education team
Breffni, Bryan,
Sharon
HFH development/
outreach coordinator
Joanne
Brennan
Georgina
Buffini/
Alice Anderson
(Mat Leave)
Admin Support
Bronagh Curran
D & D project
manager
Mary
Lovegrove
Prof Cillian
Twomey
Chair of HSE
HFH Oversight
Committee
HSE Acute
Hospital Division
Ciaran
Browne &
Kathy
Keenan
9. 06/07/18 Presentation Title goes here 9
47 Hospitals linked to the HFH Programme
Saolta
RCSI
IE
RCSI Hospitals Groups
Rotunda Hospital, Dublin
Beaumont Hospital
Connolly Hospital, Blanchardstown
Cavan General Hospital
Louth County Hospital, Dundalk
Our Lady of Lourdes Hospital, Drogheda
Saolta University Health Care Group
University Hospital Galway and Merlin Park
Letterkenny General Hospital
Sligo Regional Hospital
Mayo General Hospital
Roscommon County Hospital
Portiuncula Hospital, Ballinasloe
Ireland East Hospitals Group
Mater Misericordiae University Hospital
National Maternity Hospital, Holles St
Midland Regional Hospital Mullingar
St Luke's General Hospital, Kilkenny
Wexford General Hospital
Our Lady's Hospital, Navan
St Columcilles Hospital
South / South West Hospital Group
Cork University Hospital
Cork University Maternity Hospital
Bantry General Hospital
Mallow General Hospital
South Victoria University Hospital
Mercy University Hospital
South Tipperary General Hospital
Kerry General Hospital
University Hospital Waterford
S / SW
Dublin Midlands Hospital Group
St James's Hospital
Tallaght Hospital
The Coombe Women and Infant University Hospital
Naas General Hospital
Midland Regional Hospital, Portlaoise
Tullamore Hospital
DM
University of Limerick Hospitals Group
University Hospital, Limerick
University Maternity Hospital, Limerick
Nenagh Hospital
Ennis Hospital
St John’s Hospital
UL
Mar 2018
Children’s Hospitals
Our Lady's Children's Hospital, Crumlin
Templet St Children’s University Hospital
Private Hospitals
Mater Private Hospital
The Galway Clinic
Bons Secours Hospital, Dublin
The Beacon Hospital, Dublin
The Hermitage Medical Clinic
5
2
5 5
4
2
9
3
1
10. End-of-Life Care Coordinators Mar 2017
Hospital Group Location of Coordinator WTE Post created in:
1 Ireland East Mater Hospital (Diarmuid Ó Coimin) 1.0 WTE 2010
2 Dublin Midlands St James’s Hospital (Bettina Korn) 1.0 WTE 2011
3 Dublin Midlands Tallaght Hospital –(Ann Hickey) 1.0 WTE 2017
4 Saolta
Sligo Regional Hospital
(Ann Hayes)
1.0 WTE 2015
5 RCSI Connolly Hospital (Debby Gregg)
0.25
WTE
2008
6 RCSI Beaumont Hospital (Gill Rufli)
0.50
WTE
2013
7 South/South West Serving all hospitals in the group (Post Vacant) 1.0 WTE 2015
8 University of Limerick Serving all hospitals in the group (Denis Casey) 1.0 WTE 2011
12. HFH 2018
• Outreach
• Proactive support EOLC committees
• Small grants announcement – July
2018
• Strategic
• Link with Oversight
• D & D
• Long term vision
• Business case
• EOLC coordinators
• Evidence based approach
• Metric session
• Engagement
• Networks
• Repository – change HUB
13. HSE Change HUB
• Existing end of life care themes
• Opportunity to demonstrate work and share
• Case studies
14. Using the HFH network
• GDPR
• What suggestions have you to improve the HFH network
• What topics would you like
• Patient Engagement
• Maternity and child
17. Current work of Oversight Group
Education/Training
•Sub-group formed Jan 2018
•Chaired by Patricia Blunden
HSE Change Management Resources
•First Meeting Feb 20 2018
•Time Frame – 10 Months
•Review of “Final Journeys” training
course
•Identification of additional delivery
platforms (eg Change Hub, HSE
Induction)
•Work with National Occupational
Health Clinical Lead on staff self-
care
18. Current work of Oversight Group
Care delivered at End-of-Life
• Sub-group formed July 2017
• Chaired by Margaret McKiernan
• Developing national standard
patient/carer literature on the
death and bereavement process
• Consultation process 12 Feb –
12 March- 50 responses received
• Finalised in the summer
• Other patient booklets for consideration:
• Post Mortem process
• Receiving diagnosis of life
• Update HSE Bereavement
How can we reduce the variability in care
delivery at end of life across hospitals ?
19. Mapping HFH with HSE QI framework
Support QI End Of Life initiatives
in Hospitals
National Approach to QI within HFH
20. Experience in ED
Communications re treatment
Emotional support
Discharge planning
Involvement in treatment
decisions
Physical discomfort
Conversations with HIQA to
introduce a national
bereaved relatives survey –
building on Voices MaJam
22. Enhancing bereavement care in
Ireland: Feasibility Study
HFH Acute Hospital Network Meeting
29th
May 2018
Dr Amanda Roberts
Bereavement Development Officer
23. Enhancing bereavement care in Ireland: Feasibility
Study
BACKGROUND TO THE STUDY
•National Bereavement Fora held in 2016 & 2017
• Attended by organisations and people involved in the provision of
bereavement care
• Fora attendees agreed:
1. A need for bereavement care to become a national priority at
government level
2. Agree and plan for a collective strategic approach to
bereavement care in Ireland
3. The next step in this process – commission a feasibility study to
enhance bereavement care in Ireland
More info: email amanda.roberts@hospicefoundation.ie
24. Enhancing bereavement care in Ireland: Feasibility
Study
THE STUDY
•Study commissioned by the IHF and conducted by an independent
researcher
•Overseen by a Project Advisory Committee (PAC) which included
stakeholders involved in the provision of bereavement care in Ireland
•Study aims:
1. Establish the vision for a national approach to bereavement care in Ireland
2. Develop an implementation framework for enhancing bereavement care in
Ireland
More info: email
amanda.roberts@hospicefoundation.ie
25. Enhancing bereavement care in Ireland: Feasibility
Study
SOME IDENTIFIED PRIORITES
•The development of a framework, standards and guidance documents
for bereavement care in Ireland
•Signposting of services and a bereavement resource website
•Public awareness campaign with a focus on normal responses to bereavement
•Mapping of bereavement services locally
•Lobby professional bodies e.g competency training
•Advocate and lobby on bereavement related issues
More info: email
amanda.roberts@hospicefoundation.ie
26. Enhancing bereavement care in Ireland:
Feasibility Study
THE NEXT STEP
Forum for individuals and organisations with a focus or interest in
bereavement care
The findings of the feasibility study will be presented at this year’s Forum and
attendees will be given the opportunity to engage in developing and agreeing
a common approach.
Attendees will also have the opportunity to hear from a number of speakers
who have been involved in some recent developments in bereavement care
in Ireland.
More info: email
amanda.roberts@hospicefoundation.ie
28. How We are Funded
We rely upon voluntary support to keep our programmes and services working
across Ireland.
95% of our income comes from our donors, philanthropic benefactors,
sponsors, corporates, event participants and committee members.
5% of our income comes from statutory sources and these funds began in 2015.
Our heartfelt thanks to everyone that has joined us. Your
generosity helps us achieve meaningful impact for so many
people.
To donate, receive news about our events or to get involved please
see: hospicefoundation.ie or call the fundraising team on 01
679 3188
Editor's Notes
Welcome background to those here for first time
Context of HFH within HC programmes and Where people die
What people die from
This is how we describe the HFH programme
Supported via HFH dev officer – Alice, and education team, Mary from D and D and CEO / Sen management
21 Hospitals represented here today
Congrats to Tallaght
Last meeting in March
AHCD session
Patient Engagement
Met with CEO of HIQA to recommend next NPES would refer more explicitly to end of life and he indicated his interest in themed inspection.
Report launch 15 DEC –
5 diagnosis categories
Patient involvement
Quality improvement
Compassion
Bereavement
Staff support
Metrics and measures