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Patient-Driven Content Creation:  Effectively Introducing Wiki Repositories to Virtual Support Communities Derek Hansen, Ph.D
Wikis Threaded Conversation MedShelf.org Research ?s Methods Findings Background Discussion
Historical Note
Reuse is Most Common Use
Social Media as Infrastructure
Threaded Conversation ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
Wikis ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
Synergies
MedShelf.org
 
 
Research Questions ,[object Object],[object Object]
Methods ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Perceived Barriers to Adoption ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Based on feedback from communities invited to participate
Perceived Benefits of Adoption ,[object Object],[object Object],[object Object],Based on feedback from communities invited to participate
Link to Outside World: GIST Cancer Wiki Stats Site Visits Over Time
Technical Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Conceptualization Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Need for Patience 0.7 247 120 Pain 1.5 1,018  120 Graves 2.7 1,235  169 GSI 5.9 1,067  256 css-d New Pages  Per Week  (avg) New Bytes Per Day  (avg) Days in  Corpus Community
Informational Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Social Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Conclusions ,[object Object],[object Object],[object Object]
Thanks to… ,[object Object],[object Object],[object Object],[object Object],[object Object]
Credits http://www.flickr.com/photos/oneeighteen/1690769913/   http://www.flickr.com/photos/zhurnaly/87396143/   http://www.flickr.com/photos/cupcakequeen/2447557364/   http://www.flickr.com/photos/chasing_imperfection/269997777/ http://scobleizer.com/2007/11/02/social-media-starfish/
Derek L. Hansen Assistant Professor [email_address]
Pages of Interest ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

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Medicine 2.0 2008 Hansen

Editor's Notes

  1. Images represent two key characteristics of social media Left: Conversation (in this case between Jim Henson and Kermit) Right: Large-scale (those are 50,000 cupcakes) CASCI stands for Center for the Advanced Study of Communities and Information - a new research center at UMD that I direct - see http://casci.umd.edu