CHI's Lunchtime Learning is open to all researchers, decision-makers, clinicians, patients and members of the public who want to learn more about the theory and practice of meaningful, inclusive, and safe patient and public engagement.
Following this session, attendees should be able to:
Describe the theoretical foundations of the Valuing All Voices framework;
Describe methods used in co-development of the framework; and
Apply the framework to development of a patient engagement strategy for health research and services projects and/or programs.
Uses the Symbolic Framework from Bolman & Deal (2013) to look at educational settings. This slide presentation is based on section Part 5-The Symbolic Frame on pages 243-301. It was presented before a class of doctoral students in educational leadership.
Uses the Symbolic Framework from Bolman & Deal (2013) to look at educational settings. This slide presentation is based on section Part 5-The Symbolic Frame on pages 243-301. It was presented before a class of doctoral students in educational leadership.
This presentations includes corporate culture, cultural paradigm, corporation quality, organizational change, 8 ways to keep culture alive and details of these topics.
Organizational Agility for Sustainable Competitive Advantage in VUCASeta Wicaksana
An Organization has an SCA when it is able to generate more customer value than competitive firms in its industry for the same set of products and service categories and when these other firms are unable to duplicate its effective strategy
At present, the pace of change feels relentless – new technology has changed our working lives beyond recognition and disrupted whole industries.
Many of us like to think that change is rare - we feel like it should be a one-off event, with a beginning and an end. The reality is that change is a constant state - nothing stays the same forever. If this seems daunting, agility is our friend.
Here is an article based on literature review format that contains criticism on scientific management given by different scholars and authors; with comprehensive analysis. I have tried my best to link each criticism with each other smoothly and to present them in depth with details.
This is a student presentation researched and designed by Organizational Communication graduate Lynette Clower during her senior year. The portfolio discusses the portrayed image and identiy of a UCO campus department over a five month period.
Organizational Communication is:
A dynamic area of expertise which encompasses the foundations of communication theories, policy and practice, and human understanding.
Community-based Peer Support: A participatory review of what works, for whom, in what circumstances
Author - Dr Janet Harris, The University of Sheffield
This presentations includes corporate culture, cultural paradigm, corporation quality, organizational change, 8 ways to keep culture alive and details of these topics.
Organizational Agility for Sustainable Competitive Advantage in VUCASeta Wicaksana
An Organization has an SCA when it is able to generate more customer value than competitive firms in its industry for the same set of products and service categories and when these other firms are unable to duplicate its effective strategy
At present, the pace of change feels relentless – new technology has changed our working lives beyond recognition and disrupted whole industries.
Many of us like to think that change is rare - we feel like it should be a one-off event, with a beginning and an end. The reality is that change is a constant state - nothing stays the same forever. If this seems daunting, agility is our friend.
Here is an article based on literature review format that contains criticism on scientific management given by different scholars and authors; with comprehensive analysis. I have tried my best to link each criticism with each other smoothly and to present them in depth with details.
This is a student presentation researched and designed by Organizational Communication graduate Lynette Clower during her senior year. The portfolio discusses the portrayed image and identiy of a UCO campus department over a five month period.
Organizational Communication is:
A dynamic area of expertise which encompasses the foundations of communication theories, policy and practice, and human understanding.
Community-based Peer Support: A participatory review of what works, for whom, in what circumstances
Author - Dr Janet Harris, The University of Sheffield
View the video here: https://www.youtube.com/watch?v=gCMCNReYnYs
Earn counseling CEUs here: https://www.allceus.com/member/cart/index/product/id/684/c/
Assumption 1: Counselors will not be able to sustain culturally responsive treatment without the organization's commitment to it.
Assumption 2: An understanding of race, ethnicity, and culture (including one's own) is necessary to appreciate the diversity of human dynamics and to treat all clients effectively
Assumption 3: Incorporating cultural competence into treatment improves therapeutic decision-making and offers alternate ways to define and plan a treatment program that is firmly directed toward progress and recovery
Assumption 4: Consideration of culture is important at all levels of operation—individual, programmatic, and organizational
Assumption 5: Culturally congruent interventions cannot be successfully applied when generated outside a community or without community participation.
Assumption 6: Public advocacy of culturally responsive practices can increase trust among the community, agency, and staff.
This intermediate session looks at how physical presence and performance can influence engagement in health research services.
By the end of this session, learners should be able to describe the concept of critical reflexivity, describe the concept of embodied reflexivity, and discuss why bodies matter in patient and public engagement.
Advancing the field of cultural competency by providing the first structural competency certificate program in the country. Online, on-demand and FREE, including free continuing education credits. Live trainings coming soon. Give me a call!
Contextual factors in mental health.pptxpoojadesai100
This presentation is based on occupational therapy frameworks. It will provide detail insight into environment or context for the assessment and intervention in mental health disorders.
This presentation highlights the latest research into the emotional intelligence differences between three direct patient care nurse groups, from different cultures - Saudi, Phillipino and Western.
The job is just to read each individual peer post that I put there.docxarmitageclaire49
The job is just to read each individual peer post that I put there and respond to them with a response of 3-4 sentences long
Peer #1
For the Research Assignment, I have chosen to focus on an area of Healthcare that rarely gets the
attention it deserves Mental health. I
chose this topic because I am personally effected by it and so are many millions of Americans. Mental illness is also one of the leading causes of
death in our nation and one life is lost as a result of suicide, abuse or incarceration every 17mins in the United States. Mental illness has been my
area of focus throughout this program and the advocacy and participatory philosophy will be useful for the final project because it suggests that “
that research inquiry needs to be intertwined with politics and a political agenda” (Creswell, p.9). I do believe that mental health has a specific
agenda for a study and that there has been constant aim for reform in healthcare and mental health. This social issue is definitely pertinent right
now and topics that address it such as “empowerment, inequality, oppression, domination, suppression, and alienation” (Creswell, p.9), and are
really the focus of the study. The goal of this project for me, is to provide a voice to participants and give them the ability address the concerns that
will lead to reform.
According to Kemmis and Wilkinson (1998) this philosophy offers four key features of the advocacy/participatory framework of inquiry:
1. Participatory actions are focused on bringing about change, and at the end of this type of study, researchers create an action agenda for change.
2. It is focused on freeing individuals from societal constraints, which is why the study begins with an important issue currently in society.
3. It aims to create a political debate so that change will occur.
4. Since advocacy/participatory researchers engage participants as active contributors to the research, it is a collaborative experience.
Research Problem Statement
My Vision is to Provide members of the community with the opportunities and education needed to prevent death due to suicide, acts of self-harm
and the traumatic impact of mental illness. By promoting resilience, the enhancement of community resources, conflict resolution and support for
individuals, families and the communities of those who suffer with mental disorders, illness or have a sudden mental health crisis. The target
population includes all individuals within Chatham County, with unmet mental health needs. These individuals are currently not being served by
traditional methods due to financial, structural, and personal barriers including access and stigma. Untreated mental health issues of these
individuals put them at risk for exacerbation of physical health problems, suicide attempts, premature moves to long-term care se.
Navigating Conflict in PE Using Strengths-Based ApproachesCHICommunications
Delivered on May 15, 2024 by the public and patient engagement team from the George & Fay Yee Centre for Healthcare Innovation, this presentation discusses the nuances of navigating conflict in patient engagement.
Learning objectives include:
-Understand the importance of using a trauma-informed approach in patient and public engagement
-Develop a strategy to work with patient and public partners in addressing conflict as it arises
-Employ strengths-based approaches to plan for conflict in your own work
Community Engagement of Sexual & Gender Minority PopulationsCHICommunications
This session, tailored for intermediate learners, offers a deep dive into patient and community engagement in health research, specifically focusing on its pivotal role in driving policy change. Learners will emerge equipped with:
🟠 A comprehensive understanding of the benefits of patient and community engagement in health research.
🟠 The ability to articulate the principles of authentic patient and community engagement.
🟠 A clear definition of intersectionality and practical insights into incorporating its principles into their patient and community engagement strategies.
🟠 An appreciation for the pivotal role of advocacy and the development of public- and stakeholder-facing materials in research programs aimed at influencing health policy.
Why Patient Engagement Matters in Data Science, Engineering and TechnologyCHICommunications
This presentation, delivered on February 28, 2024, discusses and defines patient-oriented research as it relates to the fields of data science, engineering and technology.
Participants also learned about CHI's annual Preparing for Research by Engaging Patient and Public Partners (PREPPP) award.
chimb.ca
This session—delivered on March 1, 2024—aims to provide prospective applicants useful information about the Preparing for Research by Engaging Public and Patient Partners (PREPPP) Awards.
Topics include eligibility and assessment criteria, overall quality, and information about the Dr. Wattamon Srisakuldee Memorial PREPPP Award.
Engaging with First Nations women with experiences of breast cancerCHICommunications
Objectives
• To learn about the impact and meaningfulness of storytelling approaches for patient engagement and decolonizing research
• To understand the importance of using Indigenous research methods, such as storytelling, in health research
• To critically reflect on engagement approaches for respectful research in Indigenous health research
This presentation by CHI's Public & Patient Engagement Lead Carolyn Shimmin describes the importance of trauma-informed engagement in health research projects.
Book your free consultation at chimb.ca
Presented on Sept. 20, 2023 by Carolyn Shimmin, CHI's Patient and Public Engagement Lead.
This session is meant for beginners. Get familiar with the basics of patient engagement and learn how good engagement can improve your next research project.
Learning Objectives
By the end of this session, attendees should be able to:
- Describe how to plan for engaging children or youth
- Discuss ideas to set your group up for success
- Identify practices to avoid when engaging children and youth
This session is intended for beginner and intermediate level learners (and anyone who might be newer to working with young people as partners and participants). This session is open to anyone who wants to see young people talking about how they want to be engaged in health research or quality improvement work.
Presented on May 10, 2023
Developing a Provincial Patient and Family Advisor NetworkCHICommunications
Introductory session on the collaborative planning process that Shared Health’s Public, Patient, and Family Engagement Team led, with patient and family advisors and engagement staff from across the province, to develop a provincial network of advisors.
Join us to learn about the collaborative planning process for the Manitoba Provincial Patient and Family Advisor Network, and how engagement staff can access the Network to help recruit advisors for their projects. We will also share what provincial projects we have been working on and what we see for the future.
Objectives:
• Describe key steps in a collaborative and engaging planning process;
• Discuss current and future engagement initiatives in Manitoba; and
• Use the services of the Patient and Family Advisor Network.
Navigating Conflict in PE Using Strengths-Based ApproachesCHICommunications
Led by CHI's Patient Engagement team, this session is intended to teach users how to deal with and prepare for conflict as it arises in patient engagement.
Patient Engagement for Data Science, Technology & EngineeringCHICommunications
Learn the necessities and relationship between patient engagement and data science, engineering and technology.
Presented by Trish Roche, CHI's Knowledge Translation Practice Lead, this presentation is geared towards professionals in data science looking to hone their skills in patient engagement.
Tips and Tricks for Establishing a Patient Advisory GroupCHICommunications
This session is intended for intermediate learners with an understanding of the basic principles of meaningful, safe, and inclusive patient and public engagement.
Following this session, attendees will be able to:
• Describe key steps in establishing an advisory group for patient and public engagement;
• Develop a plan for effective advisory group meetings in the first year; and
• Maintain advisory group activities of the course of a health research or services project.
This presentation features key information about CHI's Preparing for Research by Engaging Public & Patient Partners (PREPPP) Award including eligibility criteria, key dates, and application package information.
This session aims to build skills and knowledge in patient engagement and introduce participants to CHI's Methods of Patient & Public Engagement Guide.
Showing Appreciation & Building Meaningful RelationshipsCHICommunications
Learning Objectives:
- Describe methods for meaningful relationship-building
- Discuss challenges & opportunities for implementing appreciation guidelines in your own work
- Implement methods for appreciation beyond financial compensation
Grand Round: RITHIM — A New Approach to Research in ManitobaCHICommunications
Research Improvements Through Harmonization in Manitoba (RITHIM) is the next step in streamlining and improving the research process. Together, we can improve the lives of Manitobans.
PE101: Introduction to Patient Engagement in Health ResearchCHICommunications
Beginner level introduction to the underlying principles and concepts required for meaningful patient and public engagement.
Following this session, attendees should be able to:
Describe theoretical and practical principles of inclusive, authentic, and meaningful engagement of people with lived experience in health research;
Access resources to improve their knowledge of patient and public engagement practices; and
Participate in intermediate level PE Lunchtime Learning sessions.
Palestine last event orientationfvgnh .pptxRaedMohamed3
An EFL lesson about the current events in Palestine. It is intended to be for intermediate students who wish to increase their listening skills through a short lesson in power point.
The French Revolution, which began in 1789, was a period of radical social and political upheaval in France. It marked the decline of absolute monarchies, the rise of secular and democratic republics, and the eventual rise of Napoleon Bonaparte. This revolutionary period is crucial in understanding the transition from feudalism to modernity in Europe.
For more information, visit-www.vavaclasses.com
Unit 8 - Information and Communication Technology (Paper I).pdfThiyagu K
This slides describes the basic concepts of ICT, basics of Email, Emerging Technology and Digital Initiatives in Education. This presentations aligns with the UGC Paper I syllabus.
Welcome to TechSoup New Member Orientation and Q&A (May 2024).pdfTechSoup
In this webinar you will learn how your organization can access TechSoup's wide variety of product discount and donation programs. From hardware to software, we'll give you a tour of the tools available to help your nonprofit with productivity, collaboration, financial management, donor tracking, security, and more.
We all have good and bad thoughts from time to time and situation to situation. We are bombarded daily with spiraling thoughts(both negative and positive) creating all-consuming feel , making us difficult to manage with associated suffering. Good thoughts are like our Mob Signal (Positive thought) amidst noise(negative thought) in the atmosphere. Negative thoughts like noise outweigh positive thoughts. These thoughts often create unwanted confusion, trouble, stress and frustration in our mind as well as chaos in our physical world. Negative thoughts are also known as “distorted thinking”.
How to Split Bills in the Odoo 17 POS ModuleCeline George
Bills have a main role in point of sale procedure. It will help to track sales, handling payments and giving receipts to customers. Bill splitting also has an important role in POS. For example, If some friends come together for dinner and if they want to divide the bill then it is possible by POS bill splitting. This slide will show how to split bills in odoo 17 POS.
Operation “Blue Star” is the only event in the history of Independent India where the state went into war with its own people. Even after about 40 years it is not clear if it was culmination of states anger over people of the region, a political game of power or start of dictatorial chapter in the democratic setup.
The people of Punjab felt alienated from main stream due to denial of their just demands during a long democratic struggle since independence. As it happen all over the word, it led to militant struggle with great loss of lives of military, police and civilian personnel. Killing of Indira Gandhi and massacre of innocent Sikhs in Delhi and other India cities was also associated with this movement.
1. VALUING ALL VOICES
Developing a Trauma-Informed, Intersectional Framework for Patient & Public
Engagement in Health Research
Carolyn Shimmin, Trish Roche| October 14, 2020
2. • Carolyn Shimmin & Patricia Roche are employed by
the Centre for Healthcare Innovation
Disclosure
7. People may not identify as “patients” due to:
• Lack of access to healthcare systems & services
• Stigma
• Refusal to engage or prematurely exiting due to
unresponsive or disrespectful care
• Dis/Ability
Current Strategies can be Exclusionary
9. Evolving Focus of Engagement
Research &
Healthcare System
Researcher/ Healthcare needs central
Community needs centralDemocratic
Clinician needs centralPersonal
10. Public involvement in healthcare research is a matter of
health equity & social justice
Exposing spaces of potential resistance & renegotiation
of power in shared spaces
Reframing the Goal
11. Ensuring engagement works to reduce inequities &
address issues of importance to those with complex health
needs
Reframing the Goal
23. Intersectional Analysis
“There is no such thing as a
single-issue struggle, because
we do not live single-issue
lives”
- Audre Lorde
K. Kendall / CC BY
(https://creativecommons.org/licenses/by/2.0)
24. • Conceptualizing social categories as interacting with
and co-constituting one another
• Multi-level analysis
• Macro (global, national institutions & policies)
• Meso (provincial, regional institutions)
• Micro (community-level, grassroots institutions and
policies, the individual or ‘self’)
• Intersecting processes that produce, reproduce and
resist power & inequity
Intersectional Analysis in PE
26. What is Trauma?
Medical
Interventions
Cultural,
intergenerational
& historical trauma
Accidents &
natural
disasters
War& other
forms of
violence
Grief &
loss
Physical,
emotional, or
sexual abuse
Witnessing
acts of
violence
Childhood
abuse or
neglect
From Violence Free Colorado
27. • Healthcare & other systems may be trauma-inducing
• Trauma establishes a power differential & feelings of
powerlessness
• Engagement strategies need
to prevent re-traumatization
and avoid reproducing feelings
of powerlessness
The Role of Trauma in PE
28. • Recognizing the widespread impact of trauma
• Recognizing the signs & symptoms of trauma
• Seeking to actively resist re-traumatization by
creating physical settings & interpersonal
processes that support safety
A Trauma-Informed Approach
29. • Finding common ground
• Disrupting the process of ‘othering’
• Exposing the instability of binary categories
- Patient partners vs. researchers/practitioners
• Revealing opportunities to renegotiate power
• Strengthening trust & building resiliency
Why Use a Trauma-Informed Approach?
31. • Shapes subject positions and social categories
• Operates at both discursive & structural levels
• Excludes some types of knowledge & experience
• Relational (can vary by context)
Exploring Power
32. • Acknowledges the importance of power
• Recognizes multiple truths & diverse perspectives
• Gives extra space to voices typically excluded
• Important for working ethically in uncertain contexts &
unpredictable situations
Critical Reflexive Practice
33. Critical Reflexive Practice
What are my own personal values,
experiences, interests, beliefs, and
political commitments in the area of
health we will be looking
at/researching?
How do these personal experiences
relate to social locations and processes
of oppression in the area of health we
will be looking at/researching?
34. Critical Reflexive Practice
How can we become more aware of
and take advantage of opportunities
where we can challenge each others’
ideas and renegotiate power within our
project/team?
What does resilience look like, feel like,
and sound like to you?
35. Deciding on an Engagement Strategy
How do you think we can make sure that everyone’s
perspectives are included, and that we address
inequities as well as issues of social justice?
36. Deciding on an Engagement Strategy
In what ways do you think we can work together to make sure
everyone on the team, as well as any people involved in the
project, feel safe?
What does physical/emotional/psychological/cultural safety:
• Mean to us?
• Look like to us?
• Feel like to us?
37. Evaluation of Engagement
Did the project/research team actively work to dismantle past
cultural stereotypes and biases?
Did the project/research team have access to cultural- and
gender-responsive support services in case a
researcher/partner required additional support due to past
experiences of trauma?
39. DR. KRISTY WITTMEIER
EVAN WICKLUND
DR. KATHRYN SIBLEY
DR. SUSAN HARDIE
DR. JOSÉE LAVOIE
PATRICIA ROCHE
CAROLYN SHIMMIN
OGAI SHERZOI
SERENA HICKES
MASOOD KHAN
42. • Understanding perspectives & priorities requires
trusting relationships
• Flexibility in methods is crucial to success
• Look to communities & patient/public co-researchers
for guidance
• Establish a plan for ongoing communication & follow-up
from the beginning
Lessons Learned
43. • Group Discussions
– Inuit: 2 participants, 2 First Nations elders
– Newcomer: 6 participants, 3 interpreters
• One-on-one Discussions
– 5 people with lived experience of mental health
issues
– 4 people identifying as an immigrant or refugee
Data Collection
49. “Sometimes you can do all the research you want,
but if you haven’t actually been through what
someone else has been through it’s just a different
perspective.
And I think sometimes as a researcher you have to
take a step back and say ‘okay, in this specific
instance their perspective is more valuable than
mine because [they’ve] gone through it’.”
–MH03
The concept of intersectionality emerged from a number of theoretical groundings including US black feminism, indigenous feminism, third world feminism, queer, post-structuralist and post-colonial feminism.
Term itself first coined by Kimberle Crenshaw in 1989 (American civil rights advocate and leading scholar of critical race theory)
Intersectionality promotes an understanding of human beings as shaped by the interactions of different social locations or categories
For example, race, ethnicity, indigeneity, gender, class, sexuality, geography, age, ability/disability, immigration status, mental health status, and religion.
It is important to remember that from an intersectional perspective, these categories are considered dynamic, historically grounded, socially constructed, and working on various levels in society (from the macro or global level to the micro individual level)
Interactions between these social categories occur within the larger context of connected systems and structures of power (laws, policies, governments, media, public institutions)
Through these processes, interdependent forms of privilege and oppression shaped by colonialism, imperialism, racism, homophobia, transphobia, sexism, ableism, saneism, and patriarchy are created
So what does this mean for patient and public engagement?
A central goal of intersectionality is the inclusion of voices traditionally less heard, ignored, or excluded.
This is achieved by various means including:
Conceptualizing social categories as interacting with and co-constituting one another to create unique social locations that vary according to time and place – it’s not about the intersections themselves, but what they tell us about power
Analysis that aims to understand the effects between and across various levels in society including macro, meso, and micro levels
Focuses on intersecting processes by which power and inequity are produced, reproduced, and actively resisted across levels of structure, identity, and representation
An important but often overlook aspect in the practice of patient engagement is the role of trauma, and recognizing that experiential knowledge may be intertwined with experiences of trauma. Evidence shows that many patients in primary care settings have significant trauma histories, which have an impact not only on their health but also on their responsiveness to health interventions. Experiences of trauma may also impact an individual’s ability to access appropriate healthcare services, and hence to identify as a patient. Embedded in any engagement practice must be the recognition that trauma is a widespread, harmful, and costly public health issue.
Trauma can occur as a result of violence, abuse, neglect, loss, disaster, war, and other emotionally harmful experiences. Trauma is often seen as an almost universal experience of people living with mental health or substance use issues.
Trauma does not live solely in the realm of the public research partner who is being asked to share their experiential knowledge, but also for researchers themselves. Evidence shows that in some instances, past experiences of trauma may be a driving motivator for certain researchers in the work they do. Even in areas of research where the researcher may not have directly experienced the health conditions being investigated (for example in gerontology), stories shared by research partners may in time be the researchers’ own. It is a reminder that researchers may have a personal connection with hopes and fears expressed by patient and public partners, and that stories of abuse, loneliness, racism, sexism, and so on do not occur in a vacuum, and are likely to have an impact on both researchers and patient or public partners.
There also needs to be acknowledgement that healthcare systems intended to provide services and supports to individuals may themselves be trauma-inducing. For example, the use of coercive practices such as seclusion or restraints in the behavioural health system, or invasive procedures in the medical system, can be retraumatizing to individuals who may have already experienced significant trauma before entering the system.
The pervasive and harmful impact of traumatic events on individuals, families, caregivers and communities, and the unintended but similarly widespread retraumatizing of individuals within our public institutions and services – not only healthcare, but also education, corrections, child welfare, and government – makes it necessary for any patient and public engagement in health research practice to involve a trauma-informed approach.
Traumatic events by their very nature set up a power differential where one entity (an individual, event, system, or force of nature) has power over another. An individual’s experience of these events or circumstances are shaped in the context of this powerlessness and feelings of humiliation, guilt, shame, betrayal, or silencing often shape the experience of this event. It is important that interpersonal interactions – something that plays a very large role when it comes to engagement – that these feelings of powerlessness are not reproduced or reconstituted in any way
According to the Substance Abuse & Mental Health Services Administration guidelines, a trauma-informed approach means creating methodologies that recognize the widespread impact of trauma and understanding potential paths of recovery; recognizing signs and symptoms of trauma; and seeking to actively resist re-traumatization through the creation of both physical settings and interpersonal processes that support safety for both researchers as well as patient and public partners.
According to the Substance Abuse & Mental Health Services Administration guidelines, a trauma-informed approach means creating methodologies that recognize the widespread impact of trauma and understanding potential paths of recovery; recognizing signs and symptoms of trauma; and seeking to actively resist re-traumatization through the creation of both physical settings and interpersonal processes that support safety for both researchers as well as patient and public partners.
By ensuring that an intersectional analysis within a patient engagement framework is trauma-informed, both researcher and patient or public partner may find common ground, and the process of ‘othering’ (researchers vs. patients) that may limit inclusivity of current patient engagement approaches is disrupted – meaning that the instability of the binary categorization of ‘patient’ and ‘researcher’ is exposed, in turn revealing spaces where power can be renegotiated – not only strengthening the trust within the researcher/patient relationship, but also helping to build resiliency within both.
An important component of an intersectional analysis is the exploration of power. In an intersectional analysis power is seen as: shaping subject positions and social categories; operating at both discursive and structural levels to exclude some types of knowledge and experience; and as relational – meaning a person can simultaneously experience both power and oppression in varying contexts at varying times. Relations of power include experiences of power over others, but also people working together to acquire power.
An important component of an intersectional analysis is the exploration of power. In an intersectional analysis power is seen as: shaping subject positions and social categories; operating at both discursive and structural levels to exclude some types of knowledge and experience; and as relational – meaning a person can simultaneously experience both power and oppression in varying contexts at varying times. Relations of power include experiences of power over others, but also people working together to acquire power.
One way intersectionality pays attention to power is through reflexive practice. Reflexivity acknowledges the importance of power at the micro level of the self and our relationships with others, as well as the macro levels of society. It recognizes the multiple truths and a diversity of perspectives, while giving extra space to voices typically excluded from ‘expert’ roles. For researchers, reflexivity is an important practice skill that is central to working ethically in uncertain contexts and unpredictable situations, which can often be the case in the development of public research partnerships.
Practicing reflexivity requires researchers and patient and public partners to commit to ongoing dialogue about tacit, personal, and professional knowledges and the construction of expertise in academia. It exposes how researchers’ assumptions about social problems and the people who experience these problems have ethical and practical consequences.
An important component of an intersectional analysis is the exploration of power. In an intersectional analysis power is seen as: shaping subject positions and social categories; operating at both discursive and structural levels to exclude some types of knowledge and experience; and as relational – meaning a person can simultaneously experience both power and oppression in varying contexts at varying times. Relations of power include experiences of power over others, but also people working together to acquire power.
One way intersectionality pays attention to power is through reflexive practice. Reflexivity acknowledges the importance of power at the micro level of the self and our relationships with others, as well as the macro levels of society. It recognizes the multiple truths and a diversity of perspectives, while given extra space to voices typically excluded from ‘expert’ roles. For researchers, reflexivity is an important practice skill that is central to working ethically in uncertain contexts and unpredictable situations, which can often be the case in the development of public research partnerships.
Practicing reflexivity requires researchers and public research partners to commit to ongoing dialogues about tacit, personal and professional knowledges and the construction of expertise in academia. It exposes how researchers’ assumptions about social problems and the people who experience these problems, have ethical and practical consequences.
Reflexivity can help to transform the process of public involvement in health research when both researchers and public research partners who are being engaged bring critical self-awareness about the assumptions and ‘truths’ in their own work. An example of this includes reflexive practices helping people to consider their individual connections to colonization which then helps to facilitate questioning around policy, practices and research (both past and present) that are used in the colonization of Indigenous peoples in Canada.
A comprehensive public involvement in health research training curriculum for both researchers and public research partners must include teachings around reflexive practice. Adapting from Olena Hankivsky’s Intersectionality-Based Policy Framework (2012) as well as SAMSHA’s Guidance for a Trauma-Informed Approach (2014) here are a few types of questions that should be considered in a public involvement in health research context:
What are my own personal values, experiences, interests, beliefs and political commitments in this area of research?
How do these personal experiences relate to social and structural locations and processes in this area of health research?
What assumptions do you think underlie the representation and framing of the research problem?
