Learning Objectives: - Describe methods for meaningful relationship-building - Discuss challenges & opportunities for implementing appreciation guidelines in your own work - Implement methods for appreciation beyond financial compensation

1. BUDGETING FOR PATIENT ENGAGEMENT
CHI Patient Engagement Lunchtime Learning Series (2020-2021)

3. • Describe methods for meaningful relationship-building
• Discuss challenges & opportunities for implementing
appreciation guidelines in your own work
• Implement methods for appreciation beyond financial
compensation
Learning Objectives
• Employed by the George & Fay Yee Centre for
Healthcare Innovation
Disclosure

4. • Ensuring partners are paid for their time, energy and
expertise
• Demonstrating value for lived/living experience
• Addressing financial barriers to involvement
• Distinct from reimbursement
Compensation Should Come First

5. • Trust, honest, openness
• Reciprocity
• Two-way communication
• Creating safe space to share
lived experiences
• Establishing and maintaining
appropriate boundaries
• Providing access to resources
Importance of Building Relationships
Roche et al, 2020,ResearchInvolvement and Engagement
https://umanitoba.ca/centre-for-healthcare-innovation/tools-and-resources

6. Going Beyond Financial Payment
Offering training & skills-building opportunities
• Patient-Oriented Research Curriculum in Child
Health (PORCCH) modules
• Tri-Council Course on Research Ethics (TCPS2-
CORE)
• U of A Indigenous Canada Course
• CIHR’s Sex and Gender Training modules

7. Going Beyond Financial Payment
Offering training & skills-building opportunities
Having a designated workspace for partners with access
to computer, software, internet, printer/scanner, etc.
Co-development and co-presentation of work

8. Going Beyond Financial Payment
Co-authorship (peer-reviewed and other)
Helping prepare and practice for public presentations
Reviewing and proof-reading written submissions (e.g.
letters of support, partner stories, conference abstracts)

9. Going Beyond Financial Payment
Involving partners in meetings/briefings with decision-makers
Regular feedback from and for partners throughout
Ongoing evaluation and reporting on impact of contributions
on research and health services decision-making

10. Non-Monetary Ways of Showing Appreciation
Certificates of appreciation highlighting partner contributions
Reference letters for work, school, other activities
Nominations for awards or feature in local news
Documenting and sharing partner contributions
Featuring partners in internal and/or external communications

11. Building & Maintaining Relationships
Researchers/staff showing up for community events
Volunteering with community organizations
Showing up for important events featuring partners
Setting aside time to get to know each other
Sharing a meal or coffee/tea

12. Building & Maintaining Relationships
Holding meetings in the community
Including in staff networking/engagement events
Sending cards for birthdays, special occasions, or just to say
“thank you”
Regular communication – even if you don’t have any
updates!

13. Small Group Discussion
20 minutes
Share your experiences
Brainstorm some ways of your own
Be ready to share with the larger group

14. • What non-monetary ways have you shown (or
been shown) appreciation that worked well?
• What challenges might be faced when showing
appreciation and building relationships?
• What will you use from today in your own work,
as a practitioner or person with lived
experience?
Breakout Discussion Questions