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MEETING PEOPLE WHERE THEY’RE AT:
THE IMPORTANCE OF TRAUMA-INFORMED
ENGAGEMENT
Agenda
• What is critical reflexive practice and why is it important to
engagement
• The difference between discursive and embodied
reflexivity
• What is embodied reflexivity
• How do we incorporate it into engagement practice
Critical Reflexive Practice
• An understanding of how our own personal values,
experiences, interests, beliefs and political
commitments shape the area of health we research; and
• An examination of how these values and experiences
relate to social and structural locations we personally
inhabit as well as larger processes and systems of
power and oppression.
A Special Note on Quantitative Research
“Statistics are powerful persuaders. As systematically collected
numerical facts, they do much more than summarize reality in
numbers. They also interpret reality and influence the way we
understand society. The researchers who create statistics leave
their mark on them – not just because people are biased in overt or
conscious ways, but also because social, cultural, economic, and
political perspectives infuse the research data even when we think
we are “just counting people.””
• Walter M. & Andersen C. (2013). Indigenous Statistics: A
Quantitative Research Methodology. pp. 7.
Reflexivity
Reflexivity is the practice of continuous reflection by all
members of the research team (researchers and patient
partners) regarding their own values, preconceptions, and
behaviour, recognizing the impact they may have on the
research process, including interpretation of findings, as
well as research team relationships.
Critical Reflexive Practice
• Discursive reflexivity
• Embodied reflexivity
Examples of Discursive Reflexive Practice
• What are my own personal values,
experiences, interests, beliefs and
political commitments in the area of
health we will be researching?
• How do these personal experiences
relate to social locations and
processes of oppression in the area
of health in which we will be
researching?
Critical Reflexive Practice
• What are my personal values,
assumptions, perspectives and
experiences with regard to people
living with the health issues in
which we will be researching?
• What current health inequities
exist with regard to the area of
health in which we will be
researching?
Embodied Reflexivity
• Looking at how a researcher’s physical presence and
performance can influence public and patient partners’
sharing of their experiential knowledge, and in turn the
production of knowledge
Why is Embodied Reflexivity Important?
• Stories about our bodies are mediated through our social
location, and it’s not only about understanding the
materiality of bodies but also the sociality of health and
embodiment in order to be truly innovative and address
health inequities
The Construction of Particular Narratives
• How we think, communicate and experience our bodies is
produced, policed and reconstituted by social institutions
including media, government, medicine, education, laws,
etc.
– Disability
– Gendered and racialized bodies
– Differing body sizes
The Production of Knowledge
• Thinking of the context in which stories of the body are
shared
Silent Ways Bodies are Imbued with Power
• Trust is built between two people through the incremental
and mutual sharing of vulnerabilities.
• Addressing the sometimes silent ways in which our
bodies can be imbued with power and privilege by
systems of oppression
• Working to ensure embodied silences cannot negatively
affect research relationships
Being aware of one’s own emotions and bodily states
• Researchers must also hold themselves accountable for
how their bodies impact sharing of experiences and the
knowledge they impart.
Understanding what these states reveal about you and
potentially the patient/public partner
• Emotions are embodied experiences that can reveal how
bodies are entwined with the experiences of others.
Acknowledging how nonverbal communication
contributes to the co-construction of knowledge
• Body memory- perhaps practice or performance that has
been embedded in a researcher’s physicality – can
suddenly be cued by the physical, emotional, and social
interaction between the researcher and public or patient
partner
Recognizing that our identities are multiple and
complex
• Researchers and public and patient partners both carry
and embody a complex history of lived experiences and
identities that are inseparable.
Appreciating how socially constructed differences can
impact on the interactions between researchers and
public or patient partners
• When researchers understand how their social location is
inscribed upon the materiality of their bodies and
influences their bodily performance, they can then begin
to collaboratively challenge the social construction of
difference.
The Body Discloses
• Embodied research means reflecting on the very
presence of both researcher’s and public or patient
partner’s bodies in the research process.
The Body is Prime Site of Silences
• To reflect upon bodily presence and interactions means to
address ‘the elephant in the room’

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Why Bodies Matter in Patient & Public Engagement

  • 1. MEETING PEOPLE WHERE THEY’RE AT: THE IMPORTANCE OF TRAUMA-INFORMED ENGAGEMENT
  • 2. Agenda • What is critical reflexive practice and why is it important to engagement • The difference between discursive and embodied reflexivity • What is embodied reflexivity • How do we incorporate it into engagement practice
  • 3. Critical Reflexive Practice • An understanding of how our own personal values, experiences, interests, beliefs and political commitments shape the area of health we research; and • An examination of how these values and experiences relate to social and structural locations we personally inhabit as well as larger processes and systems of power and oppression.
  • 4. A Special Note on Quantitative Research “Statistics are powerful persuaders. As systematically collected numerical facts, they do much more than summarize reality in numbers. They also interpret reality and influence the way we understand society. The researchers who create statistics leave their mark on them – not just because people are biased in overt or conscious ways, but also because social, cultural, economic, and political perspectives infuse the research data even when we think we are “just counting people.”” • Walter M. & Andersen C. (2013). Indigenous Statistics: A Quantitative Research Methodology. pp. 7.
  • 5. Reflexivity Reflexivity is the practice of continuous reflection by all members of the research team (researchers and patient partners) regarding their own values, preconceptions, and behaviour, recognizing the impact they may have on the research process, including interpretation of findings, as well as research team relationships.
  • 6. Critical Reflexive Practice • Discursive reflexivity • Embodied reflexivity
  • 7. Examples of Discursive Reflexive Practice • What are my own personal values, experiences, interests, beliefs and political commitments in the area of health we will be researching? • How do these personal experiences relate to social locations and processes of oppression in the area of health in which we will be researching?
  • 8. Critical Reflexive Practice • What are my personal values, assumptions, perspectives and experiences with regard to people living with the health issues in which we will be researching? • What current health inequities exist with regard to the area of health in which we will be researching?
  • 9. Embodied Reflexivity • Looking at how a researcher’s physical presence and performance can influence public and patient partners’ sharing of their experiential knowledge, and in turn the production of knowledge
  • 10. Why is Embodied Reflexivity Important? • Stories about our bodies are mediated through our social location, and it’s not only about understanding the materiality of bodies but also the sociality of health and embodiment in order to be truly innovative and address health inequities
  • 11. The Construction of Particular Narratives • How we think, communicate and experience our bodies is produced, policed and reconstituted by social institutions including media, government, medicine, education, laws, etc. – Disability – Gendered and racialized bodies – Differing body sizes
  • 12. The Production of Knowledge • Thinking of the context in which stories of the body are shared
  • 13. Silent Ways Bodies are Imbued with Power • Trust is built between two people through the incremental and mutual sharing of vulnerabilities. • Addressing the sometimes silent ways in which our bodies can be imbued with power and privilege by systems of oppression • Working to ensure embodied silences cannot negatively affect research relationships
  • 14. Being aware of one’s own emotions and bodily states • Researchers must also hold themselves accountable for how their bodies impact sharing of experiences and the knowledge they impart.
  • 15. Understanding what these states reveal about you and potentially the patient/public partner • Emotions are embodied experiences that can reveal how bodies are entwined with the experiences of others.
  • 16. Acknowledging how nonverbal communication contributes to the co-construction of knowledge • Body memory- perhaps practice or performance that has been embedded in a researcher’s physicality – can suddenly be cued by the physical, emotional, and social interaction between the researcher and public or patient partner
  • 17. Recognizing that our identities are multiple and complex • Researchers and public and patient partners both carry and embody a complex history of lived experiences and identities that are inseparable.
  • 18. Appreciating how socially constructed differences can impact on the interactions between researchers and public or patient partners • When researchers understand how their social location is inscribed upon the materiality of their bodies and influences their bodily performance, they can then begin to collaboratively challenge the social construction of difference.
  • 19. The Body Discloses • Embodied research means reflecting on the very presence of both researcher’s and public or patient partner’s bodies in the research process.
  • 20. The Body is Prime Site of Silences • To reflect upon bodily presence and interactions means to address ‘the elephant in the room’

Editor's Notes

  1. An important component of an intersectional analysis is the exploration of power. In an intersectional analysis power is seen as: shaping subject positions and social categories; operating at both discursive and structural levels to exclude some types of knowledge and experience; and as relational – meaning a person can simultaneously experience both power and oppression in varying contexts at varying times. Relations of power include experiences of power over others, but also people working together to acquire power. One way intersectionality pays attention to power is through reflexive practice. Reflexivity acknowledges the importance of power at the micro level of the self and our relationships with others, as well as the macro levels of society. It recognizes the multiple truths and a diversity of perspectives, while given extra space to voices typically excluded from ‘expert’ roles. For researchers, reflexivity is an important practice skill that is central to working ethically in uncertain contexts and unpredictable situations, which can often be the case in the development of public research partnerships. Practicing reflexivity requires researchers and public research partners to commit to ongoing dialogues about tacit, personal and professional knowledges and the construction of expertise in academia. It exposes how researchers’ assumptions about social problems and the people who experience these problems, have ethical and practical consequences. Reflexivity can help to transform the process of public involvement in health research when both researchers and public research partners who are being engaged bring critical self-awareness about the assumptions and ‘truths’ in their own work. An example of this includes reflexive practices helping people to consider their individual connections to colonization which then helps to facilitate questioning around policy, practices and research (both past and present) that are used in the colonization of Indigenous peoples in Canada. A comprehensive public involvement in health research training curriculum for both researchers and public research partners must include teachings around reflexive practice. Adapting from Olena Hankivsky’s Intersectionality-Based Policy Framework (2012) as well as SAMSHA’s Guidance for a Trauma-Informed Approach (2014) here are a few types of questions that should be considered in a public involvement in health research context: What are my own personal values, experiences, interests, beliefs and political commitments in this area of research? How do these personal experiences relate to social and structural locations and processes in this area of health research? What assumptions do you think underlie the representation and framing of the research problem?