This session—delivered on March 1, 2024—aims to provide prospective applicants useful information about the Preparing for Research by Engaging Public and Patient Partners (PREPPP) Awards. Topics include eligibility and assessment criteria, overall quality, and information about the Dr. Wattamon Srisakuldee Memorial PREPPP Award.

3. People with lived/living experience of a
health issue being involved in decision-
making about research before applying for
research funding.
Research “with” or “by” people with
lived/living experience, instead of “for” or
“about” them
Patient Engagement
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4. PARTICIPANTS
• People recruited to study about whom data is
collected (e.g., focus groups, surveys)
• No decision-making power about research topic
or design
PARTNERS
• People with lived/living experience of a health
condition involved in decision-making about
research (e.g., co-researchers, advisory group)
Participants vs. Partners
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5. Addresses a key funding gap:
• Engaging early in the research process allows
for more shared decision-making power and
flexibility in research methods & design
• People with lived/living experience need to be
involved prior to receiving funds
• Need funding to engage people
Why the PREPPP Award?
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8. • Manitoba researchers, students and community
organizations
• Planning a health research project or program
• Aim to involve patients and/or members of the
public in decision-making about research design
• Research project not yet funded (still in design or
grant development phase)
• Previous applicants welcome to re-apply!
Who is Eligible?
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9. Assessment
Criteria

10. 1. Overall quality
2. Appropriateness & level of engagement
3. Evidence of commitment to 2-way relationships,
trauma-informed approaches, and methods for
equity, diversity & inclusion
4. Potential impact of engagement on research, those
involved & broader context
5. Feasibility
6. Alignment with principles of patient-oriented
research & local health priorities
Assessment Criteria
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11. • Clarity – application is easy to read, methods are
clearly laid out & logical
• All sections & bullet points in application are
explicitly addressed
• Scope – focused on early engagement, priority-
setting, refining the research question, co-
developing design and grant development
• Originality – demonstrated attempts to consider
methods outside of status quo of traditional health
research, meeting people where they’re at
1. Overall Quality
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12. • Planned engagement is (or will be) chosen by
or co-designed with partners
• Methods address explicitly stated needs,
values and expectations of partners
• Partners have significant decision-making
power in research design and grant
development
– Collaboration or patient/public-directed
– Goes beyond consultation
2. Appropriateness
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13. • Readiness to Engage Workbook
– Critical reflexive practice questions
– Examine perceptions, values, needs, priorities
– Assess level of decision-making power and
flexibility
2. Resources - Appropriateness
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http://umanitoba.ca/centre-for-healthcare-
innovation/sites/centre-for-healthcare-
innovation/files/2021-11/readiness-to-
engage-workbook.pdf

14. • May be able to involve partners at different
levels through different stages of research
– For application, focus on level of decision-
making power in planning the research
– Priority-setting, research questions, design &
grant development
https://medium.com/knowledgenudge/pe-3-
the-levels-of-patient-and-public-involvement-
77026a547f2b
2. Resources – Level of Engagement
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15. • Variety of methods for different stages &
levels of engagement
• Focus on identifying & prioritizing, research
design & development of grant proposal
http://umanitoba.ca/centre-for-healthcare-
innovation/sites/centre-for-healthcare-
innovation/files/2021-11/methods-of-patient-
and-public-engagement-guide.pdf
2. Resources – Methods to Engage
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16. • Describe how two-way (reciprocal)
relationships will be built and maintained
– Developing trust
– Transparency about research design & grant
processes
– Participation in shared learning
• Discuss the “bigger picture” and how you
envision engagement will impact everyone
involved
3. Commitment to Relationships
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17. 3. Resource – Valuing All Voices
https://researchinvolvement.biomedcentral.com/articles/
10.1186/s40900-020-00217-2
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18. • Describe methods for co-creating safety in
engagement
– Discussions of safe spaces
– Guiding principles for working together
• 4-part KnowledgeNudge blog series on
Trauma-Informed Engagement
– https://medium.com/knowledgenudge/trauma
-informed-engagement-part-1-understanding-
trauma-96f35fb00252
3. Trauma-Informed Approaches
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19. • Discuss how power imbalances will be
acknowledged & addressed in engagement
• Describe methods to ensure diverse
perspectives are included
• Explicitly address whose voices may not be
heard and who may be missing from the
conversation
https://medium.com/knowledgenudge/pe-7-how-
do-i-find-people-to-involve-in-my-health-research-
4d6f1b163419
3. Equity, Diversity & Inclusion (EDI)
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20. • Have a plan for how partners will be involved
in decision-making processes
• Describe potential benefits and harms and
plans to provide supports
• Approaches should provide opportunities for
co-learning, capacity building, and co-benefit
• Consider the bigger picture impact of
engagement on the research team,
organization and field of research
4. Impact of Engagement
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21. • Be explicit and flexible in regards to plans for
engagement
– Number of people involved
– Duration and frequency of meetings
– Roles and responsibilities
– How barriers to involvement will be addressed
– Contingencies for changes to timelines, budget
needs, etc.
5. Feasibility
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22. • Excel-based budgeting calculator with
printable one-page budget summary
• Provides guidance & suggestions for
important considerations
– Addressing barriers to involvement
– Ensuring supports are accounted for
5. Resource – Budgeting Tool
https://umanitoba.ca/centre-for-healthcare-
innovation/sites/centre-for-healthcare-
innovation/files/2023-06/2020-01-29-chi-pe-
budget-tool-v2-8-3.xlsx
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23. • Engages patients as partners;
• Focuses on patient-identified priorities;
• Improves patient outcomes;
• Conducted by multidisciplinary teams in
partnership with relevant stakeholders; AND
• Aims to apply knowledge generated to improve
healthcare systems and practices
6. Alignment with POR Principles
https://cihr-irsc.gc.ca/e/41204.html
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24. • Clearly describe how the research
topic/question(s)/priorities were (or will be)
chosen and by whom
• Explicitly link to local priorities identified by:
– Patient/public partners, communities and/or
affected populations
– Local organizations (CancerCare, AFM, Nine
Circles, Mount Carmel, Klinic, SERC, etc.)
– Manitoba’s health system – Shared Health
Clinical Preventative Services Plan
6. Addresses Local Priorities
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25. Preparing Your
PREPPP
Application

26. • Write in lay language (aim for grade 6 reading
level) as patient & public partners will be on
review team
• Avoid medical jargon and acronyms
• Make sure you address all sections of the
application form
• Limit to 6 pages (not including references and
optional letters of support)
Preparing Your Application
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27. Sections:
1. Lay Summary
2. Project Information
3. Engagement Activities
4. Patient and Public Partners
5. The Research Team
6. Impact of Engagement
7. Funding Award Budget
8. Optional: Letters of Support
The Application Form
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28. • Ensure your summary addresses the
following aspects:
– Describe how the PREPPP award will aid in
achieving the engagement goals of your project.
– How you will engage people with lived/living
experience and specify how their involvement will
influence decisions related to your project.
– What you hope to achieve through engaging
individuals with lived/living experience.
* Should your application be successful, this summary may be utilized for promotional purposes.
1. Lay Summary (150-word)
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29. • Brief, lay language description of overall research
area/topic and its relevance to partners
• How research design and grant development
decision(s) will be made
• Specific goal(s) or outcome(s) of involving
partners
• Funding opportunities (or agencies) the team
plans to apply to in order to fund the research
2. Project Information
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30. • Clear and detailed description of planned
engagement
– Goals/objectives for each activity
– Frequency, duration and number of partners and
meetings
– Methods for safety and diversity
– Supports and/or facilitation services
– Opportunities for ongoing engagement
3. Engagement Activities
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31. • Who you hope/plan to engage with
• How people involved are partners, rather than
participants (though they may be both)
• Planned or completed assessment of external
readiness to engage (context of potential
partners, caregivers, communities, and/or
organizations)
• Recruitment strategy and how barriers to
involvement will be assessed and addressed
4. Patient and Public Partners
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32. • Very brief overview of team members and their
roles in engagement
• Completed or planned internal assessment of
readiness to engage
• Barriers and facilitators affecting team’s ability to
be flexible and adaptable in decision-making
about the research
5. The Research Team
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33. • Specific research decisions to be addressed
through engagement
• Level of decision-making power
• Potential harms and benefits
• How power imbalances will be
discussed/addressed
• Specific processes for ensuring partners’
perspectives, concerns and values are
represented and valued in decision-making
6. Impact of Engagement
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34. • Summary of costs
• Describe any additional support (funding or in-
kind) that may facilitate engagement beyond the
amount provided by the PREPPP Award
• Emphasis on compensation and addressing
barriers to engagement
• Do not include costs not directly related to
engagement (e.g., transcription, publication,
conference fees for researchers)
7. Funding Award Budget
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35. • Not required, will have minimal impact on funding
decisions
• May describe pre-existing relationships or
financial/in-kind supports
8. Optional – Letters of Support
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36. • Application form: https://umanitoba.ca/centre-
for-healthcare-innovation/sites/centre-for-
healthcare-innovation/files/2024-01/2024-
PREPPP-funding-award-application.pdf
• Resources: https://umanitoba.ca/centre-for-
healthcare-innovation/tools-and-
resources#patient-engagement
• KnowledgeNudge PE Blog Series:
http://bit.ly/PE101Blog
Relevant PE Resources
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37. • Shimmin et al. 2017:
– Trauma-Informed Intersectional Analysis & Critical
Reflexive Questions for teams
– http://bit.ly/PEinHealthRes
• Roche et al. 2020:
– The Valuing All Voices Framework for Meaningful
Patient & Public Engagement
– http://bit.ly/Valuing-All-Voices
Relevant Articles
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38. • Funding for 18 months
• Free one-hour consult with CHI’s PE team
• Additional fee-based services available
• Participate in CHI’s Patient & Public Engagement
Lunchtime Learning Series
• Complete a final report about engagement
Successful Applicants
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39. • Engagement in a systematic review on ER
wait times (Dr. Maya Jeyaraman)
• Community engagement about sugar-
sweetened beverage tax (Dr. Natalie Riediger)
• Engagement around outcomes of thoracic
surgery (Dr. Sadeesh Srinathan)
• Family engagement workshop about chronic
pain in youth (Drs. Kristy Wittmeier & Kirsten
Gerhold)
Previous PREPPP Award Winners
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40. • Engaging in scoping review design (Dr. Anna
Chudyk)
• Engaging in clinical trials design (Dr. Dylan
MacKay)
• Blog series – engaging youth & caregivers
around type 2 diabetes (Leanne Dunne)
– Caregiver perspective
– Youth perspective
– Researcher perspective
Previous PREPPP Award Winners
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41. https://eventscalendar.umanitoba.ca/
event/budgeting-for-engagement/

42. CHIPartners@umanitoba.ca
https://umanitoba.ca/centre-for-healthcare-innovation/
@CHImbca CHIManitoba
Centre for Healthcare Innovation