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Use of Community
Health Data for Shared
Accountability
Tariq Azim, MBBS, DM
MEASURE Evaluation
John Snow, Inc.
Stephanie Mullen, DrPH
MEASURE Evaluation
John Snow, Inc.
February 2018
The Community Is Not
in the Spotlight
• Dissemination and use of data generated by the health
system are traditionally limited to the health system.
• The community is not viewed as:
o A decision maker when it comes to the health system
o A consumer or user of health data
• As a result:
o The community is disengaged and does not play an active
role in improving its own health status.
o The health system is not held accountable to the community
it serves.
o Promotion of community involvement is externally driven.
o There is a lack of community leadership and ownership of
interventions to improve the community’s own health.
2
Community Ownership &
Accountability
• Ownership requires:
oTaking responsibility
oWith that comes accountability
• Accountability:
oCommitting to decisions and/or actions and
holding oneself answerable for those actions
and their consequences
3
Shared Accountability to
Ensure Health
• Shared accountability is defined as a process by
which partners hold one another responsible for
the commitments that they have voluntarily made
to each other (Institute of Medicine, 2011).
• Both the community & the health system (public
and/or private) are accountable for:
o Sharing health and related information
o Taking actions to improve/maintain health
o Publicly reporting and answering questions about those
decisions and/or actions
4
Shared Accountability for Health
at the Community Level
5
Purpose:
• Create an enabling socio/political
environment of mutual trust and transparency
between the community and the health
system
• Support the taking of collective responsibility
and commitment to shared accountability to
improve health service delivery
• Contribute to the overall health of the
community
Basic Principles: Community Health
Data Use for Shared Accountability
• The community takes the leadership role in running the
forum/meeting
• Use an existing forum at the community level
• The community and the health system both share health
and related data/information
o Health status, service coverage, disease occurrences, service
availability, maternal & infant deaths
• Mutually decide on the health priorities and voluntarily
commit to taking responsibility for addressing health priorities
• Promote transparency and open sharing of data while
ensuring privacy and security
6
Qualitative Monitoring of Forum
Performance
7
Legend:
Green = desired performance
Yellow = acceptable performance
Red = unfavorable situation
Health System
Shared Information Took Actions
Community
Shared
Information
Box 1: Both the
health system and
the community
shared information
Box 2: Community
provided
information; health
system acted on it
(health system’s
responsiveness)
Took Actions Box 3: Health system
shared information;
community acted
on it (community
engagement in
taking action)
Box 4: No information
was shared, but both
the health system
and community
acted on their own
Quantitative Monitoring of Forum
Performance
8
Shared Accountability: Cases
• Disease epidemics: sharing responsibilities and working in
tandem
o Liberia Ebola crisis
 There was widespread noncompliance with government-
imposed cremation to prevent viral spread.
 Traditional and religious leaders influenced the
development of World Health Organization guidelines on
safe burials with dignity, which became government policy
at the end of 2014.
Shared Accountability: Cases
• Community-based maternal death surveillance
o Accra, Ghana
 A modified survey system of community-based
reproductive age mortality using six questions was
implemented in the Bosomtwa district of Accra
o Malawi
 Community-linked maternal death review: Communities
and health facility staff worked in partnership to investigate
and respond to maternal deaths occurring in communities
and at health facilities
Shared Accountability: Cases
• Community-based tuberculosis directly observed treatment,
short course (TB-DOTS): accountability on both sides
o Mozambique
 Clients choose their DOTS with support from the local
volunteers, known as padrinhos
 Example of community taking responsibility for
supervising TB-DOTS
 Padrinhos make themselves accountable to the larger
community regarding adherence to DOTS by the
clients of TB services.
This presentation was produced with the support of the United States
Agency for International Development (USAID) under the terms of MEASURE
Evaluation cooperative agreement AID-OAA-L-14-00004. MEASURE
Evaluation is implemented by the Carolina Population Center, University of
North Carolina at Chapel Hill in partnership with ICF International; John
Snow, Inc.; Management Sciences for Health; Palladium; and Tulane
University. Views expressed are not necessarily those of USAID or the United
States government.
www.measureevaluation.org

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Use of Community Health Data for Shared Accountability

  • 1. Use of Community Health Data for Shared Accountability Tariq Azim, MBBS, DM MEASURE Evaluation John Snow, Inc. Stephanie Mullen, DrPH MEASURE Evaluation John Snow, Inc. February 2018
  • 2. The Community Is Not in the Spotlight • Dissemination and use of data generated by the health system are traditionally limited to the health system. • The community is not viewed as: o A decision maker when it comes to the health system o A consumer or user of health data • As a result: o The community is disengaged and does not play an active role in improving its own health status. o The health system is not held accountable to the community it serves. o Promotion of community involvement is externally driven. o There is a lack of community leadership and ownership of interventions to improve the community’s own health. 2
  • 3. Community Ownership & Accountability • Ownership requires: oTaking responsibility oWith that comes accountability • Accountability: oCommitting to decisions and/or actions and holding oneself answerable for those actions and their consequences 3
  • 4. Shared Accountability to Ensure Health • Shared accountability is defined as a process by which partners hold one another responsible for the commitments that they have voluntarily made to each other (Institute of Medicine, 2011). • Both the community & the health system (public and/or private) are accountable for: o Sharing health and related information o Taking actions to improve/maintain health o Publicly reporting and answering questions about those decisions and/or actions 4
  • 5. Shared Accountability for Health at the Community Level 5 Purpose: • Create an enabling socio/political environment of mutual trust and transparency between the community and the health system • Support the taking of collective responsibility and commitment to shared accountability to improve health service delivery • Contribute to the overall health of the community
  • 6. Basic Principles: Community Health Data Use for Shared Accountability • The community takes the leadership role in running the forum/meeting • Use an existing forum at the community level • The community and the health system both share health and related data/information o Health status, service coverage, disease occurrences, service availability, maternal & infant deaths • Mutually decide on the health priorities and voluntarily commit to taking responsibility for addressing health priorities • Promote transparency and open sharing of data while ensuring privacy and security 6
  • 7. Qualitative Monitoring of Forum Performance 7 Legend: Green = desired performance Yellow = acceptable performance Red = unfavorable situation Health System Shared Information Took Actions Community Shared Information Box 1: Both the health system and the community shared information Box 2: Community provided information; health system acted on it (health system’s responsiveness) Took Actions Box 3: Health system shared information; community acted on it (community engagement in taking action) Box 4: No information was shared, but both the health system and community acted on their own
  • 8. Quantitative Monitoring of Forum Performance 8
  • 9. Shared Accountability: Cases • Disease epidemics: sharing responsibilities and working in tandem o Liberia Ebola crisis  There was widespread noncompliance with government- imposed cremation to prevent viral spread.  Traditional and religious leaders influenced the development of World Health Organization guidelines on safe burials with dignity, which became government policy at the end of 2014.
  • 10. Shared Accountability: Cases • Community-based maternal death surveillance o Accra, Ghana  A modified survey system of community-based reproductive age mortality using six questions was implemented in the Bosomtwa district of Accra o Malawi  Community-linked maternal death review: Communities and health facility staff worked in partnership to investigate and respond to maternal deaths occurring in communities and at health facilities
  • 11. Shared Accountability: Cases • Community-based tuberculosis directly observed treatment, short course (TB-DOTS): accountability on both sides o Mozambique  Clients choose their DOTS with support from the local volunteers, known as padrinhos  Example of community taking responsibility for supervising TB-DOTS  Padrinhos make themselves accountable to the larger community regarding adherence to DOTS by the clients of TB services.
  • 12. This presentation was produced with the support of the United States Agency for International Development (USAID) under the terms of MEASURE Evaluation cooperative agreement AID-OAA-L-14-00004. MEASURE Evaluation is implemented by the Carolina Population Center, University of North Carolina at Chapel Hill in partnership with ICF International; John Snow, Inc.; Management Sciences for Health; Palladium; and Tulane University. Views expressed are not necessarily those of USAID or the United States government. www.measureevaluation.org