These slides were from a presentation by Dr Simon Duffy at the launch of Suunta - the new agency to promote self-directed support in Finland. Dr Duffy outlines some of the main strategies needed for successful implementation and the pitfalls to avoid.
This presentation was given at the 60th Anniversary celebrations for Anffas - the leading agency for people with intellectual disabilities in Italy and a partner in the European SKILLS Project on self-directed support. The slides are mostly in English and provide an overview of self-directed support from a global and human rights perspective.
Making Citizenship Real - what self-directed support is really all aboutCitizen Network
These slides were used as part of a talk to in Finland as advocates and professionals begin to think about what the new policy of personal budgets will mean in practice. Dr Simon Duffy of the Centre for Welfare Reform reflected on some of the international learning on the meaning of self-directed support.
If Self-Directed Support is so good, why is it so hardCitizen Network
Dr Simon Duffy offers an overview of the global and historical development of Self-Directed Support (SDS). This talk was given at an in Control Scotland event in Glasgow in 2020 and builds on the work of the global SDS Network.
Personalised Support - Personal Budgets & Flexible SupportCitizen Network
Simon Duffy explores what we're learning about the Personalised Support at an event for Dorset County Council. This event was also the first event to explain the role of Citizen Network.
This talk was given to some of those leading the design of Australia's NDIS and setting out international and English experience of achievements and pitfalls.
This presentation was given at the 60th Anniversary celebrations for Anffas - the leading agency for people with intellectual disabilities in Italy and a partner in the European SKILLS Project on self-directed support. The slides are mostly in English and provide an overview of self-directed support from a global and human rights perspective.
Making Citizenship Real - what self-directed support is really all aboutCitizen Network
These slides were used as part of a talk to in Finland as advocates and professionals begin to think about what the new policy of personal budgets will mean in practice. Dr Simon Duffy of the Centre for Welfare Reform reflected on some of the international learning on the meaning of self-directed support.
If Self-Directed Support is so good, why is it so hardCitizen Network
Dr Simon Duffy offers an overview of the global and historical development of Self-Directed Support (SDS). This talk was given at an in Control Scotland event in Glasgow in 2020 and builds on the work of the global SDS Network.
Personalised Support - Personal Budgets & Flexible SupportCitizen Network
Simon Duffy explores what we're learning about the Personalised Support at an event for Dorset County Council. This event was also the first event to explain the role of Citizen Network.
This talk was given to some of those leading the design of Australia's NDIS and setting out international and English experience of achievements and pitfalls.
The Talking point is one of the many initiatives from Alzheimer’s society to support people with dementia and their carers through online forum. They alone don’t consider this has as innovation. Through this report I showcase, how the online forum has all the potential to create awareness for all the people who are affected by dementia in all the countries.
Dr Simon Duffy gave this talk in June 2017 to the staff of Community Links and on behalf of DD Network. Simon explores the historical and philosophical background to recent innovations in self-directed support and citizenship. He argues that we should not be looking for a perfect model, but instead should work together to build on best-practice and challenge injustice. Simon also explained why Citizen Network had been formed to advance citizenship for all.
Talk given by Dr Simon Duffy to the Multicultural Community Council of South Australia, exploring the potential for empowerment and human rights in aged care services.
The Talking point is one of the many initiatives from Alzheimer’s society to support people with dementia and their carers through online forum. They alone don’t consider this has as innovation. Through this report I showcase, how the online forum has all the potential to create awareness for all the people who are affected by dementia in all the countries.
Dr Simon Duffy gave this talk in June 2017 to the staff of Community Links and on behalf of DD Network. Simon explores the historical and philosophical background to recent innovations in self-directed support and citizenship. He argues that we should not be looking for a perfect model, but instead should work together to build on best-practice and challenge injustice. Simon also explained why Citizen Network had been formed to advance citizenship for all.
Talk given by Dr Simon Duffy to the Multicultural Community Council of South Australia, exploring the potential for empowerment and human rights in aged care services.
Everybody is rushing in their busy life denying these children for a meal which will cost less than 0.5 % of their monthly salary. Searching for a project in the Community Outreach me and my team encountered with these little kids begging for a meal and we decided that we will provide them a meal and knowledge how they can improve their life in future.
Citizenship & Self-Direction - exploring good practice.Citizen Network
Dr Simon Duffy of the Centre for Welfare Reform gave this talk at the Manawanui In Charge International Conference on Self-Direction in Auckland November 2016. He explores some of the lessons learned internationally about how systems of self-directed support and set out the case for increasing international cooperation through membership of Citizen Network.
This talk was part of a day long seminar with the people of Christchurch who are starting the Enabling Good Lives programme. The talk explores how full citizenship for disabled people demands a very different social system. The final slide sets out the thoughts of the group on the kind of system of Self-Directed Support that people would like to see emerge in Christchurch.
This is the full set of slides given to people, families, services and state officials in South Australia. It includes the hopes and fears of people with disabilities about the forthcoming implementation of NDIS.
Dr Simon Duffy explains that self-directed support is a matter of social justice... but it is constantly threatened by consumerism and bureaucracy. A talk given in Helsinki at event hosted by Suunta.
"Discover impactful ways to support individuals with disabilities. Learn how to make a positive difference in the lives of people with disabilities through advocacy and empowerment."
Discover impactful ways to make a difference in the lives of people with disabilities. Learn how advocacy plays a crucial role and find inspiration to create positive change in this comprehensive guide
Exploring the Reality of Self-Directed SupportCitizen Network
Simon Duffy explores the lessons that can be drawn from the UK experience of self-directed support. He outlines the key features of a good system for people, families and professionals in Perth, WA.
The UK experience of person-centred planning and self-directed supportCitizen Network
Dr Simon Duffy of Citizen Network spoke to Netzwerk Persönliche Zukunftsplanung (the germans speaking community for person-centred planning) at their gathering in Luxembourg 2019. He explored the interaction of person-centred planning with self-directed support and the challenges of implementing social innovations within a time of neoliberal thinking and austerity.
Self-Directed Support - International LearningCitizen Network
There are several myths about self-directed support and what makes it work effectively. This talk was for the Ministry of Health team and their partners and it tries to seperate out the myths from the helpful features of a new system.
Chapter 4 ADVOCACY IN SOCIAL WORK Learning Objectives AWilheminaRossi174
Chapter 4: ADVOCACY IN SOCIAL WORK
Learning Objectives
After reading this chapter, you should be able to
1. Differentiate case advocacy and cause advocacy.
2. Summarize the ethical issues involved in advocacy.
3. Explain how advocacy is a signature aspect of social work practice.
4. Identify costs and benefits associated with advocacy.
5. Describe a cycle of advocacy.
6. List and describe four tenets of the dynamic advocacy model.
Nancy Advocates to Professionalize
Social Work in Her State
Nancy is a SSW-level social worker residing in a state that recognizes and provides licensure only
for MSW-level clinical social workers who have passed a national examination and completed at
least 2 years of supervised clinical experience. The license is what allows clinical social workers
to enter private practice with individuals and families, obtain reimbursement through insurance
companies and other third parties, and tap into public funding sources. In contrast, BSW and
nonclinical MSW social workers have been limited to obtaining state certifications in social work.
These certifications lack credibility with potential clients and funding sources.
In Nancy's state, human service organizations rarely require proof of certificat ion or of a
degree in social work for employment as a social worker in nonclinical settings. So by law,
just about anyone with at least a bachelor's degree can choose to be called a social worker.
People who have majored in psychology, sociology, criminal justice, history, and English routinely
obtain employment in human service and mental health agencies in her state. They often refer
to themselves as social workers, care managers, caseworkers, and intervention specialists. As
a result, the general public believes that the term social worker can be applied to nearly anyone
doing good for others.
Nancy worked hard for her BSW degree and wonders how nonprofessionals can effectively
do the work without the training she has received. It seems to her that the potential for doing
harm is high.
The important point here is that Nancy is thinking and acting as an advocate. To ensure that
clients receive quality services from competent social workers, Nancy works with her National
Association of Social Workers state chapter and local social work educators to promote
state legislation that will establish licensure and title protection for all social workers. As their
recommended changes in state laws are considered, social workers and some client groups
have also been talking with administrators of social work agencies about how important it is to
require that every "social worker" in a human service position have a social work degree and be
appropriately educated.
58 PART 1 Understanding Social Work
A Social workers can act as advocates for their clients by promoting legislation
that has a positive effect on the community.
T he element of social work that grea ...
Networked Energy: Energy independence for AlderneyCitizen Network
by Chris Cook and Marcus Saul, Island Power
As Research Fellows at the Institute for Strategy, Resilience and Security, at University College, London, Marcus Saul and Chris Cook researched and developed the Pacific Natural Grid resource resilience strategy.
Here they explain how Denmark has led the way in creating sustainable networks of community-based energy production and distribution.
This has been transformative for Denmark, enabling it to become independent from the oil and gas industry’s dominance. But it is also transformative for communities, who are now creating their own energy economies.
Dr Dave Beck gave this talk for Part 5 of the ‘Grassroots Policies for Farming, Food and Wildlife’ webinar series, hosted by Citizen Network.
In his presentation Dr Beck discusses the harms caused by the monopolisation of supermarkets in the food industry. He also explores the positive possibilities of local currencies.
Dr Beck is a Lecturer at the University of Salford, Manchester.
The webinar recording is available to watch on Citizen Network's website at: www.citizen-network.org
Simon Duffy gave this presentation at the final conference of the UNIC Project, in Brussels in September 2023, providing an overview of personal budgets and the challenges ahead.
Sabrina Espeleta of War on Want outlines the enormous and growing level of world hunger. She explains how a few global corporations control the vast majority of food production and supply and markets exploit the food market, leaving communities, especially in the Global South at great disadvantage. Local peasant farmers are now organising to achieve food sovereignty, seeking to farm in ways in harmony with nature and to meet local needs. The Global North needs to respect the rights and autonomy of these people rather than to continue the pattern of exploitation.
This presentation was given on 6 July in Part 4 of a webinar series on grassroots policies for farming, food and wildlife.
Watch the recording at: https://citizen-network.org
Simon Duffy was asked by the Mayor’s Greater Manchester Charity and UBI Lab Manchester to talk at a recent roundtable event on the relevance of Universal Basic Income (UBI) to the problem of homelessness.
These are the slides from that talk. In summary Duffy argued that UBI is relevant to reducing homelessness in two slightly different ways:
1. UBI would help prevent homelessness - UBI addresses the inequalities in income and housing that create the risk of homelessness.
2. UBI would help people escape homelessness - UBI gives people a vital tool which significantly helps people change their situation in times of crisis.
Find more free resources on basic income at: www.citizen-network.org
A presentation for the One Yorkshire Committee introducing Democratic Yorkshire - a voluntary alliance consisting of a group of organisations and individuals interested in planning a better future for our County through modern democratic means secured in a written constitution.
In this presentation exploring planning law, Laird Ryan talks us through the planning process, explores what we can and can't influence and helps us consider how best to create real, organic and local alliances that make the best use of our energy.
To find out more about the Neighbourhood Democracy Movement please visit: https://neighbourhooddemocracy.org
Citizenship is our Business - The Avivo StoryCitizen Network
Avivo is one of the founding organisations in Citizen Network. they are also pioneers in self-direction and personalised support in Australia. Over the past few years they have been reorganising themselves around the principle that everyone is a citizen - and supporting everyone, including paid staff, to be citizens is their central purpose. Avivo are also leading Citizen Network's Rethinking Organisations programme and networking with other organisations on this journey.
Dr Simon Duffy spoke to Doncaster's Mental Wellbeing Alliance about the importance of thinking about what good help really means. He explored the importance of shifting power, resources and thinking upstream.
Markus Vähälä, CEO of Citizen Network, outlined the development of the cooperative as a framework to support the further development of Citizen Network as part of the 2022 Building Citizen network Together events hosted by Eberswalde University.
At BuildingCitizen Network Together in early 2022 Simon Duffy and James Lock discussed the development of Citizen Network and its current approach to membership and explored with members from all around the world next steps for its development.
These slides are from a talk Dr Simon Duffy of Citizen Network gave to Café Economique in Leeds, making the case for basic income. The argument set out is that UBI is one necessary part of a range of reforms necessary to support citizenship and strengthen community life. This talk preceded a (rather fiery) debate with Anna Coote of NEF who argued against UBI.
Simon Duffy gave this talk for Radical Visions on home, citizenship, institutionalisation and neighbourhood democracy. He explains why institutions are wrong and what we might be do to end the drive towards institutionalisation.
A presentation for the Estia International Confernce in 2021 from Dr Simon Duffy exploring personal budgets, citizenship and community and the challenges for services aiming to work in partnership with people with disabilities in Greece.
An example of good practice in inclusion in employment from Slovenia, shared at the Day Centres Without Walls conference, hosted by JDC in Lithuania. Day Centres Without Walls is an Erasmus+ project funded by the EU.
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Donate to charity during this holiday seasonSERUDS INDIA
For people who have money and are philanthropic, there are infinite opportunities to gift a needy person or child a Merry Christmas. Even if you are living on a shoestring budget, you will be surprised at how much you can do.
Donate Us
https://serudsindia.org/how-to-donate-to-charity-during-this-holiday-season/
#charityforchildren, #donateforchildren, #donateclothesforchildren, #donatebooksforchildren, #donatetoysforchildren, #sponsorforchildren, #sponsorclothesforchildren, #sponsorbooksforchildren, #sponsortoysforchildren, #seruds, #kurnool
RFP for Reno's Community Assistance CenterThis Is Reno
Property appraisals completed in May for downtown Reno’s Community Assistance and Triage Centers (CAC) reveal that repairing the buildings to bring them back into service would cost an estimated $10.1 million—nearly four times the amount previously reported by city staff.
About Potato, The scientific name of the plant is Solanum tuberosum (L).Christina Parmionova
The potato is a starchy root vegetable native to the Americas that is consumed as a staple food in many parts of the world. Potatoes are tubers of the plant Solanum tuberosum, a perennial in the nightshade family Solanaceae. Wild potato species can be found from the southern United States to southern Chile
Synopsis (short abstract) In December 2023, the UN General Assembly proclaimed 30 May as the International Day of Potato.
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Working with data is a challenge for many organizations. Nonprofits in particular may need to collect and analyze sensitive, incomplete, and/or biased historical data about people. In this talk, Dr. Cori Faklaris of UNC Charlotte provides an overview of current AI capabilities and weaknesses to consider when integrating current AI technologies into the data workflow. The talk is organized around three takeaways: (1) For better or sometimes worse, AI provides you with “infinite interns.” (2) Give people permission & guardrails to learn what works with these “interns” and what doesn’t. (3) Create a roadmap for adding in more AI to assist nonprofit work, along with strategies for bias mitigation.
Monitoring Health for the SDGs - Global Health Statistics 2024 - WHOChristina Parmionova
The 2024 World Health Statistics edition reviews more than 50 health-related indicators from the Sustainable Development Goals and WHO’s Thirteenth General Programme of Work. It also highlights the findings from the Global health estimates 2021, notably the impact of the COVID-19 pandemic on life expectancy and healthy life expectancy.
Preliminary findings _OECD field visits to ten regions in the TSI EU mining r...OECDregions
Preliminary findings from OECD field visits for the project: Enhancing EU Mining Regional Ecosystems to Support the Green Transition and Secure Mineral Raw Materials Supply.
3. There is 50 years of experience of doing self-directed support - all
around the world - good progress mixed with common challenges
4. • The intellectual case for
self-directed support is
strong and it is emerging
as the new norm
everywhere.
• Increasingly people are
recognising that it is an
issue of basic human
rights - not an option.
• The challenge is to build
systems that make it an
easy and natural way of
doing things.
6. Article 1 of the UN Declaration of Human Rights states:
All human beings are born free and equal in dignity and
rights. They are endowed with reason and conscience and
should act towards one another in a spirit of brotherhood.
The first principle defined by the UN Convention on the
Rights of Persons with Disabilities (UNCRPD) is:
Respect for inherent dignity, individual autonomy including
the freedom to make one’s own choices, and independence
of persons.
7.
8.
9. Old model of Professional Gift Model of service delivery:
1. Community funds the state
2. State funds professionals
3. Professionals decide what people need
4. Person receives support as a gift, not a right
10. Self-Directed Support is based on the Citizenship Model:
1. Citizens are in control of their own lives
2. Citizens live as part of a community
3. Citizen have entitlements to support
4. Citizen shape the support they need
11. • Independent Living Movement - Ed Roberts in Berkely
California in 1960s
• Family Movement - Canadian brokerage movement in
1970s
• Deinstitutionalisation - social role valorisation and the
movement for inclusion in 1980s
• Human Rights - UN Convention on Rights of Disabled
People - 2006
• AND - Public service reform - BUT competing goals
14. 1. People find out if they are entitled to support and if they
are entitled to a budget - Rights
2. People make plans, with help from family, friends and
sometimes professionals to decide what they want to
do, using their real wealth (which includes, but is not
limited to their budget) - Freedom
3. People live their life, getting the mixture of paid and
unpaid support that works for them - Participation
4. People meet their needs, but in a way that is consistent
with their goals, and they share what they’ve learned
with the community - Citizenship
15.
16.
17. But it is not easy…
1. People lack knowledge of what they are entitled to
2. People are not free to plan and set their own goals
3. People are not allowed to use resources creatively
4. People are not seen as equal citizens
19. • Good News I - Research shows self-directed support
helps people lead better lives
• Good News II - Research sometimes shows people can
lead better lives and it doesn’t cost more
• Bad News I - Research rarely helps us understand what
elements of SDS help the most
• Bad News II - Research is rarely focused on citizenship,
rights or inclusion - i.e. studying the wrong thing
35. What the research suggests is that Self-Directed Support
works because:
1. People can focus on things they really want to do
2. People can stop doing things they don’t value
3. People can select professional support they really value
4. People can use budget to enhance their community life
5. It is NOT about markets or competition
37. 1. People would be told their personal budget as early as possible so that they
knew whether they were entitled to support and if so, how much.
2. People could make their own plans, with the people they wanted to.
3. People would finalise and agree their plan with the social worker who worked
for the local authority.
4. People could take this budget as cash or ask for it to be managed for them by
the local authority or by a third party.
5. People can use their budget flexibly and either organise their own support or
pay someone else to organise their support for them.
6. The objective is to enable the person to get on to live their own life as a full
citizen, actively involved in their community.
7. The review process should be human and should focus on whether the
person is safe, living well and able to follow their own goals.
43. • People with physical disabilities may need much less help
around decision-making and may want to employ their own
personal assistants. Hence Self-Directed Support or independent
living often focuses on employment of your own staff team.
• People with intellectual disabilities may need more help with
decision-making and this has led to a greater focus on advocacy
or brokerage systems.
• Older people may be much less likely to employ staff and may
be more willing to purchase services from existing community
organisations.
• People with mental health problems may be focused on
solutions that include counselling and peer support to provide
support while making decisions.
50. 1. Independent living - we have the right to be a citizen with full access to ordinary lives - I
have a right to live my life in a way that makes sense to me.
2. Entitlement - we are each entitled to enough support to achieve citizenship - I have a right
to enough support and also the right not to be over-supported.
3. Freedom - we should be in control of our own lives - I have a right to make decisions
about how I live my life and, if needed, I have a right to be supported by people who know
me and love me to make those decisions with me.
4. Openness - we should be clear about any rules or systems - I have a right to be told
clearly and simply how the system of entitlement works and how the rules affect me;
including how much money I am entitled to for my support.
5. Flexibility - we should be free to use our own entitlements as we see fit - I have a right to
use my money in any way that helps me to live my life; including the freedom to take risks,
make mistakes and learn from them.
6. Learning - we should share what we are learning to help everyone - I have a responsibility
to share with others what I have learnt, what works for me and what doesn’t work for me.
7. Contribution - we have a responsibility to contribute and to build stronger communities - I
have a right and a responsibility to use my skills, talents and knowledge to play a full part
as a citizen in my community.
51. What speeds things up
• Permissive legislation and guidance
• Positive national policy
• Examples of creative innovation
• Examples of good leadership
• Learning from each other
52. What slows things down
• Low level of public knowledge, people only experience
these problems when disability or illness affects their own
family
• Fears and resistance from many professionals
• Unequal access to Self-Directed Support, where some
groups are seen as lacking capacity or as too difficult to
be able to achieve greater control
• Administrative complexity at a local level
53. Good strategies…
1. Support pioneers - Encourage practical change in the real world or identify existing
innovations and help people seem them as part of the new wave of change. Unless change
seems real most people will not be persuaded.
2. Build understanding - Share stories, research and accessible materials that make the new
ideas seem exciting and positive.
3. Keep innovating - Develop a pro-innovation approach to change, instead of fixating on
one model encourage people to share good examples and learn from each other. Welcome
new ideas and help people to see how different ideas can fit together.
4. Work from the inside - Build alliances with frontline workers and managers who want to
make changes and ensure that solutions also help solve problems within existing systems.
Create legitimacy for making these changes within the systems that need to change.
5. Go public - Develop a social movement for change which encourages people to see these
ideas as relevant to their lives. The Australian campaign Every Australian Counts is a good
example of creating an inclusive campaign for change with a positive message.
54. A bad strategy…
In 2008 the Government in England decided
to spend €700,000,000 (£0.5 billion) on
implementing self-directed support.
This money was almost entirely wasted on
management consultancy, new
management jobs, IT projects. When the
money stopped in 2011 no significant
systemic progress had been achieved.
Worse, this process undermined the real
innovation and reduced the capacity of
systems to innovate in the future.
It is like pouring gasoline on your fields.
55.
56. Give a man a fish and he
eats for a day
Teach a man to fish and
he will eat for ever
Pay a consultant to
provide a new system for
fishing…
…he will drain the river
and sell you plastic fish
57. Who to trust, instead
1. People with disabilities
2. Families
3. Frontline workers & social workers
4. People who’ve done it already
58. Hanne-Maria Leppäranta, who is a social
worker and a mother has developed a good
approach to setting budgets which is:
• Simple
• Ethical
• Cost control
for example…
https://www.tampere.fi/tiedostot/h/FciG4436j/raportti_laskentamalli.pdf
https://www.tampere.fi/sosiaali-ja-terveyspalvelut/valinnanvapauskokeilu/
henkilokohtainen-budjetti.html
64. Now and Next recasts
the relationship between
the professional and the
parent through
combining the spirit of
person-centred
planning, peer support
and enabling
professionals and
families to work
together as true equals -
respecting the ultimate
authority of the family.
65.
66. Katrina’s son Jonathan has complex
health needs. He has a tracheostomy
and needs to take a breathing unit with
him at all times. He suffers from severe
epilepsy, which requires rectal
medication for treatment. He has severe
curvature of the spine, is double-jointed
and has hypotonia. His health
assessment described him as having
severe learning disabilities, severe
behavioural problems, global
development delays and no speech. He
also has bilateral deafness and eczema.
In the last 3 years before leaving school
Jonathan spent 150 days in hospital
with breathing problems. After leaving
school Jonathan had support that was
recruited and controlled by his mum,
and funded by an integrated personal
budget. There were no more stays in
hospital; he had a job where he was
valued and earned several
qualifications; his life changed for the
better.
67.
68.
69. 1. Ensuring people always have peer support available
2. Encouraging the development of cooperatives to provide support
3. Putting in place systems to monitor and protect funding levels
4. Creating systems of advocacy in partnership with trade unions
5. Enabling businesses the ability to develop transformation plans to
change their models of support in a planned way
6. Ensure people can use personalised support and systems like Individual
Service Funds rather than being forced to take on all responsibilities
7. Ensure systems are accountable to people with disabilities and families
and that they are innovating working to develop higher standards
What I wish I had done
70. Finally
1. Just do it - learn - repeat
2. Keep it simple - build
systems everyone
understand
3. Use your talents - don’t look
for salvation from outside
4. Don’t waste money on
consultants: keep change
cheap
5. Trust those who have
proved trustworthy