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Launch of ESDSN - European SDS Network
This document outlines the concept of self-directed support, which gives individuals more control over their support and assistance. It discusses the history and principles of self-directed support, including the importance of individual rights, flexibility, clarity, and community involvement. Research shows self-directed support can improve people's lives while potentially reducing costs. The document proposes creating a European network to promote self-directed support principles and share best practices between countries in order to strengthen individual rights and inclusion.
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Launch of ESDSN - European SDS Network
- 1. Self-Directed Support creating aEuropean network
- 2. Self-Directed Support • It isnot new - it has been growing since the 1960s. • It can be found in lots of places around the world. • It has been successful, but slow to grow. • It creates new opportunities and new risks.
- 3. “We are obligedto surrender to the will of the strong. Big companies, cities and municipalities decide what is best for us. This is about power. Why do I feel a lack of power in my own life?” Sami Helle at European Parliament, November 2013
- 4. Research • Positive outcomes (often) negativeoutcomes (never) • Can cost less, can cost more • Tends to increase demand • Design matters - there are big differences between different systems
- 6. English data 2003-2005,first In Control pilot
- 7.
- 13. Design Matters 1. Rights- secure foundations 2. Control - person focused 3. Clarity - transparent 4. Flexibility - high in options 5. Ease of use - low in burdens 6. Community - connectivity 7. Sustainability - evolving
- 14.
- 15. Support should notbe a professional gift it should be an entitlement
- 16. The government money fallacy itcan’t always be government money: where did government get it from?
- 17.
- 18. The right personmust have responsibility control as close to the person as possible
- 19. Needs are met- but met in ways that are shaped by the person.
- 20.
- 21. Systems ration resourcesin different ways ! 1.by responding to crises or requests 2.by creating waiting lists for places 3.by professional assessment 4.by public rules for entitlements 5.by negotiation
- 23. Clarity about moneyseems to improve how people plan and how willing the system is to provide flexibility. But it can be corrupted.
- 24.
- 25. Flexible funding helpspromote greater community involvement
- 27. 5. Easy touse
- 28. Resistance to innovationoften leads to increases in complexity.
- 29. • Big support plans • Complexresource assessments • Lengthy processes for review and decisions • Intrusive bureaucracy and monitoring • Multiple and conflicting funding streams • Weak incentives to take control • Regulations and inspections
- 30.
- 31.
- 32. Self-directed support seeksto move money into community - in different ways.
- 33. This includes howpeople take control.
- 34.
- 35. Self-directed support demandsa new way of managing - NOT the middle
- 36. Its about citizenship- NOT services
- 37.
- 38.
- 39. • The efficiencies canbe turned into cuts not improvements • Service providers can be cut out of the process and not encouraged to play a full part • The system can burden people with unnecessary burdens and confusion
- 40. Service providers led themove to self-directed support and can play a positive role
- 41. One useful approachis to offer ISFs flexible managed funds
- 42. Research on useof ISFs - Choice Support
- 43. People, staff andfamilies saw major improvements as savings were also made
- 44. Major improvements wereseen in every area of life and support.
- 45. impact on services • Changesthe security - not the system, but people • Changes the purpose - not quality, but citizenship • Changes the means - not services, but community • Changes the politics - not funding, but rights
- 46. We want toexplore how best Europe can embrace self-directed support and ensure it promotes citizenship and community
- 47. • Can we createa European movement for selfdirected support to focus on the right things? • Can we put civil society, community and persons with disabilities at the heart of the movement? • Can we encourage experimentation and learning between European countries? • Can we help the European Union strengthen their support for real human rights and inclusion?
- 48. Ideas for European Self-DirectedSupport Network ! Mission ! To help persons with disabilities across Europe to achieve full citizenship by reforming systems for funding assistance and meeting the human rights of people with disabilities.
- 49. Ideas for European Self-DirectedSupport Network Objectives 1.To identify systems of self-directed support used in Europe 2.To identify and share good practice 3.To identify obstacles to good practice 4.To create a network of champions for self-directed support across Europe (of interested organisations, people with disabilities and families) 5.To build alliances with other groups who are using selfdirected support (not just people with disabilities) 6.To help improve European policy-making on self-directed support
- 50. Partnership We need partnersin all of the objectives. We need to • meet, share, learn • make research, build strategies • grow a network • use social media and easy to access -tools • organise events, lobby, publish papers • find ways for service producers to help • work together to promote people’s right to access full citizenship
- 51. The European Self-‐Directed Support Network Do you want to join in? Contacts Aarne Rajalahti Development Manager Service Foundation for People with Intellectual Disabilities aarne.rajalahti@kvps.fi +358 40 517 4447 Dr Simon Duffy Director The Centre for Welfare Reform simon@centreforwelfarereform.org +44 7729 7729 41 Your logo here? ☺
- 52. © Simon Duffy.Rights Reserved. Full copyright details at www.centreforwelfarereform.org