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Monica Nogueira
Ponseti International
4420 – Sudeste Brazil
How Rotarians can help
erradicate disability from clubfoot
Congenital
Talipes
Equino-
Varus
Muscle & tendon
imbalance in the lower leg
leading to skeletal
deformity in the foot-ankle.
NOT due to:
Fetal
positioning
Lunar eclipse
Ancestral curse
Birth control
pills
Poor nutrition
Polio
Witchcraft
Twin births, etc.
• Approximately 1 in every 750 live births
• Twice as common in males as in females
• Occurs in both feet half of the time
• 200,000 clubfoot children born annually
• 100,000’s of “neglected” cases (~1 Million)
• No social or economic influences
Never married, depend on government help for living
problem
An 8 year old Nigerian boy
with primary neglected
clubfoot.
Abandoned to live with his
grandmother.
Discovered crawling around
in a rural village by medical
students on an outreach visit.
RILWAN
OTAVIO, 7 year old boy from Peixe Boi – PA , Brazil
Did not go to school
Because colleagues called
him
“crippled” and other names
The PONSETI METHOD
• Gentle manipulation and stretching
• Series of precisely applied plaster casts
• Percutaneous tenotomy (most cases)
• Wear brace while sleeping to age four
Ignacio V. Ponseti
(1914-2009)
 The Ponseti Method is unquestionably the “Gold
Standard” for correcting clubfoot deformity.
 Bracing is critical for maintaining the correction.
 Costs of current “state-of-the-art” clubfoot braces range
from $500 per year to more than $2,500.
 These braces are used almost exclusively in higher-income
countries.
 In low-resource countries, most braces:
– Are made using low-quality, locally available materials.
– Lack important design features.
– Often cause skin problems and disuse, resulting in
return of the deformity.
Ponseti
Method
Partner with/support clubs in low-resource areas:
• Help form the Rotarian Action Group and recruit Rotarians around the world
to band together.
• Support training of local health professionals.
• Assist families and caregivers with logistical support, including
transportation, housing, food, and other needs.
• Assist families with the provision of night-time braces to complete Ponseti
treatment.
• Assist with public awareness to reduce the stigma, to spread the message
that “Clubfoot is treatable”, and to promote early referral to appropriate
treatment centers.
• Advocate with governments and health officials to provide the facilities and
resources to treat clubfoot deformity.
•Help form the Rotarian Action Group and
recruit Rotarians around the world to work
together.
Support training of local health professionals
Assist families and caregivers with logistical support,
including transportation and housing
Support bracing to complete treatment
Raise Public
Awareness
THE UGANDA CLUBFOOT PROJECT
The Children’s Orthopaedic Rehabilitation Project, The Rotary Foundation, Canadian
International Development Agency , Ugandan Ministry of Health, Makerere University
Medical School Department of Orthopaedics
A 4 Year Rotary project to enable Ugandan healthcare
professionals to treat Ugandan children with clubfeet
All children in Uganda born with
Clubfeet will
• be identified at birth
• have access to Ponseti treatment
Guatemala
• Starting in 2010, 7 clubs in Districts
5970 & 6000 raised $25,000.
• Partnered with Club Rotario La
Ermita in Guatemala City.
• In-country workshop for 15 MDs.
• In 2012, 3 doctors attended the
International Symposium & had
additional training in Iowa.
Workshop on
Clubfoot
Exhibit Booth 65
December 2014
RILWAN
Treated with Ponseti
method using five
casts.
Now walks independently
without pain and is enrolled in
school for the first time.
His mother first
came to the clinic
on the day the
last cast was
removed.
HOW A CHILD CAN CHANGE...
Rotarian Action
Group
RAG4clubfoot
Global support for Awareness, training and Treatment
World free from clubfoot disability
www.RAG4CLUBFOOT.org
www.RAG4CLUBFOOT.org
Establishing a Rotarian Action Group
to eliminate clubfoot disability.
Email: info@rag4clubfoot.org
You can sign-up to join the effort to
create RAG4CLUBFOOT by visiting
the website.
Charter District members:
6000, 5970, 5240, 5020, 9640
and 5950

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How Rotarians Can Help Eradicate Disability From Clubfoot Birth Defect

  • 1. Monica Nogueira Ponseti International 4420 – Sudeste Brazil How Rotarians can help erradicate disability from clubfoot
  • 3. Muscle & tendon imbalance in the lower leg leading to skeletal deformity in the foot-ankle. NOT due to: Fetal positioning Lunar eclipse Ancestral curse Birth control pills Poor nutrition Polio Witchcraft Twin births, etc.
  • 4. • Approximately 1 in every 750 live births • Twice as common in males as in females • Occurs in both feet half of the time • 200,000 clubfoot children born annually • 100,000’s of “neglected” cases (~1 Million) • No social or economic influences
  • 5.
  • 6.
  • 7. Never married, depend on government help for living problem
  • 8. An 8 year old Nigerian boy with primary neglected clubfoot. Abandoned to live with his grandmother. Discovered crawling around in a rural village by medical students on an outreach visit. RILWAN
  • 9. OTAVIO, 7 year old boy from Peixe Boi – PA , Brazil Did not go to school Because colleagues called him “crippled” and other names
  • 10. The PONSETI METHOD • Gentle manipulation and stretching • Series of precisely applied plaster casts • Percutaneous tenotomy (most cases) • Wear brace while sleeping to age four Ignacio V. Ponseti (1914-2009)
  • 11.  The Ponseti Method is unquestionably the “Gold Standard” for correcting clubfoot deformity.  Bracing is critical for maintaining the correction.
  • 12.  Costs of current “state-of-the-art” clubfoot braces range from $500 per year to more than $2,500.  These braces are used almost exclusively in higher-income countries.  In low-resource countries, most braces: – Are made using low-quality, locally available materials. – Lack important design features. – Often cause skin problems and disuse, resulting in return of the deformity.
  • 14. Partner with/support clubs in low-resource areas: • Help form the Rotarian Action Group and recruit Rotarians around the world to band together. • Support training of local health professionals. • Assist families and caregivers with logistical support, including transportation, housing, food, and other needs. • Assist families with the provision of night-time braces to complete Ponseti treatment. • Assist with public awareness to reduce the stigma, to spread the message that “Clubfoot is treatable”, and to promote early referral to appropriate treatment centers. • Advocate with governments and health officials to provide the facilities and resources to treat clubfoot deformity.
  • 15. •Help form the Rotarian Action Group and recruit Rotarians around the world to work together.
  • 16. Support training of local health professionals
  • 17. Assist families and caregivers with logistical support, including transportation and housing
  • 18. Support bracing to complete treatment
  • 20. THE UGANDA CLUBFOOT PROJECT The Children’s Orthopaedic Rehabilitation Project, The Rotary Foundation, Canadian International Development Agency , Ugandan Ministry of Health, Makerere University Medical School Department of Orthopaedics A 4 Year Rotary project to enable Ugandan healthcare professionals to treat Ugandan children with clubfeet All children in Uganda born with Clubfeet will • be identified at birth • have access to Ponseti treatment
  • 21. Guatemala • Starting in 2010, 7 clubs in Districts 5970 & 6000 raised $25,000. • Partnered with Club Rotario La Ermita in Guatemala City. • In-country workshop for 15 MDs. • In 2012, 3 doctors attended the International Symposium & had additional training in Iowa.
  • 23. RILWAN Treated with Ponseti method using five casts. Now walks independently without pain and is enrolled in school for the first time. His mother first came to the clinic on the day the last cast was removed.
  • 24. HOW A CHILD CAN CHANGE...
  • 25. Rotarian Action Group RAG4clubfoot Global support for Awareness, training and Treatment World free from clubfoot disability www.RAG4CLUBFOOT.org
  • 26. www.RAG4CLUBFOOT.org Establishing a Rotarian Action Group to eliminate clubfoot disability. Email: info@rag4clubfoot.org You can sign-up to join the effort to create RAG4CLUBFOOT by visiting the website. Charter District members: 6000, 5970, 5240, 5020, 9640 and 5950