Derick Mitchell_Biobanking from the patient perspective.pdfipposi
IPPOSI CEO Derick Mitchell presented the patient perspective on biobanking at the 2023 WECAN Academy for Cancer Patient Advocates on July 2nd, 2023 in Frankfurt, Germany.
Mental Health - Leading the data sharing charge with a rights-based approachipposi
Frankie Prendergast's (Digital Health Applications Programme Manager in St Patrick's Mental Health Services) presentation on health information at the 2023 IPPOSI Conference.
Derick Mitchell_Biobanking from the patient perspective.pdfipposi
IPPOSI CEO Derick Mitchell presented the patient perspective on biobanking at the 2023 WECAN Academy for Cancer Patient Advocates on July 2nd, 2023 in Frankfurt, Germany.
Mental Health - Leading the data sharing charge with a rights-based approachipposi
Frankie Prendergast's (Digital Health Applications Programme Manager in St Patrick's Mental Health Services) presentation on health information at the 2023 IPPOSI Conference.
Muiris O'Connor, Assistant Secretary of the Department of Health, presented key government updates on health information at the 2023 IPPOSI Conference Building a Data Sharing Health Sector in Ireland.
Clinical Workflow for Capture of Patient Registry Dataipposi
Clare Harney, Managing Director of HD Health, gave a lightning presentation on managing data for patient registries at the 2023 IPPOSI Conference on Building a Data Sharing Health Sector in Ireland.
EU Clinical Trials Regulation - IPPOSI perspectiveipposi
IPPOSI CEO, Dr Derick Mitchell delivered a presentation on the EU Clinical Trials Regulation from the patients' perspective at the 20th International Conference on Pharmaceutical Medicine, Athens, Greece.
Patient Centricity in Value-based healthcare, Sept 2022ipposi
IPPOSI CEO Derick Mitchell delivered a presentation as part of the RCSI Value Based Healthcare Webinar on Patient Centricity on Sept 18th, 2022.
The Future of Value Based Healthcare in Ireland webinar series is run by The RCSI Healthcare Outcomes Research Centre, Janssen Sciences Ireland UC and Novartis Ireland.
2022 World Day Brain Event - IPPOSI Presentationipposi
Laura Kavanagh, Research and Advocacy Manager in IPPOSI, gave a presentation on World Brain Day 2022 at an event hosted by the Neurological Alliance of Ireland.
In October 2020, IPPOSI published a membership engagement survey on its draft 4-year strategy. This slide deck captures the summary results of the survey.
IPPOSI CEO Derick Mitchell delivered a presentation on Dec 6th 2019 at the Digital health Conference, organised as part of the Royal College of Physicians, Ireland
On 14 November 2019, our Research and Advocacy Manager, Laura Kavanagh delivered this presentation on ‘the Drug Iceberg report’ to participants at the Retina Roundtable. The Roundtable kicked off a three-day conference around the topic of ‘Evidence Generation for Access to Innovative Therapies’. IPPOSI was asked to outline the access to medicine challenges faced by patients in Ireland, including the health technology assessment (HTA) and post-HTA processes.
Overview of the Haemophilia Patient Record System. Presentation by Declan Noone, President, European Haemophilia Consortium, originally presented at the IPPOSI Annual Conference 2019
A National Electronic Health Record (EHR), is a comprehensive solution that supports the creation and sharing of key patient information. It is a core capability required for the future delivery of healthcare. This presentation is an update on current state of play with EHRs in the Irish public health system.
Presented by Vincent Jordan, Delivery Director of ICT Services to Acute Hospitals, Office of Chief Information Officer, HSE at the IPPOSI Annual Conference 2019
Muiris O'Connor, Assistant Secretary of the Department of Health, presented key government updates on health information at the 2023 IPPOSI Conference Building a Data Sharing Health Sector in Ireland.
Clinical Workflow for Capture of Patient Registry Dataipposi
Clare Harney, Managing Director of HD Health, gave a lightning presentation on managing data for patient registries at the 2023 IPPOSI Conference on Building a Data Sharing Health Sector in Ireland.
EU Clinical Trials Regulation - IPPOSI perspectiveipposi
IPPOSI CEO, Dr Derick Mitchell delivered a presentation on the EU Clinical Trials Regulation from the patients' perspective at the 20th International Conference on Pharmaceutical Medicine, Athens, Greece.
Patient Centricity in Value-based healthcare, Sept 2022ipposi
IPPOSI CEO Derick Mitchell delivered a presentation as part of the RCSI Value Based Healthcare Webinar on Patient Centricity on Sept 18th, 2022.
The Future of Value Based Healthcare in Ireland webinar series is run by The RCSI Healthcare Outcomes Research Centre, Janssen Sciences Ireland UC and Novartis Ireland.
2022 World Day Brain Event - IPPOSI Presentationipposi
Laura Kavanagh, Research and Advocacy Manager in IPPOSI, gave a presentation on World Brain Day 2022 at an event hosted by the Neurological Alliance of Ireland.
In October 2020, IPPOSI published a membership engagement survey on its draft 4-year strategy. This slide deck captures the summary results of the survey.
IPPOSI CEO Derick Mitchell delivered a presentation on Dec 6th 2019 at the Digital health Conference, organised as part of the Royal College of Physicians, Ireland
On 14 November 2019, our Research and Advocacy Manager, Laura Kavanagh delivered this presentation on ‘the Drug Iceberg report’ to participants at the Retina Roundtable. The Roundtable kicked off a three-day conference around the topic of ‘Evidence Generation for Access to Innovative Therapies’. IPPOSI was asked to outline the access to medicine challenges faced by patients in Ireland, including the health technology assessment (HTA) and post-HTA processes.
Overview of the Haemophilia Patient Record System. Presentation by Declan Noone, President, European Haemophilia Consortium, originally presented at the IPPOSI Annual Conference 2019
A National Electronic Health Record (EHR), is a comprehensive solution that supports the creation and sharing of key patient information. It is a core capability required for the future delivery of healthcare. This presentation is an update on current state of play with EHRs in the Irish public health system.
Presented by Vincent Jordan, Delivery Director of ICT Services to Acute Hospitals, Office of Chief Information Officer, HSE at the IPPOSI Annual Conference 2019
2. Jury Mission
To what extent should we increase the use of
genomics in Irish health care and research in
the coming years?
Is the increased use of genomics in Irish health
care and research an opportunity or a
challenge 1) for individuals 2) for the public
health system?
Is genomic information more sensitive than
other types of health information (e.g. mental
health, sexual health)? Should there be special
safeguards for this type of information? What
do these safeguards look like?
4. Jury Verdict – plus patient survey!
Appropriate use
National programme
Data Security
Consent
Public engagement
5. Delivered in Partnership
• Royal College of Surgeons Ireland, Public
Patient Involvement (PPI) Office + FutureNeuro
• based on the Citizens’ Jury verdict, organising
additional discussions in November 2022
• Thanks to our sponsors:
• IPPOSI financial reserves + unrestricted grants from
• Irish Society for Human Genetics
• Roche (Ireland)
• Pfizer (USA)