Patient Centricity in Value-based healthcare, Sept 2022
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IPPOSI CEO Derick Mitchell delivered a presentation as part of the RCSI Value Based Healthcare Webinar on Patient Centricity on Sept 18th, 2022. The Future of Value Based Healthcare in Ireland webinar series is run by The RCSI Healthcare Outcomes Research Centre, Janssen Sciences Ireland UC and Novartis Ireland.
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Patient Centricity in Value-based healthcare, Sept 2022
- 1. Who are IPPOSI? We are a patient-led organisation that works with patients, science & industry to put patients at the heart of health innovation Irish Platform for Patient Organisations, Science and Industry
- 2. What do we do, and how? • In-person/virtual conferences • Training programmes • Digital discussions & podcasts • Matchmaking • Member resources • Coalitions and networks • Citizens’ juries EDUCATION ADVOCACY INFORMATION
- 3. ACCESS TO INNOVATION PATIENT & PUBLIC INVOLVEMENT DIGITAL HEALTH & INFORMATION We have three priority areas
- 4. 4 ‘Patient Centricity’ in Irish Healthcare 1.Individual patient experience of healthcare Patient co-design of care services Patient co-production of service delivery Patient representation + high-level involvement in strategy, policy, oversight Meaningful PPI Partner Opportunities + Training
- 5. 5 ‘Learning Framework of Involvement’ for Health POLICY-LEVEL • National Patient Involvement Unit in Dept. of Health • Chief Patient Officer - akin to Chief Medical/Nursing/Clinical Officers SERVICES • Co-designed Roadmap for Healthcare Services • Establish a vision for what ‘success’ looks like and a ‘mission’ to achieve it • Mechanisms, supports, education, skills-training for patients, professionals • Resourced to coordinate at national, regional, local levels RESEARCH + INNOVATION • Embed PPI in ideation and early-stage development of new innovations Measures Evidence Practice Learning
- 6. 6 Building a new Irish healthcare + research environment • Board of the Health Service Executive (HSE) • HSE Rare Disease Tech Review Committee • National Clinical Effectiveness Committee • Steering Group of Health Innovation Hub • Health Products Regulatory Authority Patient Forum • PPI reviewers in Health Research Funder (HRB) • University-based National PPI Network • National Research Ethics committees • Many, many more... In 2022, Patient Advocates are members of the
- 8. 8 The many Ps of patient & public involvement
- 9. www.ipposi.ie info@ipposi.ie @ipposi Irish Platform for Patient Organisations, Science and Industry
Editor's Notes
- 1
- 2022 – citizens’ jury on the future use of genomics in healthcare and research in Ireland 2021 – citizens’ jury on access to health information for secondary purposes 2021 – three digital discussions & three podcasts on digital health: Ireland’s preparedness, European commitments, Citizen/patient involvement 2021 – patient coalition around access to the COVID-19 vaccines 2019 – conference on EHRs 2019 - Charter on Medicines Assessment and Reimbursement Ongoing – modules on clinical trials, medicines regulation, health technology assessment – and soon research ethics – and potentially digital health Ongoing – match patients completing our training with available PPI opportunities Ongoing – prepare resources to help members with their own education or advocacy – e.g. PPI mapping, national and EU consultation responses, toolkits and briefing notes Ongoing – campaign to raise awareness about the importance of building a digital health future Ongoing – network of graduates and ENP linked to EUPATI
- Access to innovation – tackles issues around the health technology assessment process and the reimbursement process for new medicines – engage with NCPE, HSE Drugs Group, IPHA Patient and Public involvement – facilitate the inclusion of more patient voices – engage with senior management in the national health service, the University-based National Patient & Public Involvement Network, research funders, individual companies Understanding patient data – explores how we can get maximum benefit from our health data, while protecting the rights of individuals to privacy and consent – engage with the Department of Health and other relevant state agencies at the policy level Also have a long standing priority of rare diseases Everything we have achieved has been in partnership with others!
- ‘Mantra’ more than a reality Individual patient experience of healthcare ----not just patient safety/harm/complaints Five aspects Innovation in Disability Services----Mental Health Services---Dementia Role for Patient Organisations – Service Delivery, Research, Innovation
- DECISION-MAKING-------SERVICE DEVELOPMENT------SERVICE MANAGEMENT Not the national patient safety office within (future) research call topics / proposal development / evaluation / delivery
- Efforts to improve public and patient involvement (PPI) across the health sector in Ireland are ongoing, with many recognising that PPI is an integral part of effective and quality health policy development, service design and improvement, research, and industry work processes. Health services in Ireland are including patient voices in decision making to a greater extent now than ever before. The Department of Health is working with IPPOSI and other relevant patient-led organisations in areas such as rare diseases, dementia, disability-organisations and others. Inclusivity of approaches still under question. Lack of rights-based approaches. No connectivity between the advocates in these committees – influence is questionable without this. We’ve been actively advocating for a national approach and plan, well supported, with local and regional aspects
- The many Ps of patient & public involvement PPI requires people with a passion and a purpose with a place to meet and a payment for their involvement. It requires a willingness to pursue policy change with perserverance and persistence while mindful of the need for preactical application and partnership with the health system.