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@SusannahFox @PewResearch

The Who, What, Where, When & Why of
Health Care Social Media
@SusannahFox @PewResearch

How do we know that social media is
important to health care?
U.S.: 91% own a cell phone
U.S.: 63% of cell phone owners use mobile internet
U.S.: 85% use the internet
What do we mean by “lower income”?
• Based on reported annual household income
• Categories collected: <10k, 10-20k, 20-30k, 30-40k,
40-50k, 50-75k, 75-100k, 100-150k, and 150k+
• Around 10-20% of respondents typically don’t report
(or don’t know) income
• Limited ability to subdivide the lower-income
population. But it tends to skew towards non-white;
youth and seniors; low education; urban/rural
National averages:
• 85% of U.S. adults are internet users
• 70% of U.S. adults have some sort of high-speed
home internet connection (DSL, cable, FIOS, etc)
Which means that…
• 15% of U.S. adults do not go online from any
device/location (Group 1)
• 15% of U.S. adults go online, but do not have
broadband at home (Group 2)
Internet use & broadband by income

1

2
U.S.: 78% of internet users watch or
download online videos
U.S.: 7 in 10 internet users have a
profile on a social networking site
Worldwide: 86% Own Cell Phones
% Own a cell phone

Based on median % across 12 nations where 2012, 2011, 2010, 2007 and 2002 data are
available.
Use of Social Networking Sites
70
68
63

*Respondents who do not use the internet.
Based on total sample. “Don’t know/Refused” not shown.
@SusannahFox @PewResearch

What does this have to do with health
care?
U.S.: Clinicians are central, but still a node on
an information network
39% of U.S. adults are caregivers
U.S.: 45% of adults live with chronic conditions
• 25% high blood pressure
• 13% asthma, bronchitis, emphysema, or other lung
conditions
• 11% diabetes
• 7% heart disease, heart failure, or heart attack
• 3% cancer
• 16% any other chronic problem or condition
• 24% live with 1 condition; 20% live with 2+ conditions
• 80% of adults living with 1 condition have internet access,
compared with 61% of those living with 2+ conditions
U.S.: Different sources for different information
@SusannahFox @PewResearch

What does the future hold?
Web 2.0: “When the web began to
harness the intelligence of its users.” –
Tim O’Reilly
@SusannahFox @PewResearch

Michael Pollan:
Eat food. Not too much. Mostly plants.
@SusannahFox @PewResearch

7-word wisdom contest:
Call mom. Let her talk. Don’t argue.
@SusannahFox @PewResearch

My advice to Health 2.0:
Recruit clinicians. Let e-patients lead. Go mobile.
@SusannahFox @PewResearch

My advice to you:
Listen in. Share your wisdom. Encourage others.
Thank you!
Susannah Fox
Pew Research Center
sfox@pewinternet.org
@SusannahFox
Reports, data sets: pewinternet.org
Blog: susannahfox.com

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Susannah Fox at Einstein College of Medicine October 2013

  • 1. @SusannahFox @PewResearch The Who, What, Where, When & Why of Health Care Social Media
  • 2. @SusannahFox @PewResearch How do we know that social media is important to health care?
  • 3. U.S.: 91% own a cell phone
  • 4. U.S.: 63% of cell phone owners use mobile internet
  • 5. U.S.: 85% use the internet
  • 6. What do we mean by “lower income”? • Based on reported annual household income • Categories collected: <10k, 10-20k, 20-30k, 30-40k, 40-50k, 50-75k, 75-100k, 100-150k, and 150k+ • Around 10-20% of respondents typically don’t report (or don’t know) income • Limited ability to subdivide the lower-income population. But it tends to skew towards non-white; youth and seniors; low education; urban/rural
  • 7. National averages: • 85% of U.S. adults are internet users • 70% of U.S. adults have some sort of high-speed home internet connection (DSL, cable, FIOS, etc) Which means that… • 15% of U.S. adults do not go online from any device/location (Group 1) • 15% of U.S. adults go online, but do not have broadband at home (Group 2)
  • 8. Internet use & broadband by income 1 2
  • 9. U.S.: 78% of internet users watch or download online videos
  • 10. U.S.: 7 in 10 internet users have a profile on a social networking site
  • 11. Worldwide: 86% Own Cell Phones % Own a cell phone Based on median % across 12 nations where 2012, 2011, 2010, 2007 and 2002 data are available.
  • 12. Use of Social Networking Sites 70 68 63 *Respondents who do not use the internet. Based on total sample. “Don’t know/Refused” not shown.
  • 13. @SusannahFox @PewResearch What does this have to do with health care?
  • 14. U.S.: Clinicians are central, but still a node on an information network
  • 15. 39% of U.S. adults are caregivers
  • 16.
  • 17. U.S.: 45% of adults live with chronic conditions • 25% high blood pressure • 13% asthma, bronchitis, emphysema, or other lung conditions • 11% diabetes • 7% heart disease, heart failure, or heart attack • 3% cancer • 16% any other chronic problem or condition • 24% live with 1 condition; 20% live with 2+ conditions • 80% of adults living with 1 condition have internet access, compared with 61% of those living with 2+ conditions
  • 18. U.S.: Different sources for different information
  • 20. Web 2.0: “When the web began to harness the intelligence of its users.” – Tim O’Reilly
  • 21. @SusannahFox @PewResearch Michael Pollan: Eat food. Not too much. Mostly plants.
  • 22. @SusannahFox @PewResearch 7-word wisdom contest: Call mom. Let her talk. Don’t argue.
  • 23. @SusannahFox @PewResearch My advice to Health 2.0: Recruit clinicians. Let e-patients lead. Go mobile.
  • 24. @SusannahFox @PewResearch My advice to you: Listen in. Share your wisdom. Encourage others.
  • 25. Thank you! Susannah Fox Pew Research Center sfox@pewinternet.org @SusannahFox Reports, data sets: pewinternet.org Blog: susannahfox.com

Editor's Notes

  1. {"16":"Caregivers turn up the volume on every information resource.\nFull report: http://pewinternet.org/Reports/2013/Family-Caregivers.aspx\n","5":"Demographics of internet users: http://pewinternet.org/Trend-Data-(Adults)/Whos-Online.aspx \n","22":"The New York Times Well blog held a 7-word wisdom contest in 2008. This was my personal favorite.\n","11":"Based on surveys conducted in U.S., Britain, France, Germany, Poland, Russia, Turkey, Jordan, Lebanon, China, Pakistan, and Mexico.\nUpdated data from the Pew Research Center: http://www.pewglobal.org/topics/mobile-devices/ \n","17":"Full report will be published on pewinternet.org \n","23":"Also in 2008, I gave a speech at a Health 2.0 conference and boiled down all the evidence I’d collected thus far about how health care was changing because of technology. The advice still stands.\n","12":"Updated data from the Pew Research Center: http://www.pewglobal.org/topics/mobile-devices/ \n","18":"Full report: http://pewinternet.org/Reports/2011/Social-Life-of-Health-Info.aspx \nFor example: http://66roses.blogspot.com/2013/06/creating-and-sustaining-collaborative.html\nAlso: http://e-patients.net/archives/2012/07/health-care-hackers.html\nAnd: http://www.sciencedirect.com/science/article/pii/S1525505011005609\n","24":"Now, in 2013, for this audience of clinicians – faculty and students at the Albert Einstein College of Medicine and related institutions – I have crafted a new summary phrase.\nThe tools are in place. The culture is changing. People expect to be connected to information and to each other. We are still at the beginning. This is all about being human: talking, learning, sharing. \n","2":"To answer, I’ll share stories, like: http://66roses.blogspot.com/2013/06/creating-and-sustaining-collaborative.html\nAnd I’ll share data from the Pew Research Center’s national and international surveys because the findings serve as a mirror (to see yourselves as you really are) and a window (to see into other people’s lives and situations).\n","8":"Full presentation: http://pewinternet.org/Presentations/2013/Oct/Technology-Adoption-by-Lower-Income-Populations.aspx \n","14":"Clinicians are still central – and most of the conversation and care is still happening offline. It is not too late for you to join in.\nFull report: http://pewinternet.org/Reports/2013/Health-online.aspx \n","3":"Focus on the top line: 9 in 10 U.S. adults have a cell phone. Most use text messaging. There is copious evidence that text messaging can be used for effective health interventions, such as for “nudges” like smoking cessation and other wellness reminders, medication reminders, appointment setting and reminders, etc.\nFor example: http://innovations.ahrq.gov/issue.aspx?id=102 \nAlso: http://mobihealthnews.com/26432/text2quit-hits-75000-users-32-percent-quit-rate/\nUpdated version of this chart: http://pewinternet.org/Trend-Data-(Adults)/Device-Ownership.aspx\n","20":"Slide courtesy of E-patient Dave deBronkart: http://epatientdave.com/ and Lucien Engelen: http://www.linkedin.com/in/lucienengelen\nInsight from Dave: connections among people are like capillaries, carrying nutrients and creating new processes. There is no substitute for the trained mind to put information in context but there is also no shame in a clinician not knowing a piece of information found by a layman.\n","9":"Video is an opportunity to reach low-literacy populations with effective health education messages.\n50% of online video watchers say they watch educational videos.\nFull report: http://pewinternet.org/Reports/2013/Online-Video.aspx \n","15":"Caregivers often provide second-degree internet access for people who are offline. \nFull report: http://pewinternet.org/Reports/2013/Family-Caregivers.aspx\n","4":"Non-whites: Among those who use their phone to go online, six in ten Hispanics and 43% of African-Americans are cell-mostly internet users, compared with 27% of whites. \nYoung adults: Half of cell internet users ages 18-29 mostly use their cell phone to go online. \nThe less-educated: Some 45% of cell internet users with a high school diploma or less mostly use their phone to go online, compared with 21% of those with a college degree.\nThe less-affluent: Similarly, 45% of cell internet users living in households with an annual income of less than $30,000 mostly use their phone to go online, compared with 27% of those living in households with an annual income of $75,000 or more.\n","21":"Michael Pollan is one of my favorite authors because he collects all the complicated evidence we need to take into account when making choices about what we eat, but then he boils it down to a simple 7 word phrase to help guide us.\n","10":"Updated fact sheet on social networking site use in the U.S.: http://pewinternet.org/Commentary/2012/March/Pew-Internet-Social-Networking-full-detail.aspx \n"}