Weighing in on Social Media for Diabetes Educators


Published on

Weighing in on Social Media
Hands-On Social Media Workshop

ADEU -- Association of Diabetes Educators of Utah
Update Pre-Conference Workshop
November 4, 2009
Presented by Nancy Lombardo, MLS;
Todd Vandenbark, MLS/TM;
Ginny Burns, CDE, RN, MEd;
Grant Sunada, MPH

Published in: Health & Medicine, Technology
  • Be the first to comment

  • Be the first to like this

No Downloads
Total views
On SlideShare
From Embeds
Number of Embeds
Embeds 0
No embeds

No notes for slide
  • Another change is happening concurrently. As health economist Jane Sarasohn-Kahn writes, health-related social technologies capture “the exchange of health information and personal stories in a way that transcends both medical textbooks and chatting with a friend on the phone – yet offers some of the benefits of both.”
  • Certain demographic groups are more likely than others to look online for information about a specific disease or medical problem. These differences have also changed very little over the past six years.
  • It turns out that e-patients’ enthusiasm for social media is not limited to activities related to health. Internet users who have looked online for health information are more likely than non-health seekers to have created or worked on their own blog, read someone else’s blog, used a social network site, used Twitter or another status update service, and to have consulted Wikipedia. Even when controlling for age, education, and other variables, being an e-patient emerges as a significant predictor for other social media engagement. http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/03-Social-Media-and-Health/3-Epatients-are-more-likely-than-other-internet-users-to-engage-in-social-media.aspx?r=1
  • [In addition] When asked, "Now thinking about all the sources you turn to when you need information or assistance in dealing with health or medical issues, please tell me if you use any of the following sources..." 86% of all adults ask a health professional, such as a doctor. 68% of all adults ask a friend or family member. 57% of all adults use the internet. 54% use books or other printed reference material. 33% contact their insurance provider. 5% use another source not mentioned in the list.  “ Social Life of Health Information”, Susana Fox, Pew Internet
  • About two-thirds of e-patients ages 18-49 have done at least one of the activities listed, compared with one-half of e-patients age 50 and older.  http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/03-Social-Media-and-Health/ There are signs that change is coming: First, mobile access is on the rise. Those with mobile access to the internet are more likely than those who have tethered access to contribute their comments and reviews to the online conversation about health and health care.  Second, adults between the ages of 18 to 49 are more likely than older adults to participate in social technologies related to health. As younger adults face more health care questions and challenges, they may turn to the tools they have sharpened in other contexts of their lives to gather and share health advice. But in the end, experts remain vital to the health-search and decision-making process. This practice “will not budge” and therefore require designers of any new health care application “to look not ahead, but to look around” in order to see the way forward (John Seely Brown and Paul Duguid, The Social Life of Information. Harvard Business School Press: 2000). http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/06-Trends-to-Watch/1-Mobile-access-and-generational-shifts-will-each-have-an-effect-on-social-media-and-health-care.aspx?r=1
  • Add – On July 16, the National Institutes of Health and the Wikimedia Foundation, the nonprofit organization that operates the Wikipedia® online encyclopedia, joined forces to make health and science information more accessible and reliable. This collaboration was the first of its kind for both organizations. http://www.nih.gov/news/health/jul2009/od-14.htm
  • Frustrated – Was our Web site really addressing people’s questions? People call in with questions, but we are not doing patient care. Our hands were tied, but we could refer them. Then what though? How do we know what happened to them. There were national, online, diabetes communities, but nothing local.
  • We never dreamed that it would be this big. Ginny knew the system and the educators – who else could help these people navigate the system? Bolster existing networks.
  • Used Web 1.0 technology (e-mail and html) to do Web 2.0 activities.
  • 1 st of 3 examples – Ask Ginny helps identify and address community needs, market and improve local resources, and share information and personal stories
  • Spike during KUTV Ask the Expert Time on page
  • Utah cities and towns are highlighted, many of which are distant and rural communities.
  • CDE becomes moderator Twitter – Microblogging, 140 characters On Twitter: # designates a keyword (or hashtag such as #diabetes) and @ directs the message to someone (such as @AskGinny) Links are usually shortened urls, so you should specify the source of the link: http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html Becomes http://bit.ly/3X0jG
  • Try http://www.blogspot.com, http://www.wordpress.com, Linking to Twitter and using Google Analytics are all just options. Only put on your plate as much as you can handle.
  • Ning – Personalize-able Facebook where CDE becomes the moderator Discussions are already happening among CDEs on AADEs Facebook page 10,000~ people “touched by diabetes” are on TuDiabetes.com (which is Ning-based)
  • Created a series of interconnected web sites and applications that are easier to publish to, follow, link to, search for, share, and comment on.
  • Ning – Personalize-able Facebook Moderator – Twitter – Microblogging, 140 characters
  • http://www.ncbi.nlm.nih.gov/sites/entrez/ Search: osteoarthritis african american women
  • http://twitter.com/PublicHealth
  • http://twitter.com/NPHW
  • In theory, you should be able to configure your blog once, and never again have to think about the software. With the most basic blogging software, such as Blogger.com, this is definitely the case. It takes 15 to 30 minutes to set up a blogger account and create your first blog. After that, you more or less just type in your latest blog entry and click “Publish”. The more serious you become about blogging, the more complex the software becomes and the more likely it is that you’ll need to get your hands dirty tweaking html, css, php and other types of code. WordPress and Movable Type are examples of complex but powerful blogging programs.
  • Most blogs have a comments area to facilitate feedback and conversation, though some sites have had to moderate or disable comments due to the prevalence of spam. Comments let browsers respond to the initial blog post, but also lets them respond to other comments, so you can have a conversation with dozens or hundreds of participants. Most blogs also have permalinks and RSS feeds. The homepage of a blog has multiple posts and changes constantly, while a permalink sends folks to static, unchanging copy of a single post. We’ll discuss RSS feeds a bit later.
  • The newest entries appear at the top of the home page, and older entries move down the page, eventually disappearing from the home page altogether. All posts are automatically archived by date so that visitors can still access older posts. Links to the archived posts can usually be found on the left or right-hand side of the home page.
  • The characteristics of good blog writing are similar to the characteristics of good web writing in general. Keep paragraphs short and make frequent use of bulleted or numbered lists. Make the title of each post as descriptive as possible. Draw people into your blog by discussing your own feelings and experiences. Popular blogs reveal the individual voice and personality of the author.
  • Show the following examples: http://nnlm.gov/scr/blog/?p=176 (South Central Region post-Katrina) http://nnlm.gov/gmr/blog/2008/06/17/regional-flooding-storm-reports/ (GMR post-midwest flooding)
  • http://www.medworm.com/ Grunt Doc: http://gruntdoc.com/ Health, Science & Libraries, http://mblog.lib.umich.edu/hsldir/ JMLA Case Studies in Health Sciences Librarianship, http://jmlacasestudies.blogspot.com/ On the Wards, http://onthewards.com/ Running a Hospital, http://runningahospital.blogspot.com/ Life as a Healthcare CIO, http://geekdoctor.blogspot.com/ More where this came from: http://del.icio.us/gmrtechcood/astho2008
  • There is an About link – Good sign, not much information Google the authors or editors – Matthew Holt http://www.matthewholt.net/ Follow the Background page – For my resume click here – 1991 - 1993 M.S. in Health Services Research , Stanford University 1989 - 1990 M.A. in Political Science, Stanford University 1982 - 1985 B.A. (Honours), Social and Political Science, Cambridge University, England Experience is relevant. John Irvine – Can’t pin down his background or education – Beware!
  • Weighing in on Social Media for Diabetes Educators

    1. 1. ADEU Update Pre-Conference Workshop November 4, 2009 Presented by Nancy Lombardo, MLS; Todd Vandenbark, MLS/TM; Ginny Burns, CDE, RN, MEd; Grant Sunada, MPH Weighing in on Social Media Hands-On Social Media Workshop
    2. 2. Objectives <ul><li>Be able to define “Web 2.0” technologies and describe their characteristics </li></ul><ul><li>Learn how to apply relevant Web 2.0 technologies </li></ul><ul><li>Practice using some of the technologies </li></ul><ul><li>Discuss ways to incorporate Web 2.0 into your professional life </li></ul><ul><li>Have fun! </li></ul>
    3. 3. Overview <ul><li>Web 2.0 definitions </li></ul><ul><li>What is Social Software? </li></ul><ul><ul><li>What is it good for? </li></ul></ul><ul><li>Web 2.0 and Diabetes </li></ul><ul><ul><li>Our conundrum </li></ul></ul><ul><ul><li>How to start? </li></ul></ul><ul><li>Social Networking: Listening, Connecting, Creating </li></ul><ul><ul><li>Listening: RSS – Hands On </li></ul></ul><ul><ul><li>Connecting </li></ul></ul><ul><ul><ul><li>“ Micro-blogging” (Twitter) – Hands On </li></ul></ul></ul><ul><ul><ul><li>Facebook – Hands On </li></ul></ul></ul><ul><ul><li>Creating: Blogs – Hands On </li></ul></ul><ul><li>Questions </li></ul><ul><li>Conclusions </li></ul>
    4. 5. Diabetes in Utah <ul><li>More than 120,000 Utah adults (6%) have been diagnosed with diabetes 1 </li></ul><ul><li>13.3% of Utah adults with diabetes are uninsured 2 </li></ul><ul><li>Utah Health Status Survey (2007-2008). Office of Public Health Data. Utah Department of Health, Salt Lake City, UT </li></ul><ul><li>Utah BRFSS 2005-2008 </li></ul>
    5. 6. Why in Utah <ul><li>Minorities have risen from 1.9% (1960) to 17.7% (2007) 1 </li></ul><ul><li>Disparities exist in age-adjusted percentages of Utahns with diabetes by race & ethnicity 2 </li></ul><ul><li>Pamela S. Perlich, http://health.utah.gov/cmh/data/UtahDemographicTransformation.pdf </li></ul><ul><li>Diabetes in Utah (2008), http://health.utah.gov/diabetes/pdf/fctsandfig/diabetesinutah_book_May08.pdf </li></ul>American Indian Pacific Islander African American Non-Hispanic White Asian American Hispanic/Latino
    6. 7. Our society is changing … so is the World Wide Web
    7. 8. Web 2.0 Definitions
    8. 9. Web 2.0 <ul><li>Static </li></ul><ul><li>Lecture </li></ul><ul><li>Expert-Model </li></ul><ul><li>Interactive </li></ul><ul><li>Conversation </li></ul><ul><li>Consumer [Patient]-Model </li></ul><ul><li>Public wants to have all the information </li></ul><ul><ul><li>From multiple sources </li></ul></ul><ul><ul><li>In ways they can understand </li></ul></ul><ul><ul><li>From experts AND peers </li></ul></ul><ul><ul><li>When they want it </li></ul></ul>Web 1.0 <ul><li>http://www.brochure2blog.org/ </li></ul>
    9. 10. What Is Web 2.0? <ul><li>Originally coined by Tim O’Reilly of O’Reilly Publishing in 2003 </li></ul><ul><li>Classic article: </li></ul><ul><ul><li>http://www.oreillynet.com/pub/a/oreilly/tim/news/2005/09/30/what-is-web-20.html </li></ul></ul><ul><ul><li>User participation </li></ul></ul><ul><ul><li>Harnessing the collective intelligence </li></ul></ul><ul><ul><li>Design for &quot;hackability&quot; and remixability </li></ul></ul>
    10. 11. Wikipedia Definition <ul><li>“ 2 nd generation Internet services that let people collaborate and share information online in previously unavailable ways” (wikipedia) </li></ul><ul><ul><li>Blogs, wikis, photo / video sharing sites, social networking sites </li></ul></ul><ul><ul><li>Online web services that share data (“mashups”) </li></ul></ul>
    11. 12. Two Sides of Web 2.0 <ul><li>Two-Way Communication </li></ul><ul><li>(“Social Software”) </li></ul><ul><ul><li>Creates conversations between people </li></ul></ul><ul><ul><li>Examples </li></ul></ul><ul><ul><ul><li>Blogs </li></ul></ul></ul><ul><ul><ul><li>Wikis </li></ul></ul></ul><ul><ul><ul><li>Photo/video sharing </li></ul></ul></ul><ul><ul><ul><li>Social networks </li></ul></ul></ul><ul><li>Web Services </li></ul><ul><ul><li>Software online </li></ul></ul><ul><ul><ul><li>Google Tools </li></ul></ul></ul><ul><ul><ul><li>Protopage.com/websoft </li></ul></ul></ul><ul><ul><li>Mashups </li></ul></ul><ul><ul><ul><li>Photos overlaid on Google Earth </li></ul></ul></ul><ul><ul><li>Embed services </li></ul></ul><ul><ul><ul><li>Google custom search engine, Google calendar, etc. </li></ul></ul></ul>
    12. 13. Two Sides of Web 2.0 With social media, people communicate with each other. With web services, machines communicate by sharing data.
    13. 14. What is Social Software?
    14. 15. Whoa, but what is it good for? <ul><li>Sharing with others </li></ul><ul><li>Creating knowledge bases </li></ul><ul><li>Making connections </li></ul><ul><li>Building communities </li></ul><ul><li>Engaging colleagues </li></ul><ul><li>Empowering patients </li></ul><ul><li>All of these things and more! </li></ul>
    15. 16. The “Digital Divide”
    16. 17. A Possible Bridge: Mobile Access <ul><ul><li>~32% of all adults having ever gone online with a handheld (2009): </li></ul></ul><ul><ul><ul><li>48% of African Americans </li></ul></ul></ul><ul><ul><ul><li>47% of  English-speaking  Hispanics </li></ul></ul></ul><ul><ul><ul><li>53% of those between the ages of 18 and 29 </li></ul></ul></ul><ul><ul><ul><li>39% of college graduates </li></ul></ul></ul><ul><ul><ul><li>28% of white Americans </li></ul></ul></ul>http://www.pewinternet.org/Reports/2009/12-Wireless-Internet-Use.aspx
    17. 18.
    18. 19. Generation Gap <ul><li>Older generations use the Internet for </li></ul><ul><ul><li>information searches, </li></ul></ul><ul><ul><li>emailing, and </li></ul></ul><ul><ul><li>buying products (2009). </li></ul></ul><ul><li>More likely than younger generations to look online for health information. </li></ul><ul><li>Health questions drive those age 73 and older to the internet just as frequently as they drive Generation Y users, outpacing teens by a significant margin </li></ul>
    19. 20. “ Get health info” http://www.slideshare.net/PewInternet/generations-online-in-2009-charts
    20. 21. http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/02-A-Shifting-Landscape/2-61-of-adults-in-the-US-gather-health-information-online.aspx?r=1
    21. 22. Web 2.0 & Diabetes <ul><li>8 in 10 internet users (regardless of health status) look online for health info 1 </li></ul><ul><ul><li>AKA e-Patients </li></ul></ul><ul><li>86% of internet users living with a disability or chronic illness have looked online for health information 2 </li></ul><ul><ul><li>compared with 79% of internet users with no chronic conditions </li></ul></ul><ul><li>Just half of adults with chronic conditions use the internet 2 </li></ul><ul><ul><li>But once online, they are avid consumers of health information </li></ul></ul><ul><li>http://www.pewinternet.org/trends/User_Demo_Jan_2009.htm </li></ul><ul><li>S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx </li></ul><ul><li>S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx </li></ul>
    22. 23. Web 2.0 and Diabetes (cont.) <ul><li>E-patients living with a chronic condition are more likely than others to say that online info: </li></ul><ul><ul><li>Affects decisions about how to treat an illness </li></ul></ul><ul><ul><li>Prompts new questions of a doctor </li></ul></ul><ul><ul><li>Changes the way they cope with a chronic condition or manage pain 1 </li></ul></ul><ul><li>However, they feel frustrated by a lack of info or an inability to find what they are looking for </li></ul><ul><li>S. Fox, http://www.pewinternet.org/Reports/2007/Epatients-With-a-Disability-or-Chronic-Disease.aspx </li></ul><ul><li>S. Fox, http://e-patients.net/archives/2009/01/doing-our-best-to-blow-your-minds-emerging-trends-in-chronic-disease-care.html </li></ul>
    23. 24. Our Conundrum <ul><li>Most people under age 40 are fully engaged with “social media” </li></ul><ul><ul><li>but not yet dealing with chronic illness </li></ul></ul><ul><li>Most people over 60 are starting to face chronic conditions </li></ul><ul><ul><li>but are not participating in social media </li></ul></ul><ul><li>This is changing, but what do we do??? </li></ul><ul><li>S. Fox, E-patients With a Disability or Chronic Disease, http://www.pewinternet.org/trends.asp </li></ul>
    24. 25. Provide the Best Information Using the Best Communication Methods <ul><li>Don’t just tell people what to do </li></ul><ul><ul><li>Try to empower them to be better consumers of health information </li></ul></ul><ul><li>Make it easier to distinguish good information from bad </li></ul><ul><ul><li>Rise above junk-info </li></ul></ul><ul><ul><li>User-generated content is here to stay </li></ul></ul><ul><ul><li>Real risk is for diabetes professionals to be quiet </li></ul></ul><ul><li>Tailor content and delivery to the audience </li></ul><ul><ul><li>Encourage their participation </li></ul></ul><ul><ul><li>Promote dialogue </li></ul></ul><ul><ul><li>Enable people to tell their personal stories </li></ul></ul><ul><li>http://www.brochure2blog.org/ </li></ul>
    25. 26. How to proceed or even start? <ul><li>People generally don’t believe that the Internet is a panacea 1 </li></ul><ul><ul><li>But it is empowering patients like never before 2 </li></ul></ul><ul><li>What do you do now? </li></ul><ul><ul><li>Listen </li></ul></ul><ul><ul><li>Connect </li></ul></ul><ul><ul><li>Create </li></ul></ul><ul><li>S. Fox, http://www.pewinternet.org/Reports/2008/The-Engaged-Epatient-Population.aspx </li></ul><ul><li>e-Patients: How they can help us heal healthcare, http:// www.acor.org/epatientswiki/index.php / </li></ul>
    26. 27. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th   http://twitter.com/fooducate/statuses/4998762906
    27. 28. Developing a strategy: Identify Target Audiences, Goals and Mediums <ul><li>Starting point – Utah Diabetes Prevention and Control Program </li></ul><ul><ul><li>Knew that online resources provided general information about diabetes </li></ul></ul><ul><ul><li>Received a lot of requests for more specific, local information </li></ul></ul>
    28. 29. Forward to Local Expert* Local Diabetes Questions Local Answers ???? * “Local Expert” not necessarily a diabetes expert
    29. 30. Identify Target Audiences, Goals & Mediums <ul><li>Goal – Help connect the members of our community who have diabetes </li></ul><ul><ul><li>Support each other </li></ul></ul><ul><ul><li>Gain a better understanding of our disease </li></ul></ul><ul><ul><li>Connect with local resources </li></ul></ul>
    30. 31. Forward to Local Diabetes Expert Record for Public Reference Local Answers Local Diabetes Questions
    31. 32.
    32. 33. Addressing a Community Need <ul><li>Gestational patient </li></ul><ul><ul><li>High glucose levels </li></ul></ul><ul><ul><li>Difficulty getting into a free clinic and sliding-scale fee clinic </li></ul></ul><ul><li>Calls were made in her behalf </li></ul><ul><li>Led to a discussion with medical directors </li></ul>
    33. 34. Improving local resources <ul><li>Patient had Primary Care Network insurance </li></ul><ul><ul><li>Had questions about diabetes pump supplies </li></ul></ul><ul><ul><li>Called state office but information was confusing for patient and PCN staff </li></ul></ul><ul><li>Notified State office </li></ul><ul><li>Arranged for more training for PCN staff members about diabetes products </li></ul>
    34. 35. Sharing Information & Experiences <ul><li>Hypoglycemia question </li></ul><ul><ul><li>Individual had a chance to describe her unique symptoms </li></ul></ul><ul><li>Sends note back saying it was helpful to understand she was not alone </li></ul>
    35. 36.
    36. 38. Entrance Keywords <ul><li>What did a person type into their search engine to find Ask Ginny? </li></ul><ul><ul><li>cost of insulin pump utah </li></ul></ul><ul><ul><li>carbohydrates lip tingle </li></ul></ul><ul><ul><li>colds and flu medication for diabetics </li></ul></ul><ul><ul><li>carbohydrate grams for pre diabetes vegetarian </li></ul></ul><ul><ul><li>my ears are buzzing help i'm a diebetic </li></ul></ul><ul><ul><li>minimed supplies utah </li></ul></ul><ul><ul><li>diabetes ideal glucose number </li></ul></ul><ul><ul><li>blue cross blue shields of utah diabetic pump coverage </li></ul></ul><ul><ul><li>where to purchase a minimed insulin pump in utah </li></ul></ul><ul><ul><li>i am a type 1 diabetic..should i exercise when i have a cold </li></ul></ul><ul><ul><li>diabetes type 2 grams of carbs for dinner </li></ul></ul><ul><ul><li>how many grams of sugar is o.k. on a daily basis for someone with type 2 diabetes </li></ul></ul><ul><ul><li>how many grams of carbohydrates are in 1 piece of pumpkin pie </li></ul></ul><ul><ul><li>is there a place where i can get a free high blood check in salt lake city, utah </li></ul></ul><ul><ul><li>diabetes help utah </li></ul></ul><ul><ul><li>program for uncontrolled diabetes </li></ul></ul><ul><ul><li>questions to ask on diabetes </li></ul></ul><ul><ul><li>i had a glucose level of 104 but my a1c was normal </li></ul></ul><ul><ul><li>blocked nose and low glucose levels </li></ul></ul><ul><ul><li>gestational diabetes vegetarian menu </li></ul></ul>
    37. 39. Intermountain Healthcare Intranet <ul><li>Improved interactions between </li></ul><ul><ul><li>Provider-Patient </li></ul></ul><ul><ul><li>Provider-Provider </li></ul></ul><ul><li>Patient-Patient? </li></ul><ul><ul><li>We know that it is powerful </li></ul></ul>
    38. 40. Think globally, but … what can you do locally? <ul><li>Create a public or private Twitter account </li></ul><ul><ul><li>Example from Frankie95 1 </li></ul></ul><ul><ul><li>Option to connect via Internet and/or text messages </li></ul></ul><ul><ul><li>Connect with other CDEs </li></ul></ul><ul><ul><li>Connect patients together </li></ul></ul><ul><ul><li>Limited to 140 characters </li></ul></ul><ul><ul><ul><li>Provide links to in-depth information </li></ul></ul></ul><ul><li>http://www.rikomatic.com/blog/2009/06/twitter-as-an-event-organization-tool-our-experience-with-the-frankie-95-birthday-festival.html </li></ul>
    39. 41. Think globally, but … what can you do locally? <ul><li>Create a local diabetes Q&A blog </li></ul><ul><ul><li>Try Blogspot , Wordpress or others </li></ul></ul><ul><ul><li>Set up to receive questions and comments via e-mail </li></ul></ul><ul><ul><li>Patients can also respond to questions </li></ul></ul><ul><ul><ul><li>Moves beyond Q&A </li></ul></ul></ul><ul><ul><li>Link to Twitter account with TwitterFeed </li></ul></ul><ul><ul><li>Use keywords (“meta-tags”) to increase people’s ability to find your blog </li></ul></ul><ul><ul><ul><li>Remember to track your web traffic with Google Analytics , Wordpress or others </li></ul></ul></ul>
    40. 42. Think globally, but … what can you do locally? <ul><li>Join or create a diabetes social network on Facebook.com or Ning.com </li></ul><ul><ul><li>Join an existing national or international network </li></ul></ul><ul><ul><ul><li>AADE on Facebook </li></ul></ul></ul><ul><ul><ul><li>TuDiabetes.com </li></ul></ul></ul><ul><ul><li>Connect local support groups </li></ul></ul><ul><ul><ul><li>Create a local identity </li></ul></ul></ul><ul><ul><ul><li>Local diabetes educators and experienced e-patients become “moderators” </li></ul></ul></ul>
    41. 43. Next steps for Ask Ginny <ul><li>Converted Ask Ginny to a Blogspot blog </li></ul><ul><li>Linked blog to Twitter </li></ul><ul><li>Linked both to a Facebook Page </li></ul><ul><li>Creation of “Ask Ginny & Friends” </li></ul><ul><ul><li>Improved sustainability </li></ul></ul>
    42. 44. Next steps for diabetes in Utah <ul><li>Create a tool for diabetes educators and professionals under the working title </li></ul><ul><ul><li>Online Family & Community Health Center </li></ul></ul><ul><li>Use empowerment education model 1 to help those affected by diabetes: </li></ul><ul><ul><li>Reflect on self-management experiments </li></ul></ul><ul><ul><li>Discuss the emotional experience of living with diabetes </li></ul></ul><ul><ul><li>Engage in systematic patient-centered goal setting and problem solving </li></ul></ul><ul><ul><li>Answer clinical questions and provide culturally tailored education materials </li></ul></ul><ul><li>Martha M. Funnell, Robin Nwankwo, Mary Lou Gillard, Robert M. Anderson, and Tricia S. Tang. Implementing an Empowerment-Based Diabetes Self-management Education Program. The Diabetes Educator, 2005, 31: 53-61. </li></ul>
    43. 45. Next steps for diabetes in Utah <ul><li>Target audience </li></ul><ul><ul><li>Uninsured people affected by, or at risk for, diabetes </li></ul></ul><ul><ul><li>Those who care for and care about them </li></ul></ul><ul><li>Reach </li></ul><ul><ul><li>Partner with universities to conduct market research </li></ul></ul><ul><ul><li>Explore public kiosks, public libraries, ATMs and elementary schools </li></ul></ul><ul><ul><li>Utilize text messages, existing media channels and support groups </li></ul></ul><ul><li>Launch – First Phase – World Diabetes Day (14 November 2009) </li></ul><ul><ul><li>The Faces of Diabetes in Utah </li></ul></ul><ul><ul><li>Inspired by local girl scout </li></ul></ul><ul><ul><li>Current site – http://inspiredbydiabetes.blogspot.com </li></ul></ul><ul><ul><li>Future site – http://health.utah.gov/facesofdiabetes </li></ul></ul>
    44. 46. Social Networking
    45. 47. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th   http://twitter.com/fooducate/statuses/4998762906
    46. 48. Listen, Connect, Create
    47. 49. RSS - Listen and Connect <ul><li>R eally S imple S yndication </li></ul><ul><ul><li>Subscribe to information “feed” </li></ul></ul><ul><ul><ul><li>Receive updates automatically </li></ul></ul></ul><ul><li>“ Current Awareness Service” </li></ul><ul><ul><li>Automatically receive PubMed searches, journal table of contents or news </li></ul></ul><ul><ul><li>New information tailored to your interests </li></ul></ul><ul><ul><li>No email overload! </li></ul></ul>
    48. 50. The “Old Way” – Web sites
    49. 51. The “New Way” – RSS feeds
    50. 52. How do you find an RSS feed? <ul><li>Search for RSS feeds: </li></ul><ul><ul><li>http://technorati.com </li></ul></ul><ul><ul><li>http://newsisfree.com </li></ul></ul><ul><ul><li>http://medworm.com </li></ul></ul><ul><ul><li>OR ask a colleague or friend </li></ul></ul><ul><li>As you are surfing, watch for the bright orange icon… </li></ul>
    51. 53. Using and reading RSS feeds <ul><li>Play around with various services </li></ul><ul><li>See which one works best for you (and that is easy to use!) </li></ul>
    52. 54. PubMed and RSS PubMed: http://pubmed.gov/
    53. 55. PubMed and RSS <ul><li>Keep up with the current literature </li></ul><ul><li>Receive literature updates from PubMed searches </li></ul>
    54. 56. Professional Journal and Current Awareness RSS Feeds <ul><li>Diabetes Educator http://tde.sagepub.com/rss/ </li></ul><ul><li>American Diabetes Association journals (4 Titles) http://diabetes.diabetesjournals.org/rss/ </li></ul><ul><li>Medscape Headlines in RSS http://www.medscape.com/pages/public/rss </li></ul>
    55. 57. RSS Demo and Exercise
    56. 58. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th   http://twitter.com/fooducate/statuses/4998762906
    57. 59. Connect: Micro-blogging <ul><li>A means of publishing brief text updates </li></ul><ul><li>140 or fewer characters </li></ul><ul><li>Possible uses </li></ul><ul><ul><li>Communications: keeping up with colleagues and leaders in your field </li></ul></ul><ul><ul><li>Communications: control over your message </li></ul></ul><ul><ul><li>Marketing 1: publicizing services, trends, events and resources </li></ul></ul><ul><ul><li>Marketing 2: identify your community and build those relationships </li></ul></ul>
    58. 60. Twitter <ul><li>http://twitter.com </li></ul><ul><li>The short micro-blog messages are called “Tweets” (< 140 characters) </li></ul><ul><li>You can “follow” your colleagues </li></ul><ul><li>They can “follow” you </li></ul><ul><li>Search topics or people </li></ul>
    59. 61. Ways to Send a Tweet <ul><li>Directly on Twitter’s website </li></ul><ul><li>Through an IM client (GoogleTalk, Jabber) </li></ul><ul><li>From your mobile phone </li></ul><ul><li>Twitter Demo </li></ul><ul><li>http://twitter.com </li></ul>
    60. 62. Who uses Twitter? <ul><li>Utah Diabetes http://twitter.com/UtahDiabetes </li></ul><ul><li>Ask Ginny http://twitter.com/askginny </li></ul><ul><li>American Diabetes Association http://www.diabetes.org/ </li></ul><ul><li>Amer Assoc of Clinical Endocrinologists (AACE) - http://www.aace.com/ </li></ul>
    61. 63. Utah Diabetes - http://twitter.com/UtahDiabetes
    62. 64. Ask Ginny - http://twitter.com/askginny
    63. 65. American Diabetes Association - http://www.diabetes.org/
    64. 66. Twitter Problems <ul><li>Down time </li></ul><ul><li>Sustainability </li></ul><ul><li>Privacy </li></ul><ul><li>Adds to distraction level </li></ul>
    65. 67. Productive Uses for Twitter <ul><li>“ Push” out information to the public </li></ul><ul><ul><li>Health Alerts </li></ul></ul><ul><ul><li>Services </li></ul></ul><ul><ul><li>Newsletter </li></ul></ul><ul><ul><li>Events </li></ul></ul><ul><ul><li>Wellness Coaching </li></ul></ul><ul><li>Individual </li></ul><ul><ul><li>Weight management </li></ul></ul><ul><ul><li>Smoking cessation </li></ul></ul><ul><ul><li>Social Support System </li></ul></ul>
    66. 68. Twitter Discussion <ul><li>What do you think? Useful or waste of time? </li></ul><ul><li>Let’s try it! </li></ul>
    67. 69. Connect - Facebook <ul><li>http://facebook.com </li></ul><ul><li>Find friends </li></ul><ul><li>Post status </li></ul><ul><li>Chat </li></ul><ul><li>Email </li></ul><ul><li>Join groups </li></ul><ul><li>Play games </li></ul><ul><li>Share Photos </li></ul><ul><li>Be a “fan” </li></ul>
    68. 70. Facebook
    69. 71. Facebook Pages <ul><li>A public figure, business, or organization can create a Facebook Page to share information, interact with their “fans” </li></ul><ul><li>Optimized to represent a business, or organization </li></ul><ul><li>Separate from user profiles </li></ul><ul><li>Pages can only be created to represent a real organization, and may only be created by an official representative of that entity </li></ul><ul><li>Use your personal account to manage a Facebook Page for your organization </li></ul>
    70. 73. Facebook Groups <ul><li>An informal network </li></ul><ul><li>Used for discussions and special events </li></ul><ul><li>Can help organizations connect with their stakeholders </li></ul><ul><ul><li>Employees </li></ul></ul><ul><ul><li>Customers/services users </li></ul></ul><ul><ul><li>Shareholders </li></ul></ul><ul><ul><li>General public </li></ul></ul><ul><li>Anyone can create a group </li></ul>
    71. 75. Exercises
    72. 76. Exercises
    73. 77. Exercises
    74. 78. Exercises
    75. 79. Listening Creating Connecting BLOG Fooducate : 3 steps to embrace social media for RDs #FNCE2009 http://yfrog.com/0r42459875j 12:44 PM Oct 19th   http://twitter.com/fooducate/statuses/4998762906
    76. 80. Create - Blogs
    77. 81. In theory, blogs take the complexity out of creating content, or publishing, on the web
    78. 82. Most blogs have a comments area to facilitate feedback and conversation
    79. 83. Blogs are (usually) organized in reverse chronological order
    80. 84. Blogging started out as first-person, informal communication
    81. 85. Blogging has evolved to include professional, political, and editorial communication/publication
    82. 86. How a blog can benefit a healthcare organization? <ul><li>Destination for information and community news </li></ul><ul><li>Responsive to feedback </li></ul><ul><li>More staff can be involved with the website </li></ul><ul><li>Including the public in the “discussion” is easier </li></ul><ul><li>Emergency notifications </li></ul>
    83. 87. Blogs for Diabetes Information
    84. 88. <ul><li>Who is the author? </li></ul><ul><ul><li>Is she or he affiliated with a reputable organization? </li></ul></ul><ul><ul><li>What is the author's educational background or experience? </li></ul></ul><ul><ul><li>What is their area of expertise? </li></ul></ul><ul><li>Is the information provided based on proven facts? </li></ul><ul><ul><li>Is there information provided to support statements of fact? </li></ul></ul>Evaluate blogs as a source
    85. 89. Search Engines for Blogs <ul><li>Google blog search: http://blogsearch.google.com/ </li></ul><ul><li>BlogCatalog with directory for browsing: http://www.blogcatalog.com/directory/ </li></ul><ul><li>May be better off searching Google with “blog” in the search. </li></ul><ul><li>Medworm: http://www.medworm.com/ </li></ul>
    86. 90. Blog Software <ul><li>Online ( free, hosted) services </li></ul><ul><ul><li>Blogger.com - http://blogger.com/ </li></ul></ul><ul><ul><li>TypePad - http://www.typepad.com/ </li></ul></ul><ul><li>Software installed on your server </li></ul><ul><ul><li>WordPress (open source) </li></ul></ul><ul><ul><li>MoveableType (commercial) </li></ul></ul>
    87. 91. Blog Features <ul><li>Features to look for when choosing blog software: </li></ul><ul><ul><li>Authors and permissions </li></ul></ul><ul><ul><li>Comments </li></ul></ul><ul><ul><li>Notification services </li></ul></ul><ul><ul><li>Categories </li></ul></ul><ul><ul><li>Customization options </li></ul></ul><ul><ul><ul><li>Templates vs. programming </li></ul></ul></ul><ul><ul><li>Publishing options </li></ul></ul><ul><ul><ul><li>Publish from e-mail or mobile device </li></ul></ul></ul><ul><ul><li>RSS feeds </li></ul></ul>
    88. 92. Blog Exercise
    89. 93. Questions? <ul><li>Will you use Social Networking tools in your future work? </li></ul><ul><li>What opportunities for communications and collaboration in your work might be possible with these tools? </li></ul>
    90. 94. Conclusions <ul><li>These tools are easy and fun! </li></ul><ul><li>New software and services change rapidly </li></ul><ul><li>Living in the “ever beta” world </li></ul><ul><li>Taking advantage of user-generated content </li></ul><ul><li>Find the combinations that work for you </li></ul><ul><li>Keep an open mind! </li></ul>
    91. 95. We shall see! Thank you!
    92. 96. Contact us <ul><li>Grant Sunada: </li></ul><ul><ul><li>E-mail: [email_address] </li></ul></ul><ul><ul><li>Office: 801-538-6141 </li></ul></ul><ul><ul><li>Twitter: @UtahDiabetes </li></ul></ul><ul><li>Ginny Burns: </li></ul><ul><ul><li>E-mail: [email_address] </li></ul></ul><ul><ul><li>Twitter: @AskGinny </li></ul></ul><ul><ul><li>Blog: http://askginnyaboutdiabetes.blogspot.com </li></ul></ul><ul><ul><li>… or [email_address] gov </li></ul></ul><ul><li>Nancy Lombardo: </li></ul><ul><ul><li>E-mail: [email_address] </li></ul></ul><ul><ul><li>Office: 801-581-5241 </li></ul></ul><ul><ul><li>Twitter: @nancylombardo </li></ul></ul><ul><li>Todd Vandenbark </li></ul><ul><ul><li>E-mail: [email_address] </li></ul></ul><ul><ul><li>Office: 801-581-5263 </li></ul></ul><ul><ul><li>Twitter: @tvandenbark </li></ul></ul><ul><li>Website for workshop: </li></ul><ul><ul><li>http://library.med.utah.edu/ed/web20/ , OR </li></ul></ul><ul><ul><li>http://tinyurl.com/w20ADEU </li></ul></ul>THANK YOU!