My annual lecture to John Glaser's class for innovators in the Wharton MBA program at the U of Pennsylvania. Includes added slides for topics I mentioned beyond the slides shown.
Keynote to 125 nurse leaders. After my basic slides, special focus on the how-to's of patient engagement between patient and nurse, and social change required to modify clinician beliefs
This document profiles "e-Patient Dave" deBronkart, an advocate for empowered patients. It summarizes his journey from being diagnosed with kidney cancer in 2007 to becoming a full-time patient advocate by 2010. It describes how he was able to find useful information and connect with other patients online that helped inform his treatment decisions. The document advocates for patients having access to their own medical data and discusses how empowered, engaged patients are transforming the traditional patient-provider relationship.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
This document outlines the story of "e-Patient Dave" and his journey of becoming engaged in his own healthcare as a patient. It describes how he was first diagnosed with kidney cancer in 2007 after finding an abnormality during a routine shoulder x-ray. This discovery led him to conduct his own research online and connect with other patients to learn more about his condition and treatment options. The document advocates for patient engagement and empowerment, arguing that empowered and engaged patients can help improve healthcare safety, quality and outcomes by contributing information and perspectives from outside traditional medical channels.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
NI2016 is the Nursing Informatics conference, in a different country every other year; this year it's Geneva, Switzerland. This talk focused on how nursing informatics can empower patients and families by sharing medical data.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
Keynote to 125 nurse leaders. After my basic slides, special focus on the how-to's of patient engagement between patient and nurse, and social change required to modify clinician beliefs
This document profiles "e-Patient Dave" deBronkart, an advocate for empowered patients. It summarizes his journey from being diagnosed with kidney cancer in 2007 to becoming a full-time patient advocate by 2010. It describes how he was able to find useful information and connect with other patients online that helped inform his treatment decisions. The document advocates for patients having access to their own medical data and discusses how empowered, engaged patients are transforming the traditional patient-provider relationship.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
This document outlines the story of "e-Patient Dave" and his journey of becoming engaged in his own healthcare as a patient. It describes how he was first diagnosed with kidney cancer in 2007 after finding an abnormality during a routine shoulder x-ray. This discovery led him to conduct his own research online and connect with other patients to learn more about his condition and treatment options. The document advocates for patient engagement and empowerment, arguing that empowered and engaged patients can help improve healthcare safety, quality and outcomes by contributing information and perspectives from outside traditional medical channels.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
NI2016 is the Nursing Informatics conference, in a different country every other year; this year it's Geneva, Switzerland. This talk focused on how nursing informatics can empower patients and families by sharing medical data.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
This document summarizes a presentation on how physicians can support patients who search for health information online. It discusses how most patients now search the internet for health information. It also explores how cultural factors may influence what types of online health information people prefer. The presentation provides tips for physicians on how to have productive conversations with patients who conduct online research and how to guide them towards credible sources of information. It suggests creating a list of trusted health websites to share with patients.
This research article discusses how professional social media can help connect researchers in a more rapid way. It analyzes data on the percentage of health care professionals and hospitals using social media. Professional social media networks allow researchers to post profiles, publications, and interests to connect with others in their field from around the world. While some sites publish untrusted information, social media and databases like PubMed and LinkedIn provide a way to quickly find articles and meet other professionals and researchers.
The Doctor is Online: Building a Professional Social Media PresenceIris Thiele Isip-Tan
The document provides guidance for physicians on establishing a professional social media presence. It recommends separating personal and professional online content to maintain appropriate boundaries. It also advises curating high-quality content that promotes health literacy and makes surprising connections while protecting patient privacy and confidentiality. Physicians are encouraged to thoughtfully engage online and ensure their activities uphold professional responsibilities and public trust.
The document discusses Elizabeth Bianchini's search for an article on workplace violence in emergency departments. She had difficulty finding the full text of one article through her college library's databases. She describes searching the journal website directly and being unable to access the full text without purchasing it. The document also outlines Elizabeth's search strategies, including using Boolean operators to broaden and narrow her searches for relevant articles on the topic.
Presentation at the first Philippine Youth Internet Governance Forum (Southville International School and Colleges) and Philippine Internet Society, 26 Nov 2021.
Ebola crisis humans and technology go hand in handCureMD
This document discusses the Ebola crisis in Dallas and the role of technology and humans in medical diagnosis and treatment. It outlines how a Liberian man, Thomas Eric Duncan, was misdiagnosed with Ebola and later died after initially being sent home from the Texas hospital. While the electronic health records contained his travel history, a communication lapse between the nurse and doctor resulted in the error. The document argues that technology is still evolving and cannot replace human judgment, but it can facilitate healthcare if properly implemented to support clinical workflow. Ultimately, the case highlights how both technology and humans must work together effectively to improve patient care and prevent misdiagnoses.
Everhealthier.org Women is a mobile web and text messaging tool designed to help women manage their health tasks and cancer screenings. It provides personalized recommendations and reminders tailored to a woman's age, gender, health factors and family members. Women can track tasks, test results, and share information with care teams. The tool was co-designed with users and is based on behavioral research to address barriers to preventive healthcare access, especially among minority women. It aims to make health promotion simple and straightforward through a mobile interface.
Presentation at monthly CME activity of the Philippine Dermatology Society in cooperation with Skin & Cancer Foundation Inc. at the St. Luke's Medical Center Global, 20 April 2016
The Librarian Reloaded: Evolving Roles in Health InformaticsIris Thiele Isip-Tan
The document discusses the evolving roles of health sciences librarians in the field of health informatics. It describes how librarians initially helped address the issue of information explosion and led early studies on information needs and behavior. Their roles have expanded and now include activities like managing big datasets, implementing electronic health records, providing clinical decision support, educating students, and advocating for patients. The document also outlines opportunities for librarians to help build health informatics infrastructure in the Philippines through initiatives like the national eHealth vision and collaboration with partners abroad.
This document discusses using Twitter data to track the spread of infectious diseases. It describes how researchers have developed apps like Germ Tracker that analyze geotagged tweets to identify locations where many people report being sick and map infection hotspots in real-time. This can provide more granular data than traditional reporting methods by capturing information on who infected individuals interacted with. The document advocates for building similar disease tracking systems in India to monitor common infections given its large population and disease burden. It also notes how social media is increasingly being used in medical education and research by new generations of digitally native doctors.
I am a physician, clinical researcher, and educator. I am also on Twitter and tweet under the handle @EMARIANOMD. Naturally you may ask: “How does Twitter fit into a physician’s academic career?” These slides were part of an interactive workshop presented at the 2016 American Society of Anesthesiologists Annual Meeting "Social Media Bootcamp." Please see my blog http://www.edmariano.com/archives/926 for additional information.
The document discusses different teaching models including information processing models, behavioral models, social models, and personal models. [1] It describes several information processing models such as the information processing model of memory, Gagne's information processing model, and different inquiry teaching models. [2] Behavioral models discussed include direct instruction model, mastery learning, and programmed instruction model. [3] Social models focus on group teaching, cooperative learning, role-playing, and sociodrama. Personal models center around non-directive teaching, developing positive self-concepts, and using project models.
This document describes Flanders' system of interaction analysis, a method developed by Ned Flanders in 1959 to categorize and analyze classroom interactions between teachers and students. There are 10 categories divided into teacher talk, student talk, and silence/confusion. To use the system, a classroom is observed and interactions are recorded and assigned codes. The coded interactions are then tabulated in a matrix to analyze quantitatively using behavior ratios like teacher talk ratio, indirect teacher talk ratio, direct teacher talk ratio, student talk ratio, and silence/confusion ratio. This provides insight into the teacher's encouragement of student participation versus restriction of participation.
Models of teaching provide teachers with research-based strategies and frameworks to guide planning and instruction. They describe effective teaching approaches and the roles of teachers and students. Using models of teaching can help meet the needs of diverse learners, improve the quality of instruction, and accelerate student learning. They benefit both teachers, by facilitating systematic planning and assessment, and students, by increasing engagement and academic self-esteem.
The document discusses several models of teaching including lecture, discussion-questioning, viewing-listening, and inquiry training. It provides descriptions of the key characteristics of each model, including how they are typically grouped, the roles of the student and teacher, common teaching resources used, and their potential benefits and drawbacks. The models vary in the level of student participation and involvement, from more passive approaches like lecture to more active approaches that emphasize discussion, viewing of media, and developing inquiry skills.
This document discusses models of teaching and their components. It defines teaching models as instructional designs that specify environmental situations to cause specific changes in student behavior. There are four families of teaching models: information processing, personal, social, and behavioral systems. Each model has four key components - syntax, social system, principles of reaction, and support system. The document provides examples of models within each family and describes the components.
This model guides teachers to go to the depth of the content. And helps students to attain new concepts. So the model has a great attribute on teaching -learning process.
The document discusses models of teaching proposed by Bruce Joyce and Marsha Weil. It aims to provide different teaching strategies to match various learning styles. Joyce and Weil developed several teaching models consisting of guidelines for designing educational activities and environments to achieve learning goals. The models fall into four families - information processing, personal, social interaction, and behavior modification. Each model has elements like focus, syntax, social system, and principles of reaction. One example provided is the concept attainment model, which helps teach concepts by having students categorize examples and form hypotheses to understand attributes and rules.
This document summarizes a presentation on how physicians can support patients who search for health information online. It discusses how most patients now search the internet for health information. It also explores how cultural factors may influence what types of online health information people prefer. The presentation provides tips for physicians on how to have productive conversations with patients who conduct online research and how to guide them towards credible sources of information. It suggests creating a list of trusted health websites to share with patients.
This research article discusses how professional social media can help connect researchers in a more rapid way. It analyzes data on the percentage of health care professionals and hospitals using social media. Professional social media networks allow researchers to post profiles, publications, and interests to connect with others in their field from around the world. While some sites publish untrusted information, social media and databases like PubMed and LinkedIn provide a way to quickly find articles and meet other professionals and researchers.
The Doctor is Online: Building a Professional Social Media PresenceIris Thiele Isip-Tan
The document provides guidance for physicians on establishing a professional social media presence. It recommends separating personal and professional online content to maintain appropriate boundaries. It also advises curating high-quality content that promotes health literacy and makes surprising connections while protecting patient privacy and confidentiality. Physicians are encouraged to thoughtfully engage online and ensure their activities uphold professional responsibilities and public trust.
The document discusses Elizabeth Bianchini's search for an article on workplace violence in emergency departments. She had difficulty finding the full text of one article through her college library's databases. She describes searching the journal website directly and being unable to access the full text without purchasing it. The document also outlines Elizabeth's search strategies, including using Boolean operators to broaden and narrow her searches for relevant articles on the topic.
Presentation at the first Philippine Youth Internet Governance Forum (Southville International School and Colleges) and Philippine Internet Society, 26 Nov 2021.
Ebola crisis humans and technology go hand in handCureMD
This document discusses the Ebola crisis in Dallas and the role of technology and humans in medical diagnosis and treatment. It outlines how a Liberian man, Thomas Eric Duncan, was misdiagnosed with Ebola and later died after initially being sent home from the Texas hospital. While the electronic health records contained his travel history, a communication lapse between the nurse and doctor resulted in the error. The document argues that technology is still evolving and cannot replace human judgment, but it can facilitate healthcare if properly implemented to support clinical workflow. Ultimately, the case highlights how both technology and humans must work together effectively to improve patient care and prevent misdiagnoses.
Everhealthier.org Women is a mobile web and text messaging tool designed to help women manage their health tasks and cancer screenings. It provides personalized recommendations and reminders tailored to a woman's age, gender, health factors and family members. Women can track tasks, test results, and share information with care teams. The tool was co-designed with users and is based on behavioral research to address barriers to preventive healthcare access, especially among minority women. It aims to make health promotion simple and straightforward through a mobile interface.
Presentation at monthly CME activity of the Philippine Dermatology Society in cooperation with Skin & Cancer Foundation Inc. at the St. Luke's Medical Center Global, 20 April 2016
The Librarian Reloaded: Evolving Roles in Health InformaticsIris Thiele Isip-Tan
The document discusses the evolving roles of health sciences librarians in the field of health informatics. It describes how librarians initially helped address the issue of information explosion and led early studies on information needs and behavior. Their roles have expanded and now include activities like managing big datasets, implementing electronic health records, providing clinical decision support, educating students, and advocating for patients. The document also outlines opportunities for librarians to help build health informatics infrastructure in the Philippines through initiatives like the national eHealth vision and collaboration with partners abroad.
This document discusses using Twitter data to track the spread of infectious diseases. It describes how researchers have developed apps like Germ Tracker that analyze geotagged tweets to identify locations where many people report being sick and map infection hotspots in real-time. This can provide more granular data than traditional reporting methods by capturing information on who infected individuals interacted with. The document advocates for building similar disease tracking systems in India to monitor common infections given its large population and disease burden. It also notes how social media is increasingly being used in medical education and research by new generations of digitally native doctors.
I am a physician, clinical researcher, and educator. I am also on Twitter and tweet under the handle @EMARIANOMD. Naturally you may ask: “How does Twitter fit into a physician’s academic career?” These slides were part of an interactive workshop presented at the 2016 American Society of Anesthesiologists Annual Meeting "Social Media Bootcamp." Please see my blog http://www.edmariano.com/archives/926 for additional information.
The document discusses different teaching models including information processing models, behavioral models, social models, and personal models. [1] It describes several information processing models such as the information processing model of memory, Gagne's information processing model, and different inquiry teaching models. [2] Behavioral models discussed include direct instruction model, mastery learning, and programmed instruction model. [3] Social models focus on group teaching, cooperative learning, role-playing, and sociodrama. Personal models center around non-directive teaching, developing positive self-concepts, and using project models.
This document describes Flanders' system of interaction analysis, a method developed by Ned Flanders in 1959 to categorize and analyze classroom interactions between teachers and students. There are 10 categories divided into teacher talk, student talk, and silence/confusion. To use the system, a classroom is observed and interactions are recorded and assigned codes. The coded interactions are then tabulated in a matrix to analyze quantitatively using behavior ratios like teacher talk ratio, indirect teacher talk ratio, direct teacher talk ratio, student talk ratio, and silence/confusion ratio. This provides insight into the teacher's encouragement of student participation versus restriction of participation.
Models of teaching provide teachers with research-based strategies and frameworks to guide planning and instruction. They describe effective teaching approaches and the roles of teachers and students. Using models of teaching can help meet the needs of diverse learners, improve the quality of instruction, and accelerate student learning. They benefit both teachers, by facilitating systematic planning and assessment, and students, by increasing engagement and academic self-esteem.
The document discusses several models of teaching including lecture, discussion-questioning, viewing-listening, and inquiry training. It provides descriptions of the key characteristics of each model, including how they are typically grouped, the roles of the student and teacher, common teaching resources used, and their potential benefits and drawbacks. The models vary in the level of student participation and involvement, from more passive approaches like lecture to more active approaches that emphasize discussion, viewing of media, and developing inquiry skills.
This document discusses models of teaching and their components. It defines teaching models as instructional designs that specify environmental situations to cause specific changes in student behavior. There are four families of teaching models: information processing, personal, social, and behavioral systems. Each model has four key components - syntax, social system, principles of reaction, and support system. The document provides examples of models within each family and describes the components.
This model guides teachers to go to the depth of the content. And helps students to attain new concepts. So the model has a great attribute on teaching -learning process.
The document discusses models of teaching proposed by Bruce Joyce and Marsha Weil. It aims to provide different teaching strategies to match various learning styles. Joyce and Weil developed several teaching models consisting of guidelines for designing educational activities and environments to achieve learning goals. The models fall into four families - information processing, personal, social interaction, and behavior modification. Each model has elements like focus, syntax, social system, and principles of reaction. One example provided is the concept attainment model, which helps teach concepts by having students categorize examples and form hypotheses to understand attributes and rules.
This document discusses models of teaching, defining them as plans or guidelines that can be used to design instruction, curriculum, and guide teacher actions. It presents several definitions of teaching models from education researchers. The main characteristics of models include specifying learning outcomes, environmental conditions, and performance criteria. Models of teaching are based on systematically modifying learner behavior. They can help teachers select methods and materials, bring about learner behavior changes, and design educational activities and curriculum. Examples of modern models discussed are information processing, social interaction, personal development, and behavior modification models.
The document discusses various teaching models including information processing models, behavioural models, personal models, and social models.
It provides details on several information processing models such as Atkinson and Shiffrin's model of memory, Gagne's information processing model, and different types of inquiry teaching models. Behavioural models covered include direct instruction, mastery learning, and programmed instruction models. Personal models summarized are non-directive teaching, developing positive self-concepts, and the project model. Lastly, the social model discusses group teaching, cooperative learning, and simulation methods like sociodrama and role-play.
The document provides an overview of key teaching models with the goal of guiding teachers in planning and
Presentation to Maine Quality Counts, March 19, 2015 - physician audience, event title "Patient Provider Partnerships." Maine is WAY ahead of most places at actively developing how to do medicine as a partnership - and much work remains.
The document discusses the rise of participatory medicine and engaged patients, often referred to as "e-patients". It notes that patients are increasingly seeking health information online and connecting with peers. When patients are informed and engaged in their care, it can improve health outcomes. The future of medicine relies on recognizing patients as partners in their care.
The document discusses how patients can help improve healthcare systems. It notes that patients are often an underutilized resource in information systems, and that the IOM recommends engaging and empowering patients as vital members of care teams. The author shares their personal experience of being diagnosed with cancer in 2007 and how connecting with other patients online helped them learn about treatment options from their doctor. Measuring patient activation and engagement can help achieve the IOM's goal of prioritizing patient needs and perspectives to improve care quality and lower costs.
Patient Engagement is Changing What's Possible (e-Patient Dave at Intersystem...e-Patient Dave deBronkart
This document discusses how patient engagement is changing healthcare through increased access to information and connections between patients. It provides examples of how connected patients can share information that leads to better outcomes, such as a patient learning from an online community that an uncommon form of cancer was best treated at hospitals with extensive experience, which likely saved his life. It argues that empowering patients with access to their own health data and information will transform healthcare by supporting patient-clinician partnerships and facilitating patient contributions as vital members of the healthcare learning system.
This document profiles "e-Patient Dave" deBronkart, an advocate for empowering patients through technology and access to personal health data. It outlines his background working in marketing and becoming an e-patient blogger after being diagnosed with stage IV kidney cancer in 2007. It describes how he used online resources to research his condition and treatment options when doctors initially gave him poor odds of survival. It advocates for the ability of engaged patients to contribute meaningful insights and help each other through open access to health information and data.
This document discusses the concept of participatory medicine and the story of "e-Patient Dave" deBronkart. It summarizes Dave's journey of being diagnosed with stage IV kidney cancer and becoming empowered through online research and connecting with other patients. It advocates for more open access to medical data and information to allow patients to better participate in their own care.
I never got to show these slides, but I blogged their existence and told people to go look. With over 2000 views in the first week, I guess people did. Ya can't keep people off social media! :-)
The history of medicine has been a continuous evolution of methods, models, and paradigms as what's possible has changed with new technology. Today the frontier of medicine is "superpatients" - patients who don't just receive care, they literally extend science and create treatments: truly "super" patients. Video of this talk will be available soon!
This document contains slides from a presentation by "e-Patient Dave" on engaging patients in high reliability organizations. The presentation discusses how patients can contribute to situational awareness, one of the key principles of HROs, by identifying errors or inconsistencies in their own medical records and test results. It also argues that for patients to truly be partners, they need access to the same medical information as clinicians. However, there are cultural obstacles to sharing information with patients, such as concerns that it will lead to time-wasting questions. Studies show that when patients are given access to doctors' notes, the vast majority want to continue having access and feel it would influence their choice of providers.
The document summarizes the story of "e-Patient Dave" deBronkart and his role in advancing participatory medicine. It discusses how he came to be involved in this movement through his experience with cancer discovery and recovery in 2007-2008, which led him to become a blogger on these issues in 2008. It then summarizes some of his key insights, such as emphasizing that "patient" is not a third person term, and how access to online information and communities of other patients were invaluable for him during his own health issues.
This document outlines the principles of participatory medicine as described by "e-Patient Dave" deBronkart. It discusses how access to information empowers patients and allows them to contribute to medical knowledge. When patients are informed and engaged in their care, they can perform better. The emergence of online communities and social media has created new opportunities for patients to connect with information and each other outside of traditional healthcare systems. True empowerment involves treating patients as partners in decisions about their own care.
- Dave deBronkart is an advocate for engaged patients and participatory medicine. He founded the e-Patient Scholars Academy.
- In 2007, he was diagnosed with stage IV kidney cancer but researched online and worked with other patients, which helped him find more effective treatment.
- Connected patients have access to more information sources than ever before due to the internet and social media. This shifts the traditional sources of medical knowledge and competence.
The document discusses how Dave deBronkart became an advocate for patient engagement after being diagnosed with cancer in 2007. It outlines his career path from marketing to becoming a full-time patient advocate and speaker in 2010. It emphasizes that patients can provide valuable, timely information to other patients and should be active participants in their own care and in improving the healthcare system.
Most people don't know that palliative care is NOT just for end of life - it can be added to curative treatments. This is my first speech about approaching death, interweaving culture change from the perspective of a 1960s hippie who became a businessman in high tech.
Similar to Talk to John Glaser's class at Wharton 3-17-2014 (20)
As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” The Patient Activation Measure is a powerful tool for understanding where someone's at and how to interact with them differently.
This document provides 10 reasons why patients should Google their medical conditions. It begins with a story about a man brought to the emergency room for ingesting an unknown substance. The doctors shut his laptop without determining what he ingested. The document then lists 10 reasons patients should Google: 1) Knowledge is power 2) People perform better when informed 3) No one knows everything 4) Medical advice changes over time 5) New information doesn't instantly reach all doctors 6) Online information can reach patients directly 7) Useful information exists outside medical journals 8) Some medical studies have flaws 9) Patients have a right to know their options 10) Patients have the most at stake in their own health.
High-powered webcast to NNLM Feb 21, 2019. Introduces the Superpatient concept, contrasts it with generic "citizen scientists," gives several examples, addresses the cultural obstacles that hold back progress, and asks how medical libraries might encourage and support superpatients in their efforts.
Opening keynote at DIA Europe, Vienna, Feb 5, 2019. Our paradigm of patient is significantly out of date, and it's holding back progress - a new class of "Superpatients" are *extending* science when the doctors are out of answers. Amazing!
Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...e-Patient Dave deBronkart
High speed talk to developers at the annual FHIR* Developer Days conference in Amsterdam. The world of health data migration is advancing very rapidly, and the time has come to call for developers to let PATIENTS have full access to every kind of data they need.
* FHIR = Fast Healthcare Interoperability Resources FHIR.HL7.org
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
National Cancer Patient Forum: "What might we be overlooking?" (A patient's p...e-Patient Dave deBronkart
The document discusses issues with the current healthcare system from the perspective of patients, including a risk of selection bias in only considering the views of certain patients and not hearing from those who have dropped out of the system. It advocates for asking patients directly if the system is working and ensuring information reaches those in need. The need to fix problems where information isn't reaching patients at the point of need is also discussed.
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for empowering patients through access to health information and online communities. It discusses his background and work promoting participatory medicine. It outlines how patients can help healthcare achieve its potential by checking their medical records, asking clinicians to share screens, accessing open notes, reviewing hospital safety scores, accessing podcasts and case managers. The overall message is that when patients are informed and engaged, medicine can better achieve its goals.
This document profiles "e-Patient Dave" deBronkart, a patient engagement advocate. It summarizes his journey from a marketing career to becoming a full-time patient advocate after being diagnosed with cancer in 2007. It describes how he utilized online resources and patient communities to help make treatment decisions and find an effective immunotherapy. The document advocates for greater patient empowerment and participation in healthcare, citing examples of highly engaged "e-patients" who are helping to advance medicine through open data sharing and DIY medical innovations.
- Dave deBronkart is an "e-patient" advocate who became involved in participatory healthcare after being diagnosed with stage IV kidney cancer in 2007.
- Through online research and peer support groups, he learned about treatment options that saved his life, experiencing firsthand how engaged patients can access valuable information.
- He now works full-time advocating for patient empowerment and engagement, speaking internationally at over 500 events about how empowered, informed patients lead to better outcomes and more cost-effective care.
This document discusses the need for a patient perspective in healthcare. It notes that existing data may have selection bias by not accounting for people who have dropped out of the system or given up. It advocates for giving patients and caregivers more control over their care goals and outcomes. The document argues that patients should have veto-level approval power and be asked if new approaches to survivorship care are working. It also suggests healthcare can be improved by addressing issues like high costs and better informing patients.
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for engaged patients and participatory healthcare. It summarizes his journey from being diagnosed with late-stage kidney cancer in 2007 to becoming a full-time patient engagement advocate by 2010. It highlights how he utilized online resources and connected with other patients to actively participate in his own care and treatment decisions, ultimately finding success through an unconventional therapy. The document advocates that patients can be an underused resource and that online connections allow information and support to exist outside traditional healthcare channels.
Presentation by Šarūnas Narbutas, President of Lithuanian Cancer Patient Coalition (POLA), at a 2015 conference, regarding the many tricky issues around independence, funding, and trustworthiness of everyone in patient / industry partnerships.
This document discusses the transformation of healthcare through empowered patients or "e-patients" and outlines four laws of transformation and three diseases that patients face. It advocates that patients should be stakeholders in their own care and informed partners. It highlights examples of patients using technology like Fitbit and diabetes apps to better manage their conditions. The document warns of resistance to change from the medical system and advocates patients demanding access to their own health data to become better informed.
The congress theme is "How far is the future?" This 20 minute talk discusses the sociological and technological changes that are enabling Participatory Medicine, and what it means for the future of providers' practices.
Dave deBronkart discusses the rise of the participatory patient. He became an engaged e-patient after being diagnosed with cancer in 2007. He researched his condition online and connected with other patients, which helped him receive the best treatment. deBronkart believes that empowering patients with information enables them to make informed healthcare choices and become partners in their care. When patients are engaged at this level, it can improve outcomes for all.
The document discusses the transformation of healthcare knowledge access and sharing due to the internet and rise of connected patients. It notes how patients can now connect to information and each other online, changing the traditional closed system of healthcare knowledge. Examples are provided of early visions of online health from the 1990s becoming reality, as well as specific patient innovators creating open source medical devices and data sharing projects today. The challenges institutions face in adapting to these changes are also addressed.
The document discusses how views of aging have changed since the 1970s. It notes that in her writing from that time, author Simone de Beauvoir seemed fatalistic and hopeless about aging. However, the document suggests de Beauvoir would now encourage empowerment rather than fatalism, given advances in medicine, health, technology, and individuals' increased access to information. Empowering patients and families with information helps them make choices and improve their health and care.
Terrific presentation by Team Novo Nordisk to the DOC (diabetes online community) at the American Diabetes Association's scientific conference, New Orleans, June, 2016. [Shared with permission]
Integrating Ayurveda into Parkinson’s Management: A Holistic ApproachAyurveda ForAll
Explore the benefits of combining Ayurveda with conventional Parkinson's treatments. Learn how a holistic approach can manage symptoms, enhance well-being, and balance body energies. Discover the steps to safely integrate Ayurvedic practices into your Parkinson’s care plan, including expert guidance on diet, herbal remedies, and lifestyle modifications.
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These lecture slides, by Dr Sidra Arshad, offer a simplified look into the mechanisms involved in the regulation of respiration:
Learning objectives:
1. Describe the organisation of respiratory center
2. Describe the nervous control of inspiration and respiratory rhythm
3. Describe the functions of the dorsal and respiratory groups of neurons
4. Describe the influences of the Pneumotaxic and Apneustic centers
5. Explain the role of Hering-Breur inflation reflex in regulation of inspiration
6. Explain the role of central chemoreceptors in regulation of respiration
7. Explain the role of peripheral chemoreceptors in regulation of respiration
8. Explain the regulation of respiration during exercise
9. Integrate the respiratory regulatory mechanisms
10. Describe the Cheyne-Stokes breathing
Study Resources:
1. Chapter 42, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 36, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 13, Human Physiology by Lauralee Sherwood, 9th edition
One health condition that is becoming more common day by day is diabetes.
According to research conducted by the National Family Health Survey of India, diabetic cases show a projection which might increase to 10.4% by 2030.
Our backs are like superheroes, holding us up and helping us move around. But sometimes, even superheroes can get hurt. That’s where slip discs come in.
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The UK is currently facing a Adhd Medication Shortage Uk, which has left many patients and their families grappling with uncertainty and frustration. ADHD, or Attention Deficit Hyperactivity Disorder, is a chronic condition that requires consistent medication to manage effectively. This shortage has highlighted the critical role these medications play in the daily lives of those affected by ADHD. Contact : +1 (747) 209 – 3649 E-mail : sales@trinexpharmacy.com
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...Oleg Kshivets
Overall life span (LS) was 1671.7±1721.6 days and cumulative 5YS reached 62.4%, 10 years – 50.4%, 20 years – 44.6%. 94 LCP lived more than 5 years without cancer (LS=2958.6±1723.6 days), 22 – more than 10 years (LS=5571±1841.8 days). 67 LCP died because of LC (LS=471.9±344 days). AT significantly improved 5YS (68% vs. 53.7%) (P=0.028 by log-rank test). Cox modeling displayed that 5YS of LCP significantly depended on: N0-N12, T3-4, blood cell circuit, cell ratio factors (ratio between cancer cells-CC and blood cells subpopulations), LC cell dynamics, recalcification time, heparin tolerance, prothrombin index, protein, AT, procedure type (P=0.000-0.031). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and N0-12 (rank=1), thrombocytes/CC (rank=2), segmented neutrophils/CC (3), eosinophils/CC (4), erythrocytes/CC (5), healthy cells/CC (6), lymphocytes/CC (7), stick neutrophils/CC (8), leucocytes/CC (9), monocytes/CC (10). Correct prediction of 5YS was 100% by neural networks computing (error=0.000; area under ROC curve=1.0).
Histololgy of Female Reproductive System.pptxAyeshaZaid1
Dive into an in-depth exploration of the histological structure of female reproductive system with this comprehensive lecture. Presented by Dr. Ayesha Irfan, Assistant Professor of Anatomy, this presentation covers the Gross anatomy and functional histology of the female reproductive organs. Ideal for students, educators, and anyone interested in medical science, this lecture provides clear explanations, detailed diagrams, and valuable insights into female reproductive system. Enhance your knowledge and understanding of this essential aspect of human biology.
2. “I want to note especially
the importance of the resource
that is most often under-
utilized in our information systems –
our patients”
Charles Safran MD, Beth Israel Deaconess
quoting his colleague,Warner Slack MD
Testimony to the HouseWays & Means
subcommittee on health, 2004
3. How I came to be here
• High tech marketing
• Data geek; tech trends; automation
• 2007: Cancer discover & recovery
• 2008: E-Patient blogger
• 2009: Participatory
Medicine, Public Speaker
• 2010: full time
• 2011: international
14. ACOR members told me:
• This is an uncommon disease –
get to a hospital that does a lot of cases
• There’s no cure, but HDIL-2 sometimes works.
– When it does, about half the time it’s permanent
– The side effects are severe.
• Don’t let them give you anything else first
• Here are four doctors in your area who do it
– And one of them was at my hospital
15. How can it be
that the most useful
and relevant and
up-to-the-minute information
can exist outside of
traditional channels?
16. Because of the Web,
Patients Can Connect to Information
and Each Other (and other Providers)
17. “If I read two journal articles every night,
at the end of a year I’d be 400 years behind.”
Dr. Lindberg: 400 years
18. The lethal lag time:
2-5 years
The time it takes after successful research is completed
before publication is completed and the article’s been read.
19. Physician adoption of new
practices years after discovery
The “17 years” thing
From A. Balas, Institute of Medicine, inYearbook of Medical Informatics 2000
Flu vaccine, year 32:
55% doing it,
45% still not
Beta blockers, year 18:
62% doing it,
38% still not
Diabetic foot care, year 7:
20% doing it,
80% still not
Cholesterol, year 16:
65% doing it,
35% still not
Creative Commons Attribution / Share-Alike
May be distributed with this license included
37. Who has the most at stake
with the accuracy,
completeness and
availability
of the medical record?
38. “Now I know why docs
don’t give you scan data.
I see theVirgin Mary,
Jimmy Hoffa, several forks,
and Saddam’s yellowcake
hiding in my guts.”
“And this CT scan makes my butt look big.”
@Xeni
Live tweeting, 12-18-2011
39. “So I figure out how to open
my bone scan data. I look.”
“What the...”
“What’s that ****-shaped
ghost-shadow thing—
it looks like I have a penis!”
“I call a hacker pal.‘That, Xeni, is a ****.’”
“I look at metadata more carefully. THEY GAVE ME
THE WRONG DATA. SOME OTHER DUDE’S SCANS.”
@Xeni
Next day: 12-19-2011
40. Pre-op:“At least you won’t be lopsided.”
“What do you mean?”
“You’re getting a bilateral mastectomy.”
“No I’m not!”
“That’s what came to us on this paper.”