e-Patient Dave AF4Q South Central PA 01-11-2019
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Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
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e-Patient Dave AF4Q South Central PA 01-11-2019
- 1. “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com Doctors & Patients on the Same Page: The transformational power of technology in healthcare
- 2. How I came to be here • High tech marketing: data geek; tech trends; automation • 2007: Cancer discovery & recovery • 2008: E-Patient blogger • 2009: Participatory Medicine, public speaking • 2010: Full time • 2011: international • 2012: med schools, advisory, consult • 600 events, 19 countries, 1400 blog posts, 11 universities, 9 peer-reviewed, 2 book chapters
- 3. e-Patients.net founder Tom Ferguson MD 1944-2006 Equipped Engaged Empowered Enabled Doc Tom said, e-Patients are
- 4. More time to spend WITH the patient
- 5. Pt of future
- 6. 6
- 7. Me? An indicator of the future?? • Who’s getting online: – 1989: Me (CompuServe sysop) – 2009: 83% of US adults (Pew) • Who’s romancing online: – 1999: I met my wife (Match.com) – 2009: One in eight weddings in the U.S. met online – 2011: One in five couples met online
- 8. The Engaged Patient 12 items in my pre-appointment “agenda” email
- 9. 2007: My “Incidental Finding” Routine shoulder x-ray, Jan. 2, 2007 Your shoulder will be fine … but there's something in your lung
- 10. Classic Stage IV, Grade 4 Renal Cell Carcinoma Illustration on the drug company’s web site Median Survival: 24 weeks
- 11. My doctor prescribed ACOR (Community of my patient peers)
- 12. My patient peers told me: • This is an uncommon disease – get to a hospital that does a lot of cases • There’s no cure, but HDIL-2 sometimes works. – When it does, about half the time it’s permanent – The side effects are severe. • Don’t let them give you anything else first • Here are four doctors in your area who do it
- 13. My patient peers told me: • This is an uncommon disease – get to a hospital that does a lot of cases • There’s no cure, but HDIL-2 sometimes works. – When it does, about half the time it’s permanent – The side effects are severe. • Don’t let them give you anything else first • Here are four doctors in your area who do it
- 14. Surgery & Interleukin worked
- 16. How can it be that the most useful and relevant and up-to-the-minute information can exist outside of traditional channels?
- 17. Answer: The world has changed so new things are possible.
- 18. Because of the Web, patients can connect to information and each other
- 20. November 2014
- 21. Self-Monitoring CAN Improve Outcomes Withings Wi-Fi scale Pre-Diabetes Diagnosis Fitness wristband & heart band YMCA Diabetes Prevention Program (food training & physical activity) MyFitnessPal diet tracking app Strong support from spouse
- 22. OMG, I’m a runner now
- 23. I want this INTEGRATED with all the data my doctor has: so we have one picture of my health! OMG, I’m a runner now
- 25. What do we mean by “empowered”?
- 26. Empowerment “Increasing the capacity of individuals or groups to make choices [about what they want] and to transform those choices into desired actions & outcomes” World Bank, 2002
- 27. Empowerment “An empowering approach to participation treats poor people as co-producers with authority and control over decisions and resources devolved to the lowest appropriate level.”
- 28. Empowerment “An empowering approach to participation treats patients as co-producers with authority and control over decisions and resources devolved to the lowest appropriate level.”
- 29. October 2007 2.8 e-PatientYears in Pictures December 2006 May 2009
- 31. “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com Doctors & Patients on the Same Page: The transformational power of technology in healthcare