Opening keynote at DIA Europe, Vienna, Feb 5, 2019. Our paradigm of patient is significantly out of date, and it's holding back progress - a new class of "Superpatients" are *extending* science when the doctors are out of answers. Amazing!
This document outlines the principles of participatory medicine as described by "e-Patient Dave" deBronkart. It discusses how access to information empowers patients and allows them to contribute to medical knowledge. When patients are informed and engaged in their care, they can perform better. The emergence of online communities and social media has created new opportunities for patients to connect with information and each other outside of traditional healthcare systems. True empowerment involves treating patients as partners in decisions about their own care.
High-powered webcast to NNLM Feb 21, 2019. Introduces the Superpatient concept, contrasts it with generic "citizen scientists," gives several examples, addresses the cultural obstacles that hold back progress, and asks how medical libraries might encourage and support superpatients in their efforts.
Expanded version of a short panel presentation on the subject of mHealth. My point was that mHealth has meaning only in the larger context of an important reality: the best quality care depends on having the best information, so THAT is what we need to be thinking about.
The guide has brought together researchers working in some of the most significant, cutting edge fields. They told us that if policy makers and the public are discouraged by the existence of uncertainty, we miss out on important discussions about the development of new drugs, taking action to mitigate the impact of natural hazards, how to respond to the changing climate and to pandemic threats.
The guide discusses:
- The way scientists use uncertainty to express how confident they are about results.
- That uncertainty can be abused to undermine evidence or to suggest anything could be true: from alternative cancer treatments to anthropogenic CO2 not changing the atmosphere.
- Why uncertainty is not a barrier to taking action – decision makers usually look for a higher level of certainty for an operational decision (such as introducing body scanners in airports) than for a decision based on broader ideology or politics (such as reducing crime rates).
Evaluating medical evidence for journalistsIvan Oransky
This document provides tips for journalists on evaluating medical evidence from studies. It discusses issues like the reliability of peer review and publication bias. It also covers challenges like overreliance on embargoed studies, how often studies are later found to be wrong, and the rise in retractions. The document provides advice on getting studies, assessing study quality, considering benefits and harms, and maintaining objectivity. It emphasizes the importance of reading full studies rather than just press releases or abstracts. Overall, the document aims to help journalists critically evaluate medical studies and provide accurate reporting to readers.
Covering Medical Studies: How Not to Get It WrongIvan Oransky
This document provides guidance on how to accurately summarize and report on medical studies to avoid misrepresenting results. It emphasizes the importance of reading full studies, asking clarifying questions of authors, considering limitations and biases, disclosing conflicts of interest, and relying on outside experts rather than just study authors when evaluating results. The goal is to help readers make informed health decisions by providing coverage that reflects the evidence objectively and acknowledges uncertainty.
The document provides tips for researchers on how to effectively communicate their work to health journalists. It discusses who typically covers health news and their educational backgrounds. It also outlines how Reuters Health selects and covers stories, and how other outlets cover stories. The document then provides specific tips for researchers, such as improving press releases, pitching stories by showing context, using social media to develop relationships with reporters, avoiding "disease of the month" topics, and effectively using embargoes. It encourages researchers to get to know the Association of Health Care Journalists for resources and networking.
Tips for covering conflicts of interestIvan Oransky
This document summarizes tips for reporting on conflicts of interest in research studies and clinical trials. It discusses how funding can influence study results and presents examples of journals facing conflicts of interest from pharmaceutical industry profits. The tips include verifying what "no conflicts of interest" means, asking study authors directly about potential conflicts, having other experts critically review studies, finding examples of journals that refuse industry funding, and properly citing other reports that have uncovered conflicts of interest issues.
This document outlines the principles of participatory medicine as described by "e-Patient Dave" deBronkart. It discusses how access to information empowers patients and allows them to contribute to medical knowledge. When patients are informed and engaged in their care, they can perform better. The emergence of online communities and social media has created new opportunities for patients to connect with information and each other outside of traditional healthcare systems. True empowerment involves treating patients as partners in decisions about their own care.
High-powered webcast to NNLM Feb 21, 2019. Introduces the Superpatient concept, contrasts it with generic "citizen scientists," gives several examples, addresses the cultural obstacles that hold back progress, and asks how medical libraries might encourage and support superpatients in their efforts.
Expanded version of a short panel presentation on the subject of mHealth. My point was that mHealth has meaning only in the larger context of an important reality: the best quality care depends on having the best information, so THAT is what we need to be thinking about.
The guide has brought together researchers working in some of the most significant, cutting edge fields. They told us that if policy makers and the public are discouraged by the existence of uncertainty, we miss out on important discussions about the development of new drugs, taking action to mitigate the impact of natural hazards, how to respond to the changing climate and to pandemic threats.
The guide discusses:
- The way scientists use uncertainty to express how confident they are about results.
- That uncertainty can be abused to undermine evidence or to suggest anything could be true: from alternative cancer treatments to anthropogenic CO2 not changing the atmosphere.
- Why uncertainty is not a barrier to taking action – decision makers usually look for a higher level of certainty for an operational decision (such as introducing body scanners in airports) than for a decision based on broader ideology or politics (such as reducing crime rates).
Evaluating medical evidence for journalistsIvan Oransky
This document provides tips for journalists on evaluating medical evidence from studies. It discusses issues like the reliability of peer review and publication bias. It also covers challenges like overreliance on embargoed studies, how often studies are later found to be wrong, and the rise in retractions. The document provides advice on getting studies, assessing study quality, considering benefits and harms, and maintaining objectivity. It emphasizes the importance of reading full studies rather than just press releases or abstracts. Overall, the document aims to help journalists critically evaluate medical studies and provide accurate reporting to readers.
Covering Medical Studies: How Not to Get It WrongIvan Oransky
This document provides guidance on how to accurately summarize and report on medical studies to avoid misrepresenting results. It emphasizes the importance of reading full studies, asking clarifying questions of authors, considering limitations and biases, disclosing conflicts of interest, and relying on outside experts rather than just study authors when evaluating results. The goal is to help readers make informed health decisions by providing coverage that reflects the evidence objectively and acknowledges uncertainty.
The document provides tips for researchers on how to effectively communicate their work to health journalists. It discusses who typically covers health news and their educational backgrounds. It also outlines how Reuters Health selects and covers stories, and how other outlets cover stories. The document then provides specific tips for researchers, such as improving press releases, pitching stories by showing context, using social media to develop relationships with reporters, avoiding "disease of the month" topics, and effectively using embargoes. It encourages researchers to get to know the Association of Health Care Journalists for resources and networking.
Tips for covering conflicts of interestIvan Oransky
This document summarizes tips for reporting on conflicts of interest in research studies and clinical trials. It discusses how funding can influence study results and presents examples of journals facing conflicts of interest from pharmaceutical industry profits. The tips include verifying what "no conflicts of interest" means, asking study authors directly about potential conflicts, having other experts critically review studies, finding examples of journals that refuse industry funding, and properly citing other reports that have uncovered conflicts of interest issues.
This document outlines Dave deBronkart's journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for patient engagement and empowerment. It discusses how he used online resources and connected with other patients online to research his condition, treatment options, and find doctors. This marked a transformation from a closed medical system to an open network where patients can access information and support from each other. The document argues that engaged, empowered patients will be an essential part of the healthcare system going forward to address the growing demographic of older patients. It suggests the concept of patient engagement is going through a paradigm shift as more recognize the importance of patient perspectives in care.
The history of medicine has been a continuous evolution of methods, models, and paradigms as what's possible has changed with new technology. Today the frontier of medicine is "superpatients" - patients who don't just receive care, they literally extend science and create treatments: truly "super" patients. Video of this talk will be available soon!
Dartmouth Summer Institute for Informed Pt Choice (Let Patients Help Decide W...e-Patient Dave deBronkart
This document discusses the importance of patient engagement and empowerment in healthcare. It argues that patients are the largest, yet most neglected, healthcare resource worldwide. While patients are the ultimate stakeholders, they are often excluded from discussions about their own care. The document advocates for letting patients help decide what healthcare outcomes and goals are most important. It presents examples of how greater patient access to medical information and engagement in their own care led to better outcomes.
From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...e-Patient Dave deBronkart
High speed talk to developers at the annual FHIR* Developer Days conference in Amsterdam. The world of health data migration is advancing very rapidly, and the time has come to call for developers to let PATIENTS have full access to every kind of data they need.
* FHIR = Fast Healthcare Interoperability Resources FHIR.HL7.org
- Dave deBronkart is an "e-patient" advocate who became involved in participatory healthcare after being diagnosed with stage IV kidney cancer in 2007.
- Through online research and peer support groups, he learned about treatment options that saved his life, experiencing firsthand how engaged patients can access valuable information.
- He now works full-time advocating for patient empowerment and engagement, speaking internationally at over 500 events about how empowered, informed patients lead to better outcomes and more cost-effective care.
Patient Engagement is Changing What's Possible (e-Patient Dave at Intersystem...e-Patient Dave deBronkart
This document discusses how patient engagement is changing healthcare through increased access to information and connections between patients. It provides examples of how connected patients can share information that leads to better outcomes, such as a patient learning from an online community that an uncommon form of cancer was best treated at hospitals with extensive experience, which likely saved his life. It argues that empowering patients with access to their own health data and information will transform healthcare by supporting patient-clinician partnerships and facilitating patient contributions as vital members of the healthcare learning system.
- Dave deBronkart is an advocate for engaged patients and participatory medicine. He founded the e-Patient Scholars Academy.
- In 2007, he was diagnosed with stage IV kidney cancer but researched online and worked with other patients, which helped him find more effective treatment.
- Connected patients have access to more information sources than ever before due to the internet and social media. This shifts the traditional sources of medical knowledge and competence.
Patients facing chronic illness re-frame their definition of wellness and manage to cope in spite of adversity. This patient led research project delves into the myriad ways that those suffering from chronic illness chart a new path for themselves.
This document provides 10 reasons why patients should Google their medical conditions. It begins with a story about a man brought to the emergency room for ingesting an unknown substance. The doctors shut his laptop without determining what he ingested. The document then lists 10 reasons patients should Google: 1) Knowledge is power 2) People perform better when informed 3) No one knows everything 4) Medical advice changes over time 5) New information doesn't instantly reach all doctors 6) Online information can reach patients directly 7) Useful information exists outside medical journals 8) Some medical studies have flaws 9) Patients have a right to know their options 10) Patients have the most at stake in their own health.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
The document discusses how patients can help improve healthcare systems. It notes that patients are often an underutilized resource in information systems, and that the IOM recommends engaging and empowering patients as vital members of care teams. The author shares their personal experience of being diagnosed with cancer in 2007 and how connecting with other patients online helped them learn about treatment options from their doctor. Measuring patient activation and engagement can help achieve the IOM's goal of prioritizing patient needs and perspectives to improve care quality and lower costs.
This document discusses communicating about sensitive medical topics with different audiences. It provides tips for discussing dementia risk factors and unproven treatments with the general public, people with dementia, the press, and patient organizations. The roles of patient organizations in facilitating informed personal choices about off-label treatments are described. Examples are given of resources like ALSUntangled that provide objective information on alternative treatments. The importance of consent, informing family, and the possibility of body donation rejection are covered in relation to donating one's body to medical science. The challenges of involving the public in clinical research through initiatives like Tissue Access for Patient Benefit are also summarized.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
Why aren’t we solving the greatest scientific problems of the world today? Innovation is critical to our nation’s scientific enterprise. However, creative thinking has been on the decline and is not generally taught in academic institutions. Renowned public health scientist and clinician, Dr. Roberta Ness, Dean of the University of Texas Health School of Public Health, believes that students, established scientists, researchers, and engineers can learn to be more innovative. Through her book Innovation Generation: How to Produce Creative and Useful Scientific Ideas, and graduate course on Innovative Thinking at the University of Texas, Dr. Ness provides the framework and tools to “think outside the box.” She shared these basic concepts in this one-hour lecture. Dr. Ness is a leading researcher in women’s health and widely known for her efforts to bridge from research to policy. She is a member of the Institute of Medicine.
The document discusses how Dave deBronkart became an advocate for patient engagement after being diagnosed with cancer in 2007. It outlines his career path from marketing to becoming a full-time patient advocate and speaker in 2010. It emphasizes that patients can provide valuable, timely information to other patients and should be active participants in their own care and in improving the healthcare system.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” The Patient Activation Measure is a powerful tool for understanding where someone's at and how to interact with them differently.
Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
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This document outlines Dave deBronkart's journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for patient engagement and empowerment. It discusses how he used online resources and connected with other patients online to research his condition, treatment options, and find doctors. This marked a transformation from a closed medical system to an open network where patients can access information and support from each other. The document argues that engaged, empowered patients will be an essential part of the healthcare system going forward to address the growing demographic of older patients. It suggests the concept of patient engagement is going through a paradigm shift as more recognize the importance of patient perspectives in care.
The history of medicine has been a continuous evolution of methods, models, and paradigms as what's possible has changed with new technology. Today the frontier of medicine is "superpatients" - patients who don't just receive care, they literally extend science and create treatments: truly "super" patients. Video of this talk will be available soon!
Dartmouth Summer Institute for Informed Pt Choice (Let Patients Help Decide W...e-Patient Dave deBronkart
This document discusses the importance of patient engagement and empowerment in healthcare. It argues that patients are the largest, yet most neglected, healthcare resource worldwide. While patients are the ultimate stakeholders, they are often excluded from discussions about their own care. The document advocates for letting patients help decide what healthcare outcomes and goals are most important. It presents examples of how greater patient access to medical information and engagement in their own care led to better outcomes.
From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...e-Patient Dave deBronkart
High speed talk to developers at the annual FHIR* Developer Days conference in Amsterdam. The world of health data migration is advancing very rapidly, and the time has come to call for developers to let PATIENTS have full access to every kind of data they need.
* FHIR = Fast Healthcare Interoperability Resources FHIR.HL7.org
- Dave deBronkart is an "e-patient" advocate who became involved in participatory healthcare after being diagnosed with stage IV kidney cancer in 2007.
- Through online research and peer support groups, he learned about treatment options that saved his life, experiencing firsthand how engaged patients can access valuable information.
- He now works full-time advocating for patient empowerment and engagement, speaking internationally at over 500 events about how empowered, informed patients lead to better outcomes and more cost-effective care.
Patient Engagement is Changing What's Possible (e-Patient Dave at Intersystem...e-Patient Dave deBronkart
This document discusses how patient engagement is changing healthcare through increased access to information and connections between patients. It provides examples of how connected patients can share information that leads to better outcomes, such as a patient learning from an online community that an uncommon form of cancer was best treated at hospitals with extensive experience, which likely saved his life. It argues that empowering patients with access to their own health data and information will transform healthcare by supporting patient-clinician partnerships and facilitating patient contributions as vital members of the healthcare learning system.
- Dave deBronkart is an advocate for engaged patients and participatory medicine. He founded the e-Patient Scholars Academy.
- In 2007, he was diagnosed with stage IV kidney cancer but researched online and worked with other patients, which helped him find more effective treatment.
- Connected patients have access to more information sources than ever before due to the internet and social media. This shifts the traditional sources of medical knowledge and competence.
Patients facing chronic illness re-frame their definition of wellness and manage to cope in spite of adversity. This patient led research project delves into the myriad ways that those suffering from chronic illness chart a new path for themselves.
This document provides 10 reasons why patients should Google their medical conditions. It begins with a story about a man brought to the emergency room for ingesting an unknown substance. The doctors shut his laptop without determining what he ingested. The document then lists 10 reasons patients should Google: 1) Knowledge is power 2) People perform better when informed 3) No one knows everything 4) Medical advice changes over time 5) New information doesn't instantly reach all doctors 6) Online information can reach patients directly 7) Useful information exists outside medical journals 8) Some medical studies have flaws 9) Patients have a right to know their options 10) Patients have the most at stake in their own health.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
The document discusses how patients can help improve healthcare systems. It notes that patients are often an underutilized resource in information systems, and that the IOM recommends engaging and empowering patients as vital members of care teams. The author shares their personal experience of being diagnosed with cancer in 2007 and how connecting with other patients online helped them learn about treatment options from their doctor. Measuring patient activation and engagement can help achieve the IOM's goal of prioritizing patient needs and perspectives to improve care quality and lower costs.
This document discusses communicating about sensitive medical topics with different audiences. It provides tips for discussing dementia risk factors and unproven treatments with the general public, people with dementia, the press, and patient organizations. The roles of patient organizations in facilitating informed personal choices about off-label treatments are described. Examples are given of resources like ALSUntangled that provide objective information on alternative treatments. The importance of consent, informing family, and the possibility of body donation rejection are covered in relation to donating one's body to medical science. The challenges of involving the public in clinical research through initiatives like Tissue Access for Patient Benefit are also summarized.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
Why aren’t we solving the greatest scientific problems of the world today? Innovation is critical to our nation’s scientific enterprise. However, creative thinking has been on the decline and is not generally taught in academic institutions. Renowned public health scientist and clinician, Dr. Roberta Ness, Dean of the University of Texas Health School of Public Health, believes that students, established scientists, researchers, and engineers can learn to be more innovative. Through her book Innovation Generation: How to Produce Creative and Useful Scientific Ideas, and graduate course on Innovative Thinking at the University of Texas, Dr. Ness provides the framework and tools to “think outside the box.” She shared these basic concepts in this one-hour lecture. Dr. Ness is a leading researcher in women’s health and widely known for her efforts to bridge from research to policy. She is a member of the Institute of Medicine.
The document discusses how Dave deBronkart became an advocate for patient engagement after being diagnosed with cancer in 2007. It outlines his career path from marketing to becoming a full-time patient advocate and speaker in 2010. It emphasizes that patients can provide valuable, timely information to other patients and should be active participants in their own care and in improving the healthcare system.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” The Patient Activation Measure is a powerful tool for understanding where someone's at and how to interact with them differently.
Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
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This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for empowering patients through access to health information and online communities. It discusses his background and work promoting participatory medicine. It outlines how patients can help healthcare achieve its potential by checking their medical records, asking clinicians to share screens, accessing open notes, reviewing hospital safety scores, accessing podcasts and case managers. The overall message is that when patients are informed and engaged, medicine can better achieve its goals.
This document profiles "e-Patient Dave" deBronkart, a patient engagement advocate. It summarizes his journey from a marketing career to becoming a full-time patient advocate after being diagnosed with cancer in 2007. It describes how he utilized online resources and patient communities to help make treatment decisions and find an effective immunotherapy. The document advocates for greater patient empowerment and participation in healthcare, citing examples of highly engaged "e-patients" who are helping to advance medicine through open data sharing and DIY medical innovations.
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This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for engaged patients and participatory healthcare. It summarizes his journey from being diagnosed with late-stage kidney cancer in 2007 to becoming a full-time patient engagement advocate by 2010. It highlights how he utilized online resources and connected with other patients to actively participate in his own care and treatment decisions, ultimately finding success through an unconventional therapy. The document advocates that patients can be an underused resource and that online connections allow information and support to exist outside traditional healthcare channels.
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The document discusses how views of aging have changed since the 1970s. It notes that in her writing from that time, author Simone de Beauvoir seemed fatalistic and hopeless about aging. However, the document suggests de Beauvoir would now encourage empowerment rather than fatalism, given advances in medicine, health, technology, and individuals' increased access to information. Empowering patients and families with information helps them make choices and improve their health and care.
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11. My patient peers told me:
• Welcome to the club nobody wants to join.
We know what it’s like.
• This is an uncommon disease –
get to a hospital that does a lot of cases
• There’s no cure,
but HDIL-2 sometimes works.
• When it does, about half the time it’s permanent
• The side effects are severe.
• Don’t let them give you anything else first
• Here are four doctors in your area who do it
12. My patient peers told me:
• Welcome to the club nobody wants to join.
We know what it’s like.
• This is an uncommon disease –
get to a hospital that does a lot of cases
• There’s no cure,
but HDIL-2 sometimes works.
• When it does, about half the time it’s permanent
• The side effects are severe.
• Don’t let them give you anything else first
• Here are four doctors in your area who do it
28. Kate Sheridan – nasty Lyme case
•30 doctors
•15 diagnoses
•From
star student
to unable
to read
a single page
29.
30. Kate’s view – at Oxford now
“There are many patients
out there who have far
crazier stories …
but who do not have the
tools to share them.
I am asking you
to help us change that.”
39. Empowerment
“An empowering approach to
participation treats poor people
as co-producers
with authority and control
over decisions and resources
devolved to the lowest
appropriate level.”
40. Empowerment
“An empowering approach to
participation treats patients
as co-producers
with authority and control
over decisions and resources
devolved to the lowest
appropriate level.”
41. THAT
is a paradigm change
for patient experience,
empowerment,
and engagement.
42. “A new scientific truth
does not triumph
by convincing its opponents
and making them see the light,
Max Planck Nobel Prize, 1918
“A new scientific truth
does not triumph
by convincing its opponents
and making them see the light,
but rather because
its opponents eventually die,
“A new scientific truth
does not triumph
by convincing its opponents
and making them see the light,
but rather because
its opponents eventually die,
and a new generation grows up
that is familiar with it.”
43. You come to conferences
so you will be a leader,
not a dinosaur
waiting to die.