Social media and patients associations: get social!
•Download as PPTX, PDF•
1 like•13,699 views
The document discusses why patient associations should use social media. It notes that patients now spend most of their time on social media and look online for health information. Patient associations need to connect with patients in the digital space by establishing a presence on popular social media sites. Maintaining a webpage can also help patient associations spread information and raise disease awareness more effectively. The presentation provides tips on how patient associations can best utilize social media and maximize their online impact.
Recommended
Recommended
More Related Content
What's hot
What's hot (20)
Viewers also liked
Viewers also liked (20)
Similar to Social media and patients associations: get social!
Similar to Social media and patients associations: get social! (20)
Recently uploaded
Recently uploaded (20)
Social media and patients associations: get social!
- 1. Social Media and Patient Associations Spread the word! Nuria Zúñiga Serrano @tulupus http://tulupusesmilupus.com
- 2. Why patient associations should use social media? Lupus Europe 25th Annual Convention Helsinki, September 2014 Patient associations have to be where the patients are Nowadays patients spend most of their time in social media Average Time visitors spend on social networking sites per month Social Media and Patient Associations Spread the word!
- 3. Patients look in the Internet for health info Lupus Europe 25th Annual Convention Helsinki, September 2014 72% of Internet users looked for health information online Including seaches on serious conditions, general information and minor health problems Pew Research Center’s Internet & American Life Project Social Media and Patient Associations Spread the word!
- 4. Support needed also in the digital space Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word! They look for symptoms To figure out possible diagnosis How to treat them And find a miraculous cure for their chronic illness
- 5. Where patients get the information from? Not many of them know that there is a patient association that can help them! Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word!
- 6. Lupus Europe 25th Annual Convention Helsinki, September 2014 The world has changed And patient associations must adapt to what rules the world e-health Social Media and Patient Associations Spread the word!
- 7. Where should a patient association be? It is very difficult to be in every single social network. We have to choose according to: o What kind of information I want to share Lupus Europe 25th Annual Convention Helsinki, September 2014 o My resources an knowledge o Where is the people I want to reach Social Media and Patient Associations Spread the word!
- 8. Join a social network to get the best of it Gain experience, followers and be outstanding one at a time Lupus Europe 25th Annual Convention Helsinki, September 2014 Resources and Knowledge If you do something, do it well Being in too many networks may mean not enough time to attend properly all of them Social Media and Patient Associations Spread the word!
- 9. Where is the people I want to reach By clicking , users can give visibility to our article or event. They can it and it, enhancing the patient-association Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word! relationship. Patient associations can also interact and help each other by sharing their statuses, events, etc. Short and easy-to-read messages. By the use of hashtags, anything can be spread and followed really quickly.
- 10. Lupus Europe 25th Annual Convention Helsinki, September 2014 Some tricks… Use hashtags for events. It makes it easier for people to follow that event. They can also participate in it without being present By creating lists, we can easily create contents for our followers and ourselves In the event of not knowing what to share we can also retweet making our content viral and our presence stronger Social Media and Patient Associations Spread the word!
- 11. Lupus Europe 25th Annual Convention Helsinki, September 2014 Impact of a tweet Social Media and Patient Associations Spread the word!
- 12. Lupus Europe 25th Annual Convention Helsinki, September 2014 What kind of info do I want to share Different networks with different usages Social Media and Patient Associations Spread the word!
- 13. Lupus Europe 25th Annual Convention Helsinki, September 2014 Image and Social Media What people could think about patient associations Social Media and Patient Associations Spread the word!
- 14. Lupus Europe 25th Annual Convention Helsinki, September 2014 Image and Social Media What patient associations can be Social Media and Patient Associations Spread the word!
- 15. It is easy to control social media Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word!
- 16. Should patient associations have a webpage? Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word! It gives you a better image It is easy It can be free It provides quick access to information
- 17. Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word!
- 18. Lupus Europe 25th Annual Convention Helsinki, September 2014 Impact of a webpage If a single blog post is shared 130 times in Twitter and more than 4,000 times in Facebook… …imagine what a whole webpage can do to spread lupus awareness!!! Social Media and Patient Associations Spread the word!
- 19. Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word!
- 20. Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word!
- 21. Lupus Europe 25th Annual Convention Helsinki, September 2014 Social Media and Patient Associations Spread the word! Nuria Zúñiga Serrano @tulupus http://tulupusesmilupus.com
Editor's Notes
- Not only patients share their personal life and issues in the internet but they also look for health information.
- Symptoms Possible diagnosis How to treat it Miraculous cure for their chronic illness
- As a blogger I have a lot of experience on what people look for and what they know about lupus. And not many of them know that there is a patient association that can help them. Everyday I find myself contacting patients with their associations… Why? Because some patients associations haven’t become social… And if you are not in social media, you don´t exist. Cruel but true.
- My resources and knowledge If you do it something, do it well. Joining a social network does not only means signing up but getting the best of it both you and the people following you. Don´t join several social networks at the same time. Gain experience, followers and be outstanding one at a time. Being in too many networks may mean not enough time to attend properly all of them. Where the people I want to reach is? There are many social networks and maybe internet has no limits… but we, as associations, do have limits (shame!). Choose well where you want to be. We will look into this matter later on ;-). What kind of information I want to share The e-health has no limits! We can share photos, our activities, videos or simply say hello to the world. What kind of information do you want to share? Learn what each network is used for: