Research Data Access and Preservation Summit, 2016 Atlanta, GA May 4-7, 2016 Part of Panel 5, "DMPs and Public Access: Agency and Data Service Experiences" Presenter: Lisa Federer, National Institutes of Health Panel Lead: Margaret Henderson, Virginia Commonwealth University

1. DMPs and Public Access: An NIH
Perspective
Lisa Federer, MLIS, MA, AHIP
Research Data Informationist
@lisafederer

2. My position: The NIH Library
http://nihlibrary.nih.gov/

3. BD2K and data at the NIH
https://datascience.nih.gov/

4. Existing NIH Data Sharing Policy
http://grants.nih.gov/grants/policy/data_sharing/

5. Existing NIH Data Sharing Policy
“investigators submitting an NIH application
seeking $500,000 or more in direct costs in any
single year are expected to include a plan for data
sharing or state why data sharing is not
possible…[data must be shared] no later than the
acceptance for publication of the main findings
from the final data set.”
http://grants.nih.gov/grants/policy/data_sharing/

6. NIH Genomic Data Sharing Policy
https://gds.nih.gov/03policy2.html

7. NIH Genomic Data Sharing Policy
https://gds.nih.gov/03policy2.html
“The GDS Policy applies to all NIH-funded
research that generates large-scale human or non-
human genomic data as well as the use of these
data for subsequent research. Large-scale data
include genome-wide association studies (GWAS),
single nucleotide polymorphisms (SNP) arrays,
and genome sequence, transcriptomic,
metagenomic, epigenomic, and gene expression
data, irrespective of funding level and funding
mechanism (e.g., grant, contract, cooperative
agreement, or intramural support).”

8. Future NIH plans
http://grants.nih.gov/grants/NIH-Public-Access-Plan.pdf

9. Future NIH plans
http://grants.nih.gov/grants/NIH-Public-Access-Plan.pdf
“NIH will explore the development of
policies to require NIH-funded researchers
to make the data underlying the
conclusions of peer-reviewed scientific
research publications freely available in
public repositories at the time of publication
in machine readable formats. NIH will
ensure that data management plans
include clear plans for sharing research
data. NIH is taking steps to ensure all NIH-
funded researchers develop data
management plans whether they are
funded by a grant, cooperative agreement,
contract, or intramural funds, regardless of
funding level.”

10. Researchers will probably need help…
Federer, L. M., Lu, Y.-L., & Joubert, D. J. (2016). Data literacy training needs
of biomedical researchers. Journal of the Medical Library Association :
JMLA, 104(1), 52–57. http://doi.org/10.3163/1536-5050.104.1.008

11. …so get ready!
Imgsource:http://realfamilytrips.com/wp-content/uploads/2013/10/how-to-
prepare-your-kids_assign-destination.jpg

12. Thank you!
Lisa Federer, MLIS, MA, AHIP
Research Data Informationist
lisa.federer@nih.gov
@lisafederer
NIH Library Data Services resources:
http://nihlibrary.campusguides.com/dataservices/