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ETHICS
IN SOCIAL
SCIENCES AND
HEALTH
RESEARCH
RYAN MICHAEL F. ODUCADO, MAN, MAED, RN, RM, LPT
Research Coordinator, West Visayas State University College of Nursing
Member, PNA Ethics Review Committee
OUTLINE
 Preliminaries, Definitions, Scope
 Relationship Between Health and Social
Science Research
 Debates and Ethical Issues in Social
Science Research
 Navigating Ethical Issues in Social
Science Research
Preliminaries,
Definitions,
Scope
Research: is an activity that aims to
develop or contribute to knowledge that
can be generalized or any accumulation
of information using scientific methods,
observation, inference, and analysis
(NEGHHR, 2017)
Social Science Research: seeks to
understand and investigate complex
issues – cultural, legal, economic and
political phenomenon (Freed-Taylor,
1994)
Preliminaries,
Definitions,
Scope
Research Involving Human
Participants:
include any social science, biomedical,
behavioral, or epidemiological activity that entails
systematic collection or analysis of data with the
intent to generate new knowledge in which
human beings:
(1) are exposed to manipulation, intervention,
observation, or other interaction with investigators,
either directly or through alteration of their
environment; or
(2) become individually identifiable through
investigators’ collection, preparation, or use of
biological material or medical or other records.
(Preamble 1, Declaration of Helsinki 2013)
Preliminaries,
Definitions,
Scope
Health research: encompasses all research that
seeks to understand the impact of processes,
policies, actions, or events originating in any sector
on the well-being of individuals and communities;
and to assist in developing interventions that will
help prevent or mitigate their negative impact, and
in so doing, contribute to the achievement of health
equity and better health for all.
Health-related research: outside of the
aforementioned description for health research, but
where the research procedures and outcomes can
affect the well-being of the participants and the
community.
The Philippine National Health Research System Act (RA 10532) Joint IRR
Relationship
between health and
social science
research
 All health research involving human participants are conducted within
a social context
 Differences in conflicting theoretical and methodological
approaches may lead to divergences in ethical considerations and
requirements
 All social research involving human participants have possible health
and health-related implications
(NEGHHR, 2017)
The SYMBIOTIC and COMPLEX relationship
between health and social research
 Social science researches are firmly embedded in the field of health
policy and systems research
 It shapes our methods of enquiry and provides key critical theory
through which we can understand the people and the processes that
shape health systems
 These researches take into account the perspectives of the public
and those at the forefront of health service implementation
 Social science researches help to ‘understand’ human behavior
(Sheikh, 2011; Daniels, 2017)
Importance of social science in health
research
Researching the social: a complex
process
Ethics
Social and
personal
change
Cultural
factors and
assumption
s
Human
ambiguity
and
irrationality
Hawthorne
effect
Social
awareness
(Walter, 2010)
Debates and
Ethical Issues in
Social Science
Research
 How research plays in addressing social inequities
 Power relations between the researcher and the
participants
 The nature of the risks to participants and the strategies to
mitigate them may not be as easily apparent
Debate of ethical issues in social research
NEGHHR, 2017
 Conducting cover research
 Role of the researcher as a participant-observer
 Research among “vulnerable” groups
 Changes taking place in research governance and
regulation for social researchers to research projects
assessed by Ethics Committees.
Debate of ethical issues in social research
Madushani, 2010
Joint DOST, DOH, CHED,
and UPM Memorandum
Order 001 Series of 2012:
Requirement for Ethical
Review of Health Research
Involving Human
Participants
Orders and
Memorandums
Kinds of Ethics
Review
1. Exempted From Review:
required for protocols that do not
involve more than minimal risk
2. Expedited Review: done by the
REC for proposals that do not
need a full review; refers to the
number of REC members doing
the initial review
3. Full Review: required for
protocols that entail more than
minimal risk to participants or
those that involve vulnerability
issues.
(NEGHHR, 2017)
Ethical issues confronting different types
of social research
(Kelman, 1982)
Ethical issues confronting different types
of social research
(Kelman, 1982)
Ethical issues confronting different types
of social research
(Kelman, 1982)
Navigating Ethical
Issues in Social
Science Research
The Belmont Report
 Created by the National Commission
for the Protection of Human Subjects
of Biomedical and Behavioral
Research in 1979
 Identified basic ethical principles
that should underlie the conduct of
biomedical and behavioral research
involving human subjects
Basic ethical principles
Whether in social or health sciences, there are
fundamental ethical principles that are recognized
by all in the ethical conduct of research. Of prime
importance are the concern for the rights and well-
being of the research participants.
Ryan Michael F. Oducado

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Ethics in Social Sciences and Health Research

  • 1. ETHICS IN SOCIAL SCIENCES AND HEALTH RESEARCH RYAN MICHAEL F. ODUCADO, MAN, MAED, RN, RM, LPT Research Coordinator, West Visayas State University College of Nursing Member, PNA Ethics Review Committee
  • 2.
  • 3.
  • 4. OUTLINE  Preliminaries, Definitions, Scope  Relationship Between Health and Social Science Research  Debates and Ethical Issues in Social Science Research  Navigating Ethical Issues in Social Science Research
  • 5. Preliminaries, Definitions, Scope Research: is an activity that aims to develop or contribute to knowledge that can be generalized or any accumulation of information using scientific methods, observation, inference, and analysis (NEGHHR, 2017) Social Science Research: seeks to understand and investigate complex issues – cultural, legal, economic and political phenomenon (Freed-Taylor, 1994)
  • 6. Preliminaries, Definitions, Scope Research Involving Human Participants: include any social science, biomedical, behavioral, or epidemiological activity that entails systematic collection or analysis of data with the intent to generate new knowledge in which human beings: (1) are exposed to manipulation, intervention, observation, or other interaction with investigators, either directly or through alteration of their environment; or (2) become individually identifiable through investigators’ collection, preparation, or use of biological material or medical or other records. (Preamble 1, Declaration of Helsinki 2013)
  • 7. Preliminaries, Definitions, Scope Health research: encompasses all research that seeks to understand the impact of processes, policies, actions, or events originating in any sector on the well-being of individuals and communities; and to assist in developing interventions that will help prevent or mitigate their negative impact, and in so doing, contribute to the achievement of health equity and better health for all. Health-related research: outside of the aforementioned description for health research, but where the research procedures and outcomes can affect the well-being of the participants and the community. The Philippine National Health Research System Act (RA 10532) Joint IRR
  • 9.  All health research involving human participants are conducted within a social context  Differences in conflicting theoretical and methodological approaches may lead to divergences in ethical considerations and requirements  All social research involving human participants have possible health and health-related implications (NEGHHR, 2017) The SYMBIOTIC and COMPLEX relationship between health and social research
  • 10.
  • 11.  Social science researches are firmly embedded in the field of health policy and systems research  It shapes our methods of enquiry and provides key critical theory through which we can understand the people and the processes that shape health systems  These researches take into account the perspectives of the public and those at the forefront of health service implementation  Social science researches help to ‘understand’ human behavior (Sheikh, 2011; Daniels, 2017) Importance of social science in health research
  • 12. Researching the social: a complex process Ethics Social and personal change Cultural factors and assumption s Human ambiguity and irrationality Hawthorne effect Social awareness (Walter, 2010)
  • 13. Debates and Ethical Issues in Social Science Research
  • 14.  How research plays in addressing social inequities  Power relations between the researcher and the participants  The nature of the risks to participants and the strategies to mitigate them may not be as easily apparent Debate of ethical issues in social research NEGHHR, 2017
  • 15.  Conducting cover research  Role of the researcher as a participant-observer  Research among “vulnerable” groups  Changes taking place in research governance and regulation for social researchers to research projects assessed by Ethics Committees. Debate of ethical issues in social research Madushani, 2010
  • 16. Joint DOST, DOH, CHED, and UPM Memorandum Order 001 Series of 2012: Requirement for Ethical Review of Health Research Involving Human Participants Orders and Memorandums
  • 17. Kinds of Ethics Review 1. Exempted From Review: required for protocols that do not involve more than minimal risk 2. Expedited Review: done by the REC for proposals that do not need a full review; refers to the number of REC members doing the initial review 3. Full Review: required for protocols that entail more than minimal risk to participants or those that involve vulnerability issues. (NEGHHR, 2017)
  • 18. Ethical issues confronting different types of social research (Kelman, 1982)
  • 19. Ethical issues confronting different types of social research (Kelman, 1982)
  • 20. Ethical issues confronting different types of social research (Kelman, 1982)
  • 21. Navigating Ethical Issues in Social Science Research The Belmont Report  Created by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research in 1979  Identified basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects
  • 23.
  • 24. Whether in social or health sciences, there are fundamental ethical principles that are recognized by all in the ethical conduct of research. Of prime importance are the concern for the rights and well- being of the research participants. Ryan Michael F. Oducado

Editor's Notes

  1. Research: an activity that aims to develop or contribute to knowledge that can be generalized (including theories, principles, relationships), or any accumulation of information using scientific methods, observation, inference, and analysis (NEGHHR, 2017)
  2. This means that “research involving human participants” does not only mean direct interaction of the researcher with an individual or groups of individuals, but also includes research using identifiable human material and data
  3. Ethics: itmportant to protect our human subjects from us as researchers, and to protect us from ourselves Human ambiguity, and irrationality: People and society are not always rational or predictable; answers from respondents cannot be regarded as fact or unambiguous Social awarness: Our social awareness should not get in the way of data analysis Social and Personal change: People and societies are not static; researches done in 1980 can produce very different results when carried out in 2018 Cultural factors and assumptions: Our assumptions can blind us to some social questions and answers Hawthorne effect: Research results can be affected by the subject’s interpretation of what the research is about
  4. Social inequalities - First element of research is it must have social value. Social value refers to the relevance of the study to an existing social or health problem such that the results are expected to bring about a better understanding of related issues, or contribute to the promotion of well-being of individuals, their families, and communities. Power relations – may impact the informed consent process. The relationship between the researchers and the people they study involves an inherent imbalance in power in favor of the researcher. Ensuring participants have, and perceive themselves to have, adequate power to determine their role in the research is seen as ethically necessary. Participation is voluntary and they have the ability to withdraw from the study at any point. The nature of the risks to participants and the strategies to mitigate them may not be as easily apparent, as they go beyond physical or health risks.
  5. Covert research - covert research is appropriate where it is necessary to achieve a better understanding of a social phenomenon; however covert research is may likely invade the privacy of the respondent Participant observer - researcher should be neutral in order to maintain their aim of ‘objectivity’ in their research project, however researchers may find it difficult to make objective judgments in their research if they are personally connected with their respondents Vulnerable groups – include or not include in research, researchers more likely to exclude them from research thus to deprive them of the benefits of research Vulnerable groups shall not be included in research unless such research: 20.1. Is necessary to promote the welfare of the population represented; and 20.2. Cannot be performed on non-vulnerable persons or groups.
  6. Developed guidelines assure that such research is conducted in accordance with those principles
  7. Informed consent. Subjects should have been given enough information about the research for them to know what their participation involves. Consent should be gained in the most convenient, least disturbing manner for both researcher and researched. Subjects should be able to choose ‘freely’ to participate in research. If confidentiality and/or anonymity have been promised then the steps taken to ensure this should be outlined. Researchers should detail the steps taken to minimise harm and to maximise benefits. Some overall judgement will then have to be made about the anticipated benefits of the project outweighing the estimated potential for harm. In research involving human participants the principle of justice refers primarily to distributive justice, which requires the equitable distribution of both the burdens and the benefits of participation in research. That is, it should not be the case that one group in society bears the costs of research while another group reaps its benefits. Research should not worsen existing health and social inequities.