This document discusses using health information technology (HIT) in a meaningful way for patients and consumers. It touches on several topics: 1) Enabling patients to access their health information such as care receipts and after visit summaries through personal apps and devices. 2) Incorporating patient-generated data from these sources into electronic health records (EHRs) to improve care management with considerations for privacy. 3) The policy and infrastructure challenges of exporting health data from EHRs so patients can access and use it meaningfully as well as the role of providers and evidence of benefits. 4) Using mobile applications and quantified self-tracking to engage patients before and after care through reminders, logs

1. Mashing Meaningful Use with Insanely Great

2. AgendaSome dots to connect (20 minutes)

3. Meaningful Use

4. Care Receipt for every clinical visit

5. After Visit Summary for each transaction

6. Quantified Self

7. Personal apps can share

8. Devices share their observations

9. iPhone development brief (20 minutes)

10. Design session (20 minutes)Real Lives are Meaningful UsePanel 1: Meaningful Use of HIT in the Real Lives of Patients & Familiesa. What are consumers’ health information needs in the context of their real lives?b. How do results of ethnographic studies of individuals with chronic health conditions inform our understanding of how HIT can improve their use of health information and connectivity with their providers to improve their health?c. What is the evidence base for patient benefit from their direct use of PHRs and other HIT that interacts with EHRs?d. What is the role of mobile applications in improving health of individuals? Is there a specific role for underserved populations?e. How can we use HIT to make information and knowledge actionable for patients?f. How does HIT enhance collaboration between patients and their providers and change how the patient’s health is managed?

11. Personal: Key Part of Meaningful UsePanel 2: Incorporating Patient-Generated Data in Meaningful Use of HITa. What is the role of patient-generated data in improving health of individuals? What is the evidence?b. How can patient-reported data be integrated into EHRs and the clinicians’ workflow to improve care management?c. How can future conceptions of personal health information platforms and information tools facilitate patient-centered care, including transparency, coordinated care, patient activation, while protecting patient privacy?d. What is the role of the patient in ensuring data in EHRs is accurate?e. What are your recommendations for meaningful use criteria for 2013 and 2015 that are achievable by a broad spectrum of providers?

12. Time: Key Measure of Meaningful UsePanel 3: Policy Challenges & Infrastructure Requirements to Facilitate Patient/Consumers’ Meaningful Use of HITa. What is required for vendors to be able to export data from EHRs in such a way that consumers and patients can use the data in meaningfully?b. What is the role of providers in making data available to patients in a meaningful way?c. What are the meaningful uses of that data once exported? What evidence of measureable benefits exist?d. What are the privacy and trust issues that might affect this from happening?

13. Managing Disease is a DanceEngagement pre-care Pre-sign up Facility Registration ED Care SignupCare DispositionPOS PaymentPost Care ContinuityEngagement post-carePost POS Payment

14. Diagnose Codes are a triggerAsthma ReportConditionsPDFAccept new entry from LPCH?Your doctor has published a summary of your last visit. Set new reminders?OKCancelCare Receipt for Diagnosis:

15. Asthma exacerbation (493.92 Asthma unspecified with exacerbation)

16. Upper Respiratory Infection (465.9 Acute URI unspecified)

17. Medications and measurements (Inhaler, Peak Flow, Exercise)Recent severity scoresDaily medication useCurrent chief complaintMost current score and trigger for ED Visit

18. Reminding SelfMeaningful Use: AsthmaAssignmentsRemindersLogsReportsMicrosyntax

19. Quantifying SelfEngagement goes deeper into lifestyleMemoriesMindfulnessFriends and Family

20. QuantifiedSelf.org