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The future of Social Media in Global Health 3.0 - #HISI2016 #hcsm #hcsmSA

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Stanford University
Stanford University

A combined workshop session between South African e-Patient and founder of #hcsmSA, Vanessa Carter and Dr. Jamie Saris from Maynooth University, Ireland (Anthropology Senior Lecturer and Co-Chairman of The Global Diseases of Poverty Consortium) TITLE: How Social Networks could influence the future of Health IT System Development Globally. The presentation was given at the Health Informatics Society of Ireland on 17 November 2016. (#HISI2016)

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Presented at the Health Informatics Society of Ireland, #HISI2016 – 17 November 2016 Presented by:Vanessa Carter (Founder of #hcsmSA and South African e-Patient activist) and Dr. Jamie Saris (Maynooth University Anthropology Department and Co-chair of the Global Diseases of Poverty Consortium)
VANESSA CARTER
THE FIRST 8YEARS WERE A FAILURE AFTER MULTIPLE SURGERIES. SILOED CARE AND POOR COMMUNICATION BETWEEN DOCTORS WERE A PROBLEM. RESOURCES ONLINEWERE A MESS.
IN MY 9THYEAR OF SEARCHING ONLINE, I STARTED WRITING OVERSEAS.
ONE DAY A WORLD FAMOUS FACETRANSPLANT SURGEON IN BOSTON OFFEREDTO SKYPE ME. HE HAD SEEN CASES LIKE MINE OFTEN.
ITOOK HIS ADVICE AND SEARCHED FOR DOCTORS IN MY AREA WHO MIMICKED IT. WITHIN 8 MONTHS MY SURGERIESWERE SUCCESSFUL. THE ACCESSTO INFORMATION MADETHE DIFFERENCE.
THE “E” IN E-PATIENT HAS MANY MEANINGS
E-PATIENTS EVOLVE ASTECHNOLOGY EVOLVES
AS WE MOVETOWARDS WEB 3.0 AND INDUSTRY 4.0, E-PATIENTS WILL BECOME EVEN MORE INFORMED WITH CONNECTED OBJECTS AND WEARABLES
IT’S IMPORTANTTO REMEMBER: E-PATIENTS ARE NOT ALL EQUAL. SOME MAY NOT WANTTO USE DIGITAL TECHNOLOGY AND STAY IN A PATERNAL ROLE WITHTHEIR PHYSICIAN. SOME MAY NEED SUPPORTTO UNDERSTAND HOWTO USETECHNOLOGY. OTHERS MAY EXPECT BETTERTECHNOLOGY FROMTHEIR PROVIDER.
ASWE MOVETOWARDS SMART HEALTH, SOCIAL MEDIAWILL PLAY A MAJOR ROLE IN CONNECTING PEOPLE
WE HAVE STARTEDTO DEVELOPA COURSE IN SOUTH AFRICAWHICH TEACHES HCPS AND OTHER STAKEHOLDERS LIKE PATIENTS HOWTO USE THEWEB AND SOCIAL MEDIATO IMPROVE DIGITAL LITERACY FORTHE FUTURE DIGITAL HEALTH SYSTEMS
WE HOST A MONTHLYTWEETCHATTO GAIN INSIGHT FROM DIVERSE STAKEHOLDERS.WE BASE OURTOPICSAROUNDTHE SDG’S. WE PROMOTE COMMUNITY PARTICIPATIONAND IDEA SHARING
A PROMINENT ASPECT OF SOCIAL MEDIA IS HOW IT ENABLES COMMUNITY BUILDING. PATIENT COMMUNITIES ARE ESPECIALLY HELPFULTO PROVIDING PEER-TO-PEER SUPPORT
THERE ARE MANYTECHNICAL APPLICATIONS USING SOCIAL MEDIA, WE HAVE FOCUSED ON HOW OTHERS HAVE BEEN APPLYING ITTO BUILDTHE COURSE
THANKYOU

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The future of Social Media in Global Health 3.0 - #HISI2016 #hcsm #hcsmSA

  • 1. Presented at the Health Informatics Society of Ireland, #HISI2016 – 17 November 2016 Presented by:Vanessa Carter (Founder of #hcsmSA and South African e-Patient activist) and Dr. Jamie Saris (Maynooth University Anthropology Department and Co-chair of the Global Diseases of Poverty Consortium)
  • 3. THE FIRST 8YEARS WERE A FAILURE AFTER MULTIPLE SURGERIES. SILOED CARE AND POOR COMMUNICATION BETWEEN DOCTORS WERE A PROBLEM. RESOURCES ONLINEWERE A MESS.
  • 4. IN MY 9THYEAR OF SEARCHING ONLINE, I STARTED WRITING OVERSEAS.
  • 5. ONE DAY A WORLD FAMOUS FACETRANSPLANT SURGEON IN BOSTON OFFEREDTO SKYPE ME. HE HAD SEEN CASES LIKE MINE OFTEN.
  • 6. ITOOK HIS ADVICE AND SEARCHED FOR DOCTORS IN MY AREA WHO MIMICKED IT. WITHIN 8 MONTHS MY SURGERIESWERE SUCCESSFUL. THE ACCESSTO INFORMATION MADETHE DIFFERENCE.
  • 7. THE “E” IN E-PATIENT HAS MANY MEANINGS
  • 9. AS WE MOVETOWARDS WEB 3.0 AND INDUSTRY 4.0, E-PATIENTS WILL BECOME EVEN MORE INFORMED WITH CONNECTED OBJECTS AND WEARABLES
  • 10. IT’S IMPORTANTTO REMEMBER: E-PATIENTS ARE NOT ALL EQUAL. SOME MAY NOT WANTTO USE DIGITAL TECHNOLOGY AND STAY IN A PATERNAL ROLE WITHTHEIR PHYSICIAN. SOME MAY NEED SUPPORTTO UNDERSTAND HOWTO USETECHNOLOGY. OTHERS MAY EXPECT BETTERTECHNOLOGY FROMTHEIR PROVIDER.
  • 11. ASWE MOVETOWARDS SMART HEALTH, SOCIAL MEDIAWILL PLAY A MAJOR ROLE IN CONNECTING PEOPLE
  • 12. WE HAVE STARTEDTO DEVELOPA COURSE IN SOUTH AFRICAWHICH TEACHES HCPS AND OTHER STAKEHOLDERS LIKE PATIENTS HOWTO USE THEWEB AND SOCIAL MEDIATO IMPROVE DIGITAL LITERACY FORTHE FUTURE DIGITAL HEALTH SYSTEMS
  • 13. WE HOST A MONTHLYTWEETCHATTO GAIN INSIGHT FROM DIVERSE STAKEHOLDERS.WE BASE OURTOPICSAROUNDTHE SDG’S. WE PROMOTE COMMUNITY PARTICIPATIONAND IDEA SHARING
  • 14. A PROMINENT ASPECT OF SOCIAL MEDIA IS HOW IT ENABLES COMMUNITY BUILDING. PATIENT COMMUNITIES ARE ESPECIALLY HELPFULTO PROVIDING PEER-TO-PEER SUPPORT
  • 15. THERE ARE MANYTECHNICAL APPLICATIONS USING SOCIAL MEDIA, WE HAVE FOCUSED ON HOW OTHERS HAVE BEEN APPLYING ITTO BUILDTHE COURSE